 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Arthritis / July 2006Worried about Erosions
I tested high positive for Anti-CCP (370) and RF (330), had elevated ESR and CRP. My RD started me on Plaquenil and Relafen. I was experiencing joint pain without swelling. Since I started on the Plaquenil, my ESR and CRP have returned to normal. However, the occasional "flaring" has changed to a constant ache in my wrists, shoulders, and some knuckles of my hands. I'm worried about erosions in my hands. My RD says I don't have to worry about erosions because of the normal inflammatory markers and because I don't have any swelling. My question is... has anyone developed erosions without elevated ESR and CRP and has pain without swelling? >I tested high positive for Anti-CCP (370) and RF (330), had elevated > ESR and CRP. My RD started me on Plaquenil and Relafen. I was [quoted text clipped - 9 lines] > My question is... has anyone developed erosions without elevated ESR > and CRP and has pain without swelling? Oh yes,,, many people. I know one lady that has never had a joint to swell but has had lots of problems with her joints with pain. She has learned to live with toes that point in all directions. Ask for more medical help for where you hurt. Plaq. is one of the mildest DMARDs and you may need to add another Dmard. Harv Do not listen to that doctor, I am a good example, never had a high sed rate or creaptive protein, I am positive with the Anti-CCp of over 600 an the rf, can't remember that one, I have been on mtx, plaquneil and now enbrel, but for the 2 years it took them to decide exactly what I had and only taking plaquenil, I have MANY joint erosions in my poor feet, the first and 5th are gone and the sides of my feet have them now also. In fact the last x-rays of the feet still show more progression even with taking all of these meds. Don't believe when they say your blood work looks fine it can't cause damage, I am proof as well as others that it Can,. Becky >I tested high positive for Anti-CCP (370) and RF (330), had elevated > ESR and CRP. My RD started me on Plaquenil and Relafen. I was [quoted text clipped - 9 lines] > My question is... has anyone developed erosions without elevated ESR > and CRP and has pain without swelling? > Do not listen to that doctor, I am a good example, never had a high sed rate > or creaptive protein, I am positive with the Anti-CCp of over 600 an the rf, [quoted text clipped - 8 lines] > damage, I am proof as well as others that it Can,. > Becky Becky, Did you also have pain without swelling? I'm not having any swelling. Cheri. i'm afraid you can indeed have destruction with normal blood work. i certainly did, although i did eventually have swelling. you might want to get a second opinion. diane KweenB, YES!! I had severe pain in both wrists and in my lower back, with hardly any elavation in sed rate and no swelling. Three years later? Diagnosed with ankylosing spondylitis, which is a rare form of arthritis. What helped me was insisting on two MRIs with contrast, because the previous xrays showed nothing. (IT can sometimes take xrays years to show erosions). Lo and behold, both MRIs showed problems...erosions in both wrists and in my SI joints (lower back). Please stand up for yourself and do not let them push you around. Insist on whatever tests you think you need! Char > Three years later? Diagnosed with ankylosing spondylitis, which is a > rare form of arthritis. When were you diagnosed with AS? Mine was in 1976, with a second opinion in 1977. The only treatment was Indocine until 2000. I used some Time-Life books to develop some exercises, which the doctors never recommended. > Char Oh, Oh! Do we have 2 in the group now? I know one in the Corn State - not sure you're the same gal. <g> ... Suburbia: Where they rip up trees but name streets after them. >> Three years later? Diagnosed with ankylosing spondylitis, which is a >> rare form of arthritis. [quoted text clipped - 10 lines] > Oh, Oh! Do we have 2 in the group now? I know one > in the Corn State - not sure you're the same gal. <g> Actually she is Char2. Char does not post much because using the keyboard is very painful for her. Do not feel bad Chief,,, we all have made the same mistake. Harv Harv wrote: > Actually she is Char2. Char does not post much because using the keyboard > is very painful for her. Do not feel bad Chief,,, we all have made the same > mistake. Thanks Harv. That clears up the mystery. ... File not found: Use sandpaper instead? Y/n Chief, Even though I am not the Char you think I am (teehee), I was diagnosed about a year or so ago. After going through almost 3 years of being told it was all in my head, or RA or some other jibber jabber. I am glad to have this disease now though, rather than when you were diagnosed. The meds now are much better for most people. Char 2 > Chief, > > I was diagnosed about a year or so ago. >. I am glad to have this disease now though, rather than when you > were osed. The meds now are much better for most people. There's more to it than just better medications. Today's modern doctors don't tell patients to confine themselves to wheelchairs, like one told me. That was after he had told me in 1983 to begin using crutches for walking. I told him where he could "stuff" those crutches and went to a square dance class instead. I danced until I had to stop driving in 1996, received a THR in 2000, and resumed square dancing in 2001with a lady who became my wife the following year. <g> Doctors now use some aggressive physical therapy and teach stretching and low-impact exercises. Up-to-date doctors don't tell patients "you're too young" and don't tell them to avoid total joint replacement (TJR) for years and years. ... My brain says, "Get up and go!" but my body says, "Who? Me?" this is a good point char makes. my foot and ankle were my first problems. no swelling, but so much pain i could literally barely walk (sorta like now--haha--how depressing). anyhow, xrays and blood work were perfectly normal. i finally insisted on an mri and then the docs freaked. it showed "a growth" running all over the bones joints ligaments etc in the side of my foot. only after it was surgically removed was it found to be "inflamed synovial tissue" -- and the start of everything. diane |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.