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Medical Forum / Diseases and Disorders / Arthritis / February 2006MTX...I need reminding
I was on MTX off and on and now I am back on. I took 3 pills last night and fell like crap today. It feels like I have to burp, mouth salivating, and a pressure under the bottom part of my sternum. Last week was my first time back with it in over 5 years and I did fine aside from a little groggy. What is going on now is what I remember and I cannot remember if this feeling goes away. From what I recall, it did not. I can't take much more of this! Shandi >I was on MTX off and on and now I am back on. I took 3 pills last night >and fell like crap today. It feels like I have to burp, mouth salivating, [quoted text clipped - 8 lines] > > Shandi Hi Shandi,,, Does your doctor know you feel this way? Harv Harv... I told him MTX has given me problems but at 3 pills it did not give me the bad ulcers I get at 4 or more. I also explained that in the past I get sick feeling for a day or so after. With that said, since I am unable to afford the copays at the moment (son was just diagnosed with Type 1 diabetes) the RD said I can no longer wait to be put on something other than pred and a NSAID. That diabetes stuff takes a large chunk of the non bill money. My knees are bone on bone (I need bilateral TKR soon), my hands are in need of surgery and my wrists are pretty much fused. In the past Kineret, Enbrel and Remicade have not worked. I am unable to get compassionate service for the Humira and waiting to hear from Orencia. Its not like I haven't tried. He doesn't know I am in a bad way today as he is out of town until Thursday. He does know I have had problems in the past but during those times I have been on other drugs that I have had to discontinue (Arava was a bad one) due to stomach issues. I broke out some mint herbal tea and it helped for about 10 minutes after I was done. Guess I better make a big pot of it. The ginger stuff didn't help! Shandi >>I was on MTX off and on and now I am back on. I took 3 pills last night >>and fell like crap today. It feels like I have to burp, mouth salivating, [quoted text clipped - 12 lines] > > Harv Hi Shandi Are you speaking of the pharmaceutical company's patient assistance program when you say "compassionate service"? Try this link, you may be able to get some help there, with your meds and/or your son's. https://www.pparx.org/Intro.php The Partnership for Prescription Assistance brings together Americas pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program thats right for them. Many will get them free or nearly free. Its mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. Through this site, the Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. To access the Partnership for Prescription Assistance by phone, you can call toll-free, 1-888-4PPA-NOW (1-888-477-2669). Hi Shandi Are you speaking of the pharmaceutical company's patient assistance program when you say "compassionate service"? Try this link, you may be able to get some help there, with your meds and/or your son's. https://www.pparx.org/Intro.php The Partnership for Prescription Assistance brings together Americas pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program thats right for them. Many will get them free or nearly free. Its mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. Through this site, the Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. To access the Partnership for Prescription Assistance by phone, you can call toll-free, 1-888-4PPA-NOW (1-888-477-2669). I hope you can get some help and relief soon. Angela > Harv... > [quoted text clipped - 22 lines] > > Shandi Hi Shandi,,,, No medicine will help bone on bone and you know that. Every now and then someone will post where nothing has helped them to deal with inflam.arth. From what you say, you and your doctor have really tried to deal with it. I have type 2 diabetes and when I have to take a little prednisone, it is much harder to control. Thank you for sharing your story and may God bless you with less pain. Harv >I told him MTX has given me problems but at 3 pills it did not give me the >bad ulcers I get at 4 or more. I also explained that in the past I get sick >feeling for a day or so after. Have you tried the injectable form? It is easier on the tummy and fairly inexpensive. Many folks find it has fewer side effects. -- MZ Hi MNP, I found this site at rheumatology.org. It gives the names of a bunch of arthritis med manufacturers and the phone numbers for their patient assistance programs. Even Tylenol is on there. I hope this helps: http://www.rheumatology.org/public/acrast.asp?aud=pat Char Hi Shandi, Until you get to see your doctor try taking Folate. It is very cheap to buy.At least it is here in Australia at about $5 for a months supply. I was given it to settle the stomach and it has worked. We all know how you are feeling, and wish we could help more. Gail |
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