3 months of anti-inflams stopped it for me. But it is secondary to the
other arthritic conditions I have, so a full RD workup is advised.
Also, having the hips put back in place after childbirth (chiropractic)
helps prevent the bones in front from clacking together and keeping the
ostitis going.
Hugs from Rosie

Signature
"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II
> Has anybody had this ? How long did it take to cure and how can it be
> cured? As far as I can tell this may have been something that started
[quoted text clipped - 4 lines]
>
> Peter
Charrlygrl1 - 20 Apr 2006 15:35 GMT
Peter,
Do I remember correctly that you have RA?
May I ask what your symptoms were? After looking up osteitis pubis, I
think I may have it.
I have pain on both sides at the very tops of my inner thighs and have
had it for over a year now. It's a bit painful-
I read that it may be found in people with spondyloarthopathies, and
since I do have AS, I'm wondering if this is what it is.
So if you would share your symptoms, I'm thinking about talking to my
doc about it tomorrow.
Thanks!
Char
I googled this having never heard of it before and it sound the same as
what I was told I had only it was called Pelvic Floor Dysfunction. It
took 10 months and three doctors to correctly diagnose it. It was
finally diagnosed by a gyn who only specializes in pelvic pain. No
babies. She refered me to a special physical therapist who was able to
jhelp me resolve the problem. I saw her for about 6 weeks. The gyn told
me that I had to be careful not to sit on hard surfaces for long
periods of time so as not to re-aggrevate it. So I use a seat cushion
if necessary. I have a special gel cushion for my wheelchair. It has
flared up a bit from time to time but if I get back on my exercises
right away, I can ward it off. Hope this helps. DiW
diclidophora@yahoo.co.uk - 21 Apr 2006 16:13 GMT
Hi.
Char and DianeW
I don't have osteitis pubis, but it seems my daughter has. She has had
trouble getting it diagnosed and is being treated, though she is still
suffering. She has been off work for at least a couple of months with
no real solution in sight.
I am going to forward these message to her in the hope that she might
respond directly.
Thanks for your help
Peter
Charrlygrl1 - 21 Apr 2006 16:35 GMT
Peter,
I think that having your child have it must be worse than having it
yourself!
Just wanted to pass my sympathies on to her.
I talked with the RD today, and he sort of just blew it off-
What else is new??
Char
DianeW - 21 Apr 2006 17:29 GMT
Well I'm glad you cleared that one up. I was thinking that maybe you
were a girl named Peter. My mailman is a man named Ashley. I was very
confused as to why Ashley left notes in my mailbox but I never saw
"her" LOL I thought some girl at the post office was stealing his
Christmas cookies every year! LOL It was really funny when I tried to
give him a second box of cookies one year because some girl had taken
his cookies and left me a thank you note and we got this figured out.
Apparently his Mom was a big fan of Gone With The Wind.
My pharmacist had similar problems after childbirth. She was off work
for an extended period of time as well. It was a very difficult 20 +
hour vaginal delivery. Never should have gone that far but that's
another discussion. Anyway, she was treated by the same physical
therapist as I was for the pelvic floor dysfunction (PFD). It's really
a niche thing and not all therapists are trained in it. She needs to
find a gyn who specializes in pelvic pain and female disorders as that
would be the best resource to get the right kind of PTas well as the
proper dx. As I mentioned, it took me 10 months to get to the right
dx. First I was dx with bursitis of the hip and was treated with
ultrasound for 3 months.. That really helped each time I got it but
when we'd stop the ultra for a few days the pain would come back. I
couldn't even get to doing exercises Then I was dx with something else
that I can't recall (it was wrong anyway) and sent to a different type
of PT. Those exercises started helping me a lot but there was no
sustained improvement from week to week. That therapist was very astute
and brought in the other therapist to talk to me. He said he thought I
had PFD and wanted the other who was a woman to explain it to me.I had
had a lot of pelvic surgeries (7) which can also lead to it. It made a
lot of sense as it combined all my symptoms together. There were a lot
of spasms of the muscles in the pelvis that were causing my pain.
Apparently this comes from too much strain on the pelvic floor muscles.
Since I had severe back problems when I walked my abs weren't
supporting my back and the pelvic floor muscles were doing work they
weren't designed for. Thus the chronic pain and spasms. The only way
these spasms could be "released" was with a massage type treatment. Of
course they could have used botox injections but I went for the massage
treatment first. Oh and I know this sounds shocking as I was quite
shocked and skeptical when I was first told about it but access for
release of the particular muscle that is in spasm is done vaginally.
Now you see why I went for that instead of the botox! Thank goodness
it worked for me! It only took one treatment for the release but the PT
to return the muscles in the back and abs to a healthier state and
support me better lasted 3-4 months. I was told to do those exercises
for the rest of my life because once you get PFD, you are prone to a
return of it. Because of the nature of the PT it's important to get it
dx by a gyn first. Generally here, the gyn works closely with the
specially trained therapist on the course of treatment. It was not
comfortable. The actual treatment itself was quite painful and my pain
did increase later that day a ton but by the next day I could see a
significant improvement and was soon on my way to "normal". Of course
this was 2 years ago and there's nothing normal about me now due to
completely different problems..
Well I hope this is helpful for your daughter!
Cyberhugs,
DianeW
It is only with the heart that one can see rightly; what is essential
is invisible to the eye. --Antoine de Saint Exupéry