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Medical Forum / Diseases and Disorders / Arthritis / August 2006

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Lurker still, & hair.

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~dld~ - 28 Aug 2006 17:56 GMT
I was reading the posts about the hairdresser coming to talk to the
group and I thought I'd share what happened to me.  Maybe it'll help
some other balding person out there.

I was on 3 MTX/week and the steroids.  Then I found a rheumy and she
took me off the steriods and pushed my MTX up to the max over a period
of months.  I noticed immediately a big difference in my hair.  I had
never had a lot of hair to begin with.  So, I noticed it immediately
and started bringing it up.  Both of my docs kept saying that it
shouldn't affect me so fast or so much, but I thought it was.

Allright, on to the rub:  When I went to see my primary doc a few
months ago he decided to check my hormone levels.

Come to find out that I was low, very low. on DHEA.  When he listed the
symptoms I was blown away.  Hard time sleeping, (check), serious hair
loss (check), lack of sexual appetite (check) and more.

I have noticed a HUGE improvement.  I hadn't even realized that the
hair on my legs had even slowed to a crawl.  Now the hair is growing on
my legs again. (Not sure that that is a blessing!) But more importantly
I don't notice amount of hair in the drain trap.  Also my hair just
feels better. I don't know how to explain better.  It is softer to the
touch and it seems to be more manageable.

So I think it was more the DHEA than the MTX.

Now, when I got this months Arthritis today it said in there that alot
of people with arthritis have DHEA deficiencies.  And heck, it is worth
a shot.

However, the side effects of too much DHEA are just as bad as having
too little.  So please don't run out and buy some.  Have your dr test
your hormones.  You might be as surprised as I was!

And next I want to try the NIOXIN shampoo.  Anyone tried it?  Does it
work?

Sorry for the long post, hope it helps someone...
dld.
debbie m - 29 Aug 2006 01:40 GMT
Hi,

I ask my hairdresser about my thinning hair and she suggested Nioxin.
She said it wouldn't grow any back but help you keep what you had.  I'm
going to try it soon.

Also, someone told me the other day that they were on effexor and it
made there hair come out more.  Don't know but I'm on effexor also.
Just wondered if anyone else had heard of this?

debbie m.

> I was reading the posts about the hairdresser coming to talk to the
> group and I thought I'd share what happened to me.  Maybe it'll help
[quoted text clipped - 36 lines]
> Sorry for the long post, hope it helps someone...
> dld.
Diane - 29 Aug 2006 04:05 GMT
i'm also on effexor and have VERY thin hair on top. rather distressing.
however, my dermatologist doesn't think it's due to any of my meds.
need a hair miracle!

diane
Kelly - 29 Aug 2006 04:51 GMT
If we were to take a poll I bet the 2 things aside from pain etc that people
would say bothers them the most are hair loss and loss of shoes to wear.
They are topics that come up so often.  The meds do strip hair of shine
sometimes and so many cause the thin hair.  The shoes - well don't get me
started.  Nothing fits properly over these swollen feet but maybe once the
treatment starts - if it starts.

My worst time wasn't the hair loss but the hair gain.  When on cyclosporine
and prednisone combined I had the thickest longest hair no matter how many
haircuts I got.  I grew mustaches, sideburns, black hair on arms.  I
resorted to shaving every 2 days on my face and my arms every 3 weeks or so.
It was ridiculous.

I haven't been on mtx enough to make a difference.  Still trying to get rid
of the uti and sinus infection enough to go back on 2.5 mg - yup the point
is in the right spot.  I am not really tolerating even that - mouth sores,
stomach problems and I bet when we get rid of the infection the wbc will
show its real self.  So no hair loss from that so far - thank goodness.  But
I do sympathize.

Kate I think what you are doing is great.  I would really stress the no muss
haircut if possible - no hairdryers or curling irons is my motto.

The other thing she might mention is regular pedicures if you can't do it
yourself.  That is good foot care and you can find reasonable and safe
places.  The other thing is that people on blood thinners, and prednisone
should not have waxes - it can rip the skin off or bruise them.  My spa will
now not do waxes with those meds.  Being familiar with how easily someone
like Diane has skin problems opens ones eyes on this (I never do waxes
because I am a wuss!)

Great idea Kate.  Wish that the dermatologist would get a solution Diane - I
can only imagine how distressing it is - especially if you are not getting
relief anyways.

Kelly
d'huit - 30 Aug 2006 03:35 GMT
If we were to take a poll I bet the 2 things aside from pain etc that people
would say bothers them the most are hair loss and loss of shoes to wear.
They are topics that come up so often.

ayup!

kate

The meds do strip hair of shine
sometimes and so many cause the thin hair.  The shoes - well don't get me
started.  Nothing fits properly over these swollen feet but maybe once the
treatment starts - if it starts.

My worst time wasn't the hair loss but the hair gain.  When on cyclosporine
and prednisone combined I had the thickest longest hair no matter how many
haircuts I got.  I grew mustaches, sideburns, black hair on arms.  I
resorted to shaving every 2 days on my face and my arms every 3 weeks or so.
It was ridiculous.

I haven't been on mtx enough to make a difference.  Still trying to get rid
of the uti and sinus infection enough to go back on 2.5 mg - yup the point
is in the right spot.  I am not really tolerating even that - mouth sores,
stomach problems and I bet when we get rid of the infection the wbc will
show its real self.  So no hair loss from that so far - thank goodness.  But
I do sympathize.

Kate I think what you are doing is great.  I would really stress the no muss
haircut if possible - no hairdryers or curling irons is my motto.

The other thing she might mention is regular pedicures if you can't do it
yourself.  That is good foot care and you can find reasonable and safe
places.  The other thing is that people on blood thinners, and prednisone
should not have waxes - it can rip the skin off or bruise them.  My spa will
now not do waxes with those meds.  Being familiar with how easily someone
like Diane has skin problems opens ones eyes on this (I never do waxes
because I am a wuss!)

Great idea Kate.  Wish that the dermatologist would get a solution Diane - I
can only imagine how distressing it is - especially if you are not getting
relief anyways.

Kelly
Squirrely - 30 Aug 2006 14:41 GMT
I lost it in this message.

Whoever has the sinus and UTI infection. I hope you are getting better.
Please be careful. The mouth sores might not be from the meds but from the
virus you had that caused the infections. That is what happened to me and
then boom teeth infections. I had the other infections too. So take care and
know I am thinking of you even though I am confused to who has this going
on.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
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   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> If we were to take a poll I bet the 2 things aside from pain etc that
> people
[quoted text clipped - 46 lines]
>
> Kelly
Kelly - 30 Aug 2006 16:46 GMT
It was me -and it is unfortunately very clear it is the mtx but thanks Jo.
I get it the morning after the mtx and the morning after that and the mouth
peels twice completely including between the teeth.  The leucovarin helps (5
mg a day of folic acid did nothing) and it has stopped completely since we
stopped the mtx.  It is too regular to not be this - especially since it was
before the infections too.

But I will keep an eye on that. you take care of yourself.

Kelly
>I lost it in this message.
>
[quoted text clipped - 60 lines]
>>
>> Kelly

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