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Medical Forum / Diseases and Disorders / Arthritis / June 2006talked to Diane
Well talked to Diane this morning and whined a bit myself. She is doing so well. Yesterday she walked using the parallel bars and with straps on but walked! She is managing to get a shower and use the toilet with help so that is big! She still can't stand at all so still has a way to go. She can roll to her side in bed and feels her upper strength is coming back a bit which is great! So improvement. Until she can stand and walk she can't go home but sounds like she is improving by the day - she sounded really positive today which is nice. Must be the ASA vibes. I am having up and down week - guilt, anger, pain, thrills, ups and downs. A new life and it has fears and thrills. If only our house would sell and we could buy then that would start the life again and relieve my husband's financial mind. He cashed in a bunch of stocks and bought the scooter, van and lift (although we are still going through the process of figuring out the lift thing - measurements etc. Should take about 3 - 4 weeks for that to be installed.) Also to pay for the many meds, physio and accupuncture. Don't know what I would do without him - glad I don't have to think about that right now. Of course it means he is giving up his dreams right now - cancelled rebuilding our new cabin up north on our lakeside property and cancelled buying his new truck - which he really wanted I know. Of course I can say he will get to drive the Sienna on trips but guess that isn't the same. There is some guilt to all this crap. My arthritis pain and swelling is at a 9 / 10 level and I see my rd on Tuesday. Will be interesting to hear what he thinks of what I am doing - I am taking a chinese herb solution and accupuncture. The chinese herb solution might be a touchy thing with all my reactions to stuff but I decided to give it a try. I don't want to introduce another biological drug into my system until at least 1 year from my reaction. Rituximab (I think that is the spelling) with luck should be approved by health Canada by then and then I will try for compassionate grounds. So will see. Anyhow both of us are feeling positive about life and feeling the good wishes from everyone. She sounded so excited today. Take care everyone, Kelly Good for Diane. She deserves some improvement. She is due a nice long run of good stuff. It sounds like the herb solution may be going to work. There should always be a flare reaction in the beginning if the formulae is correct. Stay with it and in a few weeks things should have improved alot. Heres hoping it all gets good... johnie > Well talked to Diane this morning and whined a bit myself. She is doing so > well. Yesterday she walked using the parallel bars and with straps on but [quoted text clipped - 33 lines] > Take care everyone, > Kelly Thanks Johnie for the encouragement. I love the accupuncture and would love to see the herb solution work. It doesn't seem to be disagreeing with me but it could be it is triggering the changes in the accupuncture. Too early to see. Kelly > Good for Diane. She deserves some improvement. She is due a nice long > run of good stuff. [quoted text clipped - 57 lines] >> Take care everyone, >> Kelly {{{{{{{Kelly and hubby}}}}}}} Give Diane our love. DeeTee > Well talked to Diane this morning and whined a bit myself. She is doing > so well. Yesterday she walked using the parallel bars and with straps on [quoted text clipped - 34 lines] > Take care everyone, > Kelly Will do DeeTee. She was asking for news. I really think she will beat the target of 8 weeks - she has made great strides and has such guts. Kelly > {{{{{{{Kelly and hubby}}}}}}} Give Diane our love. > [quoted text clipped - 38 lines] >> Take care everyone, >> Kelly Prayers still coming for the both of you. Good news on how Diane is coming along. Good hubby you have there for doing that. Sorry that his dreams are put aside though. I know the guilt Kelly, I am there with you. I hope you can get the Rituximab and it helps you greatly.  SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Well talked to Diane this morning and whined a bit myself. She is doing > so well. Yesterday she walked using the parallel bars and with straps on [quoted text clipped - 34 lines] > Take care everyone, > Kelly Thanks Squirrely. Diane asked after you - she is doing so well - bet she doesn't last 8 weeks in there. It is a long haul though. Time to let go of the guilt too Jo. Life is just too short. Instead give him lots of hugs and words. you are really special. Kelly > Prayers still coming for the both of you. > [quoted text clipped - 43 lines] >> Take care everyone, >> Kelly Kelly, Tell Diane I am hanging in there. By the way can you email me an snail mail addy for her and I will get a card off to her where she is. I bet she doesn't stay there 8 weeks either. She is strong and motivated. You are special too Kelly, I hope you know that. SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Thanks Squirrely. Diane asked after you - she is doing so well - bet she > doesn't last 8 weeks in there. It is a long haul though. [quoted text clipped - 3 lines] > > Kelly I think you have her snail mail address from the Christmas Cards Jo. Her husband is delivering from home. Let me know if you don't. I'll let her know - she will make it. off to make dinner and watch the hockey game, kelly > Kelly, > [quoted text clipped - 12 lines] >> >> Kelly Ok, I will send it to her home address then. I was thinking about sending it to the rehab place. Thanks. SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& >I think you have her snail mail address from the Christmas Cards Jo. Her >husband is delivering from home. Let me know if you don't. I'll let her >know - she will make it. > > off to make dinner and watch the hockey game, > kelly Good news about, Diane. She is a warrior for sure. Thanks so much for keeping us posted, Kelly. I hear you about the mix of feelings. We are in a major financial shuffle right now, trying to avoid selling more investments to carry us until our house in Florida sells. There's a huge bill pending from our dentist, too, but if we don't pay it until it arrives, we might make it. Once our tenant moves out the house *should* sell quickly - she has huge oversized furniture that makes the house look miniscule. Anyway, I know the guilts. If I could work, we'd be so much better off -assuming I could get a job in this area with such high unemployment. And my medical expenses thus far this year are a big part of why we are shuffling so much right now. When it gets to me too much, I have to remind myself I'd do the same for Mike and I truly know in my heart that he'd rather have me with the problems than not have me. Come to think of it, I have given up some dreams along the way so he could pursue something thhat was more important. Relax as much as possible and focus on healing. Ultimately, having you feel better will do more for your husband's state of mind that anything else. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I think the guilts go with it nann -but you have to get past it to do the healing. I do know the scooter is necessary and so does he so that helps. I also know I can't work - there is lots of work around and I could do it from home but i just can't - not and function. I had a very part time job until March and don't know how I dragged myself in to do it. didn't do it properly those months - they were looking for someone to replace me. I am much worse from the RA now though and couldn't do it. The neuro stuff (the med junk) is improved though. Feels good not to be working though - I am still volunteering so that helps too and doing Pat's books. And yes you are right Nann - I have given up some dreams along the way too. We also will feel better and be in a better space when the house sells. It feels like life is on hold doesn't it. But we are all moving forward - in new directions - that is sort of cool. Look at all the moves and changes in this group this year. Diane has her new house, You have moved, Duckie. Rose is going forward with her education yet again! Many changes and that is good. I am really trying to heal right now - mentally and physically. Will be interesting to hear my future by my rd this Tuesday. That will be a telling day. Anyhow just wanted everyone to know that Diane is doing well and asking after everyone. I am not getting on as often lately. Reading about 1/2 and it looks like ihave been missing some posts. So if someone isn't answered it could be a) I thought I had replied b) I missed it c) my internet didn't get it. I am not ignoring you. Kelly > Good news about, Diane. She is a warrior for sure. Thanks so much for > keeping us posted, Kelly. [quoted text clipped - 25 lines] > feel > better will do more for your husband's state of mind that anything else. |
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