 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Arthritis / June 2006newbie
Hi, everyone- I just registered with this group today. Duckie, a friend from a sewing group, recommended that I join. I do have arthritis in my neck, toes, and finger, but my main issue right now is that I've just been diagnosed as probably having MS. My neurologist prescribed Lyrica which is helping with the electrical tingling sensations. I'm wondering what to expect. I looked it up on the internet and saw stuff about diet, but I know that a lot of that stuff turns out to not be based on anything sound. If anyone has any experience with MS , please let me know. Janet > Hi, everyone- > [quoted text clipped - 9 lines] > > Janet Welllll, Any friend of Duckie is a friend of ours. Welcome to ASA and Diane from Florida also has MS and is a world of knowledge about it. Harv Welcome to the group Janet, sorry you have to be here though. I am sure you will get help with the arthritis and the MS. I know Diane that has much info about it, is in the hospital right now so it might take a while before she can get back to you. I just wanted you to know I saw your post and welcome you to the group. Pull up a comfortable chair and stay awhile. There is a newsgroup I believe also for MS that might be a help to you. Maybe Denise will be able to tell you where it is.  SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Hi, everyone- > [quoted text clipped - 9 lines] > > Janet > If anyone has any experience with MS , please >let me know. Welcome to asa Janet. Duckie is a favourite here. I am sorry about the arthritis and doubly sorry about the possible MS. I have had MS for 30 years and am still mobile. In fact I consider the RA more troublesome now. Kelly from BC also has both diseases as I recall. As to what to expect, that is hard to say, depends on what type of MS. May I suggest you join alt.support.mult-sclerosis. There is a great group of people there, a number of trolls, but say you are new and there will be a big welcome to our sandbox. You may be asked to bring chocolate though, in fact that may happen on asa too. Where are you from? I am from Ontario. --- Joan I am probably a bad example but will answer. I have MS like symptoms that appear to be from the enbrel I was taking for the RA. I have the electrical tingling sensations which the lyrica does help but also have spasticity, vision problems, urology problems, spasms etc, etc. No lesions which is what makes them think not actual MS. My right side from waist to toe is affected. I found the best group to be MSWorld (go to the search engine). They are supportive and don't seem to bicker too much. Don't be too scared though until your diagnosis is closer. The swank diet does seem to work for some people or at least lesson their symptoms but it is very tough to do and must be done consistently. What tests has your neurologist done so far and are there lesions? hang in there - Diane will eventually be back but it will be a bit. She has a fair amount of rehab to be done in a nursing home. Good luck, Kelly > Hi, everyone- > [quoted text clipped - 9 lines] > > Janet Soooo, you have MS or not Kelly?? Whewww, all these years of Enbrel and I have not caught MS as you did it seems. Harv >I am probably a bad example but will answer. I have MS like symptoms that >appear to be from the enbrel I was taking for the RA. I have the [quoted text clipped - 26 lines] >> >> Janet They don't know Harvey but all the symptoms are there with the exception of the lesions so guess what we call it doesn't matter right now - if I am lucky it will go away. I didn't catch it - it is a side effect - luckily a less than 1% side effect. And since I have had no neurological problems before and have taken enbrel for 3 years guess I am lucky. Hopefully we will know what this neuro says. The one now doesn't know what to say - whether permanent or not. After 7 months and no change except for making my RA symptoms worse due to body change well...... As to whether it is MS or not well it doesn't matter at this moment. It is the sh.ts, hurts like hell, the symptoms are make my RA seem like a mild sunburn and there seems no end of it in sight in the near future. Such is life. Glad you are like most people and not in the small amount of people who get the neurological side effect that amgen has the huge warning on. Kelly > Soooo, you have MS or not Kelly?? Whewww, all these years of Enbrel > and I have not caught MS as you did it seems. [quoted text clipped - 31 lines] >>> >>> Janet Janet, no answers, I just wanted you to know your post made it and you are welcomed here. There will be someone along soon who has your MS, etc., and they can give you some good advice. DeeTee > Hi, everyone- > [quoted text clipped - 9 lines] > > Janet Welcome Janet We love Duckie at ASA | Hi, everyone- | [quoted text clipped - 9 lines] | | Janet Whoo Hoo!!! I have been off sewing and hadn't checked in for nearly a week. Glad you made it over Janet. Duckie > Hi, everyone- > [quoted text clipped - 9 lines] > > Janet |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.