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Medical Forum / Diseases and Disorders / Arthritis / June 2006Update on my Friend Arlene
It doesn't look good. The other of our triumvirate friendship has been updating me..... Saturday, June 24, 2006 We have a name. It is Disseminated Histoplasmosis. www.astdhpphe.org/infect/histo.html for information. The great news is, "it is treatable". There is also no sign of RA which kinda distresses me, or not, we'll see. Keep up your prayers, they are working. Thank you, Jesse Monday, June 26, 2006 Long story. Started last fall with a blood clot in her leg. Then pneumonia. Next double pneumonia. Suddenly they announced it was Legionnaire's and she was dying. When she decided not to die, they said it was cancer in her heart. Next it was cancer in her lungs. She was finally transferred to Washington Hospital Center, but refused anymore tests, wanting to die in peace [i.e.: without the pain of additional useless testing]. Her kids & best friend all came out to visit while the new docs & nurses convinced her that she did not need to die. She agreed to 2 more tests. Bone marrow proved no cancer - anywhere. Looking at an elusive spot in the back of her heart revealed what the problem had been all along: yeast infection throughout the entire pulmonary system. They immediately flushed the system with antibiotics & began IV with same. Whatever it is, it has a locked box around the IV bag that can only be opened with a key! We saw her Friday, evidently just after Jess had received the incredible news. She was heavily sedated, since her new docs & nurses do not believe in pain ? She has been in the hospital more days than out this year. Now this is my interpretation of these events & it may not be exactly correct, but you get the picture that the other hospitals (2) misdiagnosed & subsequently mistreated Arlene to the point of nearly killing her 3 times! They actually said her body systems were shutting down. Inexcusable! Tim just received a message that Arlene's primary care doc had been treating her for rheumatoid arthritis, which was his misdiagnosis of this yeast infection, which she has had for so long that is has actually involved her bones. The docs do not think they can beat it & are giving her a 3 in 10 chance for survival. Appalling! Monday, June 27, 2006 We saw her last night, she seemed worse. We believe she knew we were there, but she was unable to respond except to open one eye. It is just too sad to bear! Jesse met with our Bishop last night. We have not yet heard anything new. Oh, sh.t! - I'm so sorry DeeTee. That's so awful. Let's keep praying and hope for the best (whatever that is). I know the family probably doesn't want to deal with this right now - but they certainly should have all the medical records reviewed by counsel and an independent physician (the lawyer will know where/whom) in preparation for a malpractice case. In fact, if they are up for it, they should ask for copies of her records from the initial providers (and everyone along the way) now before she, God Forbid, passes. Of particular interest to me (as an atty) is the RA treatment. The site you provided said histoplasmosis is generally not fatal except for those with weakened immune systems. If the treatment for RA created that weakened state, there are multiple people responsible for this terrible cascade of events. The actual missing of the histoplasmosis may or may not be malpractice if the other diagnoses were reasonable given the symptoms, test results, etc. Only an independent expert can say whether they followed appropriate protocols. Adelle > It doesn't look good. The other of our triumvirate friendship has been > updating me..... [quoted text clipped - 38 lines] > eye. It is just too sad to bear! Jesse met with our Bishop last night. We > have not yet heard anything new. I have passed your comments on to my friend to bring up to Arlene's hubby. I don't know if he'll do anything about it or not. Right now they're concentrating on not letting her give up. I wouldn't blame her at this point, though. Thanks, Adelle DeeTee > Oh, sh.t! - I'm so sorry DeeTee. That's so awful. Let's keep praying and > hope for the best (whatever that is). [quoted text clipped - 60 lines] >> eye. It is just too sad to bear! Jesse met with our Bishop last night. We >> have not yet heard anything new. how horrible and frightening, dee tee. i can imagine the anger and frustration all around. i'll keep her and her family in my prayers. diane Unbelievable... Duckie > It doesn't look good. The other of our triumvirate friendship has been > updating me..... [quoted text clipped - 36 lines] > eye. It is just too sad to bear! Jesse met with our Bishop last night. We > have not yet heard anything new.
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