Medical Forum / Diseases and Disorders / Arthritis / April 2006
KJ Update
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KJ - 07 Apr 2006 03:25 GMT Just cuz Gwen asked! :-P
Let's see, I am doing fairly well. Ankle surgery in December has healed well. I started going to the gym again this week. We'll see how long I last this time! Still doing the Orienca study, study has been extended til at least July so I don't have to worry about fighting insurance for awhile.
I've been working my butt off on eBay trying to help make ends meet around here. That's not leaving me a lot of free time. But at the same time it doesn't give me time to whine either! LOL
Danielle is doing very well. Working hard (of course!) at high school and staying on her self made course to med school. Report cards came home today, she got a 4.0 (big surprise there!) She still has the frequent battles with depression and self esteem but what teen girl doesn't? I really think she has a good handle on those things now.
Robbie got his temporary driver's license today! AKKKKKKKK! He's getting good grades. He only had one "disruptive in class" comment on his report card so thats an improvement! LOL Just finished wrestling season and decided not to go out for a Spring sport so he can work on gaining weight and muscle for football season.
Bob's been working overtime lately so I haven't seen a whole lot of him but that's not always a bad thing!
All in all things are good in Ohio!
I do miss you guys, it just seems like I never have time to sit down and post over here. But if ya need me, just holler! I'm right here!!!
~KJ
ladylove77 - 07 Apr 2006 03:40 GMT KJ, thanks for all the news. We really miss you around here. Doesn't seem right without you and Mama Char! Gwen
> Just cuz Gwen asked! :-P > [quoted text clipped - 29 lines] > > ~KJ d'huit - 09 Apr 2006 03:08 GMT yeah, we do---miss you around here!
oh! are you supposed to go to gyms? heck, i thought i was just supposed to pay their dues, stay home and watch soaps!.
"good in ohio" is what we enjoy hearing. keep up the "good in ohio"!
kate
KJ, thanks for all the news. We really miss you around here. Doesn't seem right without you and Mama Char! Gwen
> Just cuz Gwen asked! :-P > [quoted text clipped - 29 lines] > > ~KJ Duckie - 07 Apr 2006 04:29 GMT Good to see you KJ. I have had one computer failure after another until HP finally just replaced the thing. So I am finally back in the fold again after our move. Tell Kimmy hello. Duckie
> Just cuz Gwen asked! :-P > [quoted text clipped - 29 lines] > > ~KJ DeeTee and Bob Taggart - 07 Apr 2006 09:28 GMT We miss you! Will there be a gimp picnic this year, do you think? We're close enough now that we could drive up.
DeeTee
> Just cuz Gwen asked! :-P > [quoted text clipped - 29 lines] > > ~KJ vickie b. - 07 Apr 2006 13:50 GMT Great to hear from you! And your family!
Vickie B.
Newsgroup Spambuster - 07 Apr 2006 14:58 GMT Loved hearing the update and sounds like you all are plenty busy these days!!!
Drop by once in a while just to let us know you are still kicking and living life to the fullest!! . . . Donna G
KJ - 07 Apr 2006 23:27 GMT If there's enough interest, I'd love to have a picnic this year! It would have to be mid August. After the fund raiser I'm working on is over (www.dndfund.org), that takes a huge amount of time, especially in the couple weeks right before it. And before football season starts.
So if people will come I will have it!
~KJ
> We miss you! Will there be a gimp picnic this year, do you think? We're > close enough now that we could drive up. [quoted text clipped - 34 lines] > > > > ~KJ Nann Bell - 12 Apr 2006 22:24 GMT > If there's enough interest, I'd love to have a picnic this year! It > would have to be mid August. After the fund raiser I'm working on is > over (www.dndfund.org), that takes a huge amount of time, especially in > the couple weeks right before it. And before football season starts. > > So if people will come I will have it! I'd come, but I don't know if there's enough other interest. As of the last time I went to RheumorWeb, it appeared the Myrtle Beach Gimpfest was on hold until further notice also.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
hanbell@earthlink.net - 07 Apr 2006 15:04 GMT Good to hear that all of you are doing well. As for the gym, don't overdo but keep pushing yourself to go for at least 2-3 months. Once you reach that point, you begin to crave it, heehee. Dang I miss having a decnt gym nearby!
I've been wondering about gimpfests/picnics too. I need a Nann vacation sometime before I do the other thumb.
We DO miss you here.
Nann
Squirrely - 07 Apr 2006 22:08 GMT Hope all goes well for you KJ and your family. I am always hoping that.
Wish you were not so busy that you could be here more but I understand the need to be doing what you are doing. You take care.
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
> Let's see, I am doing fairly well. Ankle surgery in December has healed > well. I started going to the gym again this week. We'll see how long I [quoted text clipped - 27 lines] > > ~KJ maybulltwo@aol.com - 12 Apr 2006 10:43 GMT this will be a mess but bear with me hi lites only for now 29 mar fell in paking lot of rd. my fault. shattered left humerus can not repair because of my wt. dr said they didnt have equipment for folks big as me. btw he looks like tiger woods (at 14) in hosp 8 days home without help. managing. developed major resp prob in hosp just after the fall. could not get o2 sats above84%. lots of new meds and medical equipment. doing ok. on b pap at night. will have more detail later
arthritis status- elbows heavily involved. can not feed my self some of the time major diet aids mouthsores n cant feed yourself. also on lasix. they literally took gallons and gallons of fluid from legs n such
when first home from hosp myron n I bunged up my r shoulder using bad body mechanics. thought had torn rotator cuff all to hell is better but delicate must baby it or i will be helpless
anybody call if you like love to hear from you have headset fot phone sometimes hard to get on so if you call dont hang up too soon thats it for now
mama char
need help mouth sores from damn oral mtx (i think) since before accident stop mtx last dose 2 weeks agomouth excrutiating tried diflucan,swish and swallow (practically drink the stff) no help any ideas?
RoseB - 12 Apr 2006 14:15 GMT Oh Char I am sooo sorry to hear about your fall and other issues. I can relate to the fractured humerus, and know how helpless a person can become.
So sorry that things can not be repaired. All I can say is hang in there, and know that I am thinking about you and saying prayers for a fast recovery. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
Diane - 12 Apr 2006 17:54 GMT char, how awful. i'm so sorry to hear you're going through all of this. for mouth sores i use gly oxide. helps with the pain and shortens healing time, at least i've convinced myself it does.
hugs and good wishes for a speedy recovery from that fall.
diane
Mary Z - 12 Apr 2006 14:17 GMT >this will be a mess but bear with me hi lites only for now >29 mar fell in paking lot of rd. my fault. shattered left humerus can >not repair because of my wt. dr said they didnt have equipment for >folks big as me. btw he looks like tiger woods (at 14) in hosp 8 days > home without help. managing. developed major resp prob in hosp just >after the fall. Mama Char we really miss you. This is a terrible mess, I am glad you checked in so we can send you some healing prayers and thoughts. Please check in when you can we are worried about you. -- MZ
ladylove77 - 12 Apr 2006 14:36 GMT Char, what bad news! Not the kind we wanted to hear, of course, but thanks for letting us know. Prayers for you to do as well as possible, and not have so mch pain. We really do miss you and think about you a lot; you always added an intelligent reply to anything that was going on. Gwen
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? tin lizzie - 12 Apr 2006 16:34 GMT Oh Char I am so sorry for all your problems. Will hold good thoughts that you improve quickly. Sincerely Lorrie F
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? Jo Firey - 12 Apr 2006 19:55 GMT Ooh, wish you were doing better. But hearing from you, even like this, is so much better than not hearing from you at all. We love you and we worry.
I'd do it if I could hear, but could some of you who can use the phone get updated from Char once in a while and post them?
Char, I take it you read the group but find it hard to post.
I remember you often and send good thought. Usually in kind of a general way. Much more specific prayers go our when my shoulders act up. Mine aren't too bad, but are a reminder just how hard it is to get comfortable when your shoulders hurt.
Sending some virtual lilacs. Its been raining here, but they finally gave it up and bloomed anyway. They smell so good. Maybe I'll include some cherry blossoms. I'm sure we have plenty for the neighborhood, and for all the birds.
Jo
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? Harvey R. Stone - 12 Apr 2006 23:03 GMT > Ooh, wish you were doing better. But hearing from you, even like this, is > so much better than not hearing from you at all. We love you and we > worry. Thats tellen her Jo. Pour it on and its all true too.
> I'd do it if I could hear, but could some of you who can use the phone get > updated from Char once in a while and post them?
> Jo Jo??? Did that implant for hearing not work? Oh my was that someone else???? If so,,,, very sorry. Harv
Jo Firey - 13 Apr 2006 00:19 GMT >> Ooh, wish you were doing better. But hearing from you, even like this, >> is so much better than not hearing from you at all. We love you and we [quoted text clipped - 10 lines] > else???? If so,,,, very sorry. > Harv Its been a miracle. But not up to carrying on a telephone conversation. I can use the phone on a limited basis if I know who I'm talking to but that is about it.
I use a speaker phone, but the speakers on the ones we have right now aren't very good. The kids keep breaking or losing the phones, but I suspect since I don't care for the current ones, they will last forever.
I do really well in a fairly quiet setting. Not so great in a noisy environment. I tend to forget between trips out just how much background noise there is in stores and restaurants.
I can watch old uncaptioned movies on TV if I really concentrate, and can sometimes listen to talk shows on the car radio.
Jo
Harvey R. Stone - 13 Apr 2006 13:00 GMT That's wonderful,,,,,, it is such a pain to not hear well but to not hear at all,,,, I just have no idea. Harv
>>> Ooh, wish you were doing better. But hearing from you, even like this, >>> is so much better than not hearing from you at all. We love you and we [quoted text clipped - 27 lines] > > Jo Jo Firey - 13 Apr 2006 17:23 GMT > That's wonderful,,,,,, it is such a pain to not hear well but to not hear > at all,,,, I just have no idea. LOL. I'm sitting here having my morning quiet time. I don't wear the implant if there is no one around to talk to. And I'm profoundly deaf without it.
Its my time because for this time, I don't have to make the extra effort. It just gets exhausting sometimes to have to work so hard at it.
But it such a blessing to have the choice.
Jo
>>> Ooh, wish you were doing better. But hearing from you, even like this, >>>> is so much better than not hearing from you at all. We love you and we [quoted text clipped - 27 lines] >> >> Jo Navy1 - 12 Apr 2006 20:52 GMT Love and prayers coming your way.
To look at something different, take a look at my photo pages.
http://lbaker570.photosite.com/
There is an adorable series of my granddaughter sneaking across the bed to use the telephone (she was 2-1/2 then).
(((((((((((((((((((((Mama Char))))))))))))))))))))))))))
Who cares about the typos, we're just glad to hear from you.
Loujean
>this will be a mess but bear with me hi lites only for now >29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] >diflucan,swish and swallow (practically drink the stff) no help any >ideas? Nann Bell - 12 Apr 2006 22:26 GMT ((((((((((((((Char)))))))))))))) We miss you so. You are always in my prayers.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
DeeTee and Bob Taggart - 12 Apr 2006 22:45 GMT {{{{{{Char}}}}}} Oh, sweetie!! My heart hurts for you. Know that our prayers and our love are on their way.
DeeTee
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? Kelly Cobb - 12 Apr 2006 23:41 GMT ((((mama Char))))
You poor thing! I am so sorry to hear about this and I really hope you heal quickly. We miss you tons around here.
Kelly C.
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? johnie - 12 Apr 2006 23:51 GMT > need help mouth sores from damn oral mtx (i think) since before > accident stop mtx last dose 2 weeks agomouth excrutiating tried > diflucan,swish and swallow (practically drink the stff) no help any > ideas? {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{char}}}}}}}}}}}}}}}}}}}}}}}},
im so sorry so much is going wrong. Do you and myron have some help or is it just you and myron. Have you had a chance to look into some part time assistance. If you want some help tracking down that info for your area let me know. There are a few things that can be done long distance and I know you both must be exhausted.
But Now lets do something about those mouth sores. If you search 'mouth sores' for this group alot of good info will pop up. There is a real variety of approaches.
Some Basics Are:
First. Take your Folic Acid. at least 4mg. daily
Take L-Lysine.
Take Acidolphylus...make a rinse out of the capsules. is critical in getting your system rebalanced.
Numb them down with Benadry and Mallox. Mix it and rub it in. IF this isn't working call your doc and get a script for a mouth sore gel product that has cortisone in it. OKAY.
IMPORTANT to keep your diet on the alkaline side/no acidic foods. RINSE with warm salt water/then do it again. Keep that mouth ultra clean. no tooth paste. use baking soda.
NOW, here is something I used last year and it was a miracle. I rarely get em so a mouth full freaked me out and this stuff cleared them in 2 days. A friend gave me some and it is a relatively inexpensive supplement. Deglycyrrhizinated licorice. (DGL) is the herb licorice which has had the glycyrrhizic acid removed. Glycyrrhizic acid is the portion of licorice root which can increase blood pressure and cause water retention in some people. The wound-healing and soothing components of the root remain in DGL. You just rinse with this stuff or chew on it. It has to be the DGL cause other licorice products will increase blood pressure. You can get it as a chocolate chew and its good. This worked for me.
I hope this works for you the way it did for me. If you cant get it let me know and I will get and mail you some but it will take a few days.
Please let all of us know how you are getting along as often as you can.
Big Healing Desert Hugs, johnie
maybulltwo@aol.com - 15 Apr 2006 00:26 GMT Johnie- Please send me some of that licorice stuff. Let me know what it costs and I will repay you for it. Thanks bunches Mama Char
Newsgroup Spambuster - 17 Apr 2006 00:42 GMT Awwwwwwww, mama char, enough already!!!
We need you and Myron both to return to better health and rejoin us here and at gimp gatherings!
Hugs to you both!
Donna G
johnie - 18 Apr 2006 16:38 GMT char, am going shopping today. send me your mailing address by email. hope your a bit stronger today. johnie
> Johnie- Please send me some of that licorice stuff. Let me know what > it costs and I will repay you for it. > Thanks bunches > Mama Char jb - 13 Apr 2006 03:56 GMT thinking of you and wish you a speedy recovery. with love and prayers janice
| this will be a mess but bear with me hi lites only for now | 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] | diflucan,swish and swallow (practically drink the stff) no help any | ideas? Duckie - 13 Apr 2006 20:56 GMT Oh ouch ouch ouch. Gentle hugs. Glad to see your name on the board. I had been missing in action for months due to move and dying laptop computer but I am finally back. Tell Myron hello from me. Duckie
> this will be a mess but bear with me hi lites only for now > 29 mar fell in paking lot of rd. my fault. shattered left humerus can [quoted text clipped - 24 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas? Squirrely - 14 Apr 2006 01:53 GMT Sending lots of love and healing vibes your way. I am sorry to hear you are in such shape. I hope things go better for you soon. Love you lots, and miss you big time.
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
> > this will be a mess but bear with me hi lites only for now [quoted text clipped - 25 lines] > diflucan,swish and swallow (practically drink the stff) no help any > ideas?
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