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Medical Forum / Diseases and Disorders / Arthritis / May 2006Hi ASA family.
Did anyone lose a remission? Because I think I have found one. It has been about 3 wks now, but I am still holding my breath. I am on 30mgs of prednisone, so I an pretty sure that is what has done it. But I have regained so much that I thought was gone forever. Pre 30mgs I couldnt really walk, only a painful shuffle. I can walk agan!! Pre 30 mgs I couldnt get myself out of bed, It is still not easy, but now I can do it!! I had PT and a home health aide and a nurse coming in, because there were days I couldnt even feed myself. Myron had to take a 2hr lunch so he could come home and take care of me. Thank God his Boss was so understanding. But folks it had gotten really really bad. But no more. I have found a miracle. I am well aware of the dangers of pred, but I am willing to take those risks, I have gotten back part of my life that I thought was gone forever. I will NOT give it up to avoid the dangers of pred. So dont anyone give the lecture on the dangers of pred. Just be happy for me. Anybody need their butt kicked? I think I could do it now. LOL. LOVE to all, Mama Char LOLOLOL,,,,,, I loved this post. I only went through 5 months of being bedridden and even then it was not as bad as what Char has had to deal with. I did gain the knowledge of what it is like to loose all hope and how great it is to take a shower by myself,,, go to the bathroom by myself. Say what you will about prednisone,,,, this is what it is for and why I keep a months supply just sitting there. Please do not over doooo just because you can now. A fall, a slip could set your recovery back a great deal. Now that things are improving,,,, its baby steps in the right direction and we will get there. None of the butt kicking you are going to do is for your better half. There is a man that meant what he said when he got married. Bless him,,, bless you and may God give you the strength to look forward to tomorrow. Harv > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char char, what happy news! i understand the concept of picking your poison very well. enjoy every day of feeling good. we miss you, diane I hereby give you permission to hang on to the remission forever. LOL It is great to hear that the pred is helping. We all know the evils of pred, but if it is helping, why not take it? Being bedridden is not good either. Does this mean you are back at ASA? Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. "Just be happy for me." Just doing the happy dance, and hoping and praying it lasts and lasts and lasts............... Bonnie What terrific news, Char. Hope you will feel like being here more often now. And may it last forever! Gwen > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char >> Did anyone lose a remission? Because I think I have found one. It has >> been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] >> LOVE to all, >> Mama Char Hi Char, Great News!!! Congrats! This better continue for you now. It's been going on too long for you. Your news has made my day. GaryZ > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char That's wonderful, Char! I'm SO happy for you!! :-))) BIG HUGS, Carole Take the pred and have a life--don't take the pred and huddle in a fetal position in bed......I think you should take the pred and have a life--wishing you a long and happy remission  SignatureLove, Alix Always remember, a cat looks down on man, a dog looks up to man, but a pig will look man right in the eye and see his equal". - Winston Churchill Char, I am glad for you that you have found something that works for you. I have never tried prednisone since the RA but had it before for a neck issue and it sure helped/ I hope that your remission last a long long time. Becky > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char So glad to see you posting in the positive. I have that same love hate of the drug. Actually, went up to 30 to make the move to CA and have been slowly tapering down. Am nearly to the 7 mg on all 7 days from the half 7 and half 8 I had been doing and dropping that last 1 mg has been a killer. Finally gave in today and took pain pills. It is always something. Being able to walk again is a joy. Give that big teddy bear man a hug and don't over do. You know, like KJ. No pond building and that is an order. Duckie > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char ((((Mama Char)))) I'm so glad I bothered to check Google groups and see this post!!:) I am so thrilled to hear you are doing better. Please don't ever leave us again. Kelly C.-having 'puter trauma I'm not about to lecture you on the dangers of pred! LOL You know the side efffects all too well and sometimes there just are times when you have to risk them. And after all, other health problems are avoided by being able to get up and move around! Having been so bad for so long, you probably have to go through some reconditioning, but I hope it just gets better and better. Maybe after it's been knocked down some, they'll be able to reduce the pred dosage some. Heck, do what ya gotta do - you deserve to have a life! I'm so glad to ehar *something* is helping! You've had a prominent spot on my prayer list for so long now......... SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare WooooooooHooooooooooo!!! {{{{{{{Mama Char}}}}}}}} We have missed you soooooo much! Welcome home, Sweetie! DeeTee (and Bob, too, of course!) ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 ________________________________ > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char Sending Good Thoughts, {{{{Char}}}} GramPaHugs, Alex, > Did anyone lose a remission? Because I think I have found one. > Just be happy for me. > > Anybody need their butt kicked? I think I could do it now. LOL. > > LOVE to all, Mama Char SignatureAny information is included for informational or entertainment purposes only, is based on my personal experiences & is an expression of my opinion. **************************************************** * Love radiating from 45.10n x 93.30w M/SP Mn * http://home.mn.rr.com/apbiii * http://grampahugs.is-a-geek.org/ * http://www.goldenmist.org **************************************************** So good to hear your doing better, now keep it up. We miss you. Cooly > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char Glad you are feeling better, Char. That prednisone is amazing stuff. I take Enbrel and MTX but I've recently been using a little prednisone. It would be great if we just all got better forever and ever. Marge > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char No lectures from me. I'm not just happy for you. I'm ecstatic!!!! luv&stuff, Denise Mama Char this is wonderful news! We've missed you! -Ashley ========= ~~AC. Well now Char, that is the best news I've heard in ages. Proves again that prayer works no matter what the scientists think. Ann I lost a remission, but you are more than welcome to have it if it is mine. You deserve it. I had tears in my eyes reading this Char, I am so happy for you. I hope you keep getting better and better. SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char Yay!!!!!Mama Char!!!!!!! SO great to hear from you!!!!!!! No lectures about pred. It's the same thing my Mom is doing and she feels about as good as when she was on Kinneret. We all do what ultinately makes our lives more manageable. With my mom, they are providing periodic bone scans and one of those drugs for maintaining healthy bones. Adelle Excellent news Char. All the best and I hope that your remission lasts and lasts . Peter Hooooray (((((((((((((Char)))))))))))))))) >Did anyone lose a remission? Because I think I have found one. It has >been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] >LOVE to all, >Mama Char No lectures here - there is such a thing as quality of life Char! If 30 is what it takes then that is what it takes. Grab every day when it comes. Kelly > Did anyone lose a remission? Because I think I have found one. It has > been about 3 wks now, but I am still holding my breath. I am on 30mgs [quoted text clipped - 16 lines] > LOVE to all, > Mama Char |
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