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Medical Forum / Diseases and Disorders / Arthritis / September 2006

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i'm just now back from my pain specialist's

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d'huit - 15 Sep 2006 21:22 GMT
what a grueling 2 hour mri!  i don't ever want to have to do that again!  my
back spasms were so many and all up and down my spine, that i actually
thought the bed of the machine was rising against my spine, like it was
supposed to do that when it didn't move at all.  brand new, huge mri
machine, opening as wide as a queensized bed on both ends and the sliding
bed was wide, too.

i was so grateful for the privacy the machine afforded me, so that i didn't
have to endure the humiliation of having a perfect stranger see the tears
silently streaming down my face and me not being able to even wipe them
(while having to be perfectly still).  my doctor suggested he give me a shot
of demoral before the mri, but that meant that i would have to take a taxi
home and leave my car there for whenever i could arrange to have it picked
up.   my ps wouldn't have allowed me to drive and i wouldn't have wanted to
anyhow, with demoral in me.  so, i declined the demoral for the mri.  but,
omg, am i ever glad i don't need to do 2 hour full spine mri's every week!

he said there are over a thousand films for him to examine and so, he
decided to focus on my lower lumbar and sciatic region for today's
injections.  because i was driving, i went without the valium cocktail and
boy, did i miss it!  he did an epidural at S1-L5 and a facet thingy.  and
then, another procedure called a transverse laminar procedure, into where it
sounds like a nasty situation exists with the disk bulging and collapsing so
much it is impinging on all the nerves in the area and leaked into the
spinal cord area.  i know he absolutely found the sciatic nerve problem with
one of the injections, cuz the pain from the injection just shot down my leg
past my knee, just like it does when i walk.

sooo, i've got 3 little bandaids on the 3 puncture sites and no more sciatic
pain, so far.  and i can now sit still for longer than 15 minutes, when
before i was a tv commercial break escape waiting to happen everytime i did
sit down.  but then, the anesthetics haven't worn off yet, either.

he said he needs more time with all those films, but he did say that my
thoracic issues have worsened and he wants to plan out how to tackle those.
and thinks my neck will take some more study time and a planned approach,
too.  said things haven't improved anywhere and actually look pretty angrily
inflammed in a lot of the areas from my head to my butt.  but, he said the
good news is that there are no indications of anything, like cancer or ms
and the rest of the list he rattled off that i couldn't remember if i tried
to, because of hurting so bad from the mri's.  i'm grateful that other stuff
is not joining my party.

i need to go lie down now.  i think the anesthetic is either wearing off or
i need to go lie down now.

kate
RhondaM - 15 Sep 2006 22:11 GMT
(((((((((((((((((((((((((((Kate))))))))))))))))))))))))
I am so sorry about the painful mri.. I hear ya though went through the same
thing today myself. The MRI lady came over to inject the dye and didnt know
how to do it and started digging in my vein and I said nuff of that stuff Im
outta here . I called my dr and told them to schedual it somewhere
else..like the hospital.
I was reading your post and I could totaly relate to how you felt this am..I
was dont the same thing except for the epidural.
Gosh, dont ya think if they can send someone to space they could make the
beds of a MRI table a little softer.
Yes it is good that they give privacy too...I am so sorry that you were in
tears from the pain..That part is hard.
I hope the other results will be in your favor
RhondaM

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
d'huit - 16 Sep 2006 02:33 GMT
((((((((((((((((((((((rhonda)))))))))))))))  makes me glad i didn't have
your mri tech or required the contrast dye.  i'm sorry you went through
that.  hopefully, you get a better tech the next time.

actually, the new mri bed i was on was padded, maybe 3 inches of padding.
but i don't think it would have made a difference to my spine if it had been
12 inches of padding.

i just woke up (my upper back woke me up).  i actually slept 4 hours!   4
hours! oh, was that ever nice for a change.  sleep, real blissful sleep!
for 4 hours!  yeah!  i want more of that.  morrrrrrre . . . please.

i think the only pain i'm feeling, right now in my lower spine, is from the
puncture wounds themselves.  no maddening aching, in my lower spine, from
lying down in one position for more than an hour!  that's pure bliss!  i
began the epidural with pain levels of 8-9; and immediately afterwards, it
was around a 3.  sitting here now, it feels like a 1 on the pain scale in
that same area.  i sooo love this.

kate

(((((((((((((((((((((((((((Kate))))))))))))))))))))))))
I am so sorry about the painful mri.. I hear ya though went through the same
thing today myself. The MRI lady came over to inject the dye and didnt know
how to do it and started digging in my vein and I said nuff of that stuff Im
outta here . I called my dr and told them to schedual it somewhere
else..like the hospital.
I was reading your post and I could totaly relate to how you felt this am..I
was dont the same thing except for the epidural.
Gosh, dont ya think if they can send someone to space they could make the
beds of a MRI table a little softer.
Yes it is good that they give privacy too...I am so sorry that you were in
tears from the pain..That part is hard.
I hope the other results will be in your favor
RhondaM

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
RhondaM - 16 Sep 2006 03:51 GMT
OH that is really good that you have slept 4 hours.
I am really glad that you are at a 3 instead of a 9...
I also hope that it will last for the 2 years...:o)

> ((((((((((((((((((((((rhonda)))))))))))))))  makes me glad i didn't have
> your mri tech or required the contrast dye.  i'm sorry you went through
[quoted text clipped - 106 lines]
>>
>> kate
Kelly C. - 16 Sep 2006 00:49 GMT
((((Kate))))

Soo sorry it was such a rough procedure.:(  I hope the injections help
immensely.

Hugs,
Kelly C.

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
d'huit - 16 Sep 2006 02:41 GMT
((((Kate))))

Soo sorry it was such a rough procedure.:(  I hope the injections help
immensely.

Hugs,
Kelly C.

thanks, sweetie.  it probably, more than likely, wouldn't have been as bad
if i had someone to drive me home, then i could have taken advantage of the
demerol for the mri and/or the valium cocktail for the actual procedure.

for now, the injections have helped already.  i just slept 4 lovely hours in
a row!  and when i awoke, it wasn't my lower spine that woke me.  lower
spine pain levels went from 8-9 down to 3 immediately after the injections
and now is around a 1.  and like i told rhonda--that, i think, is from the
puncture wounds themselves.  makes me wish i could live on anesthetic.LOL

kate

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
Kelly C. - 16 Sep 2006 03:13 GMT
> ((((Kate))))
>
[quoted text clipped - 17 lines]
>
> kate

I'm so glad you had a good nap, and are already feeling better!:)

My dear neighbor, who also has Parkinson's, is going through a series of
spinal injections right now, too. He has also had them done before, and was
very much looking forward to feeling some relief again.

My big thing next week will be getting my hand injected again, and asking
for help with my anxiety problem. It's getting worse and worse.:(

Anyway, I hope the rest of your injections go smoothly, and deliver just as
much relief.

Kelly C.
ladylove77 - 16 Sep 2006 01:35 GMT
Kate, so glad for you that the MRI is over.  Pray the pain specialist will
get all the info needed to make the very best decision concerning how to
relieve your pain.  You're always in my prayers.
Gwen

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
d'huit - 16 Sep 2006 02:46 GMT
Kate, so glad for you that the MRI is over.  Pray the pain specialist will
get all the info needed to make the very best decision concerning how to
relieve your pain.  You're always in my prayers.
Gwen

thank you, sweetie.  i'm glad that mri session is overwith, too!  this pain
specialist is soooo good, i have total faith that he will help me immensely.
having just had 4 hours sleep in row (for the first time in months) makes me
feel confident he will.  sleep, real sleep, was soooo nice.

kate

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
Carole - 16 Sep 2006 03:55 GMT
{{{{{{{{{{{{Kate}}}}}}}}}}}} Why is it they always make you lay there in
a position that causes the most pain?  I cried too, so don't feel bad. I
had my knee mri'd three years ago. They gave me a button to push if I
really couldn't tolerate it, and at one point, I just had to push it. It
was either that or I felt like I was going to pass out from the pain. At
least it's over, and I hope the doctor can find a way to alleviate your
pain. I'll keep you in my prayers.

Hugs,
Carole
Damifino - 17 Sep 2006 16:11 GMT
>  They gave me a button to push if I
> really couldn't tolerate it, and at one point, I just had to push it. It
> was either that or I felt like I was going to pass out from the pain.
Hello
    I'm Steve from MD. and have been lurkin here for a little while. I
was curious if someone could really pass out from pain.I'm in no
position to leave my job and it includes a lot of driving.I do have the
flexablity to schedual it for my better times and
pull over if I start losing my focus or just need change position .

Thanks in Advance
p.s.feel free to correct my netiquette, I'm brand new at this.
d'huit - 17 Sep 2006 17:16 GMT
hi and welcome to asa, damifino.

to answer your question, yes.  you can pass out from pain.  but, if you are
lying prone at the time you pass out, you are probably having a seizure.
feeling like one is about to past out can be a composite of various pain
induced things or can be the sudden awareness itself.

it would be nice if you made a new post, a separate thread, and introduced
yourself to the entire group.  tell us a little about yourself and about
your arthritis (of which there are over 160 forms); who and what kind of
doctor diagnosed you; what kind of treatment you are undergoing . . .etc.

looking forward to getting to know you.
kate

Carole wrote:
>  They gave me a button to push if I
> really couldn't tolerate it, and at one point, I just had to push it. It
> was either that or I felt like I was going to pass out from the pain.
Hello
    I'm Steve from MD. and have been lurkin here for a little while. I
was curious if someone could really pass out from pain.I'm in no
position to leave my job and it includes a lot of driving.I do have the
flexablity to schedual it for my better times and
pull over if I start losing my focus or just need change position .

Thanks in Advance
p.s.feel free to correct my netiquette, I'm brand new at this.
Fire Chief - 17 Sep 2006 17:49 GMT
Steve wrote:

> Hello
>  I'm Steve from MD. and have been lurkin here for a little while.

Hello Steve.  Welcome to the group, though we're all sorry
you had to join under the circumstances.  Perhaps in another
post you might add a few fact about your arthritis - what
type - there are more than 100 varieties - and how long ago
you were diagnosed with it.  You may be a neighbor of
another ASA member who lives in MD.

> I was curious if someone could really pass out from pain.

When I had my first prostate biopsy, I was ready to pass
out  because of the combination of pain and weather
conditions at the time......hot, summer afternoon in a small
exam room with no air condition.  Sweat pouring off my
body, feeling of lightheadedness and debility.

I don't know what the difference between "passing out,"
"fainting," and "shock" is, but I was somewhere in one
or more of those regions.

> p.s.feel free to correct my netiquette, I'm brand new at this.

No problem - you did fine.  Can't find one fault with your post.

... Being married means making both love *AND* war.
Diane - 17 Sep 2006 18:27 GMT
kate and rhonda,
oh, i'm so sorry you guys had to go through this. i hate mri's and back
pain is not my nemesis. i can't even imagine what two hours lying on a
painful back must be like. kate, i'm glad you're getting some relief
from the shots! that must feel wonderful.

diane
d'huit - 18 Sep 2006 07:00 GMT
kate and rhonda,
oh, i'm so sorry you guys had to go through this. i hate mri's and back
pain is not my nemesis. i can't even imagine what two hours lying on a
painful back must be like. kate, i'm glad you're getting some relief
from the shots! that must feel wonderful.

diane

actually, diane, i don't think i honestly realized how bad my spine really
is, until i declined the demerol and did the mri without it.  i guess i
mean, i've discovered that it is amazing how effectively we arthritics adapt
our everyday actions to prevent or to ease pain, without our even realizing
we are doing that--and that unconscious adapting gives us a false sense of
normalcy, which, in turn, i think creates a functional denial, which made me
think i could handle the mri without the demerol.LOL  what a dumb a.s i
was!LOL

interesting, to me,  my son was over last night.  while here, he noticed
that i actually sat through an entire movie with him, without getting up
during every commercial break.  of course, i didn't notice that, because
that's  normal behavior (being able to sit through commercials, i mean) and
we don't notice what is normal as readily as we notice what is abnormal.
(making use of every commercial break, prior to the epidurals, was my
unconscious way of adapting to pain.)  so, the stuff  i notice improving is
the stuff i cannot adapt my way around, like sleep.  i found this
fascinating to think about, after alex mentioned my sitting through the
whole movie with him.  i'm so boring, the way i go on and on about what is
obvious to most people.  sorry, kid.

kate
ladylove77 - 18 Sep 2006 02:03 GMT
Steve, when I had a basal joint replaced in my thumb, it had a pin put in it
for a couple of weeks.  When they pulled that pin out without any
anesthetic, I didn't quite faint, but almost.  I was white and my face &
head looked like it had been dipped in water.  They had me lie down.
Gwen

>>  They gave me a button to push if I
>> really couldn't tolerate it, and at one point, I just had to push it. It
[quoted text clipped - 8 lines]
> Thanks in Advance
> p.s.feel free to correct my netiquette, I'm brand new at this.
jb - 16 Sep 2006 06:49 GMT
Kate
just load up and come on down to hky. NC  I am sch for back surgery on the
25Sept..  sounds like we have the same pain and problems.  I have taken 3
shots in my spine at the pain clinic and they help for a couple of weeks and
then its over and starts again. Dr wont give me anymore shots, says surgery
is necessary.  I had to go thru the mri thingy too, not fun for sure.  What
are your plans ?  are they going do surgery?  I dread it but I have no life
living in this constant pain.  I cant sit or stand. Sciatica hurts from my
back all the way down to my foot on my right side. no pain in my left side.
Kate I do hope you soon get some relief and we can both start dancing a jig
and jumping a rope LOL.
Sending you love and some hugs
your friend
janice

| what a grueling 2 hour mri!  i don't ever want to have to do that again!  my
| back spasms were so many and all up and down my spine, that i actually
[quoted text clipped - 43 lines]
|
| kate
Squirrely - 17 Sep 2006 03:31 GMT
Janice,

I am keeping you in prayers up to and during and after your surgery. I hope
it does the trick for  you and corrects the problems.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Kate
> just load up and come on down to hky. NC  I am sch for back surgery on the
[quoted text clipped - 16 lines]
> your friend
> janice
d'huit - 18 Sep 2006 07:01 GMT
what she said.

kate
Janice,

I am keeping you in prayers up to and during and after your surgery. I hope
it does the trick for  you and corrects the problems.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Kate
> just load up and come on down to hky. NC  I am sch for back surgery on the
[quoted text clipped - 16 lines]
> your friend
> janice
GARY Z - 16 Sep 2006 12:34 GMT
Hi kate,
Glad to hear that's over. Sounds like they were pretty thorough. There is NO
WAY I could lay still for 2 hrs on a hard surface. Better knock me out,
'cause it can't happen! You got drugs to keep me down? I'm your man!
GaryZ

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 5 lines]
>
> kate
d'huit - 18 Sep 2006 07:09 GMT
Hi kate,
Glad to hear that's over. Sounds like they were pretty thorough. There is NO
WAY I could lay still for 2 hrs on a hard surface. Better knock me out,
'cause it can't happen! You got drugs to keep me down? I'm your man!
GaryZ

well, i'll tell you, gary, i will not ever, again, ever turn down demerol
when a doctor thinks i might need it to get through an mri.  he was right.
it took all i could muster to get through it.  i was exhausted and couldn't
even walk afterwards.  soooo, i'm glad that's over, too.<smile>  i have
every confidence in this pain specialist's thoroughness.  it's extremely
rare when i trust a doctor, without feeling like i need to recheck
everything.  and i think part of the reason for that is his great
communication skills, his patience and his compassion. his skill goes
without saying.  i wish everybody here could have a dr. alex.  i don't
usually get this lucky with doctors.

kate

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 5 lines]
>
> kate
Squirrely - 17 Sep 2006 03:25 GMT
Kate and Rhonda,

Sorry to hear your suffering like that from the MRI Kate. It is a shame they
couldn't make it easier for us that are in such pain.

I hope things get worked out now that he got that many pics to go by.

Rhonda, sorry yours got canceled because of the vein issues. That is sad.
Hope it goes better next time.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
d'huit - 18 Sep 2006 07:14 GMT
Kate and Rhonda,

Sorry to hear your suffering like that from the MRI Kate. It is a shame they
couldn't make it easier for us that are in such pain.

***actually, sweetie, he did offer me demerol to get me through it, but i
had to turn it down because i was driving myself home afterwards.  so, it
was my fault, not his.  but i appreciate your sentiment.

I hope things get worked out now that he got that many pics to go by.

***me too.  i'm kind of looking forward to my next appmt. with him on 29th,
so he can tell me more about the films.  i think this is going to work out
well, because he doesn't have to go through my pcp anymore.

thank you, sj.

kate

Rhonda, sorry yours got canceled because of the vein issues. That is sad.
Hope it goes better next time.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
DeeTee and Bob Taggart - 17 Sep 2006 23:49 GMT
{{{{{{{{{Kate}}}}}}}}}}   Get some rest, sweetie!

DeeTee

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
d'huit - 18 Sep 2006 07:15 GMT
{{{{{{{{{Kate}}}}}}}}}}   Get some rest, sweetie!

DeeTee

i did.<grinning like somebody who just discovered that sleep is like a mini
vacation>  thanks for the hugs, deetee.

kate

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
Duckie - 18 Sep 2006 07:21 GMT
Well just total owie. Hope by now things are feeling better from the
injections.
Duckie

> what a grueling 2 hour mri!  i don't ever want to have to do that again!  my
> back spasms were so many and all up and down my spine, that i actually
[quoted text clipped - 43 lines]
>
> kate
d'huit - 18 Sep 2006 22:16 GMT
Well just total owie. Hope by now things are feeling better from the
injections.
Duckie

thanks, duckie.  i'm doing ok.  pain levels ticked up a little yesterday,
but are back down today.  so, maybe the cortisone is starting to kick in
now?

kate

d'huit wrote:

> what a grueling 2 hour mri!  i don't ever want to have to do that again!
> my
[quoted text clipped - 58 lines]
>
> kate
 
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