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Medical Forum / Diseases and Disorders / Arthritis / March 2006

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Dreaming of running....

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DianeW - 15 Mar 2006 05:11 GMT
Well nothing is really improving in my walking situation. MS doc said
the brain MRI didn't show new MS activity but of course, the neck and
spine were not done. He think's that the compression fractures may have
done some nerve damage and wants me to go to a neuro-surgeon who I will
see on the 28th.  I am to get a c-spine and rest of the spine with and
without contrast before then to speed things up when I see the new doc.

Anyway, I am very frustrated with this not being able to walk, lack of
balance and such. I can walk with the walker but I am sooooo weak it is
very difficult to do so for any length of time. It takes me 3 hours to
take a shower and get dressed, fix hair, makeup etc and the last hour
I'm sitting in the recliner to do so. Just raising up from a sitting
position is very difficult and sometimes I can't do it if the chair is
too low. If I am leaning against something for support, my balance is
better but sometimes my knees or hips just buckle on me and I'm really
afraid one of these times I'm going to fall. My walker is my constant
companion. Except in my dreams.

But when I sleep I dream I'm running. It is such a lovely feeling and I
haven't been able to run for years!  I'd just settle for walking. It's
like a continuation dream. In one dream I told my husband I found out
if I was running I wouldn't lose my balance. I just had to go fast
enough and I wouldn't fall.  So now I run in my dreams and when I see
my husband I ask him "Am I dreaming or am I really able to run again?"
It's like an everyday dream. Twice a day if I nap. And I don't ever
remember dreaming this much.

So that's what's up with me. I am really not adjusting too well to this
new development. It's a lot harder than I ever imagined.  Cyberhugs,
DianeW
Harvey R. Stone - 15 Mar 2006 05:28 GMT
Hi Diane,    Your talk of dreams brings tears to my eyes.   I know that the
stress of late and the changes in your body have added to the loss of
function.   In your dreams there is no pain and you run like a teenager,
all I can say is to enjoy it,,,, run with it with the wind in your face and
the sound of laughter in your ears.  Wake up feeling better and at peace
with the world.
Harv

> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW
DeeTee and Bob Taggart - 15 Mar 2006 13:07 GMT
{{{{{{{Diane}}}}}}}

DeeTee

> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW
Navy1 - 15 Mar 2006 15:13 GMT
Prayers and hugs for you.  Keep on dreaming, girl, it is some release.
(((((((((((((((((((((((((DianeW)))))))))))))))))))))))))))))))))))))))))

Loujean

>Well nothing is really improving in my walking situation. MS doc said
>the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
>new development. It's a lot harder than I ever imagined.  Cyberhugs,
>DianeW
vickie b. - 15 Mar 2006 15:51 GMT
(((((diane)))))

keep the dreams coming,

Vickie B.
Cindy - 15 Mar 2006 15:55 GMT
(((((((((Diane)))))))))))))
Seems that in your dreams you are enjoying your life.
One dream that I have....Is that my Dad is still alive...
I know that he is suppose to be Dead...But when I am dreaming...Somehow he
came back...They were wrong...
So I think it helps us with the pain of losing that part of our lives...
The pain I suffer with my FM and OA...comes through in my dreams...When I am
hurting at night I will be hurting in my dream also...Like trying to walk
and it is too painful...
When in real life...I am very blessed to still be able to walk.But laying in
bed hurting and in pain...it is transferred into my dream...

Didn't mean to write a book...Just really wanted to offer you a hug and a
prayer...
Love you Diane, and wish that they could offer you some help to get part of
your life back...

Hugs Cindy
> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW
Charrlygrl1 - 15 Mar 2006 16:12 GMT
Diane,

I'm sorry for what you are going through. Prayers and good vibes are on
the way,
((Diane))
Char
diclidophora@yahoo.co.uk - 15 Mar 2006 16:34 GMT
Diane

I feel for you.
When I first got RA at 44 I used to dream of running, again and again.
I know what it is like.
I used to do a bit of climbing and was reminded when I saw 'The Glass
Mountain' once. It caused me to burst into tears.
Hope you improve very soon

Peter
Jo Firey - 15 Mar 2006 23:01 GMT
I wouldn't want to share the difficulty you are having getting around.  But
the dream sounds wonderful. At least while it lasts.  Wonder if I could
conjure that one up?  I've had some luck with directed dreams and this
sounds like a good one.

Sending best wished and prayers for your strength to improve.

Jo

> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW
diclidophora@yahoo.co.uk - 16 Mar 2006 13:58 GMT
Jo. What are directed dreams ?

Peter
Jo Firey - 16 Mar 2006 22:59 GMT
> Jo. What are directed dreams ?
>
> Peter

Sometimes some people can decide ahead of time what to dream about.  It is
kind of like meditating before you go to sleep.  I don't do well with that,
but if I'm dreaming early in the morning and wake up I can sometimes decide
where I want the dream to go and go back to sleep and it will go there.

Once in a while this will work in the middle of the night too.

Of course it helps to have an idea in advance of what or who in general you
want to dream about.

Jo
Squirrely - 15 Mar 2006 23:39 GMT
I feel for you and my heart goes out to you.
I know the feeling of dreaming about what you can't do and how it makes you
feel. Know you are in my heart and prayers.

Signature

Hugs, prayers, good thoughts,
Warm fuzzies, TLC, and Love
Squirrely Jo

> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW
DianeW - 16 Mar 2006 05:16 GMT
Thank you everyone for such kind words. Today was a hard day. Wayne
took me to get my nails done and on the way was invited to attend Bay
Hill Golf Tourney which I know he would have much preferred to go to.
It just broke my heart to hear him say he couldn't go. Well tonight I
gave in and started using my mothers wheel chair. It sure made things a
lot easier but I'm afraid I'll just keep getting weaker. I am using my
feet and hands both to get around so I don't wear anything out too
much. But it was a lot easier getting some stuff done this way.
Tomorrow a friend is coming to visit and if I am up to it, taking me
out to breakfast. Mornings usually aren't good for me but I'm going to
try. And thanks again.....it's good to know you all are always here.
Cyberhuigs, DianeW   Oh -- I took an Enbrel shot today. COuldn't take
it anymore and no more UTI
Adelle - 17 Mar 2006 16:28 GMT
> Well nothing is really improving in my walking situation. MS doc said
> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 26 lines]
> new development. It's a lot harder than I ever imagined.  Cyberhugs,
> DianeW

{{{{{{{{{{{{{{Diane}}}}}}}}}}}}}}}}

Are you on a muscle relaxant? Or started a different one? I have really
vivid dreams when I'm on them. Many are on the scary side, so your one about
running and feeling good is not totally a bad thing. It's true of a few
other medications - like some anti-depressants, some pain killers, etc.

I read (long ago - adjunct box regarding something Christopher Reeve said
and quoted in the body of the article) it's common for people with neuro
injuries to not be injured/impaired in their dreams; especially for people
with paralysis or amputations.

Can't recall, are you also on one of the ABCR's. It was a good neuro-surgeon
who figured out I didn't have MS, but had a combination of other issues that
together, made my symptoms seem like MS. Hope the neuro-surgeon you will be
seeing is even better!

Wishing you easier times ahead!

Adelle
Nanny - 17 Mar 2006 19:46 GMT
I have this recurring dream where I'm going down a bunch of stairs.
Actually, I'm cruising *over* the steps, not on them, and never have an
accident doing so.  It's so real that I had to tell myself it was just a
dream.  No, I do not plan to do it while I'm awake ;-)  Nanny

>> Well nothing is really improving in my walking situation. MS doc said
>> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 48 lines]
>
> Adelle
Diane - 17 Mar 2006 21:35 GMT
diane, i've been following your thread and thinking of you a great
deal, but have had a hard time posting in the thread because i feel so
inadequate to say anything helpful. i ache for you and wish i had a
magic wand. i'm so sorry for all you're going through.

diane
Gwen Love - 17 Mar 2006 22:31 GMT
Diane W, what diane c. said!
Gwen

> diane, i've been following your thread and thinking of you a great
> deal, but have had a hard time posting in the thread because i feel so
> inadequate to say anything helpful. i ache for you and wish i had a
> magic wand. i'm so sorry for all you're going through.
>
> diane
Nann Bell - 18 Mar 2006 04:16 GMT
> diane, i've been following your thread and thinking of you a great
> deal, but have had a hard time posting in the thread because i feel so
> inadequate to say anything helpful. i ache for you and wish i had a
> magic wand. i'm so sorry for all you're going through.
>
> diane

well said, and my thoughts too.

(heehee, my dreams have been strange lately - Puddin' cat is now allowed to
stay upstairs overnight and visits us in bed periodically.  leads to strange
dreams!)

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Butterfly - 18 Mar 2006 03:29 GMT
This happened to me when they gave me a muscle relaxant that was new to me.
I ended up yelling out loud that I was 'doing everything you told me to and
it still isn't working'. Took my DH quite a while to wake me up. I got up
and went online until I could relax a bit as I was too afraid to go right
back to sleep. Dr switched the medicine to Robaxin 750 MG with the
instructions to take 1/2 and only take the other 1/2 if the first hasn't
worked in 2 hours. So far, I have only had to take 1/2 and only when I need
it (mainly in a Fibro flare).

Butterfly

>> Well nothing is really improving in my walking situation. MS doc said
>> the brain MRI didn't show new MS activity but of course, the neck and
[quoted text clipped - 48 lines]
>
> Adelle
Nann Bell - 18 Mar 2006 04:16 GMT
> Are you on a muscle relaxant? Or started a different one? I have really
> vivid dreams when I'm on them. Many are on the scary side, so your one about
> running and feeling good is not totally a bad thing. It's true of a few
> other medications - like some anti-depressants, some pain killers, etc.

when I was started on an AD for fibro, I was told to take it in the evening
as that was when it was supposed to help the most with fibro sleep probs.  No
good for me!  I'd sleep for an hour or two, then be wide awake with my mind
just a-racin'.  When I did manage to sleep again, dreams were vivid as can
be, often waking me up again.  Even then though, the AD helped with the fibro
fog!

All got much better when I changed my dosing to AM.

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Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Butterfly - 18 Mar 2006 04:31 GMT
AD kept me awake for 24 hours straight on the smallest dosage
possible......then I slept for 4 (terrifying nightmare) and another 24 wide
awake. And that was the first pill! I waited one week and tried it again.
Same thing.. No more for me.

Butterfly (very sensitive to medications)

>> Are you on a muscle relaxant? Or started a different one? I have really
>> vivid dreams when I'm on them. Many are on the scary side, so your one
[quoted text clipped - 14 lines]
>
> All got much better when I changed my dosing to AM.
Alex - 19 Mar 2006 17:59 GMT
Hi Diane,
Sarahs' BIL still dreams about walking & running 36 years after
breaking his neck diving into shallow water & becoming a quadriplegic.

Enjoy what abilities of motion you still have rather than being
frustrated at what you can't do.

Sending Good Thoughts,
{{{{Diane}}}}

GramPaHugs,
Alex,

<snip>
> Anyway, I am very frustrated with this not being able to walk, lack
> of balance and such. I can walk with the walker but I am sooooo
[quoted text clipped - 7 lines]
> I'm going to fall. My walker is my constant companion. Except in my
> dreams.
<snip>
> So that's what's up with me. I am really not adjusting too well to
> this new development. It's a lot harder than I ever imagined.
> Cyberhugs, DianeW

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 personal experiences & is an expression of my opinion.

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diclidophora@yahoo.co.uk - 19 Mar 2006 18:57 GMT
Like they say. -
There is always somebody worse of than you (ie us).
Use it while you've got it I reckon. Even tho that may be difficult and
painful.

I don't even want to imagine what quadraplegia would be like, but my
feelings go out to BIL

Peter
 
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