Medical Forum / Diseases and Disorders / Arthritis / March 2006
OTP - Mom's cancer is 'back'
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Adelle - 09 Mar 2006 17:25 GMT Hi!
Have been lurking. Saying prayers for those in need; and the need seems to be pretty great lately. Wish everyone was doing better.
My mom was wiping the counter and her collarbone cracked. Turns out there is a tumor in the bone. As it turns out, there is also a tumor in her arm and hip. On scan, the one in the hip and in the arm look similar, but the one in the collarbone looks different, so it is getting biopsied today. They biopsied the arm two days ago.
Mom had a very rare form of cancer almost three years ago. It was in her abdomen. But since it had clear margins and no node involvement, there was no chemo or radiation. The radiologist who did the biopsy two days ago said that on initial eyeballing, the tumor from her arm looked like a spindle cell one, which is what she had three years ago.
It turns out her hospitalizations for what we thought was pancreatitis is consistent with metastases from that original cancer. She can't remember if she ever told her oncologist about these attacks. Certainly her doctors never made the connection. Not sure whether its worth getting angry at the original oncologist - or whether its our own fault for not researching it more three years ago.
And with one tumor seeming different from the others, we really don't know what we are dealing with yet. Sigh! Right now, she has a pretty positive attitude. Like me - a pragmatist who has trouble connecting with the emotions. That will serve her well for now. We can fall apart later (at least for a little while) when there are no decisions to be made, and just treatment to be endured.
She and my sister are also in an initial panic, because they just bought a big home together and were relying on my Mom's salary for monthly expenses. The house they wound up with is a two story (it was less expensive than the ranch style they first contracted for, by 75K), which now means looking into a chair/lift so my mom won't have to risk the stairs (no place to add a bedroom downstairs, and no money in which to do it even if there were room)
On top of that, a good friend and neighbor has been battling breast cancer which they found metastasized to her lungs. Chemo is shrinking those. But it turns out it's in her brain where the chemo can't reach because of the blood/brain barrier. She is now getting daily radiation therapy. But this is a really bad turn of events and doesn't bode well. This woman has four kids, aged 8 (my son's friend) 15, 19 and 21. She is a nurse who has actually been working until radiation was started last week, making her too tired. She is on the school committee of her parish school.She could really use the help of the prayer machine. Her contributions to the rest of us are just so special.
SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would be greatly appreciated.
Thanks for listening, guys. Adelle
d'huit - 09 Mar 2006 18:24 GMT ((((((((((((((((((((((adelle, dorothy, gail and families))))))))))))))))))) i'm sorry the news wasn't better for your mom. my prayers and healing thoughts will certainly be engaged.
kate
Hi!
Have been lurking. Saying prayers for those in need; and the need seems to be pretty great lately. Wish everyone was doing better.
My mom was wiping the counter and her collarbone cracked. Turns out there is a tumor in the bone. As it turns out, there is also a tumor in her arm and hip. On scan, the one in the hip and in the arm look similar, but the one in the collarbone looks different, so it is getting biopsied today. They biopsied the arm two days ago.
Mom had a very rare form of cancer almost three years ago. It was in her abdomen. But since it had clear margins and no node involvement, there was no chemo or radiation. The radiologist who did the biopsy two days ago said that on initial eyeballing, the tumor from her arm looked like a spindle cell one, which is what she had three years ago.
It turns out her hospitalizations for what we thought was pancreatitis is consistent with metastases from that original cancer. She can't remember if she ever told her oncologist about these attacks. Certainly her doctors never made the connection. Not sure whether its worth getting angry at the original oncologist - or whether its our own fault for not researching it more three years ago.
And with one tumor seeming different from the others, we really don't know what we are dealing with yet. Sigh! Right now, she has a pretty positive attitude. Like me - a pragmatist who has trouble connecting with the emotions. That will serve her well for now. We can fall apart later (at least for a little while) when there are no decisions to be made, and just treatment to be endured.
She and my sister are also in an initial panic, because they just bought a big home together and were relying on my Mom's salary for monthly expenses. The house they wound up with is a two story (it was less expensive than the ranch style they first contracted for, by 75K), which now means looking into a chair/lift so my mom won't have to risk the stairs (no place to add a bedroom downstairs, and no money in which to do it even if there were room)
On top of that, a good friend and neighbor has been battling breast cancer which they found metastasized to her lungs. Chemo is shrinking those. But it turns out it's in her brain where the chemo can't reach because of the blood/brain barrier. She is now getting daily radiation therapy. But this is a really bad turn of events and doesn't bode well. This woman has four kids, aged 8 (my son's friend) 15, 19 and 21. She is a nurse who has actually been working until radiation was started last week, making her too tired. She is on the school committee of her parish school.She could really use the help of the prayer machine. Her contributions to the rest of us are just so special.
SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would be greatly appreciated.
Thanks for listening, guys. Adelle
Ann - 09 Mar 2006 19:09 GMT Prayers for Dorothy and Gail and all who love them.
Ann
Adelle - 13 Mar 2006 02:31 GMT Thanks, Ann!
Adelle
> Prayers for Dorothy and Gail and all who love them. > > Ann Adelle - 13 Mar 2006 02:30 GMT Thanks Kate! Adelle
> ((((((((((((((((((((((adelle, dorothy, gail and > families))))))))))))))))))) [quoted text clipped - 70 lines] > Thanks for listening, guys. > Adelle Alex - 09 Mar 2006 19:20 GMT Sending Good Thoughts, {{{{Dorothy Stavis, Gail Morse, Adelle}}}}
GramPaHugs, Alex,
> SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, > would be greatly appreciated. > > Thanks for listening, guys. Adelle
 Signature **************************************************** * Love radiating from 45.10n x 93.30w M/SP Mn * http://home.mn.rr.com/apbiii * http://grampahugs.is-a-geek.org/ * http://www.goldenmist.org ****************************************************
Adelle - 13 Mar 2006 02:31 GMT Thanks, Alex!
Adelle
> Sending Good Thoughts, > {{{{Dorothy Stavis, Gail Morse, Adelle}}}} [quoted text clipped - 6 lines] >> >> Thanks for listening, guys. Adelle Rosemarie Shiver - 09 Mar 2006 20:00 GMT {{{Adelle}}}
Good wishes and healing vibes on the way for you both.
Hugs from Rosie
 Signature "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II
> Hi! > [quoted text clipped - 50 lines] > Thanks for listening, guys. > Adelle Diane - 09 Mar 2006 20:05 GMT oh, adelle. prayers for your family and your neighbors family. i hate cancer. hate it. am not coping well with the way it takes our friends and families.
hugs,
diane
Adelle - 13 Mar 2006 14:49 GMT > oh, adelle. prayers for your family and your neighbors family. i hate > cancer. hate it. am not coping well with the way it takes our friends > and families. Diane,
You are so right. Only handling it by shutting down emotionally.
Adelle
Adelle - 13 Mar 2006 14:48 GMT Thanks Rosie! Hugs definitely appreciated.
Adelle
> {{{Adelle}}} > [quoted text clipped - 79 lines] >> Thanks for listening, guys. >> Adelle Carole - 09 Mar 2006 21:00 GMT Prayers said for your Mom, Gail, and Dorothy.
> Hi! > [quoted text clipped - 50 lines] > Thanks for listening, guys. > Adelle Adelle - 13 Mar 2006 14:50 GMT Thanks, Carole!
Adelle
> Prayers said for your Mom, Gail, and Dorothy. > [quoted text clipped - 53 lines] >> Thanks for listening, guys. >> Adelle Donald Whitely - 09 Mar 2006 21:05 GMT Adelle,
I am so sorry to hear about your Mom and your friend. It is very very difficult when you have had a bout with cancer when you have other problems attacking your body as well. It is so difficult to know whether to alert your oncologists every time you have an unusual pain or occurrence. Not every ache, pain or illness is related back to the original cancer, but how as lay people do know? I don't see how you can blame yourselves for this.
I return next week to do my CT scan to see if my Non Hodgkin's Lymphoma is still in remission. My oncologist has pledged to be my primary health guardian. He has stopped my wife in the main hall of the hospital to ask why I am there that day and if I am OK and he readily shares all of my information with all of my other doctors. His nurse does the same thing and we see her around various parts of the hospital.
I feel blessed, when we left Ohio I had almost all of my health needs met by doctors at the Cleveland Clinic. When we moved to Missouri I went to an RD recommended by my former RD. I finally switched all of my major care to Kansas University Medical Center in Kansas City Kansas an hour away from us. I have switched docs there till I finally have what I consider the best mix of docs for my care and ones I have great confidence in.
Some find it strange I do this, but for me it works knowing that all my docs can easily see all of my records when they are treating me and I sincerely believe this helps all of them when they are diagnosing my plentiful medical problems. A plus is having all of my test results, x-rays, ct scans, mri's and myriad of info on my all on line.
My thoughts and prays go out to all concerned.
Don Whitely
> Hi! > [quoted text clipped - 6 lines] > Thanks for listening, guys. > Adelle Adelle - 13 Mar 2006 14:53 GMT > Adelle, > [quoted text clipped - 7 lines] > how as lay people do know? > I don't see how you can blame yourselves for this. Well, when she had her first cancer surgery, we didn't do any research on our own. If we had, we would have found that almost everyone recommends follow up chemo and full body scans with this kind of cancer. If is rare and spreads through the blood, not lymph system. We are blaming ourselves for not being more proactive and questioning the first oncologists decision to not do chemo.
> I return next week to do my CT scan to see if my Non Hodgkin's Lymphoma is > still in remission. [quoted text clipped - 5 lines] > thing and we see her around > various parts of the hospital. He sounds like a gem!
> I feel blessed, when we left Ohio I had almost all of my health needs met > by doctors at the [quoted text clipped - 17 lines] > > Don Whitely Thanks, Don!
Adelle
_mL_ - 09 Mar 2006 22:24 GMT >SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would be >greatly appreciated. I just said a prayer for strength, comfort and healing for your mom, Dorothy, Gail and you.
Adelle - 13 Mar 2006 14:54 GMT >>SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would be >>greatly appreciated. > > I just said a prayer for strength, comfort and healing for your mom, > Dorothy, > Gail and you. Thanks! Precisely what we need
Adelle
RoseB - 09 Mar 2006 23:28 GMT I am so sorry to hear about your Mom Adelle.
Sending wishes for healing, strenght, and everything needed to cope for all involved. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
Adelle - 13 Mar 2006 14:54 GMT > I am so sorry to hear about your Mom Adelle. > > Sending wishes for healing, strenght, and everything needed to cope > for all involved. Thanks, Rose. So appreciated.
Adelle
Gwen Love - 09 Mar 2006 23:39 GMT Prayers for Dorothy and Gail, Adelle, and for you. Gwen
> Hi! > [quoted text clipped - 51 lines] > Thanks for listening, guys. > Adelle Adelle - 13 Mar 2006 14:55 GMT Thanks, Gwen!
Adelle
> Prayers for Dorothy and Gail, Adelle, and for you. > Gwen [quoted text clipped - 54 lines] >> Thanks for listening, guys. >> Adelle Cindy - 10 Mar 2006 02:44 GMT Adelle....You and your circle of family and friends will be getting alot of prayers from me...and hugs too Cindy
> Hi! > [quoted text clipped - 51 lines] > Thanks for listening, guys. > Adelle Adelle - 13 Mar 2006 14:55 GMT Thanks!
Hugs are good right now!
Adelle
> Adelle....You and your circle of family and friends will be getting alot > of prayers from me...and hugs too [quoted text clipped - 54 lines] >> Thanks for listening, guys. >> Adelle Nann Bell - 10 Mar 2006 04:44 GMT > SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would be > greatly appreciated. oh, dear. adding both to the prayer list.
It is almost the 2 year anniversary of the death of a buddy from high school from metastatic breast CA. She went with all-out aggressive treatment the moment the lump was found, but to no avail. ahhhh, cancer is such a battle for everyone.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Adelle - 13 Mar 2006 15:04 GMT >> SO, prayers for my mom, Dorothy Stavis and my friend, Gail Morse, would >> be [quoted text clipped - 8 lines] > battle > for everyone. Its so awful.
Gail's wasn't found until it was already in her lungs. She is now getting chemo and radiation for the brain tumors. It's really scary and my gut says her prognosis isn't good, though obviously, no one is saying that out loud.
My mom is getting on the schedule for radiation treatments. Haven't heard anything about chemo, yet. But with it in the bones, radiation is done first to shrink the tumors so they stop undermining the integrity of the bones.
Adelle
Kelly - 10 Mar 2006 04:45 GMT Prayers are out for your family Adelle.
Kelly
vickie b. - 10 Mar 2006 05:10 GMT (((((dorothy))))) (((((gail)))))
(((((adelle)))))
love and prayers,
Vickie B.
Adelle - 13 Mar 2006 15:04 GMT Thanks Vicki! Hugs are definitely appreciated.
Adelle
> (((((dorothy))))) > (((((gail))))) [quoted text clipped - 4 lines] > > Vickie B. Adelle - 13 Mar 2006 15:04 GMT Thanks, Kelly!
Adelle
> Prayers are out for your family Adelle. > > Kelly shenmei9wise@gmail.com - 10 Mar 2006 05:11 GMT prayers for all of you, Adelle.
m
Adelle - 13 Mar 2006 15:05 GMT Thank you, Melissa!
Adelle
> prayers for all of you, Adelle. > > m Gwen Love - 14 Mar 2006 05:22 GMT Adelle, this "m" was from Melinda.
> Thank you, Melissa! > > Adelle >> prayers for all of you, Adelle. >> >> m Adelle - 14 Mar 2006 14:47 GMT Brain Glitch!
I apologize profusely!
Adelle
[Have 'Melissa' on the brain. My friend's daughter is Melissa. It's the family where the father's mom, Melissa's grandmother, just passed away]
> Adelle, this "m" was from Melinda. > [quoted text clipped - 4 lines] >>> >>> m Sunny52 - 10 Mar 2006 13:50 GMT {{{{{Dorothy, Gail, Adelle, their families}}}}}
Prayers are on their way for all.
Thinking of you. Bonnie
Adelle - 13 Mar 2006 15:05 GMT Thanks Bonnie!
Adelle
> {{{{{Dorothy, Gail, Adelle, their families}}}}} > > Prayers are on their way for all. > > Thinking of you. > Bonnie DeeTee and Bob Taggart - 12 Mar 2006 09:21 GMT {{{{{{{{All cancer victims}}}}}}} We can put a man on the moon, but ...
DeeTee
> Hi! > [quoted text clipped - 51 lines] > Thanks for listening, guys. > Adelle Adelle - 13 Mar 2006 15:08 GMT Some things are just so hard.
My uncle (the ped rheumy) has a theory that fatal disease is partly the world trying to balance its resources and population.
We've come so far in medicine. Sometimes I wonder whether the inscrutability of cancer is God's way of trying to humble us; to remind us there are things beyond our control.
Dunno.
Adelle
> {{{{{{{{All cancer victims}}}}}}} We can put a man on the moon, but ... > [quoted text clipped - 55 lines] >> Thanks for listening, guys. >> Adelle Navy1 - 13 Mar 2006 21:56 GMT Prayers for you and your family coming your way. ((((((((((((Adele))))))))))))
>Some things are just so hard. > [quoted text clipped - 68 lines] >>> Thanks for listening, guys. >>> Adelle jb - 30 Mar 2006 16:58 GMT you got them Adelle janice
| {{{{{{{{All cancer victims}}}}}}} We can put a man on the moon, but ... | [quoted text clipped - 55 lines] | > Thanks for listening, guys. | > Adelle Carolj52@webtv.net - 14 Mar 2006 06:46 GMT Prayers for your mom,Dorothy ,Gail and families.Carol
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