Well - sort of. Today I feel well enough to do some computer work and
wanted to get back to ASA.
First, let me thank all of you who took the time to look up my address
on the ASA Christmas list and sent me a sympathy card/note for the
death of my mother. I'm just now getting around to opening all the mail
I had received from both ASA and Mom's friends. It was truly
appreciated.
Second, I've been having a major MS attack - (Don't say it Harv - I
tried to follow your advice!) The day of the funeral which was a week
ago Friday, I went into my bedroom to get dressed and my left side
stopped working. At first it was just a frustration in my hands but in
a few days, my ability to walk was effected as well as other left sided
symptoms like blurry vision, and lack of balance. I was surprised at
how fast it happened. I'm one of the lucky MSers who get pain with
their attacks so I've been sleeping thru most of that. I saw the neuro
who said that because I've never had much residual damage from previous
attacks I probably would recover from this attack as well but it might
take up to 3 months. But I'm unable to walk without a walker anymore.
And standing is very unsteady. I can type today albiet a bit slower
than usual. But I couldn't a few days ago. My left toes are curling
under. Going to have to call dr and find out what to do about that.
That can't be good. My vision is blurry in one eye as well. It's
almost stroke like but the dr didn't mention anythng about that when I
was there. I'm getting a brain MRI this week. I reallly hope the
walking comes back and the pain goes away ... not liking this at all.
Can't use IV Solumedrol because of the leg wounds not being healed yet.
Close but not yet.
Dr feels that it's from all the stress I've been under from the leg
wounds, cellulitis and then the death of my mother -- it was just what
my body needed to let MS have a go at me. As if that doesn't cause
more stress!
Mom's funeral went very well. I had 12 family members staying with me
for 4 days turned into 6 because of the blizzard that hit the NE. They
were very understanding as I slept most of the time they were here.
They came in on Thursday nite and the funeral was on Friday Morn. I had
done everything except glue down the pictures on the memory board. We
stayed up most of the night doing that. At the funeral Mass there were
two priests. One, our normal parish priest and the second was the
priest who saw my Mom in the hospital. He knew her best as he had seen
her in the hospital everytime she was there and that was a lot. I had
asked him if he would deliver her eulogy as the Church here will only
allow a preist to do so anymore during the mass. We were all so
pleasently surprised at how really well he did know Mom. It was very
touching. I wrote a written eluogy and printed in the church brochure.
Everyone came back to the house afterward and it was nice to have to
whole family together again. It's a shame we don't take the time to do
that more often. Even my brother was over his hissy fit.I know it's
just his way of dealing with hard things but by the time you are 60
wouldn't you think you could get over that already? I had it catered
by a friend of my son's -- took a big risk there -- and it couldn't
have been more perfect. Not only was the food wonderful, but I guess
he's learned a thing or two in his 2 years in the business.
So my hands are aching and I'm going to go back to bed. Been up since 9
today which is a stretch. I'm scanning messeges and reading when I can.
Hugs to all.....DianeW
Joan Carter - 19 Feb 2006 21:16 GMT
>So my hands are aching and I'm going to go back to bed. Been up since 9
>today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW
Diane, what a terrible time you have had. The triple whammy of your leg, your
mum's death and now an MS exacerbation is not needed. Healing thoughts coming
your way from Canada.
---
Joan
Navy1 - 19 Feb 2006 21:29 GMT
((((((((((((((((((((DianeW)))))))))))))))))))))))))))
and prayers
Loujean
>Well - sort of. Today I feel well enough to do some computer work and
>wanted to get back to ASA.
[quoted text clipped - 56 lines]
>today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW
Kelly - 20 Feb 2006 00:25 GMT
Damn Diane! Figured you would be tired but didn't even dream of a major
attack! Those are all typical (is there such a thing) symptoms too. Too
bad they can't do the solumedrol drip. Maybe though they would increase or
give you some prednisone?? The curling toes I can relate to - it is that
spasticity that is stopping my walking from being graceful. My physio is
telling me to concentrate on tapping my toes of my bad leg to disrupt the
signal from the brain to the toe. Don't know if it helps speed things up
but am trying.
Glad the funeral went okay - have been thinking about you and your brother.
Yes you would think 60 would be grownup and acting grownup but..... We all
know that doesn't always happen. Glad he smartened up and didn't leave a
totally sour taste at the service.
Now is time for you Diane - rest, rest, and rest. Will be thinking about
you and waiting to hear what the MRI says. Maybe you will get lucky and the
rest will help. We'll get the ASA prayers going.
Kelly
DianeW - 20 Feb 2006 05:14 GMT
Kelly - I did increase the oral steroids. Not as high as I might have
but I doubled my normal dose for a few days and then started to taper.
Yesterday I was mush again so I went back to the previous level and
felt better today. I'm going to stay here for a few more days before I
try to taper again. With my brittle bones I hate to, but then with my
balance so bad I can't risk any more falls either. I had a bad one a
few weeks ago. Should have taken a hint! But today I felt better. I can
wiggle my toes and bend my ankle which I couldn't do last week. I think
I have more feeling in the foot as well. Bladder control is better too.
But my vision is very blurry today. That could be Blood sugar too I
guess. Didn't check it today and with the extra steroids is probably
high.
As far as my brother goes, he grabbed me in a huge hug and started
sobbing when he saw me at the church. He's done this before. If he
hadn't been so intense this time, I could almost have predicted his
behavior. I worried about it for 2 weeks leading up to the service. If
he only knew that his apology and words of graditude cannot undo the
stress they caused me for two weeks.
I'm getting lots of rest - not even getting out of my pj's. And
planning on doing so.
By the way -- does anyone know how to fix the hand brakes on a walker?
Mine have broken and a quick google didn't show any how to sites.
Cyberhugs ,,, DianeW
Harvey R. Stone - 20 Feb 2006 02:26 GMT
> Well - sort of. Today I feel well enough to do some computer work and
> wanted to get back to ASA.
[quoted text clipped - 24 lines]
> walking comes back and the pain goes away ... not liking this at all.
> Can't use IV Solumedrol because of the leg wounds not being healed yet.
Man oh man,,,, this is so scary. If any of the above came into my life,,,,
I do not know what I would do.
> Close but not yet.
>
[quoted text clipped - 28 lines]
> today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW
You have done all this so well. It is a real shame that we can not tell
our body that things must be done and that it should not punish ourselves
for doing it. I have just said a prayer that your sleep is deep and
refreshing. Please, please give into what is taking place and just rest.
That MS is so scary. If it is Gods will,,,, may everything come back as it
was.
good night
Harv
Angela - 21 Feb 2006 03:56 GMT
Amen to what Harv said
Angela
Cindy - 20 Feb 2006 03:51 GMT
Diane, I have spent a time away from the newsgroup and have to say that I
missed your mothers passing.
I am so sorry for your loss.
I know there are no words of comfort now but prayers do help. Know that I am
thinking of you and your family.
Also I am sending prayers for you. Hope you get your ability to walk with
out the walker back and the pain is lessened.
Sending you a pair of Angel Wings to Help lift you through this difficult
time...
Hugs Cindy
> Well - sort of. Today I feel well enough to do some computer work and
> wanted to get back to ASA.
[quoted text clipped - 56 lines]
> today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW
DeeTee and Bob Taggart - 20 Feb 2006 16:13 GMT
{{{{{{{DianeW}}}}}}}
No answers but I'll hold your hand.
DeeTee
> Well - sort of. Today I feel well enough to do some computer work and
> wanted to get back to ASA.
[quoted text clipped - 56 lines]
> today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW
Diane - 20 Feb 2006 17:33 GMT
(((((((((((((((((diane w)))))))))))))))))))))))))
just want to let you know i'm thinking of you.
diane c.
Alix M. Hall - 26 Feb 2006 14:06 GMT
{{{{{{{Diane}}}}}}
Holding you in my heart and in my prayers.....

Signature
Love,
Alix
Always remember, a cat looks down on man, a dog looks up to man,
but a pig will look man right in the eye and see his equal".
- Winston Churchill
> (((((((((((((((((diane w)))))))))))))))))))))))))
>
> just want to let you know i'm thinking of you.
>
> diane c.
Squirrely - 22 Feb 2006 14:27 GMT
Diane W,
my prayers and thoughts are with you as always. I sure hope things get
better for you soon and that all heals well. You take care and know I am
thinking of you.

Signature
Hugs, prayers, good thoughts,
Warm fuzzies, TLC, and Love
Squirrely Jo
> Well - sort of. Today I feel well enough to do some computer work and
> wanted to get back to ASA.
[quoted text clipped - 56 lines]
> today which is a stretch. I'm scanning messeges and reading when I can.
> Hugs to all.....DianeW