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Medical Forum / Diseases and Disorders / Arthritis / October 2006

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Degenerative Disc Disease---Huh?

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STARNER - 15 Jun 2006 09:28 GMT
Hi all,

   This I believe is my first time posting in this / these newsgroups(s).
Ever since about 1990 or 1991 I have had lower back pain at times and at
times very severe.  I have also had what I thought was just the aging
process at age 28 at the time...I am now 35, white male live in
Pennsylvania, USA.  I am obese at 315lbs.  Just below my knees almost my
shin would hurt and have gotten worse over time.  I have been told by
doctors that would just look at them that I either had Patellar Tendonitis,
OsteoArthritis, Arthritis, etc.  About 6 months ago my Primary Care
Physician ordered a RF test which was negative, an ANA which was >1:40, ANA
Titer 1:160, ANA Pattern Homogeneous, SED Rate of 20, Lyme Disease <100...He
felt that I may have Lupus.  He referred me to a Rheumatologist which
commented that my numbers were in the "Ho Hum" range.  She did X-Rays of my
hands and knees and an MRI of my left knee since this was my biggest
problem.  She said that she saw nothing wrong or any types of Arthritis and
that she felt that all I needed was physical therapy.  After I got a copy of
my tests I saw that there is some minor tearing in the I would assume
cartilage or muscle in the knee area.  I do not have a problem with physical
therapy but when I am treated as though I do not exercise in which case I do
and left her know this and when I left her know what type of work I did in
the past she basically shrugged that off as not being physical which it was
most definitely I tend to get a little angry to say the least.  I also asked
her what type of exercise I would do in PT but she basically said that she
would not tell me or develop a program for me if I did not want to attend
PT.  I am a very shy person in which being around a bunch of others is not
going to go over very well with me.  I feel as though she could have gave me
some ideas, it seems as though all she wanted to do was to make money on the
PT.

   However, That is when I last saw her.  Since then behind my right knee
was starting to be in severe discomfort.  I am now seeing my PCP for this
which he ran all the tests again.  ANA is pending, SED Rate is 25, Uric Acid
Serum 8.1mg/dl, I had X-Rays of my right knee which came back as no
definitive acute fracture or osseous destructive lesion.  There is no
significant periosteal reaction.  The osseous alignment is satisfactory.
Patient was rotated on this study.  There is some degenerative disc disease,
change as evidenced involving the proximal femur as well as some mild
narrowing of the medial knee joint compartment.  Can someone explain this to
me...I thought this disease was just for the back.  He is now referring me
to a Orthopedic Surgeon / Doctor not sure for what though.  My next PCP
visit is next week otherwise I would know.  I feel that I should also
mention some other things in case they are factors here.  I am Diabetic Type
II since 2003, Hashimoto Thyroiditis, HypoThyroidism and have a Non-Toxic
Multi-Nodular Goiter since about 2003-2004.  I have taken 50 mcg Synthroid
since then and ever since I started this I felt as though I had no energy or
want to do anything anymore.  I take Prandin, Glipizide Extended Release 10
mg, Metformin 1000 mg @ 2 times per day.  My BG averages around 135, I have
ups and downs.  Since about the time my Right knee started hurting the right
side of my neck, shoulder, lower then upper arm would also hurt.  The elbow
is now starting to get in on the action.  My Lipids (Chol, Try's, etc.) are
great, my heart seems to be fine (have had a few Stress Thallium Tests).  I
also stopped seeing my Endo at the same office as the Rheumatologist because
as I read in these groups, etc. that if you have a doctor that treats you
only based on the TSH and blames any other problems on other things you need
to run away from them.  MY PCP seems as though he is now going to take this
over, he ran a TSH, Free T4, Total T3, Total T4 and they are as stated...TSH
1.880  This fluctuates between here and 3.something for me.  Free T4 1.20,
Total T4 7.54, Total T3 0.744.  From what I see and have read, etc. I think
that I may need some T3 possibly Armour.  I am just looking for some input
from all of you criticism or not as to what you think, would do, etc.  I
apologize for the length of this and appreciate and thank all who can
help...

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Gary Z - 15 Jun 2006 13:43 GMT
> Hi all,

I think "Huh?" is the proper comment.
GaryZ
Harvey R. Stone - 15 Jun 2006 13:59 GMT
Welcome to you from several good arthritis newsgroups.  Do not worry about
the amount of words it took for you to tell your story.   You would be
surprised how many people are nodding their head and thinking,,,, had that
and did this or that or did not do this or that.
   You and I have one thing for sure in common.  Our weight,,,, or you
might say that not being able to control it has caused many of our problems
or added to them.
    You seem to have some pretty good doctors working with you on the
different problems and my only advice on that is that all of them need to be
informed of what the others are doing or not doing with your condition.
Harv

> Hi all,
>
[quoted text clipped - 59 lines]
> criticism or not as to what you think, would do, etc.  I apologize for the
> length of this and appreciate and thank all who can help...
vickie b. - 15 Jun 2006 14:44 GMT
Dear Starner,

I was diagnosed with DDD when I was just 25 and definitely NOT
overweight.  My DDD showed up at the same appointment as OA.  RA waited
around 17 years later.  And by that time I WAS overweight.

Welcome to the group!  I do get a lot of help and support from this
group.

Take care,

Vickie B.
Charrlygrl1 - 15 Jun 2006 16:41 GMT
I don't know what you have going on, but I would try another
rheumatologist.

It took me three rheummys to find one that knew what he was doing.
Turned out I have ankylosing spondylitis which is an auto immune
arthritis which, by definition, affects the back. It can also affect
other joints, most notably the knees, hips and shoulders. It does seem
that you have an elevated sed rate, which would indicate some type of
inflammation.

Sometimes we have to be our own advocates. I was told for two years
that my symptoms were all in my head, that I needed to exercise, blah
blah blah.

I hope they can get to the bottom of it for you. Please don't give up
until they do.

Good luck to you,
Char
DAVID WILLIAMSON - 18 Oct 2006 20:49 GMT
Thank Goodness, I'm in the right group of people, who after endless hours of
self sacrifice find out; (it's not in my head, it's in my body).  I too fall
into this group.  I have Lupus. I also endure joint pain in my L knee, R
hip, Neck, and although I know it's not really there, a straight pin located
in that mid shoulder section, you just can't reach on your own.  Man,  It's
hard to believe, I understood your tests better than our Doctors.  I can be
a witness to endless hours of pain, visits to the doctor, research and blood
tests.  I can remember my last blood test, the one where I was finally
diagnosed.  I told my doctor, I thought I had Lupus. After all, my cousin,
and my mom have Lupus.  She disagreed fervently, then marked the blood test
for another one of those Thyroid tests.  I had been researching my symptoms,
talking with friends and I knew  had some sort of RA, or worse, Lupus.  I
was determined to get the RA Tests and the ANA Tests before I went into the
office, so when she marked the boxes for Thyroid (again) I knew I needed a
few extra tests.  I know, I know... You shouldn't fool around with Medical
tests, but I was tired of giving blood for thyroid. I marked the tests
carefully.  After all, what could a few extra drops cost, in comparison.
And I wasn't reading the tests too!  When the tests came back, I asked
innocently, How's the ANA?  I didn't mention, she didn't exactly order the
tests.  She read the test results, and replied, It's  negative, and we want
to re-run the test to make sure.  I knew negative meant trouble, but on the
other hand, I was happy to know, all the pain and problems I have weren't in
my head. Finally after alittle persistence on my part, a diagnosis of Lupus,
Continue with Tylenol, 800 mg. Huh?
>I don't know what you have going on, but I would try another
> rheumatologist.
[quoted text clipped - 15 lines]
> Good luck to you,
> Char
Squirrely - 19 Jun 2006 21:51 GMT
Starner,

Hi, welcome to the group. I feel for you. I know the pain to well and all
the other illnesses too. I am sorry you have to be here but this is a good
group to get lots of info on these kinds of things. Also there is a thyroid
newsgroup that might help you also.

You have so much going on, I am sorry that you have to deal with all that in
a daily life time.

I think you need to see another RD. That one seems not to care much about
helping you out. I had a RD like that one time. All she cared about was my
promient breast bone since I was sent there for OA, FMS, and
Costochrondritis. Once she did her tests and found out not a tumor under the
breast bone which I told her there wasn't, since I had this since birth, she
didn't want to treat me for any of the other stuff. I would have gone and
got another RD but hubby lost job and no insurance. As soon as we get
insurance again, I am going to be looking for another RD.

I also deal with Hashimotos and Graves and mult-nodular goiters. So that is
why I mentioned the thryoid group to you also. It is I believe
alt.support.thyroid. They can help you with some issues too.

I wish you the best in finding someone that will help treat you and not just
push it under the table.

Signature

  Love and hugs Jo

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> Hi all,
>
[quoted text clipped - 66 lines]
> avast! - copyright (c) 1988-2006 ALWIL Software.
> http://www.avast.com
 
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