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Medical Forum / Diseases and Disorders / Arthritis / June 2006Clenched fists
I woke up the last couple of days thinking that I had clenched fists. They didn't look like that but they certainly felt like it. Is it time to get really depressed? >I woke up the last couple of days thinking that I had clenched fists. They >didn't look like that but they certainly felt like it. Is it time to get >really depressed? I don't know what is wrong with you Sy, but never get depressed then you will have given up. Don't get depressed. Get pro-active and find a protocol that will slow the disease activity down. Don't even get depressed if they start closing up into a fist and you really can't open them. Get busy and find a good surgeon. That is when I finally got all the mip's in both hands replaced and the wrists rebuilt and fused. It was quite the miracle for me. Other than being limited by the amount of weight my wrist could bear and the avoidance of repetitive activities like hammering nails or digging ditches so the new plactic mips wouldn't break they were like new. Completely functional with 90% flexibility and looked normal. For the first 5 years that I posted here my sig line was a quote from Ghandi: "You can't shake hands with a clenched fist." big desert piano hands hugs, johnie > I woke up the last couple of days thinking that I had clenched fists. They > didn't look like that but they certainly felt like it. Is it time to get > really depressed? > Don't get depressed. Get pro-active and find a protocol that will slow > the disease activity down. Don't even get depressed if they start [quoted text clipped - 6 lines] > break they were like new. Completely functional with 90% flexibility > and looked normal. Well, I'm taking methotrexate and chloroquin and nambutone and stuff, but I get the sense of going down hill anyway. Well, maybe it's a passing phase or something. I'll talk to the rheumy next month. It may just be all the writing I've done in the past few days. have you tried one of the newer anti-TNF's like Enbrel. Sounds like the protocol you are using has lost its POP. johnie > > Don't get depressed. Get pro-active and find a protocol that will slow > > the disease activity down. Don't even get depressed if they start [quoted text clipped - 11 lines] > or something. I'll talk to the rheumy next month. It may just be all the > writing I've done in the past few days. Johnie, what are mips? > Don't get depressed. Get pro-active and find a protocol that will slow > the disease activity down. Don't even get depressed if they start [quoted text clipped - 18 lines] >> didn't look like that but they certainly felt like it. Is it time to get >> really depressed? > Johnie, what are mips? Sorry, it should have been MCP's and those are the "metacarpophalangeal" or the knuckle joints. johnie Yup, Sounds to me like it may be time to move on to the 'big guns' of arthritis meds; Enbrel, Humira or Remicade....and I think the new ones are Rituxan and Orencia. I am on Enbrel, combined with methotrexate, Clinoril, azulfidine and leucovorin. Reading your post transported me back...I think methotrexate with hydroxychloroquine and Nabumetone was one of the first med combos that I was on...didn't do diddly for me. I hope that you can see your RD and that he/she can do something for you, Char > Yup, > [quoted text clipped - 7 lines] > hydroxychloroquine and Nabumetone was one of the first med combos that > I was on...didn't do diddly for me. Yes, that is more or less as I feared. It's a whole new sympton. I find it hard to say how much good the methotrexate does. It is hard to sort out the ever changing aches and pains and the ever changing side effects. I do move more easily and have a greater range of movement with mtx, but I don't really feel much better and my general stamina is decreasing, but that could be that I do less as it gets harder, the old vicious circle. Thank you. Does anyone here have a spur on their joints. I have a bump on my finger at the joint, when I open my hand it dissapears, when I close my fist it has a good bit of pain and I'm assuming it is because it is scraping the muscle when I make a fist? >> Johnie, what are mips? > > Sorry, it should have been MCP's and those are the > "metacarpophalangeal" or the knuckle joints. > > johnie Yes. My knees and spine are full of spurs. The xrays show the underneath of my kneecaps look like stalagtites and stalagmites. I no longer kneel for anything I can squat for or sit for. DeeTee > Thank you. Does anyone here have a spur on their joints. I have a bump > on my finger at the joint, when I open my hand it dissapears, when I close [quoted text clipped - 7 lines] >> >> johnie Will your doctor take them off for you? and if not why? > Yes. My knees and spine are full of spurs. The xrays show the underneath > of my kneecaps look like stalagtites and stalagmites. I no longer kneel [quoted text clipped - 13 lines] >>> >>> johnie No - they are not "long enough yet to risk a surgery" said he. I have a new RD here in Ohio, so am taking it one visit at a time. I see him again on the 20th. I plan to ask if I can up my prednisone to 5 mg (or more) a day. I am in a flare and hurrrrrrrttttttiiiiiinnnnnggg. DeeTee > Will your doctor take them off for you? and if not why? > [quoted text clipped - 15 lines] >>>> >>>> johnie {{{Hugs}}} I know how they hurt, I have them in my heels too. I was thinking when I got around to seeing the Rheumatologist he would just say we will take it off. It will be complicated for me because of the Warfrin. If mine on my finger gets much bigger it will pop through the skin. It just seemed to get there overnight, I noticed it hurt at times but just never looked and one day it hurt especially bad and I looked and was surprised to see this lump. > No - they are not "long enough yet to risk a surgery" said he. I have a > new RD here in Ohio, so am taking it one visit at a time. I see him again [quoted text clipped - 22 lines] >>>>> >>>>> johnie I have to consciously open my hands on a regular basis. I will be sitting watching TV and realize that my nails are digging into my palms. I look at photos of myself and there I am with my fists closed. Don't know why - I'm certainly not angry. It just seems more comfortable until I clench. DeeTee >I woke up the last couple of days thinking that I had clenched fists. They >didn't look like that but they certainly felt like it. Is it time to get >really depressed? |
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