Retuximab

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bernie - 12 Mar 2006 10:46 GMT

Hi,

Has anyone else been for retuximab infusion, I am due to go in few weeks and
would be interested to know how they got on.
Thanks Bernie

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Smokie Darling (Annie) - 13 Mar 2006 15:44 GMT

> Hi,
>
> Has anyone else been for retuximab infusion, I am due to go in few weeks and
> would be interested to know how they got on.
> Thanks Bernie

Well, I had 2 infusions, unfortunately it did not work for me. One
thing I would warn you of, it takes for freakin' ever. At least mine
did. The first infusion took nearly 8 hours, the second one took 6
hours. I realize that they had to begin very slowly ("x" mg per hour
for 30 mins, then up to another level for another 30 minutes....) to
watch for adverse reactions, but dang my backside hurt after that (I
did get a free lunch for my $12,000 treatment).

I ended up with hives so changed medicine, but that was the only
reaction I had. Never seemed to help me, but someone here uses it (I
*believe* it's Duckie, but could be wrong about that), and it helped
her alot as I recall.

Smokie Darling (Annie)

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Mary Z - 14 Mar 2006 03:15 GMT

>I ended up with hives so changed medicine, but that was the only
>reaction I had. Never seemed to help me, but someone here uses it (I
>*believe* it's Duckie, but could be wrong about that), and it helped
>her alot as I recall.

I think that is right but she said it took about 3 months before she
felt better. She mentioned sometimes responding to the drug takes a
while. Duckie come out, come out,....... where ever you are!!!!!

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Smokie Darling (Annie) - 14 Mar 2006 15:22 GMT

> >I ended up with hives so changed medicine, but that was the only
> >reaction I had. Never seemed to help me, but someone here uses it (I
[quoted text clipped - 4 lines]
> felt better. She mentioned sometimes responding to the drug takes a
> while. Duckie come out, come out,....... where ever you are!!!!!

Well, at least my "swiss cheese memory" managed to retain that bit of
information correctly. Heck, I even remembered that it took a long
time for her show improvement.

Although, I did noticed that I seemed to have a bit more energy a
couple of months after the treatment. Didn't help the pain, but the
exhaustion got better (too bad the hives got infected, or I'd risk
those just to have the energy back again).

Smokie Darling (Annie)

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