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Medical Forum / Diseases and Disorders / Arthritis / June 2006

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red - 17 Jun 2006 09:47 GMT
hi all. diagnosed 9 months ago with ra and a bit scared. plaquenil
didnt work and my doctor is now considering methotrexate. i had only a
mild case until recently where i was practically unable to walk. just
wondering if anyone here found a change of diet alleviated symptoms?
vickie b. - 17 Jun 2006 12:02 GMT
Dear Red,

I wanted to welcome you to our group and assure you that we understand
your challenges for the future.  Keep reading and talking with us!
This is a great group.

And no I haven't noticed any changes in diet to help.  But others may
have an opinon on this as well.

Take care,

Vickie B.
DeeTee and Bob Taggart - 17 Jun 2006 12:08 GMT
Hi, Red. Diet is important, but not exclusive. Some people cannot do
nightshades (tomatoes, etc.) while others have no problem with them. Some
can't do citrus but others can. So you can see it's pretty individualized.
Have you seen a rheumatologist? That's crucial as they are the ones with the
specialized training for us. I have been on plaquenil, arthrotec, prednisone
and methotrexate for several years now. The side effects for me was the pill
form of methotrexate (MTX). It made me so sick I couldn't keep it or
anything else down. So now I'm on the injectible MTX once a week. Much
better for me.

It all comes down to the regime you and your rheumatologist (RD) come up
with. Remember that this is your body and that you need to be a proactive,
not just reactive patient. Educate yourself as much as possible. There are
several good sites on the web that will teach you all you ever wanted to
know about RA and all the little fun stuff that goes with it. Just remember
that millions live fairly full lives while battling this disease. Life is
not over, just readjusted.

Hope that helps. Welcome to our little sandbox. Come and play and tell us a
little about yourself. We're nosey here.

DeeTee (one word, two names)

> hi all. diagnosed 9 months ago with ra and a bit scared. plaquenil
> didnt work and my doctor is now considering methotrexate. i had only a
> mild case until recently where i was practically unable to walk. just
> wondering if anyone here found a change of diet alleviated symptoms?
red - 17 Jun 2006 23:56 GMT
thanks for the welcome and to everyone that replied
i really appreciate it! its wonderful to be able to talk to other
sufferers and share experiences.

i have seen a rheumatologist but i am not really happy with him so i am
now waiting to see a different one. I am just beginning to learn to be
proactive - still not really used to it:)
i really hope i dont feel as sick as you did DeeTee with the MTX pills
bc i have a very strong aversion to needles:(

a little info about myself...i am a 33 yr old mother of 4 boys aged
between 8 and 2 yrs. ! am very close to my boys and this past year has
been quite difficult for them and i feel guilty and sad for them. Every
morning i wake up hoping this day will be the day i feel normal again
so that i can spend time with them doing things that they like to do,
usually physical activities!!  Gosh, sorry to be so maudlin, i am
usually more optimistic.

just got on diclofenac sodium (voltaren, fenac). seems to work ok. i
wonder if its still effective if you take it over a long period of
time? ( i envision myself taking this medication for years to come).
also, i might try avoiding nightshades for a while to see how that
goes.

> Hi, Red. Diet is important, but not exclusive. Some people cannot do
> nightshades (tomatoes, etc.) while others have no problem with them. Some
[quoted text clipped - 23 lines]
> > mild case until recently where i was practically unable to walk. just
> > wondering if anyone here found a change of diet alleviated symptoms?
Becky - 17 Jun 2006 18:39 GMT
HI Red,
I started out with plaquenil also, but then went to the MTX and now enbrel
also. The mtx only made me tired, no stomach issues, drink plenty of water.
As far as food, like everyone has said it is individual, I find that sugar,
onions and wheat are big triggers for me but sugar is the worst for me.
Good luck,
Becky
> hi all. diagnosed 9 months ago with ra and a bit scared. plaquenil
> didnt work and my doctor is now considering methotrexate. i had only a
> mild case until recently where i was practically unable to walk. just
> wondering if anyone here found a change of diet alleviated symptoms?
red - 18 Jun 2006 00:05 GMT
sugar! i have a serious sweet tooth..i just hope sugar doesnt effect me
the way it does you. thanks Becky for your reply

> HI Red,
> I started out with plaquenil also, but then went to the MTX and now enbrel
[quoted text clipped - 7 lines]
> > mild case until recently where i was practically unable to walk. just
> > wondering if anyone here found a change of diet alleviated symptoms?
GARY Z - 18 Jun 2006 12:51 GMT
HI red,
Just a welcome here. I have osteo/ddd and can't help much on the ra side. I
can say I also
raised a son with whom I could do little physically. It was very frustrating
at times. I used to be very athletic and my son is physically talented. I
was unable to pass on my love of sports to him by example. He still has
developed into a fine young man (15) and I am only a little disappointed in
myself. Actually, not myself just the circumstance.
GaryZ

> hi all. diagnosed 9 months ago with ra and a bit scared. plaquenil
> didnt work and my doctor is now considering methotrexate. i had only a
> mild case until recently where i was practically unable to walk. just
> wondering if anyone here found a change of diet alleviated symptoms?
Diane - 18 Jun 2006 15:21 GMT
hi red,

welcome! wow, you have your hands full with four young boys! you have
my admiration already.

my RA has been active 12 years, starting when i was 44. please be
aggressive in treating your disease. i have an ankle/foot in which most
of the joints have fused on their own, all in a bad position. it's very
deformed and i can only walk short distances and i walk with a limp. my
wrists also fused on their own and i can only bend them a tiny bit. i
have problems with my eyes related to RA. i'm telling you all this
because if they'd had the sort of drugs 12 years ago that they have
today, i believe all this damage would never have occurred.

the drugs can be scary, but not nearly as scary as the limitations
imposed by the disease. i was never able to get to a high enough dose
of mtx for it to work (due to nausea--most people don't have that
problem so don't worry prematurely). a lot of my damage was done during
those early years. when enbrel came on the market,  i used it
successfully for a number of years. that stopped working and now i'm on
remicade.

you'll get your life back. changed a bit, but you will feel better than
you do now. it may take some time to get the right combo of drugs, but
you'll find them. keep us posted on how you do.

gentle hugs,

diane c.
Adelle - 18 Jun 2006 17:27 GMT
Hi, Red!

Sorry you have reason to be here. But I'm glad you found us. We are a
particularly warm fuzzy group (well, most of us).

I am 46 and was 'diagnosed' w/RA a couple of years ago, though we had been
trying to figure it all out for over six years. Am on Plaquenil and
Arthrotec. Working for me so far. I also got a huge amount of relief when I
started taking Vitamin D, too. Turns out I was such a veg on the couch that
I wasn't getting outside enough (and in New England, sunny days aren't
frequent during the winter so you have to load up when you can).  Vitamin D
deficiency causes joint and muscle pain, so I was making it worse by trying
to rest to ease the pain. Bad cycle.

I have two kids, 14 and 8. In the years before I was diagnosed, running
after the younger child was tough, so I can empathize. Four boys! What
energy! Are you able to enroll the older kids in some things that would keep
them active, but all you would have to do is drive? My kids are in karate.
When my son was younger, I had him in preschool. It's age appropriate
stimulation for them, and some time without demands for you.

I haven't really noticed a dietary component to the RA. Dairy fat (ice
cream, etc.) makes some of my random neurological stuff act up.

Just so you know, we are a group that loves chocolate. There are some
unscrupulous people here who steal other people's chocolate. I would be
happy to act in my official capacity as guardian of any dark chocolate you
might be concerned about safekeeping ;-)

Adelle

> hi all. diagnosed 9 months ago with ra and a bit scared. plaquenil
> didnt work and my doctor is now considering methotrexate. i had only a
> mild case until recently where i was practically unable to walk. just
> wondering if anyone here found a change of diet alleviated symptoms?
Joan Carter - 18 Jun 2006 18:43 GMT
>Just so you know, we are a group that loves chocolate. There are some
>unscrupulous people here who steal other people's chocolate. I would be
>happy to act in my official capacity as guardian of any dark chocolate you
>might be concerned about safekeeping ;-)

Adelle is a very nice person but she is not to be trusted with your chocolate.
Welcome to our group, like Adele, I am sorry you have to be here. :-(

Joan
---
Joan
Alix M. Hall - 20 Jun 2006 01:46 GMT
Welcome--sorry you have to be here--but if you have to be, here is a pretty
supportive, caring place to be--Be warned--I am the only authorized keeper
of chocolate in this here place--ship your chocolate to me for safekeeping
before Adelle tries to convince you it would be safe with her.....

Signature

Love,
        Alix

Always remember, a cat looks down on man, a dog looks up to man,
but a pig will look  man right in the eye and see his equal".
- Winston Churchill

Adelle - 20 Jun 2006 03:10 GMT
> Welcome--sorry you have to be here--but if you have to be, here is a
> pretty supportive, caring place to be--Be warned--I am the only authorized
> keeper of chocolate in this here place--ship your chocolate to me for
> safekeeping before Adelle tries to convince you it would be safe with
> her.....

Now wait a minute. We clearly had it divided that you guard the milk
chocolate and I guard the dark. Can't remember who had white chocolate duty.

Adelle
red - 24 Jun 2006 01:08 GMT
thank you all for the warm welcome

i was sorry to hear about your situation Gary and i understand your
frustration.
Adelles suggestion is a good one. My 2 older boys have been going to
taekwondo for a year now and that has helped us.

> > my RA has been active 12 years, starting when i was 44. please be
> > aggressive in treating your disease. i have an ankle/foot in which most
> > of the joints have fused on their own, all in a bad position. it's very
> > deformed and i can only walk short distances and i walk with a limp. my
> > wrists also fused on their own and i can only bend them a tiny bit. i
> > have problems with my eyes related to RA.
Diane, this is scary but i am glad to now know what can happen with RA.
i had sort of a vague idea of its effects and i didnt realise they
could be so bad.

thank you to everyone for all the words of advice and support - every
bit helps!

Red.
btw, i also love chocolate and theres never any left to guard:)

> > Welcome--sorry you have to be here--but if you have to be, here is a
> > pretty supportive, caring place to be--Be warned--I am the only authorized
[quoted text clipped - 10 lines]
>
> Adelle
 
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