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Medical Forum / Diseases and Disorders / Arthritis / October 2006Severe Hip Pain
Hi, I have suffered for years with severe hip pain, including a lack of mobility. I was told by a doctor a few years ago that I had Perthes, though unfortunately for me it went undiagnosed for many years. I am 34 and have been reduced to using a cane outside my home and a walker in my home. A few days ago the pain was so severe I really just wanted to die, I couldn't stand it any longer. Does anyone out there know of any ways I can manage my pain? My doctors won't do anything because they say I'm too young for a hip replacement. Any help at all would be welcome. James N >Hi, > [quoted text clipped - 14 lines] > > The first thing you can do is find a doctor without "you are too young" in his/her vocabulary. It is a quality of life issue, not age. Lyn That's just plain silly. I had a friend who had a THR back in the 50's about the same time Arthur Godfrey had his in Boston and my friend was only 14 at the time. I lost track of him and don't know how many years it lasted but the poor kid had been on crutches prior to the surgery and was walking fine afterward. Ann My advice: Change doctors. You are not too young for a hip replacement with the pain you are having. See an orthopedic surgeon, to whom you may have to be referred by your regular doctor, but don't put it off. Gwen > Hi, > [quoted text clipped - 12 lines] > > James N > Hi, > [quoted text clipped - 12 lines] > > James N James, you need new doctors. I had my first hip replacement at 25 and the second one at 27. I'm 31 now. The artificial hips are pretty much the only major joints that I have that still work right! What country are you in? Seriously, if they said you're too young they're either mismanaging your symptoms (eg, you're not physically in need of a hip replacement yet and they can do something else in the mean time but aren't) or they're just lazy fuckwits. What kind of doctor told you that you are too young for a hip replacement? I lost my hips due to osteonecrosis. Regards, Ari  Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ spodosaurus wrote:>snip< > James, you need new doctors. they're just lazy fuckwits. DITTO, DITTO,double ditto... johnie > spodosaurus wrote:>snip< > [quoted text clipped - 3 lines] > > johnie Actually I think I was a bit severe...well...given what's happened to me in the last two years I guess not. I do, however, think they're being indoctrinated into the art of fuckwittedness rather than being inherently fuckwitted (not to say that their intentions aren't good, just too often misguided). Although some would just have to be savants as they are so adept at it. Regards, Ari Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ johnie wrote: > spodosaurus wrote:>snip< > [quoted text clipped - 3 lines] > > johnie Actually I think I was a bit severe...well...given what's happened to me in the last two years I guess not. I do, however, think they're being indoctrinated into the art of fuckwittedness rather than being inherently fuckwitted (not to say that their intentions aren't good, just too often misguided). Although some would just have to be savants as they are so adept at it. LOL! the more i learn about medical school training, from doctor's symposiums, the more i have to agree with you about indoctrination, ari. i sooo feel for dedicated med students! last week, it totally cracked me up to learn that med students were classically taught that patients lie to them and that med students are now, also being taught "to listen to their patients".LOL i did such a double take when i heard that. like, hunh? (it's got to be conflictingly difficult to reconcile those two things and apply them both in one's medical practice.) what?-- did the medical profession discover that after years of classically trained doctors tuning-out, what they were taught were "liars", actually caused them to miss important information? surprise, surprise. well, that outcome wouldn't have surprised me. boy, and i have had doctors who just wouldn't listen, and it cost me bigtime. personally, i believe that trust has to go both ways for a doctor/patient relationship to work. sigh . . . isn't it a shame how each generation has to rediscover (and reinvent) the wisdom of past generations, instead of having that wisdom passed onto them. and how, what used to be straightforward becomes more complicated. kate (grateful for my neurologist and pain specialist who do listen, though who might, or might not, be dubious about what they hear, at times. both are keepers, until further notice.LOL otoh, you can have my pcp and rd if you want them.) Regards, Ari Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ ARGH...The "YOUR TOO YOUNG" speach.... Well I am sure if it was them that was in the pain that they wouldn't be so young... I am not sure how to find a doctor that would help you...unless you went to a clinic that specializes in just bone and joints... We have a clinic like that in OK...My OS told me that too...but I think when I am ready, my Rheumy will see to it that I get my TKR's ... Hope you get the treatment you need...because you are WAY TOO YOUNG TO USE A CANE to get around...I think that is what I would tell the doctors... Cindy > Hi, > [quoted text clipped - 12 lines] > > James N James, Try another doctor. You shouldn't have to live in pain. Go out of town if you have to. debbie m. > Hi, > [quoted text clipped - 12 lines] > > James N james wrote: > My doctors won't do anything because they say I'm too young for a hip replacement. THAT IS BULL sh.t! THERE IS NO SUCH THING AS "TOO YOUNG"! > Any help at all would be welcome. You have a pile of manure for "doctors". They shouldn'd be in the profession today. In 1994, I met a sweet, young thing (wish I had been younger at the time) age 29, who had 3 total joint replacements - 1 shoulder and 2 hips. Teens are receiving them these days. Quality of life is the key word today - not age. Get thee some new doctor(s) who won't talk down to you, 'cause that's exactly what the old farts are doing with you - treating you like mushrooms (and you know how those are raised/cultivated). ... Fatal mouse error. Feed to snake (Y/n) james norwood wrote: > My doctors won't do anything because they say I'm too young for a hip replacement. I failed to mention that this was the attitude when hip replacement materials had a live expectancy of 5 to 8 years. That would have required 5, 6, 7 surgeries in a normal lifetime if a person received one in their 20's, 30's, 40's. New space-age materials, thanks in large part to NASA, have extended the live of a joint replacement to 20 to 25 years. A youngster receiving one would probably need only one more in their lifetime. I had my left hip replacement at age 64. I should have had it 5 or 6 years sooner but the former rheumatologist (RD) I had (she also served as my PCP) was a BITCH and negligent in patient care. I switched PCP within my HMO and she instantly referred me to one of the best RDs in the county. WIthin 6 months - after HMO approval, lab work, X-rays, autonomous blood donations, etc. etc. - I had my THR. I expect it to last forever - go to the grave with me. I'm saying again, get new doctor(s) who aren't living in the stone age. This is the 21st century, not 500 B.C. ... Files not found: Delete user instead? (Y/y) > New space-age materials, thanks in large part to NASA, have extended > the live of a joint replacement to 20 to 25 years. A youngster > receiving one would probably need only one more in their lifetime. Titanium and ceramic...like the space shuttle's heat shield or the armor on the APCs in the US Army. So, basically, these materials will last longer than we will in some cases. Re-enter the atmosphere butt first and at least something will hit the ground! :-) Ari Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ For curiosity, are you able to sit down without that side of your butt hurting a lot? > Hi, > [quoted text clipped - 12 lines] > > James N > For curiosity, are you able to sit down > without that side of your butt hurting a lot? Perthes (although a disease of children, which makes me question why it would be diagnosed after the OP was 30...) is quite different from piriformis syndrome. >>Hi, >> [quoted text clipped - 12 lines] >> >>James N Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ There could have been signs of Perthes having occurred, and the resultant deformation could account for some or all of the problem. But not likely, IMO, because of the OP's age. My question was not related to piriformis, but rather the prospect of iliosacral guarding. A website to consider for hip or back pain. Shucks, others as well. http://altmed.iatp.org.ua/pain/maps/iliosacral_pain.htm > > For curiosity, are you able to sit down > > without that side of your butt hurting a lot? > > Perthes (although a disease of children, which makes me question why it > would be diagnosed after the OP was 30...) is quite different from > piriformis syndrome. I've had pain in my hip or knee since I was a teen which is why Perthes made sense to me. Just because something isn't diagnosed correctly doesn't make it so. I'm not really interested in the diagnosis so much as I am interested in stopping the pain and walking with a cane. > There could have been signs of Perthes having occurred, > and the resultant deformation could account for some or all [quoted text clipped - 10 lines] > > would be diagnosed after the OP was 30...) is quite different from > > piriformis syndrome. My butt doesn't hurt at all. The pain is in the right hip and it often radiates down to my knee. James > For curiosity, are you able to sit down > without that side of your butt hurting a lot? [quoted text clipped - 15 lines] > > > > James N >My butt doesn't hurt at all. The pain is in the right hip and it often >radiates down to my knee. [quoted text clipped - 20 lines] >> > >> > James N Have any of your doctors done a MRI on your hip? I certianly know what you feeling with serve pain in hip going down to knee, and in my case left foot ( mine is left hip) I have reactive arthrtis also know as Synovitis. Kind of like Rhematoid Athrtis, but more linked to my immune system being over active. So I'm wondering if they have done a MRI scan or an arthoscope to see what exactly is happening inside your hip. Phil you've been given the best advice, james, by those who really do know about these things. so, i won't echo it. i'll just offer (((((((((((((((hugs)))))))))))). and welcome you to our family. kate Hi, I have suffered for years with severe hip pain, including a lack of mobility. I was told by a doctor a few years ago that I had Perthes, though unfortunately for me it went undiagnosed for many years. I am 34 and have been reduced to using a cane outside my home and a walker in my home. A few days ago the pain was so severe I really just wanted to die, I couldn't stand it any longer. Does anyone out there know of any ways I can manage my pain? My doctors won't do anything because they say I'm too young for a hip replacement. Any help at all would be welcome. James N |
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