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Medical Forum / Diseases and Disorders / Arthritis / September 2006

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Can't keep up with the group

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Squirrely - 13 Sep 2006 21:19 GMT
I have been having trouble keeping up with the group. Tiredness, ill, and
pain.
So please if I missed anyone in prayers or such forgive me, I am reading as
I can and posting when I can. I do have you all in my thoughts.

Rosie, I was telling you about this and thinking by Jan, I would have to
leave all groups. Well it looks like it might be sooner if this doesn't soon
stop. Sorry.

Luckily I got all bday cards addressed till Dec. So all I have to do is
write a small note and sign them. Or otherwise they wouldn't get done
either. I am sorry my friends. I am trying.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

ladylove77 - 13 Sep 2006 21:34 GMT
SJ, you have done so much for so many, please don't worry about what you
can't do.  We all know you are trying and keep praying for better things for
you and Jim.
Gwen

>I have been having trouble keeping up with the group. Tiredness, ill, and
>pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
vickie b. - 13 Sep 2006 23:54 GMT
(((((squirrelly))))

I so appreciate all the wonderful things that you do here!

Vickie B.
Harvey R. Stone - 14 Sep 2006 02:25 GMT
> SJ, you have done so much for so many, please don't worry about what you
> can't do.  We all know you are trying and keep praying for better things
> for you and Jim.
> Gwen

Those are my thoughts too.   All of us have periods of time where dealing
with life keeps us from taking part here.
Be well,,, do well
Harv
d'huit - 14 Sep 2006 00:22 GMT
oh, sweetie, don't put so much pressure on yourself.  you give so much of
yourself to this group and while we love you for it, we certainly don't want
you wearing yourself out for us.  there is no earthly reason that you need
to feel like you must keep up a super-woman pace.  relax, hon.  just kick
back and enjoy yourself, sweetie.  coast for awhile and give yourself a
well-deserved break.  you need to take care of you, y'know.  and we need you
to take care of you, so that we can just love and enjoy you.

y'know, sweetie, years ago i used to be accused of having just two speeds,
in everything i used to did (and i mean everything) --pedal to the metal
(and that wasn't enough for me, because i was also a perfectionist.) and
full stop.  full stop was only because of my hitting the wall and no longer
being physically able to go on.  and one day, after hitting the wall for the
zillionth time, i realized that the people around me, my friends and family,
were absolutely right.  i also realized i was being thoughtless, in a sense,
because whenever i hit the wall, those around me had to pick up my share of
the mundane load that ordinarily i could handle.

so, late in life, i had to learn not simply to pace myself, but to also say
"no".  and that means, not just saying "no" to others, but also, saying "no"
to myself--no matter how much i want to do something that i know would be
energy depleting and/or would increase my pain levels.  and for me, the
hardest part was forgiving myself for not being all that i wanted to be and
for not doing all that i wanted to do.  but, you know what i
discovered?--that it's ok that i haven't maxed-out my abilities and desires;
and i also discovered that i'm not a mediocre version of myself, even though
i haven't maxed-out.  i simply am where i am.  and i don't go *splat*
against the wall, as often as i used to.LOL

you take good care of you, honey.  we love you and you don't have to do more
than is comfortable for you.  i know i don't want you to.

love and hugs,
kate

I have been having trouble keeping up with the group. Tiredness, ill, and
pain.
So please if I missed anyone in prayers or such forgive me, I am reading as
I can and posting when I can. I do have you all in my thoughts.

Rosie, I was telling you about this and thinking by Jan, I would have to
leave all groups. Well it looks like it might be sooner if this doesn't soon
stop. Sorry.

Luckily I got all bday cards addressed till Dec. So all I have to do is
write a small note and sign them. Or otherwise they wouldn't get done
either. I am sorry my friends. I am trying.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

GARY Z - 14 Sep 2006 12:03 GMT
Hi Kate,
What great advise. You must be a mirror image of myself 'cept I hadn't
figured this out yet.
Currently splatted! But things are starting up again after a couple days of
rest. I may have to print this out as a reminder to myself.
GaryZ

> y'know, sweetie, years ago i used to be accused of having just two speeds,
> in everything i used to did (and i mean everything) --pedal to the metal
[quoted text clipped - 48 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
d'huit - 14 Sep 2006 13:19 GMT
Hi Kate,
What great advise. You must be a mirror image of myself 'cept I hadn't
figured this out yet.
Currently splatted! But things are starting up again after a couple days of
rest. I may have to print this out as a reminder to myself.
GaryZ

was that advice?  i thought i was just blathering on about myself, yet
again.  if it helps you, gary, then i'm glad i blathered.<smile>

kate
who was actually becoming very aware that i've been blathering a lot, on asa
lately, to distract myself from pain.  (ok.  there it is!  i said it!
grumble, mumble . .  i've been trying to avoid facing it head on.  you know
the routine, a little peek at pain from the corner of one eye once in
awhile, a little whimper now and then, no sleep, a whole lot of
self-distraction and denial.  and, just maybe i can pretend it isn't true.)
and i was thinking about what i've been writing, "holy c0w, what a
narcissistic know it all!"  and, "just what asa needs, a freakin' narcissist
on board!"  geesh, how do you guys stand me!  pardon!  excusez-moi!  s'il
vous plait.  though, i cannot guarantee it hasn't become a habit.

> y'know, sweetie, years ago i used to be accused of having just two speeds,
> in everything i used to did (and i mean everything) --pedal to the metal
[quoted text clipped - 48 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
Squirrely - 14 Sep 2006 15:49 GMT
Thank  you all for the support. I will try to take it easy and do for me and
see what happens.

Right now I am so worried about Denise. I feel bad too because last Thurs, I
had to tell her I couldn't keep up with our daily calls. She needed me and I
let her down when she needed me most. I crashed and burned. Then I found out
the day before yesterday that she had gone in the hospital on Sat morning
and came home that morning (the day before yesterday). I felt bad for not
being there for her. Then her going back in the hospital that night again.
Oh man.

I have been having to take naps every 2-4 hrs lately. The pain at least at
times let me type some. But it is getting worse. All over body pain too. Not
just one place.

I know you all know what that is like.
So I am at the point now where I have no energy for anything at all.

to top this all off, our a/c started acting up yesterday when it was 99 out.
Dont know when the a/c guy will get here. ONe thing after another and
another. YOu know how it is. ;-)

Thanks again all. Kate great advice I will try to take it.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> oh, sweetie, don't put so much pressure on yourself.  you give so much of
> yourself to this group and while we love you for it, we certainly don't
[quoted text clipped - 43 lines]
> love and hugs,
> kate
johnie - 15 Sep 2006 01:54 GMT
Kate hope you don't mind but this paragraph+ is so "right on the money"
about the way so many of us function that I had to   'spotlight'  it.
It is something that I have to work on continuously especially the
"forgiving myself" part.  I have printed it out and displayed it in the
middle of my bulletin board.
Thanks for the ...articulation...
johnie

> y'know, sweetie, years ago i used to be accused of having just two speeds,
> in everything i used to did (and i mean everything) --pedal to the metal
> (and that wasn't enough for me, because i was also a perfectionist.) and
> full stop

> so, late in life, i had to learn not simply to pace myself, but to also say
> "no".  and that means, not just saying "no" to others, but also, saying "no"
[quoted text clipped - 6 lines]
> i haven't maxed-out.  i simply am where i am.  and i don't go *splat*
> against the wall, as often as i used to.LOL
d'huit - 15 Sep 2006 03:29 GMT
Kate hope you don't mind but this paragraph+ is so "right on the money"
about the way so many of us function that I had to   'spotlight'  it.
It is something that I have to work on continuously especially the
"forgiving myself" part.  I have printed it out and displayed it in the
middle of my bulletin board.
Thanks for the ...articulation...
johnie

i suspected that i wasn't the only one who had that particular monkey on my
back.  you're welcome, johnie.  but i hope you corrected my grammar in the
first sentence.<smile>

kate

d'huit wrote:
> y'know, sweetie, years ago i used to be accused of having just two speeds,
> in everything i used to did (and i mean everything) --pedal to the metal
> (and that wasn't enough for me, because i was also a perfectionist.) and
> full stop

> so, late in life, i had to learn not simply to pace myself, but to also
> say
[quoted text clipped - 11 lines]
> i haven't maxed-out.  i simply am where i am.  and i don't go *splat*
> against the wall, as often as i used to.LOL
johnie - 15 Sep 2006 03:47 GMT
> i suspected that i wasn't the only one who had that particular monkey on my
> back.  you're welcome, johnie.  but i hope you corrected my grammar in the
> first sentence.<smile>

kate, are you referring to  "everything i used to did" ? Sounds good
to me...>g<

johnie
d'huit - 15 Sep 2006 04:05 GMT
d'huit wrote:
> i suspected that i wasn't the only one who had that particular monkey on
> my
> back.  you're welcome, johnie.  but i hope you corrected my grammar in the
> first sentence.<smile>

kate, are you referring to  "everything i used to did" ? Sounds good
to me...>g<

johnie

LOL!  ah, well, johnie, the brandy is good, but "i'm not so think as you
drunk i am."--the memorable quote, spoken by mash's major margaret hoolehan
(or how ever her last name is spelled).

kate
Ginnie - 15 Sep 2006 10:05 GMT
> LOL!  ah, well, johnie, the brandy is good, but "i'm not so think as you
> drunk i am."--the memorable quote, spoken by mash's major margaret hoolehan
> (or how ever her last name is spelled).
>
> kate

One of those "drunk" lines I love the best is "I can be as sty
and sleathy as the rest of you."  from one of Blake Edwards/
Richard Muldoon movies (10?)  (SOB?)

Ginnie    >^..^<
___________________________
d'huit - 15 Sep 2006 14:34 GMT
d'huit wrote:

> LOL!  ah, well, johnie, the brandy is good, but "i'm not so think as you
> drunk i am."--the memorable quote, spoken by mash's major margaret
> hoolehan
> (or how ever her last name is spelled).
>
> kate

One of those "drunk" lines I love the best is "I can be as sty
and sleathy as the rest of you."  from one of Blake Edwards/
Richard Muldoon movies (10?)  (SOB?)

Ginnie    >^..^<

LOL<appreciatively>

there was a great drunk lines exchange that helen hayes once mentioned in an
interview with her done around her 90th birthday.  i wish somebody on asa
knew exactly what i am trying to remember.

apparently, according to miss hayes, she had a bit too much of the bubbly at
one of those fabulous  broadway opening night cast parties, during the 1930s
or '40s, i believe.  she said something innocently, that was humorously
convoluted and obtuse, about cole porter's piano to cole porter.  to which
he replied suavely, with a similarly convoluted and humorous comment about
her being kind or noble.  dognabit!  my memory is the pitts, lately.

if somebody on asa recalls that interview and the hilarious exchange between
porter and hayes, please refresh my memory.  they were just about the best
drunk lines i'd ever heard.

kate
___________________________
Carole - 14 Sep 2006 02:40 GMT
You take care of YOU, SJ. That's the most important thing! You are in my
prayers every day and I hope things will get better for you soon.

Hugs and Love,
Carole

> I have been having trouble keeping up with the group. Tiredness, ill, and
> pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
RhondaM - 14 Sep 2006 03:36 GMT
((((((((((((((((((((((((Gentle hugs))))))))))))))))))))
I understand
RhondaM
>I have been having trouble keeping up with the group. Tiredness, ill, and
>pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
Ginnie - 14 Sep 2006 04:33 GMT
(((((((((((((((((((((((((((((Jo))))))))))))))))))))))))))))))

Treat yourself kindly, take all the time you need.
We'll always be here when you need us.

Ginnie    >^..^<
_________________________

> I have been having trouble keeping up with the group. Tiredness, ill, and
> pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
johnie - 14 Sep 2006 05:45 GMT
Squirrely wrote: >snip<

> I am trying.

>    Love and hugs Jo
>
[quoted text clipped - 5 lines]
>    .(   _(   )_.'
>   '---.~_ _ _&

{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{Jo}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}},

No one has ever done more than you do to help us gimps and fibromites
get thru our too often difficult days. Yer cards over the years have
meant more than you will ever know. I know it is truly frustrating when
your too tired to get thru all the posts. So right now you just gotta
skim what you can and let the rest go. This year has been a really
rough patch for you and it seems like it will never improve but it
will. I thought the really bad two years 'valley fever' had me "under
its thumb" would never end but slowly the energy returned as it eased
its grip.

You gotta remember that sometimes you need to focus all your attention
on yourself for awhile. Let some of us help you get thru this with the
love we have for you. Cause if you don't know it you should
.............. there are a lot of us that love you and think about you
every day.

you just keep fighting the good fight kiddo and Do Not feel guilty for
falling behind with the groups. We are not going anywhere and you can
catch up later. okay?

high desert healing hugs,
johnie
Squirrely - 14 Sep 2006 15:52 GMT
Thanks all again.

Johnie,

I am trying to get myself back to shape, but do feel guilty especially with
Denise. I feel so bad for not being there when she really needed me.

I do know and feel the love and caring from all on this group. I really
appreciate it.

I have only been skimming some posts lately. But sometimes that even feels
like a chore lately. I wish whatever had a hold of my rear would let go. I
need my energy back.

Thanks again bud, I appreciate it. You take care too.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Squirrely wrote: >snip<
>
[quoted text clipped - 34 lines]
> high desert healing hugs,
> johnie
GARY Z - 14 Sep 2006 11:58 GMT
Hey Jo,
Relax. Go Slow. Rest. Recuperate. Get well. Then, when all that has been
accomplished.....give 'em hell!
Until then, you get my prayers. I owe you a ton of those.
GaryZ

>I have been having trouble keeping up with the group. Tiredness, ill, and
>pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
Alex Barna - 14 Sep 2006 15:47 GMT
Sending Good Thoughts,
{{{{Jo}}}}

GrampaHugs,
Alex,

> I have been having trouble keeping up with the group. Tiredness, ill,
> and pain. So please if I missed anyone in prayers or such forgive me,
[quoted text clipped - 8 lines]
> is write a small note and sign them. Or otherwise they wouldn't get
> done either. I am sorry my friends. I am trying.

Signature

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* http://home.mn.rr.com/apbiii
* http://grampahugs.is-a-geek.org:3080/
* http://grampahugs.ath.cx:3080/friends
****************************************************

Kelly - 14 Sep 2006 20:33 GMT
Jo,
I have struggled to write this - I know how hard it is to sometimes step
back from what little we feel we do and take time for ourselves.  The
hardest word to say in the world I feel has to be no.  Now is the time to
say that for you.  If you had the money I would say you need to get to a
doctor and get some real help - I know that is tough right now.  Do not feel
guilt about not being there for anyone right now - take care of yourself.
It won't be easy but take time to breathe, relax, pamper and treat your body
as it should.  Do your range of motion exercises, try to walk a little (even
if only twice around your chair), reward yourself for goals you have set for
yourself and accomplished and make those goals attainable.  Rub nice hand
cream on your hands if that is what makes you feel good.  Drink lots of
water and take time to spend with your husband.  The birthday cards can go
out late or just with labels on - we know you have signed them with your
heart - labels with your name on are signatures.  Leave the notes off - we
can imagine the notes instead.

As for feeling guilty about Denise - you are the best friend ever but you
can't be a friend without taking care of yourself.  She knows that and some
of us can step up to the plate.  Bet she will be here herself to tell you
that.

Take care of you for a bit - I for one am very worried about you.

Kelly

>I have been having trouble keeping up with the group. Tiredness, ill, and
>pain.
[quoted text clipped - 8 lines]
> write a small note and sign them. Or otherwise they wouldn't get done
> either. I am sorry my friends. I am trying.
Squirrely - 14 Sep 2006 21:01 GMT
Thank you Kelly,

I will try some of those suggestions. They sounded good to me.

I will be trying to take time for me. I can't do much else right now.

I just posted about Denise being now in ICU. I wish I could be there for her
but I can't. They found out it was fluid around her lungs. that is what was
causing the chest pain that she thought was gas pains, and they told her was
nerve pain before they let her out the other day. Dah, what were they
thinking.

OK got to go, pain is telling me to get the heck off the puter. So got to
go. I listen most of the time to what my body tells me. ;-)

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Jo,
> I have struggled to write this - I know how hard it is to sometimes step
[quoted text clipped - 34 lines]
>> write a small note and sign them. Or otherwise they wouldn't get done
>> either. I am sorry my friends. I am trying.
jb - 19 Sep 2006 05:00 GMT
Squirrely,
please dont think you must be super woman.  We all appreciate so much what
you do but you must now think of your own health.  take care of your own
needs and health and let us look after you for a while.
love and prayers
janice

|I have been having trouble keeping up with the group. Tiredness, ill, and
| pain.
[quoted text clipped - 8 lines]
| write a small note and sign them. Or otherwise they wouldn't get done
| either. I am sorry my friends. I am trying.
Squirrely - 19 Sep 2006 16:58 GMT
Janice,

I am doing what I can. I am not overdoing it these days.

I am totally drained. I am trying to pass on info to those that need it for
praying etc. But not much else.

I just found out last night that another FMS Friend Alice was in the
hospital too. She is 76 yrs old. Has more heart issues again. She has had
seveal heart attacks and strokes now. This time the dr is running more tests
on the heart.

So now I have two really dear friends down for the count.

I am sure I posted it about Denise coming off the respirator and now on
oxygen. I haven't heard anymore yesterday or today so far.

It seems we are all dropping like flies.

Talking about dropping. Rosie are you still doing ok. Have you had to go get
antib's yet.

So that is all for now. I am too drained right now for much more.

I am trying to read the posts and answer some if and when I can.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Squirrely,
> please dont think you must be super woman.  We all appreciate so much what
> you do but you must now think of your own health.  take care of your own
> needs and health and let us look after you for a while.
> love and prayers
> janice
Harvey R. Stone - 19 Sep 2006 18:53 GMT
Well said and my thoughts too.
Harv

> Squirrely,
> please dont think you must be super woman.  We all appreciate so much what
[quoted text clipped - 17 lines]
> | write a small note and sign them. Or otherwise they wouldn't get done
> | either. I am sorry my friends. I am trying.
 
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