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Medical Forum / Diseases and Disorders / Arthritis / June 2006

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Neurontin

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m-L - 23 Jun 2006 05:04 GMT
Anyone here have experience with Neurontin?
If so, did it help and what were your side-effects?

I'm starting it today, so far i feel really light-headed and kind of like i'm
spinning.
Janet - 23 Jun 2006 05:37 GMT
Hi-

I only got as far as taking it one night.  When I woke up in the
morning I staggered my way around the bedroom, couldn't shower, and had
to hold onto walls, counters, etc. for several hours.  The dose might
have been too big says my current neurologist.  Anyway, it was a scarey
experience, particularly as I was taking care of my mother who had
Alzheimer's and was physically handicapped.  The first dose was my
last!

Janet
> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like i'm
> spinning.
Rosemarie Shiver - 23 Jun 2006 07:11 GMT
  Neurontin helps me greatly. I have nerve damage in my legs and down my
arms into my hands and I must have my Neurontin to keep the pain to a dull
roar.It was a pain management doc who tried it with me as the first thing to
try and it worked.

  It takes a bit of time to adjust...give it at least a month. If your doc
will work with you get the dose up ( yes UP) to where you've got the pain at
bay...then stick there while the side effects ( fog, balance issues, etc.)
fade.

  Fo rme the adjusting to it and the waiting for the side effects to
diminish were well worth it. When I ran out of my Neurontin during the
hurricanes ( no drugstores had electricity) the pain that returned was
intense and brutal. Crazy-making kind of pain. :-((((

  The main thing is many folks don't stay with it and increase for a month
so they really never get the right dose and the painkilling properties.

  If you get bad nausea, however, that's the one side effect that sez
Neurontin isn't for you. But it sure is for me with the neuropathy and the
FM and OA and all the other junk I have.:-) Be brave and stick with it, ok?

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II

>
> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like i'm
> spinning.
m-L - 23 Jun 2006 18:33 GMT
Thank you for the responses.
I slept better than i have in a long time!
Got up in the morning though, took my Wellbutrin and half of a 300mg Neurontin
and i'm just floating around the house.  It's like the things that were
hurting are still doing something but it doesn't feel like pain, just a
sensation of some sort.

I have to ask this, if anyone is ok with talking about it, what about sexual
side-effects?  Some medications totally wipe out my ability to orgasm and it
makes sex undesirable and frustrating.  I hope this won't do that.
Rosemarie Shiver - 23 Jun 2006 19:45 GMT
:-) The reduction of pain improves everything about relations. May take a
bit longer on my part; but that's not a prob.here.

HTH!

ReHugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II

> Thank you for the responses.
> I slept better than i have in a long time!
[quoted text clipped - 6 lines]
> side-effects?  Some medications totally wipe out my ability to orgasm and it
> makes sex undesirable and frustrating.  I hope this won't do that.
m-L - 23 Jun 2006 22:27 GMT
>:-) The reduction of pain improves everything about relations. May take a
>bit longer on my part; but that's not a prob.here.
>
>HTH!
>
>ReHugs from Rosie

thanks!
Angela - 24 Jun 2006 03:50 GMT
m-L

I've been on Neurontin forever it seems.  I only take it at night
because it makes me "stupid" if I take it during the day.  I take 800
mg.  The one thing I found with taking it was that the dose has to be
built up slowly.  I started with 100 mg. and built up from there.  I
wouldn't increase it faster than every two weeks to a month if you are
having problems.  It does help with neuro- type symptoms.

As far as sexual side effects, I take SO much medication that I
couldn't say.

Best of luck to you
Angela
GARY Z - 23 Jun 2006 11:36 GMT
> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like
> i'm
> spinning.

I was on Neurontin for awhile. It did wonders for the pain in my arms. The
ulnar are damaged from my elbows. I had to stop taking it due to a conflict
with another medication I needed to start. The fogginess will pass as I
recall. You may have to periodically increase the dosage if you build a
tolerance. I think I gradually built up to a dosage that was effective for
me from the start. Perhaps a few days at half dose and then up to
recommended. Might want to check with your doc on that.
GaryZ
vickie b. - 23 Jun 2006 14:26 GMT
I've been on Neurontin for several years now.  I don't remember these
kind of problems.  But I started with only 100 mg dose once a day.
Even now I only take 300 mg per day.  This does help me.  I have FMS.

Take care,

Vickie B.
Adelle - 23 Jun 2006 17:50 GMT
> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like
> i'm
> spinning.

Neurontin has been wonderful for controlling the pain from my sciatica, but
I cannot take the full dose as originally prescribed. It was 100 mg X3 per
day during daytime and 300 mg at bedtime. With that dose I was a total
zombie. Very dizzy and tired; lurching around the way Janet described.

I dropped the bedtime dose completely once the acute phase of my back thing
subsided. I now take 100 mg every six hours or so as needed and that has
worked very well.

Adelle
debbie m - 23 Jun 2006 21:07 GMT
Hi,

I've been taking neurontin for a couple of years.  It has helped with
some nerve damge that I have.  However, I can only take 100 mg at
night.  I can not take the 100mg 3xa day as was recommended.

Try taking a smaller dose.  I don't know why docs try us out on the
higher doses anyway when the smaller one might help.

debbie m.

> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like i'm
> spinning.
jb - 24 Jun 2006 15:59 GMT
I took neurontin for a cuple of years for my neuropathy. i was taking 900 mg
3 times a day. at first i did feel woozzy and drowsey but later it didnt
bother me. it just didnt help me after a while. the dr changed me to lyrica
and now i am taking that. my neuropthy is not gone away but i do think it
may be giving me a little relief
hope it helps you
janice

| Anyone here have experience with Neurontin?
| If so, did it help and what were your side-effects?
|
| I'm starting it today, so far i feel really light-headed and kind of like i'm
| spinning.
Kelly - 24 Jun 2006 19:19 GMT
What dose are you on for the lyrica Janice.  I have added a noon 150 mg and
am taking it morning and evening.  I know when it is due - it is helping
with the neurological pain and I isn't making me sleepy but it might be what
is causing the blurry eyesight - they are still investigating and I am not
stopping it anyhow!  Will tell my doctor I have increased it to 150 mg.
Wouldn't mind taking it to 600 mg a day (maximum) just to see if I could get
my pain level down a bit more.  I know the neuropothy is not going to go
away but I would like it to get down to a 7 in pain level.

Kelly
>I took neurontin for a cuple of years for my neuropathy. i was taking 900
>mg
[quoted text clipped - 13 lines]
> i'm
> | spinning.
jb - 26 Jun 2006 05:38 GMT
Kelly I am taking 75 mg 3x a day and boy when it starts running out my feet
are killing me.
I have had blurry visioon also and seems it makes my feet and legs swell
more.
i dont know how much is allowed to take .  what is your pain level  now?
Pain clinic rx mine
started me on 2 x a day 75 mg. i then asked for more and he upped it to 3x a
day 1 more would be a big help for me.
thanks
janice

| What dose are you on for the lyrica Janice.  I have added a noon 150 mg and
| am taking it morning and evening.  I know when it is due - it is helping
[quoted text clipped - 23 lines]
| > i'm
| > | spinning.
Kelly - 27 Jun 2006 00:52 GMT
I am on 150 mg 3 x a day (but my doctor doesn't know that until tomorrow.
apparently 600 mg is the limit but 450 was suggested on one reference as the
limit for neuro pain so not sure.  I only know when I am running out (2x a
day) I know it.  My pain level is about an 8 right now with the keppra and
the lyrica for neuro unless I walk and then it is a 9 out of 10.  The RA is
really bad though - thank goodness for physio and accupuncture.  It is close
to a 10.  Of course I did quilt for an hour today so I deserve my hands.

Hope you get this under control.  I think it makes my feet and legs swell
more too but not sure - that and the blurry eyes are side effects but then
the swelling is also associated with my RA having no dmards too so......

It is a crapshoot so matter how you look at it.

Kelly
> Kelly I am taking 75 mg 3x a day and boy when it starts running out my
> feet
[quoted text clipped - 45 lines]
> | > i'm
> | > | spinning.
m-L - 24 Jun 2006 20:47 GMT
It does seem to help with the pain, but it makes me "high".
Yesterday i'm bopping around the house doing all sorts of things i couldn't do
becuz of pain.  But when the neurontin wore off by the time i woke up this
morning, man the pain was horrible.  I took my morning dose and i'm fine now,
but feeling high as a kite.  I don't think i should drive to the gym (where
the warm pool is) until it wears off a bit.

>I took neurontin for a cuple of years for my neuropathy. i was taking 900 mg
>3 times a day. at first i did feel woozzy and drowsey but later it didnt
[quoted text clipped - 10 lines]
>i'm
>| spinning.
Duckie - 26 Jun 2006 02:13 GMT
Me I started with 300mg but now take 600mg an hour or so before bed. If
my legs are bad I might take 300mg in late afternoon and 300mg at night.
Have not have any problems but the jerking legs stopped.
Duckie

> Anyone here have experience with Neurontin?
> If so, did it help and what were your side-effects?
>
> I'm starting it today, so far i feel really light-headed and kind of like i'm
> spinning.
 
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