Duckie, are you 100 percent fused? And by taking the Remicade and Arava did
you regain any flexibility or experience a decrease in pain?
I'm 56, totally fused and taking Enbrel. Tramadol is added to the mix for
pain control. While I'm seeing a very slight improvement, I'm willing to
try something different but not sure which way to go. Is there a online AS
support site that has good info for those of us in the final stages of
Ankylosing Spondylitis? -AL in Norcal
"Duckie" <maroldcXXnospam@comcast.net> wrote in message
>I am taking Remicade and Arava and last year needed Rituxan to make both
>work again.
> Duckie
>
>> Is anybody taking both Remicade and Enbrel? Since both are TNF blocker
>> can they be used together?
Fire Chief - 31 Jul 2006 21:21 GMT
> I'm 56, totally fused and taking Enbrel.
I was 39 when diagnosed in 1976. 2 doctors I had between
then and 2000 kept my on Indocine. I was rated disabled in
2000.
I began to read about Bextram Cekebres and Vioxx in the
papers and here at ASA in 1999. When I asked my rheumy
at an appontment what they were all about, the bitch shouted,
"I KNOW WHAT"S BEST FOR YOU!" (This followed her telling
me to put a hip replacement until I couldn't stand it (pain) any
longer. Then wWhen I told her it was time, she replied,
"Wellllllllllllll, it may be too late.") That was my last
appointment
with her. I found another rheumy in 2000 who had my THR
arranged and completed within 4 months of my first appointment.
With a staff of 6 MD's, a PA, a PA and several nurses, in
additon to regular patient appointments, he runs clinical on
6 to 8 drugs a year.
> Is there a online AS support site that has good info for those
> of us in the final stages of Ankylosing Spondylitis?
> -AL in Norcal
I don't know what you mean by "final stages". I was diagnosed
in 1976 and I DO NOT consider myself in the "final stages."
Following my THR, I resumed square dancing, can tolerate a
3- or 3-hour shopping trip in the commissary every 6 to 8
weeks (between trips to COSTCO for meats and veggies).
The Spondylitis Association of America may be what you're
looking for. Local chapters pop up and disappear coast to
coast, so at any one given moment in time there may be one
near you......or not. If not, you can become a member-at-large
if you wish to do so.
http://www.spondylitis.org
Joe in SoCal (who remembers........)
... Oooh, Ee, Oooh Ah Ah, Ting Tang Walla Walla Bing Bang
Duckie - 31 Jul 2006 22:05 GMT
Sorry -- didn't realize you were asking about things for AS [my father's
disease]. I have RA [was first diagnosed with SA [spondy...] but since
my spine refused to join the fun, my diagnosis was changed.
My mention of differences in drugs was based on what I have read here
and from personal experience about DMARD's in general.
My father lived until his mid 70's [20 years longer than any male
relative of his and nearly 28+ years longer than his father] and he had
been completely fused since his late 20's with diagnosis around 22 at
Duke Medical center. Aspirin was the only drug of choice and it did keep
him from being bent double. That was years ago. My father died 10 years
ago from complications of his AS but doubt if anyone faces those
problems today.
Duckie
> Duckie, are you 100 percent fused? And by taking the Remicade and Arava did
> you regain any flexibility or experience a decrease in pain?
[quoted text clipped - 13 lines]
>>>Is anybody taking both Remicade and Enbrel? Since both are TNF blocker
>>>can they be used together?
Duckie - 01 Aug 2006 03:04 GMT
That should say he died 20 years ago. Man was born in 1912 afterall.
Duckie
> Sorry -- didn't realize you were asking about things for AS [my father's
> disease]. I have RA [was first diagnosed with SA [spondy...] but since
[quoted text clipped - 27 lines]
>>>> Is anybody taking both Remicade and Enbrel? Since both are TNF
>>>> blocker can they be used together?