Medical Forum / Diseases and Disorders / Arthritis / March 2006
otp: prayers needed
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Diane - 06 Mar 2006 23:34 GMT i've hesitated to ask for prayers on this because it's going to be a long, on-going battle rather than a one time thing, but my sister and brother-in-law can really use the asa prayer machine. john and i just got back from visiting them in NJ and things are not good. my brother-in-law has lung cancer and COPD (he's 70 and a life-long smoker) nd diabetes (not on insulin). he had chemo and now is getting radiation and he looks like he's wasting away. he gets bouts of confusion when his oxygen level is low. (i'm very afraid he may set the house on fire, since he still occasionally lights up and he will fall asleep at the drop of a hat.)
to make matters much worse, my sister has advanced MS, uses a scooter, can't walk and is losing the use of her arms. she is still a very vital person, active in little theater and just a dynamo within her limitations. but my bro-in-law was her helpmate and now he needs help. while we were there, he was so confused and feverish at one point, we called an ambulance (on his doctor's recommendation), but he refused to go and it was such an unhappy scene. i know some of you have been through this and know what i mean. my sister doesn't think they need a visiting nurse yet, but i hope she will not wait too long.
i feel so helpless now that i live a plane ride away from them. i'd appreciate your prayers to help them through this time. i still have hope he can recover. i don't have much experience with oncology, so don't have a sense of what is possible. do people really recover when they are so completely drained by radiation and still have weeks to go on it?
diane
Alix M. Hall - 07 Mar 2006 01:02 GMT always praying--and will pray for your sister and BIL--
 Signature Love, Alix
Always remember, a cat looks down on man, a dog looks up to man, but a pig will look man right in the eye and see his equal". - Winston Churchill
Kelly - 07 Mar 2006 01:30 GMT Prayers definitely going out in full force Diane. What a mess - and I agree it is so hard from a distance. Hope that she willl accept help sooner than later.
Thinking of you, Kelly
> i've hesitated to ask for prayers on this because it's going to be a > long, on-going battle rather than a one time thing, but my sister and [quoted text clipped - 25 lines] > > diane vickie b. - 07 Mar 2006 03:25 GMT Gwen Love - 07 Mar 2006 03:42 GMT Prayers on the way for both their medical conditions, and also that your sister will ask for help very soon. A visiting nurse would be good for both. Gwen
> i've hesitated to ask for prayers on this because it's going to be a > long, on-going battle rather than a one time thing, but my sister and [quoted text clipped - 25 lines] > > diane Harvey R. Stone - 07 Mar 2006 12:45 GMT > Prayers on the way for both their medical conditions, and also that your > sister will ask for help very soon. A visiting nurse would be good for > both. > Gwen Well said and a prayer for strength for you to be able to deal with what takes place. We are there with you. Harv
DianeW - 07 Mar 2006 14:13 GMT Diane - Prayers on the way. My dad had lung cancer and COPD so I know what they are going thru. Dad used to fight the use of oxygen which left him a bit confused at times. Hard to make good decisions when you are not getting enough O2. Many a time he refused to go in the ambulence and I think it was from the lack of O2 that he was unable to make the best decisions.
Please encourage your sister to get some help. I am a perfect example of what can happen to your MS with trying to do too much and stress. This is the worse MS flare I've ever had and your sister doesn't need that for sure. Did you see the other post about help for seniors? Maybe that would be good for them on a temp basis. I think it's under aid for housework but someone listed the name of a Senior org that they can check into. Also, their doctor can order a home evaluation where a nurse comes to the house and evaluates their needs to see exactly what they need and then they can take it from there. Maybe if your sister sees it only as an evaluation, once the nurse comes and checks things out she will feel different about it.
As far as the weekness goes, Is he on Procrit? Dad was given Procrit to fight the fatigue while on radiation. He lived another 2.5 years after the radition before the cancer returned. And yes, he did recover from the fatigue from the radiation. But it is hard to know = there are diff types of radiation and lung cancer. Also, is he showing signs of respiratory distress where is is hard to breath and he's getting panicy and heaving a lot? If so, please know that this can be treated with ativan and a small dose of morphine which makes the RD less scarey for the patient and also lowers the blood pressure. Dad didn't need the morphine untill much later but the ativan was crucial in his comfort level. Unfortunately, we didn't know about this until very late in his illness but I was glad I knew about it when Mom was dying. The doctors didn't give it until I ask for it which is why I'm telling you about it. There is no need for someone to suffer I always say. Anyway, email if you need to know more about this.....I've been there.
Prayers coming your way.......Cyberhugs.. Diane W
Alex - 07 Mar 2006 15:12 GMT Sending Good Thoughts, {{{{Diane, Sister, bil}}}}
GramPaHugs, Alex,
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Navy1 - 07 Mar 2006 15:19 GMT Prayers coming and hugs, ((((((((((((((Diane and family)))))))))))))).
When my dad died, for the last two weeks, he didn't know anyone and wouldn't respond when my mom would press his hand. He was so wasted away, it was hard to see them try to get a blood sample. We're thankful that he did slip away as easily as he did, comparatively. The night before he died, my sister and her grandson came. Dad and Andrew played like two toddlers, giggling and so. It left a nice memory.
I agree with DianeW. Sometimes they will take information and advice easier from a stranger than a family member. I would try it - getting some one in to make an evaluation.
Loujean
>i've hesitated to ask for prayers on this because it's going to be a >long, on-going battle rather than a one time thing, but my sister and [quoted text clipped - 25 lines] > >diane d'huit - 07 Mar 2006 17:57 GMT ((((((((((((((((((diane, sister, bil, john and family)))))))))))))))))))) oh, hon, what a sad and difficult/delicate situation. and how heart-wrenching it must be for you. all of you absolutely have mine.
your sister sounds amazingly courageous! hon, there may, or may not, be some kind of a husband and wife pact/agreement involved here, like there was between butch and me, while he was alive and battling for his life. (some of these kinds of pacts/agreements can even be unspoken between spouses, but still be understood because of knowing each other so well.) she may be honoring his wishes, their pact, without considering her own needs, putting herself second
is there a friend or neighbor who can look in on them, for you, and keep you apprised of their situation?
do they have (and would your sister be able to use) those emergency call buttons/service that can be worn around their necks? (the kind advertized on tv by dr. koop, the ex-national medical officer---i'm sorry, brain fog is stealing nouns from me and i have to use wordy description, instead, to say what i mean.). those devices might help them both and give you some peace of mind.
kate
i've hesitated to ask for prayers on this because it's going to be a long, on-going battle rather than a one time thing, but my sister and brother-in-law can really use the asa prayer machine. john and i just got back from visiting them in NJ and things are not good. my brother-in-law has lung cancer and COPD (he's 70 and a life-long smoker) nd diabetes (not on insulin). he had chemo and now is getting radiation and he looks like he's wasting away. he gets bouts of confusion when his oxygen level is low. (i'm very afraid he may set the house on fire, since he still occasionally lights up and he will fall asleep at the drop of a hat.)
to make matters much worse, my sister has advanced MS, uses a scooter, can't walk and is losing the use of her arms. she is still a very vital person, active in little theater and just a dynamo within her limitations. but my bro-in-law was her helpmate and now he needs help. while we were there, he was so confused and feverish at one point, we called an ambulance (on his doctor's recommendation), but he refused to go and it was such an unhappy scene. i know some of you have been through this and know what i mean. my sister doesn't think they need a visiting nurse yet, but i hope she will not wait too long.
i feel so helpless now that i live a plane ride away from them. i'd appreciate your prayers to help them through this time. i still have hope he can recover. i don't have much experience with oncology, so don't have a sense of what is possible. do people really recover when they are so completely drained by radiation and still have weeks to go on it?
diane
Diane - 07 Mar 2006 18:54 GMT thanks for all the advice and prayers. diane w, how are you doing? kate, my sister does wear a pendant that's linked to the home security system and thus to the police. she's had to use it a couple of times when she's fallen with her hubby out of the house.
i'm thinking about dana reeve today. is that unfair or what??
diane
d'huit - 07 Mar 2006 19:11 GMT thanks for all the advice and prayers. diane w, how are you doing? kate, my sister does wear a pendant that's linked to the home security system and thus to the police. she's had to use it a couple of times when she's fallen with her hubby out of the house.
i'm thinking about dana reeve today. is that unfair or what??
diane
me, too. it certainly is unfair. i keep thinking about their teenaged son, poor kid. how devastating for him. her kind of love and courage is a loss for all of us.
kate
DianeW - 08 Mar 2006 15:23 GMT Diane - I'm not getting stronger and I'm growing impatient. Did get my MRI results yesterday and it confirmed new MS activity. I'm not liking this can't walk without a walker thing. I'm so off balance and so weak it is really limiting what I can do. I have to have someone with me when I shower. And I can't stay on my feet very long.
On a positive note, I bought an old out of print hardback book - Fire and Rain - and have been reading that. My left eye is a bit blurry so it is slow going but I'm hooked on yet another wonderful tale! I don't know how you do it! I have one shelf filling up nicely with your books. I only buy hardback copies so some of the older ones have to be used -- sorry ! One of them had your autograph in them! LOL Cyberhugs, DianeW
Diane - 08 Mar 2006 20:08 GMT oh, diane w, i'm sorry about the increase in MS activity. that disease is so miserable. if tysabri comes back on the market, can you take it?
you're forgiven for buying used. sometimes you have to with the out of print books. i'm just glad you get to enjoy them.
diane c
DianeW - 08 Mar 2006 22:27 GMT My neuro isn't too keen on tysabri. He said the post-marketing studies are so short. No one really knows what will happen when the drug is withdrawn and he has some concerns about it. Something about how it prevents the passage of something but what happens to all that accumulates when you stop the medicine. I know that's vague but that's all I can remember. DianeW
Kelly - 09 Mar 2006 00:58 GMT Diane, You were asking about a walker - check out this http://www.ustep.com/walker.htm . Have no idea the price but looks interesting. Not sure about the brake system though.
Kelly
> My neuro isn't too keen on tysabri. He said the post-marketing studies > are so short. No one really knows what will happen when the drug is > withdrawn and he has some concerns about it. Something about how it > prevents the passage of something but what happens to all that > accumulates when you stop the medicine. I know that's vague but that's > all I can remember. DianeW DianeW - 09 Mar 2006 04:13 GMT Thanks but my husband made me buy one last week. We couldn't get anyone to fix the brakes and it was too dangerous without them. I'm getting used to it. It's a bit bigger than my old one but I like it. DianeW
DianeW - 09 Mar 2006 04:16 GMT That is a very unusual walker! My mother would have benefited from that one. It has features that at this time I don't need. My Mom had trouble walking "behind" a walker. Her basic medicare walker where she walked "inside" it made it easier for her. That is how that one is made. Gonna look around the site a bit more......DianeW
Kelly - 09 Mar 2006 00:49 GMT Diane, I have Her Mother's Shadow in paperback - can I mail it to you if you don't have it? I am in the states next week so the postage will be cheap!
Kelly
> Diane - I'm not getting stronger and I'm growing impatient. Did get my > MRI results yesterday and it confirmed new MS activity. I'm not liking [quoted text clipped - 9 lines] > used -- sorry ! One of them had your autograph in them! LOL > Cyberhugs, DianeW DianeW - 09 Mar 2006 04:11 GMT Thanks for the offer Kelly but I already have it....and read it! I'm hooked on Diane C's books! Where are you going to be next week? Anywhere near me? DianeW
Kelly - 10 Mar 2006 04:32 GMT I wish I was - could use just a tiny bit of heat (it snowed here today and trust me Victoria rarely snows.) no I am going to Seattle to spend some quality time with my brother, sil and 3 3/4 year old going onto 20 year old nephew who I adore. My son and dil are driving me down and spending a couple of days with me and then i am coming back on Saturday by the Clipper which is a large catamaran. We are doing a renovation (final one) to sell our house and next week they are tearing out 880 square feet of tile and retiling. Needless to say i am getting out of dodge. The new cupboards come in the week after, countertops two weeks after, painter sometime in there and then the hardwood floors will be sanded and redone in the living room. Then we sell. My out of pocket expenses with this ms like thing are about $1000 a month after loss of part time job pay ($300) and meds that my extended care and the provincial government public fund don't cover. That doesn't include the money my husband is losing (he is self employed) by driving me to doctor's appointments, shopping and doing all the things I used to do. Amazing how life changes. Anyhow we will downsize and probably would have anyhow. The house is 3000 square feet and we have a half and acre one house up from the ocean. Needless to say it is worth a fair amount so downsizing will help. The boys have left home now for good so we can do it now.
I am actually looking forward to it. Never thought I would say that. Of course the last few weeks have been a lot of work packing up boxes and clearing out the cupboards. The cupboards, dishwasher, sink get removed tomorrow. Can you say "dine out" Yes!!!!
Wish I was near to you Diane. But must tell you between the Lyrica and the Valium I am getting a bit better quality of life. The pain before was 9/10 24/7. Now it is 6-7/10 and maybe only 22/7. Have another neurologist appointment on april 18, rd appointment on march 21. They are also scheduling an eeg. Apparently that is one test they missed - not sure yet what that will tell. I am also hoping they get the one part of me that they didn't mri last time and also look at contrast. Apparently that sometimes catches what they miss.
Sorry to hear you aren't out of this flare yet. I sympathize. How long is a flare suppose to last anyhow? I am now 5 months with no relief whatsoever and the spasming is still pretty much steady. The foot spasticity has never let up. Glad I have a new appointment scheduled.
Anyhow let me know if there are any of Diane's books you haven't read. Might have them. I especially like her earlier books but might now have many of those left - I tend to lend them out. I am also hooked on Catherine Coulter's FBI series right now. Have one I just can't find - ticking me off. Have searched every second hand store I go into - will find it yet.
Take care, Kelly
> Thanks for the offer Kelly but I already have it....and read it! I'm > hooked on Diane C's books! Where are you going to be next week? > Anywhere near me? DianeW RoseB - 10 Mar 2006 04:44 GMT I am also hooked on Catherine
>Coulter's FBI series right now. Have one I just can't find - ticking me >off. Have searched every second hand store I go into - will find it yet. > >Take care, >Kelly What is it called Kelly? I can look here in the windy, but not yet snowy, interior. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
Kelly - 10 Mar 2006 15:31 GMT have to find the name Rose and the series is in a box in the living room - buried somewhere! Will let you know.
kelly
> I am also hooked on Catherine >>Coulter's FBI series right now. Have one I just can't find - ticking me [quoted text clipped - 9 lines] > > Please remove "Ima" to reply. DianeW - 10 Mar 2006 15:55 GMT Kelly - The nurse practioner at my neuro's office said I should be better at about the 3 month point but my first attack was more like 6 months. The second 3 months. This one is much more severe than the others or at least to me it is. How do your feet feel? Mine feel like they do when you are outside in really cold weather for a long time and when you come in the house and the rest of you warms up but your feet are still numb in your boots. Do you know that feeling? They have improved but it varies from day to day. Left worse than right.
I'm good on Diane's books right now cause I've been buying the hard copy out of print books on Amazon.com. You might try that for the author you said you couldn't find. They have both hard and soft copies of used books. I've found the sellers to be very truthful in what they descrbe they have. Of course, I check their ratings. It works out ok. I am trying to buy her newer books when they come out so I can keep my book shelf looking consistant. Can you say obsessive? LOL I'm really liking this earlier book of hers that I'm reading. The style seems a bit different but I really like it a lot.
Thanks for the update on the Lyrica and Valium. I used to take Ativan, which is similar to Valium, but stopped it last year due to sleepiness. Maybe its time to try it again. I am not sure if I can take Lyrica or not. I take zanaflex for the spascity at bedtime. Sounds like your hubby spends his time off just like mine....picking up the slack and driving me to doctors appts. I really hate not being independent. I haven't been this bad before and some days it's really getting to me. My son is coming over this afternoon to help me make dinner. We got him to commit to two nights a week to come a fix a dinner for me and Dad. DH doesn't get home until 8 at night and he's been bringing carryout with him. Not only is it fattening it's expensive. So he's off two days and Nick comes two days so that only leaves 3 days. I'm going to try and get a one day commitment from two of my other friends and see what happens. One of Nick's friends used to clean for me and now she's in college right down the street. I think she might do a day. It took Nick a bit to assimilate what was going on with me but now I think he gets it. He fixed sloopy joes last night when he came to borrow the van to transport his band gear. Of course he ate half of it too! LOL But I don't mind that! Gives him a free meal and a little leftover $$$ for spring break! Hope you enjoy your trip! I can't imagine going anywhere yet. We have a wedding in PA in July I am hoping to make.......Cyberhugs...DianeW
Kelly - 10 Mar 2006 17:05 GMT My feet feel the same way - but if I wear warm socks the heat kills the rest of me and the spasms last forever. Heating bags are out. So I just elevate my feet and live with it. I agree Diane's early books are quite different - my sister likes them best. I like them equally. I read a lot lately mainly because I have to lie down so many times in a day. Often skim because the words dance on the page - will have lots of books to re read one day.
6 months would be nice. I am at 5 months right now. The lyrica is fairly new on the market and does take the edge off the pain for me. I am at the high end of the doseage. If I am even an hour late for the dose my pain level is a 10 1/2 out of 10 so that says something. If not it brings it down to a 8 or 9. Unfortunately demerol does not touch the neurological pain at all although it does help the RA pain when things get tough at night. We think the zanaflex was giving me epeleptic type spells - best we can describe. We were at the highest dose and again it really wasn't helping that much so it was dropped. Because the spasticity in my foot is so bad it is throwing off my balance and my hip is suffering badly (as well as knees and ankles but I don't care about those right now). Because I can't wear shoes also my plantar fasciatis is screaming on my good foot. No answers by anyone until I can tolerate something permanent on the left foot and the spasticity calms down even a bit.
The valium is helping and is not making me drowsy one bit. Of course the doctor who replaced my doctor on holidays yesterday was not going to renew it because it is so addictive - I think he was afraid of what was going to happen to his organs if he didn't so he wrote me a 8 day prescription to get me through to Seattle.
Our family situation is similiar. I occasionally make dinner but nothing comes out at the right time and it is quite often burnt or I have added something I shouldn't. Consequently Pat and my son are getting good at sneaking in before I do.
The trip is necessary. I would have to sleep upstairs during the reno (can't do that) and Ken is going to drive and I have the backseat. Can cope at my brothers the same as here but better - I will have Kyle. To quote Kyle - I love you Auntie Kelly and miss you. Since your leg is still owie we can read and sing and cuddle. When I get up from the couch he hands me my cane or runs to get my walker. Last time he put on my shoes so I didn't have to bend over and could make it to see his preschool. I think I am show and tell this time. We do a little shopping (mainly a lot of stopping to drink a coffee or eat so I don't overdo it.) All this with a 3 1/2 year old. Better than meds and if it hurts getting there - well it does my spirit good and right now that is worth everything.
Despite everything I am not depressed - only in unbearable pain. Would take antidepressants but they really don't agree with me and the valium does help the spasms as well as the depression. I hate being out of control as you can imagine. this is a mind control as well as a body control. Quite different than my ra. I have had one autoimmune disease for 18 years (interstititial cystitis) and RA for 11 glorious years now and have immense coping devices and pain control. Nothing works on this.
Hope this ends soons for you Diane. I have an eeg supposedly scheduled in the next month and a repeat appointment with the neurologist on April 18th. Hope for some more answers but suspect they won't be there. i just want this over sometimes in the next year - even a little break would be nice. Luckily my kids have borrowed my car - there have been times I have been tempted to see if I could just drive again just to know I could - what a disaster that would be.
Hang in there and I will too. This too has to end eventually - right??
Kelly
> Kelly - The nurse practioner at my neuro's office said I should be > better at about the 3 month point but my first attack was more like 6 [quoted text clipped - 37 lines] > yet. We have a wedding in PA in July I am hoping to > make.......Cyberhugs...DianeW DianeW - 10 Mar 2006 23:03 GMT Enjoy the trip. I know I enjoyed the little ones that were here for Mom's funeral. We have to have the bathrooms and kitchen redone this year if I'm to ever us them in a meaningful way. That's going to be a big trouble I'm sure. One at a time, not all at once. Nick and I made lasange today. That was fun but exhausting. It was good to see him of course and I think he's going to come back and eat with DH and me. He's a messy cook! But at least he doesn't drop things. I had him put it in the oven before he left so I hope that doesn't mess things up when I preheat the oven with it in there. Too heavy for me to put it in there. Now I just have to remember to cook it! LOL
My neuro's office called and told me that they feel that this is a structural problem and I should go see an ortho. I do have a few bad vert so I called and made an appt with a neuro-surgeon for March 28th. I'm going to try and get an appt for a new MRI of the spine before then so he has an up to date one. Of course if I hadn't called and bitched about why they hadn't called me with my results I wouldn't have known what they thought. I was so mad. So the brain MRI didn't show anything new......what were they thinking in not calling me??? I've been doing some major bitching today. Apparently they don't call you if the test shows nothing.....uuuhhhh....then why can't I walk and what am I supposed to do about it? A little guidence here was in order I thought. I spoke with the office manage three time to get my answers but I'm not so sure I like the way they are running things these days.
TTFN - Cyberhugs. DianeW
Kelly - 11 Mar 2006 01:25 GMT i agree Diane - seems to me they need to do some more testing. Did an interesting tests with my husband yesterday that apparently they test for in MS. Stand in bare feet or stocking feet together with your arms in front of you. You should be steady (both of us were) with your eyes open. Close your eyes - Pat stood perfectly still and had no problem. I fell down. Oops! Failed that one. The next test they are giving me is an eeg sometime in the next 2 weeks.
What do they find with a lumber puncture with you? Did they do contrast and non MRI and MRI in brain stem, thoracic and lumbar spine?
Darn - didn't know any of this before. Also need to ask about an eyesight test they didn't do which would explain the eye problems. The one they did was a field vision test which duh I could have told him I would pass. That involves concentrating on one dot. I have trouble with movement from one thing to another or where the words move - like on a computer.
Major Bitching is deserved!!!!!!
kelly
> Enjoy the trip. I know I enjoyed the little ones that were here for > Mom's funeral. We have to have the bathrooms and kitchen redone this [quoted text clipped - 22 lines] > > TTFN - Cyberhugs. DianeW Diane - 11 Mar 2006 03:18 GMT okay, so i want to know how many of us did this "standing barefoot and closing our eyes test" right after we read kelly's post? lol. i passed. sorry you didn't, kelly.
diane c
Gwen Love - 11 Mar 2006 23:09 GMT I didn't fall but I sure was wobbling! Gwen
> okay, so i want to know how many of us did this "standing barefoot and > closing our eyes test" right after we read kelly's post? lol. i passed. > sorry you didn't, kelly. > > diane c Nann Bell - 12 Mar 2006 00:34 GMT > I didn't fall but I sure was wobbling! > Gwen [quoted text clipped - 4 lines] >> >> diane c heh, I didn't try it right away, but I sure thought through it and decided I COULD do it! Then again, with my talent(?) for getting distracted and falling or walking into things, I make a point of doing balance exercises in with everything else. Hard to believe how well I can balance and even could dance at one point when you see how much of a klutz I can be when not paying attention! LOL
I've read that hypermobiles can have proprioceptive difficulties (walking into door frames, etc.) and I suspect that includes me - but the years of dancing lessons growing up and years of marching band trained a bit of it out of me.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Squirrely - 12 Mar 2006 01:07 GMT Hey Nann, that is great info about hypermobiles and the doorframes. I was wondering why I kept kissing the door frames around here and the entertainment center. My entertainment center sits right against the wall from the kitchen. You make a turn to go down hallway and there it is. I am always bouncing off of it.
They sure can't call me grace can they. :-)
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
> > heh, I didn't try it right away, but I sure thought through it and decided [quoted text clipped - 13 lines] > out > of me. d'huit - 12 Mar 2006 04:15 GMT LOL! i wobbled with my eyes opened or closed.LOL dang!
kate
I didn't fall but I sure was wobbling! Gwen
> okay, so i want to know how many of us did this "standing barefoot and > closing our eyes test" right after we read kelly's post? lol. i passed. > sorry you didn't, kelly. > > diane c Kelly - 12 Mar 2006 01:39 GMT Doesn't mean you have MS just one more test. Of course the feet have to be right together too - not apart.
Was tempted to try it again but don't dare without Pat right there. Was interesting.!
Hope you are doing okay Diane. Too many bad things happening in a short period of time. How is John doing? Did you convince him to try the remicade?
Kelly
> okay, so i want to know how many of us did this "standing barefoot and > closing our eyes test" right after we read kelly's post? lol. i passed. > sorry you didn't, kelly. > > diane c Alix M. Hall - 12 Mar 2006 02:39 GMT Okay--I admit--I tried it--I lean to the left and if I didn't open my eyes, I would have fallen to the left, I think.....wonder what THAT means!!
 Signature Love, Alix
Always remember, a cat looks down on man, a dog looks up to man, but a pig will look man right in the eye and see his equal". - Winston Churchill
Kelly - 12 Mar 2006 05:34 GMT probably absolutely nothing Alix. is interesting though that with my eyes open I have no problem.
Kelly
> Okay--I admit--I tried it--I lean to the left and if I didn't open my > eyes, I would have fallen to the left, I think.....wonder what THAT > means!! DianeW - 12 Mar 2006 04:52 GMT Gosh I missed this one! Haven't tried the standing barefoot thing but failed the finger to the nose with my eyes closed test in the doctors office and the toes position in space with my eyes closed. When they do a lp they look for something called oglioclonial bands. I didn't have them in mine but that's not always conclusive. you can still have MS if you don't have them and do have it if you do have them. Also look for the same kind of things they check your blood for with lupus. Looked for lyme titers in mine as well. Just make sure you drink a lot of caffine before and after the test -- the caffine helps you rebuld the lost fluid during the test and helps avoid the dreaded headache so many talk about with the test. And this is on advice of Mayo Clinic. Worked for me. My MRI of the brain was done with contrast and showed nothing new but didn't include the brain stem neck or spine. Hopeing to have them repeated this week with contrast as when they were done last I wasn't this bad. Have an appt with neuro-surgeon on the 28th and the scheduler recommended repeating the MRI's before then as the dr would just re-order them and it would be a longer delay. DianeW
Squirrely - 11 Mar 2006 21:26 GMT Kelly,
I hope you get some wonderful time with your family. I hope it does not wear you out or do you in.
I hope the renovation goes well for you also. I hope your house will sell soon also.
I feel for you with the medical bills and such. I am praying for something to work out for you in all of this.
I hope the eeg goes well and gives them the info they need to help you out.
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
>I wish I was - could use just a tiny bit of heat (it snowed here today and >trust me Victoria rarely snows.) no I am going to Seattle to spend some [quoted text clipped - 45 lines] > Take care, > Kelly Squirrely - 11 Mar 2006 21:28 GMT Diane,
I have you in my prayers and thoughts. I sure hope you start getting stronger soon. I can only imagine what you are going thru. I talk alot with Denise and she has MS and I see how hard it is for her.
I can understand you growing impatient. You have had so much to deal with the last few years and it always seems to be one thing after another. It would be nice if you could have a rest from it for awhile.
I am hoping for a speedy recovery from the MS flare for you.
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
> Diane - I'm not getting stronger and I'm growing impatient. Did get my > MRI results yesterday and it confirmed new MS activity. I'm not liking [quoted text clipped - 9 lines] > used -- sorry ! One of them had your autograph in them! LOL > Cyberhugs, DianeW Squirrely - 07 Mar 2006 22:17 GMT Diane never hesitate to ask for prayers even if it is an on going battle. I know I pray for people all the time that have issues that are not being quickly solved.
So I will be more than glad to keep your sister and brother in law in my prayers. I know it is going to be touch and go for a long time. So will put them on my prayer list to remember to be praying alot for them.
Also have you and John oon there too. It is stressful for the rest of the family and those involved in situations like this.
You take care and remember never hesitate to ask for prayer. Otherwise we would not know to do so. ;-)
 Signature Hugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo
> i've hesitated to ask for prayers on this because it's going to be a > long, on-going battle rather than a one time thing, but my sister and [quoted text clipped - 25 lines] > > diane Cindy - 08 Mar 2006 15:41 GMT My thoughts and prayers are with you Diane. I know you are not going to be able to rest at all knowing that your sister and her husband are alone...I wish I had some better words or advice... Hugs Cindy
> i've hesitated to ask for prayers on this because it's going to be a > long, on-going battle rather than a one time thing, but my sister and [quoted text clipped - 25 lines] > > diane
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