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Medical Forum / Diseases and Disorders / Arthritis / September 2006

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OTP: Thanx, Squish!

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Rosemarie Shiver - 27 Aug 2006 01:08 GMT
Thanks for the cards for our anniversary and my B'day and my middle boy's
B'day. We ALL appreciate 'em. I especially like the kewl stickers you put on
'em...beaucoup pretty, m'dear!

Sq. Jo Hugs from Rosie
Signature

"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II

Squirrely - 27 Aug 2006 06:42 GMT
Your welcome Rosie, just wanted you all to know I was thinking of you.

I know it is early but wasn't sure how long I was going to be down with the
mouth stuff and infections so got them out before the surgery to be sure I
could get them all there in time.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

>   Thanks for the cards for our anniversary and my B'day and my middle
> boy's
[quoted text clipped - 3 lines]
>
> Sq. Jo Hugs from Rosie
Squirrely - 27 Aug 2006 06:46 GMT
another good thing is that I got them out when I did. Jim can barely walk
now.

His knee is so bad even the aleve and ben gay or ice hot won't help now.

So I would never have gotten them to the post office. I can't believe he is
so bad.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Your welcome Rosie, just wanted you all to know I was thinking of you.
>
[quoted text clipped - 9 lines]
>>
>> Sq. Jo Hugs from Rosie
Rosemarie Shiver - 27 Aug 2006 17:33 GMT
What happened to it? Did he twist or sprain it? Or does he have a tear?
What's he planning to do to fix it if he can't put anything on it?

Wondering About Jim Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II

> another good thing is that I got them out when I did. Jim can barely walk
> now.
[quoted text clipped - 17 lines]
> >>
> >> Sq. Jo Hugs from Rosie
Squirrely - 27 Aug 2006 17:51 GMT
I dont know Rosie, I think he fell but he won't tell me. I noticed his ankle
bone was all scratched up about a week or so ago. He said no I didn't fall.
But I don't believe him.

I have my suspisons (sp) that he is either falling alot or passing out. But
the bugger won't tell me because he knows I will make him go to the dr
whether we have money or not.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

>    What happened to it? Did he twist or sprain it? Or does he have a tear?
> What's he planning to do to fix it if he can't put anything on it?
[quoted text clipped - 24 lines]
>> >>
>> >> Sq. Jo Hugs from Rosie
jb - 28 Aug 2006 03:30 GMT
Squirrely
Thinking of and praying for you and Jim.
Love
janice

|I dont know Rosie, I think he fell but he won't tell me. I noticed his ankle
| bone was all scratched up about a week or so ago. He said no I didn't fall.
[quoted text clipped - 32 lines]
| >> >>
| >> >> Sq. Jo Hugs from Rosie
d'huit - 31 Aug 2006 19:24 GMT
same here, hon.

kate

Squirrely
Thinking of and praying for you and Jim.
Love
janice

|I dont know Rosie, I think he fell but he won't tell me. I noticed his
ankle
| bone was all scratched up about a week or so ago. He said no I didn't
fall.
| But I don't believe him.
|
| I have my suspisons (sp) that he is either falling alot or passing out.
But
| the bugger won't tell me because he knows I will make him go to the dr
| whether we have money or not.
|
| >    What happened to it? Did he twist or sprain it? Or does he have a
tear?
| > What's he planning to do to fix it if he can't put anything on it?
| >
| > Wondering About Jim Hugs from Rosie
| >
| >> another good thing is that I got them out when I did. Jim can barely
walk
| >> now.
| >>
| >> His knee is so bad even the aleve and ben gay or ice hot won't help
now.

| >> So I would never have gotten them to the post office. I can't believe
he
| > is
| >> so bad.
| >>
| >> > Your welcome Rosie, just wanted you all to know I was thinking of
you.

| >> > I know it is early but wasn't sure how long I was going to be down
with
| >> > the mouth stuff and infections so got them out before the surgery to
be
| >> > sure I could get them all there in time.
| >> >
| >> >>   Thanks for the cards for our anniversary and my B'day and my
middle
| >> >> boy's
| >> >> B'day. We ALL appreciate 'em. I especially like the kewl stickers
you
| > put
| >> >> on
| >> >> 'em...beaucoup pretty, m'dear!
| >> >>
| >> >> Sq. Jo Hugs from Rosie
Squirrely - 01 Sep 2006 07:31 GMT
Thanks Kate,

I have missed seeing you here. When you can, can you give us an update on
how it is going with you.
I am so glad to see you back.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> same here, hon.
>
> kate
d'huit - 01 Sep 2006 10:13 GMT
loving (((((((((((((sj)))))))))))))).  thank you, dear heart.  update?  i'd
have to write a great tome for an update, sweetie.LOL  it's been so long
since i wrote an update.  but, i'll do my best, when i get back from my
spine scan (wasn't told whether he meant mri's of my whole spine or cat scan
or whatever else they might use these days) and hopefully, the beginning of
a new series of epidurals this afternoon.

kate

Thanks Kate,

I have missed seeing you here. When you can, can you give us an update on
how it is going with you.
I am so glad to see you back.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> same here, hon.
>
> kate
Squirrely - 01 Sep 2006 18:31 GMT
Hope all goes well with your scan today and things go well for you from the
results and treatments that you might get then.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> loving (((((((((((((sj)))))))))))))).  thank you, dear heart.  update?
> i'd
[quoted text clipped - 7 lines]
>
> kate
Fire Chief - 01 Sep 2006 22:14 GMT
Kate wrote:

> i'll do my best, when i get back from my spine scan (wasn't told
> whether he meant mri's of my whole spine or cat scan or
> whatever else they might use these days)

Keep us updated as much as you can.  Let us know about
the scan(s).
d'huit - 02 Sep 2006 00:33 GMT
i'm reeeeeally tired, gang.  long tedious drive and long appointment.  so, a
more comprehensive update will have to be postponed.

no scans today.  however, i got the best exam workup i've ever had!  on the
15th i go in for a full spine mri and then he does the injections that day,
after he studies the data from the new mri and compares it.  he "suspects",
after the exam (but will wait until he gets the old mri films, my current
dexa and something else, i've forgotten) that my condition has
"significantly worsened" and that we might be looking at 6 or 7 injection
sites (as opposed to the first series i had of 2 injection sites).   that
appointment on the 15th will be approximately 3 to 4 hours long, not
counting the time he wants me to rest there (for an hour or two more)
afterwards---mainly because i have no one to drive me home immediately.

he also said, that since i am his patient, he felt the need and obligation
to tell me that i need to be a better medical consumer, because i have
significant health issues.  he suggested i go to doctors who have no more
than 4 doctors involved in their clinics  and no doctors in clinics where
there are non-medical investors the doctor needs to be accountable to, so
that i can receive less rationed health care and more focused health care.

w0w.  some of my doctors are  part of a large health care conglomerate
monopoly and i've been unhappy with them, like my pcp and rd.  maybe, that's
why i have been feeling like it was hard to get any kind of focused care
from some of my doctors--like my pcp and rd.
beat,
kate

Kate wrote:

> i'll do my best, when i get back from my spine scan (wasn't told
> whether he meant mri's of my whole spine or cat scan or
> whatever else they might use these days)

Keep us updated as much as you can.  Let us know about
the scan(s).
Nann Bell - 02 Sep 2006 22:30 GMT
>   that
> appointment on the 15th will be approximately 3 to 4 hours long, not
> counting the time he wants me to rest there (for an hour or two more)
> afterwards---mainly because i have no one to drive me home immediately.

I'm glad you're back is getting such comprehensive attention, but surely wish
things didn't appear to be deteriorating more.

>  he suggested i go to doctors who have no more
> than 4 doctors involved in their clinics  and no doctors in clinics where
> there are non-medical investors the doctor needs to be accountable to, so
> that i can receive less rationed health care and more focused health care.

Interesting comments, but it seems to me that one shouldn't necessarily make
this a blanket policy.  Overall, you are the best consumer by going to
doctors who take appropriately good and thorough care of you and you are the
best judge of that.  You may find them in large clinics or small practices.

We have a friend who is getting very inadequate care from a doctor in a solo
practice (but she's been going to him for decades and yada-yada....).  
Meanwhile, we are happy with our doc who is in a multi-specialty practice of
about 15 docs.  Of course, issues are different here, with the consolidation
of resources in a rural area, but blanket statements are still tricky.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

d'huit - 03 Sep 2006 02:33 GMT
On Fri, 1 Sep 2006 19:33:52 -0400, d'huit wrote
(in message <IdWdnT0EBOr1XmXZnZ2dnUVZ_sudnZ2d@comcast.com>):

>   that
> appointment on the 15th will be approximately 3 to 4 hours long, not
> counting the time he wants me to rest there (for an hour or two more)
> afterwards---mainly because i have no one to drive me home immediately.

I'm glad you're back is getting such comprehensive attention, but surely
wish
things didn't appear to be deteriorating more.

>  he suggested i go to doctors who have no more
> than 4 doctors involved in their clinics  and no doctors in clinics where
> there are non-medical investors the doctor needs to be accountable to, so
> that i can receive less rationed health care and more focused health care.

Interesting comments, but it seems to me that one shouldn't necessarily make
this a blanket policy.  Overall, you are the best consumer by going to
doctors who take appropriately good and thorough care of you and you are the
best judge of that.  You may find them in large clinics or small practices.

***true.  in my defense, i was waaay too tired and too hurtin' last night to
be coherent about anything (shouldn't have tried) and/or elaborate further.
he did say there were other considerations, like the quality of care,
expertise, communication/listening, availability, competence, thoroughness,
carefulness, personal manner, taking enough time with a patient,
prevention/self-help advice, and such. . .

i know i haven't been getting the kind of care, from my pcp and my rd, that
i need and they are both in the same medical health care
organization/system, which is a regional monopoly in south puget sound.
this particular health care system/org. is into rationing health care--he
didn't tell me that, a nurse did, not his nurse.  i suspected that, because
i've often felt my care was being rationed out to me in tiny increments,
when i knew i needed a more comprehensive approach.  they were making me
have to come back often, for things that could/should have been taken care
of in the prior appmt. when i first mentioned them.

he said what he said to me, because he was astonished that i could function
at all, without good pain management.

this doctor is a pain management specialist, that my neurologist sent me to
this time.  and my neuro didn't want me to see anybody else, except this
particular doctor (at the time, i had no idea who he was sending me to); and
my neuro told him to do anything and everything he could for me--very lucky
me!  my neuro told him he's not required to clear anything, he feels he
needs to do, with my neuro.

this doctor is no longer limited by the health care organization/company, he
used to work for, that limited him to strictly treatment (kind of like
selling product--i surmise.), and did not allow him to do comprehensive
treatment plans, diagnosing or prognosing.  i last saw this same doctor for
my epidurals, the last time i had them, at that company's clinic.

now, he has his own pain management practice/office.  he is, and was, the
doctor with the very "expensive wallpaper" (M.D. degrees from just about
every ivy league medical school i can name), that i told all of you about.
i knew he was a very special doctor the first time i saw him, because he
took his time with me and was very thorough (despite the constraints imposed
upon him).  i feel very blest that he is now my permanent pain management
doctor.  he told me he likes challenges (LOL!) and is happy to be able to
help me.

sidenote:  did you know--- the majority of medical schools don't even spend
3% of *any* medical course of study (specialties included) on pain managment
and end of life palliative care is just as bad.  what a shock that was to
hear coming out in a doctor's symposium, when i watched it.  geesh, no
wonder so many people spend their lives suffering, even though they are
regularly going to doctors!  in otherwords, most doctors don't know sh.t 
about managing pain!  "because they are taught next to nothing about pain
management" (according to the symposium), most doctors are winging it when
it comes to pain managment in their medical practices.  can you believe
that?!  that's sooo shocking to me.

kate

We have a friend who is getting very inadequate care from a doctor in a solo
practice (but she's been going to him for decades and yada-yada....).
Meanwhile, we are happy with our doc who is in a multi-specialty practice of
about 15 docs.  Of course, issues are different here, with the consolidation
of resources in a rural area, but blanket statements are still tricky.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Kelly - 03 Sep 2006 01:09 GMT
A good workup is good.  Do you like this guy?  Hopefully you have someone
who can be with you Kate.  i would come down but I would be next to useless
in the condition I am in and even if I get my rituxan won't be allowed to
travel to the states until we know for sure no lingering side effects.
Please take care of yourself and get some help!

As for the smaller practice - if you like your doctor stay with him/her.  So
long as the practice works well it seems to me that is where you should be.
If however you have a different person each time and they never seem to have
"communication" whether by chart or whatever that is a good reason to go
seek someone else.

Take care of yourself,
Kelly

> i'm reeeeeally tired, gang.  long tedious drive and long appointment.  so,
> a
[quoted text clipped - 37 lines]
> Keep us updated as much as you can.  Let us know about
> the scan(s).
d'huit - 03 Sep 2006 02:38 GMT
i LOVE this guy!  had him before and loved him then, too.  am very unhappy
with the health care rationing of the organization of which my pcp and rd
are members.

i wish we could meet, kelly.  i'm certain we'd get along famously!  or
infamously, knowing me.LOL

kate

A good workup is good.  Do you like this guy?  Hopefully you have someone
who can be with you Kate.  i would come down but I would be next to useless
in the condition I am in and even if I get my rituxan won't be allowed to
travel to the states until we know for sure no lingering side effects.
Please take care of yourself and get some help!

As for the smaller practice - if you like your doctor stay with him/her.  So
long as the practice works well it seems to me that is where you should be.
If however you have a different person each time and they never seem to have
"communication" whether by chart or whatever that is a good reason to go
seek someone else.

Take care of yourself,
Kelly

> i'm reeeeeally tired, gang.  long tedious drive and long appointment.  so,
> a
[quoted text clipped - 37 lines]
> Keep us updated as much as you can.  Let us know about
> the scan(s).
Kelly - 03 Sep 2006 02:45 GMT
I still intend to give you and Carole a call on one of my trips down to
Seattle.  The hard thing is lately I have someone with me or am helping
babysit Kyle in Bellevue when I go down.  Hard to meet someone when you are
in a situation like that.  Also the last few times into the states I have
struggled to get through the day with the new disability.  Getting better at
controlling the neuro stuff now though - know my limitations and with the
scooter I can relieve a little of the pain.

You take care of yourself please.  Glad you like this guy but as you say it
is time to get someone new for the rest maybe.

Kelly

>i LOVE this guy!  had him before and loved him then, too.  am very unhappy
> with the health care rationing of the organization of which my pcp and rd
[quoted text clipped - 68 lines]
>> Keep us updated as much as you can.  Let us know about
>> the scan(s).
Carole - 03 Sep 2006 04:25 GMT
I'm not as far down anymore. I'm in Bellingham now, about 50 miles from
Vancouver. One of these days I'm going to take a ride up there :-)

Carole

> I still intend to give you and Carole a call on one of my trips down to
> Seattle.  The hard thing is lately I have someone with me or am helping
[quoted text clipped - 8 lines]
>
> Kelly
Kelly - 03 Sep 2006 05:24 GMT
Well maybe we time it to meet Rose sometime when she is coming down.  I
can't imagine anyone that wouldn't like Rose immediately Carole.  Or maybe I
pick up Rose and we go down to Bellingham (can you say good shopping down
there Rose - worth a weekend.)

Anyhow probably sometime in October or November I will pop down to see Kyle
(oh and my brother and sister in law but they don't count - they aren't 4
and don't like to sing and dance with Fred Penner!).  Depends on the move -
whether we actually sell the house or not.  And of course the rituxan.
Darn - too many things happening.

Glad to hear Bellingham is working out Carole.  I love that area.

Kelly
> I'm not as far down anymore. I'm in Bellingham now, about 50 miles from
> Vancouver. One of these days I'm going to take a ride up there :-)
[quoted text clipped - 13 lines]
>>
>> Kelly
Carole - 03 Sep 2006 12:40 GMT
I LOVE Bellingham :)  I live 1.5 miles away from a boat that does orca
watch cruises, and I LOVE the orcas. I got some great photos a couple of
weeks ago. They were so good that I sent them to the Whale Research
Center and they id'd them for me.

I also like the vibes of Bellingham. There are some great little shops
and restaurants. Nice funky little places with organic food :-)

My new apartment has a pond in the back with ducks, and we have an
indoor pool, hot tub and sauna. They keep the grounds lovely and I'm
very happy here. I have a little balcony off my living room and I love
to go outside and read.  Life is good :)

Let me know when you are coming down this way :-))

Carole

> Well maybe we time it to meet Rose sometime when she is coming down.  I
> can't imagine anyone that wouldn't like Rose immediately Carole.  Or maybe I
[quoted text clipped - 10 lines]
>
> Kelly
Kelly - 04 Sep 2006 00:32 GMT
I definitely will.

Kelly

>I LOVE Bellingham :)  I live 1.5 miles away from a boat that does orca
>watch cruises, and I LOVE the orcas. I got some great photos a couple of
[quoted text clipped - 27 lines]
>>
>> Kelly
Rosemarie Shiver - 28 Aug 2006 03:30 GMT
{{{Squish and Jim}}}

    Wishing  you both the best and the best of outcomes, Hon!

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II

> I dont know Rosie, I think he fell but he won't tell me. I noticed his ankle
> bone was all scratched up about a week or so ago. He said no I didn't fall.
[quoted text clipped - 32 lines]
> >> >>
> >> >> Sq. Jo Hugs from Rosie
Squirrely - 28 Aug 2006 07:48 GMT
Thanks Rosie and Janice.

I hope something soon goes well with his job situation so we can get medical
coverage and he can get some  help soon.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> {{{Squish and Jim}}}
>
>     Wishing  you both the best and the best of outcomes, Hon!
>
> Hugs from Rosie
 
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