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Medical Forum / Diseases and Disorders / Arthritis / October 2006Diane D
Got a call from Diane last night and it was all good. She is moving along really quickly now - standing on her own a bit, more transfering (at a higher stage than she expected to), building some arm muscle again and walking further distances with her walker. She sounded so positive and it sounds like she can come home for good next month! Her rd is contemplating either orencia or rituxan but has said she wouldn't feel uncomfortable putting her back on enbrel. Diane says NO. So positive thoughts everyone. She can read the postings but not send right now. Kelly Kelly, thanks for letting us hear from Diane. Things seem to be getting better, thank goodness. She is still in my prayers. Gwen > Got a call from Diane last night and it was all good. She is moving along > really quickly now - standing on her own a bit, more transfering (at a [quoted text clipped - 8 lines] > > Kelly what gwen said... Duckie > Kelly, thanks for letting us hear from Diane. Things seem to be getting > better, thank goodness. She is still in my prayers. [quoted text clipped - 12 lines] >> >>Kelly Since you can read the posts.....{{{{{{{{{{{Diane}}}}}}}}}}} Thanks, Kelly!! DeeTee > Got a call from Diane last night and it was all good. She is moving along > really quickly now - standing on her own a bit, more transfering (at a [quoted text clipped - 8 lines] > > Kelly Great news, thanks for posting Kelly. How are you doing now? debbie m. > Got a call from Diane last night and it was all good. She is moving along > really quickly now - standing on her own a bit, more transfering (at a [quoted text clipped - 8 lines] > > Kelly Thanks Kelly for keeping us updated about Diane. Diane, this is great news to hear. I am glad you can at least read these where you are. I do hope you do get to make it home soon. You take care, heal and get home as soon as you can. We miss you here.  SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Got a call from Diane last night and it was all good. She is moving along > really quickly now - standing on her own a bit, more transfering (at a [quoted text clipped - 8 lines] > > Kelly thank you, kelly. this is such good news to read. please give diane my love and tell her she is definitely missed around here. kate Got a call from Diane last night and it was all good. She is moving along really quickly now - standing on her own a bit, more transfering (at a higher stage than she expected to), building some arm muscle again and walking further distances with her walker. She sounded so positive and it sounds like she can come home for good next month! Her rd is contemplating either orencia or rituxan but has said she wouldn't feel uncomfortable putting her back on enbrel. Diane says NO. So positive thoughts everyone. She can read the postings but not send right now. Kelly Such wonderful news! It's good to know all her hard work is paying off. I'm with her - stay away from Enbrel! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >Got a call from Diane last night and it was all good. That is great news. I am glad to hear she is making auch steady progress. How are you doing, Kelly? Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. I am really downhill. I get dressed in the morning, lie down for a short bit, go for breakfast (so I get some socializing), maybe get a couple of groceries if any energy left, go home and nap for 3 hours, get up and make dinner (anything quick and easy with no brains) and then usually go have a bath and go back to bed and read until time to sleep. I figure about 1 - 2 hours of function - the rest of the time it is fatique and pain. The rituxan is approved by the doctors, I have to pay about 8,000 the first month and the drug company is picking up the other $3200.00. The problem is who is doing the infusion. The local hospital said they were too busy to start doing anything else so would not even look at it. The rd's office has a pre-existing binding agreement to do clinical trials and remicade and cannot do the rituxan without being sued. Therefore I am being sent to Vancouver and have to see another rd - good one though. I am seeing Alice Klinkoff so am pleased about that. The infusions will be done at the Mary Pack Centre. At least I can stay at moms. So the infusions will probably be the beginning of November in Vancouver - the appointment with the RD was done on an emergency basis - they got me in for Friday. I have written my mla, the health minister, the health critic and the conversation on health crap that they are advertising for the province. So we will see what comes of it. The effexor is working for the depression - stopped crying so that is good. Now if the rituxan will just work on the RA I can get back to being Kelly and not one huge swollen lump of pain and mainly fatique. Shouldn't have asked Rose - more whining! But it will be over soon I hope. This WILL be my med (can't hurt right? - yup said that about enbrel!) Hope your course is going well. Kelly >>Got a call from Diane last night and it was all good. > That is great news. I am glad to hear she is making auch steady [quoted text clipped - 6 lines] > > Please remove "Ima" to reply. >I have written my mla, the health minister, the health critic and the >conversation on health crap that they are advertising for the province. So >we will see what comes of it. Good for you, Kelly, but a damn shame you, the one in pain has to fight for that. The local hospital refused to do it?????!!!!!!!!!!!! What the hell do they think they are doing? Good grief. As a nurse I find that criminal. I hope you get started on the med soon and that it works. Hugs from Ontario. --- Joan >I am really downhill. I am sorry to hear it! That is crap, and I don't call it a whine at all. It is total crap that you have to wait so long and jump through all those hoops. One plus though is that they are very good at the Mary Pack, and your rheumy there is on the front lines for research. If you see OT there say hello from me. LOL What is happening with the house? We have not heard an update. This is my week off between courses. I believe I did well in the last one which was called Social Contexts and Contemporary Issues. I feel that I learned a great deal. I have family members upset with me because I have been so focused on my course work that I have not been able to call. It is hard to balance things sometimes. I have a great class. This is the first time in a while that I have not needed an SEA. Imagine! LOL There will be some who have learning issues, but no serious behavioral or health issues. Since it is my week off, I have developed a bad cold. Goes to show you, eh? I had planned to catch up on a few things, clean the garage, do some exercise; stuff I have not had time to do. The next course starts Monday. Also I have to become thoroughly familiar with BCeSIS because that is the reporting program we are using and I am the resource person. It is a web based system that feeds right into the ministry of ed. It is very complicated and can be very, very slow and finicky. There are many little codes that need to be put in, probably as a security measure. Some of my staff are interested, but we have a few technophobes, and a few others who are annoyed with the whole process. Then we hear each day from the high school teachers about how awful BCeSIS is. LOL It is like walking on eggshells sometimes. Please let us know what you are doing. Even though I do not post much, I do read the ng when I can. {{{{{{{Kelly}}}}}}} Good luck, Sweetie. DeeTee >I am really downhill. I get dressed in the morning, lie down for a short >bit, go for breakfast (so I get some socializing), maybe get a couple of [quoted text clipped - 42 lines] >> >> Please remove "Ima" to reply. Took two months for the Rituxan to start working for me so be a bit patient if you don't see something right away. The lady I took the infusion with however had instant success. It is still holding the Remicade and Arava I also take but were fading before Rituxan so that is a very good thing. Duckie > I am really downhill. I get dressed in the morning, lie down for a short > bit, go for breakfast (so I get some socializing), maybe get a couple of [quoted text clipped - 41 lines] >> >> Please remove "Ima" to reply. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Kelly, I feel for you and my heart goes out to you. I know that is terrible not being able to do much. I know it is terrible too being in pain and having fatigue all the time too. I sure hope the rituxan will help and do the job for you totally. It sure sounds like that RD office is a good one. I am glad to hear the effexor is working for you too. Soon we will have our old Kelly back and chipper again. ;-) You take care, I know this has been really hard on you. SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& >I am really downhill. I get dressed in the morning, lie down for a short >bit, go for breakfast (so I get some socializing), maybe get a couple of [quoted text clipped - 31 lines] > > Kelly (((((((((((Kelly)))))))))))))))) praying for rituxan miracles---- SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare awwww bummer, ((((((((((((((((((kelly))))))))))))))). what nann said and i'm hoping it works quickly for you. kate (((((((((((Kelly)))))))))))))))) praying for rituxan miracles---- SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare |
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