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Medical Forum / Diseases and Disorders / Arthritis / April 2006disapointed
went to see a rheuatolosgist today. he wasn't much help. he felt the my oa was moderate and suggested tylenol!. the only person (professional) that understands the how disabling the pain of generilized oa can be, is my chiropractor. i don't just have it in a joint here and there, i hurt every where. and my once very active lifestyle is no longer. we are supposed to travel to italy this april and i just don't know how i'm going to get around ad many tours are strickly walking with long lines. sleep is a very big problem. the pain wakes me up at night and the fatuige from not sleeping makes me hurt more. errrrrrrrrrr. i'm so dam frustrated and angery at the medical community, and i'm a nurse! who else out there has had a simulat experienc/problem? what did you do about it? fit to be tied. Dear Sheila, I ran into this attitude recently with my rheumy of many years. It's not that he doesn't understand the pian, it's that the medicines available have changed. I don't have the good solid control that I had previously either. Try another rheumy! Good luck! Vickie B. If you are not getting satisfaction with conventional medicine, look into alternative medicine. You can find an alternative doctor at www.acam.org. You can find a naturopathic doctor at www.naturopathic.org. These people are licensed, and get excellent training. I had several health problems that they treated, by finding my Hidden Food Sensitivities. Talk to them on the phone for at least 5 minutes. Brad_Chad I am always sceptical about the non scientific approach to medical matters. It isn't so much that these practices are certain not to work, as that they seem to entirely lack rigorous trials on large numbers of patients, so we never really know whether or not they work on most people. My RA gives me a lot of generalised pain even tho it is supposed to be well controlled by enbrel. When I ask about it, the rheumatologist will generall say that the pain is due to OA which has developed as a result of the RA. I find myself getting more and more disabled and with very limited walking ability. I see on the not very distant horizon a wheelchairm or scooter looming, tho I dread the thought oh having to use one. I am loath to give up travel, but there are very obvious difficulties. I think taking on anything which involves a lot of walking would not be advisable and one simply has to taylor holidays and travel to ones known mobility/immobility. Peter > I am always sceptical about the non scientific approach to medical > matters. It isn't so much that these practices are certain not to work, > as that they seem to entirely lack rigorous trials on large numbers of > patients, so we never really know whether or not they work on most > people. My alternative doctor is a licensed MD. He graduated from a state medical school, just like most doctors. I checked with the state medical board. There are 4 major naturopathic universities in the United States. Their curriculum is very similar to conventional medical schools, with a few differences. When I told my alternative doctor, what my naturopathic doctor had done for me, he agreed with it. Naturopathic medicine is not voodoo. Don't be brainwashed into thinking that it is. Brad_Chad > My RA gives me a lot of generalised pain even tho it is supposed to be > well controlled by enbrel. When I ask about it, the rheumatologist will [quoted text clipped - 10 lines] > > Peter >If you are not getting satisfaction with conventional medicine, look >into alternative medicine. You can find an alternative doctor at [quoted text clipped - 5 lines] > > Brad_Chad Watch out for the quacks. Thumper >>If you are not getting satisfaction with conventional medicine, look >>into alternative medicine. You can find an alternative doctor at [quoted text clipped - 8 lines] > Watch out for the quacks. > Thumper Well said. Harv > >If you are not getting satisfaction with conventional medicine, look > >into alternative medicine. You can find an alternative doctor at [quoted text clipped - 8 lines] > Watch out for the quacks. > Thumper Since my alternative doctor graduated from a state medical school, and is registered with the state medical board, how is he a quack? Brad_Chad >> >If you are not getting satisfaction with conventional medicine, look >> >into alternative medicine. You can find an alternative doctor at [quoted text clipped - 11 lines] > Since my alternative doctor graduated from a state medical school, >and is registered with the state medical board, how is he a quack? I didn't say he was. I said to watch out for them. The FACT is that no medical studies have found connections with RA and food. Are you saying a licensed doctor couldn't be a quack? Thumper > Brad_Chad > Since my alternative doctor graduated from a state medical school, >and is registered with the state medical board, how is he a quack? How many states actually license NDs? According to your sources only 14. How many NDs get their degrees from correspondence schools? Which state medical schools are you talking about. -- MZ >went to see a rheuatolosgist today. he wasn't much help. he felt the >my oa was moderate and suggested tylenol!. the only person [quoted text clipped - 15 lines] > >fit to be tied. Go to another Rheumatologist and another and another until you get one that takes you seriously. Thumper Hi Sheila,,,, I went to see a Rheumatologist and on the first visit knew what my problem was. Please find out what is causing your problem before you go. Not much help for strangers in a strange land. Harv > went to see a rheuatolosgist today. he wasn't much help. he felt the > my oa was moderate and suggested tylenol!. the only person [quoted text clipped - 15 lines] > > fit to be tied. >sleep is a very big problem. the pain wakes me up at night and the >fatuige from not sleeping makes me hurt more. errrrrrrrrrr. i'm so >dam frustrated and angery at the medical community, and i'm a nurse! Not prescribing here, but are you taking Glucosamine? It's an OTC med, at least in Canada, and my rheumatologist suggested it, 1,500 mg. a day. I'm a retired nurse, isn't it great getting all these diseases? Not! I have RA but with a little OA thrown in just for fun, so besides the RA meds I take Glucosamine. This stuff is no fun, take care of yourself. I know about the sleep stuff. --- Joan It took going to Mayo Clinic b4 my fibromyalgia was diagnosed. Widespread muscle pain and sleep disorder are characteristic of FM All FM'ers have these two symptoms as part of our danged syndrome..Although Fibro is a recognized arthritic disorder by the American Academy of Rheumatologists few treat it and few believe in it. My RD believes it exists but doesn't treat it...so I lucked out in finding a pain management specialist who does treat it. Here's the main source us FM'ers rely on. If this sounds like you come on over to alt.med.fibromyalgia. http://www.sover.net/~devstar/ HTH! Hugs from Rosie  Signature"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > went to see a rheuatolosgist today. he wasn't much help. he felt the > my oa was moderate and suggested tylenol!. the only person [quoted text clipped - 15 lines] > > fit to be tied. Pretty much the same thing happened to me. i was aching and aching and he recommended Tylenol. I was so way beyond that with pain. I got another rheuamy (sp?). anyway, I took and still do Darvocet. I don't know how I could have lived without it. Glucosamine helped for a while but then not so much. Sheila, I was one of the lucky ones who had an RD who acknowledged Fibromyalgia and also did what he could to help me control it. Both of my daughters also suffer the same fate. Rosie and others are right many RD's don't treat or recognize that it exists. The Fibro. group is great help for you to join immediately. I would look for another Rd. I discovered that in my case a great Internist found just the right RD for me and he is super great. Long ago my RD stressed the importance of having a good Internist on board to monitor your overall health. It sure has paid off for me. An internist discovered my lymphoma in time to have it treated before it was too late to make a difference. Don't give up on RD's, it just make take a while to find the right one. Don Whitely > went to see a rheuatolosgist today. he wasn't much help. he felt the > my oa was moderate and suggested tylenol!. the only person > (professional) that understands the how disabling the pain of > generilized oa can be, is my chiropractor. i don't just have it in a > joint here and there, i hurt every where. and my once very active > lifestyle is no longer. > went to see a rheuatolosgist today. he wasn't much help. he felt the > my oa was moderate and suggested tylenol!. the only person [quoted text clipped - 15 lines] > > fit to be tied .thanks to all of you for the support and understanding. i take about 1500mg of glucosamine, along with chondroitine and MSN. i also take fish oils. and right now about 800mg of motrin three to four times a day. i see my chropractor abut every three weeks. i was doing massage too but don't have the financeses right now. try to walk a bit in the mornings before work and that just abut kills me. but i don't have much else i can do. i'm trying to avoid the scooter thing but afraind i might need one for trips soon. thanks again I agree with those who say try another RD, unless this one ordered a slew of tests and is having you return in a month or less. I have known some RDs who downplay things on the first visit until testing reveals more to them about what is going on. But the fact that he is leaving you with only tylenol, when there are other options even for OA, makes me think he's just not tuned in. ask around as much as you can,maybe someone can recommend a good RD. If at all possible, see if you can get an initial appointment with someone else before your trip. We went to Italy in '97. It was wonderful, but you just DO need to walk to see much of it. Handicapped access is not a reality there. You might also try OTC ibuprofen or naproxen (Aleve) until you get in to see a different RD. Some folks find those work better for them than tylenol. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > went to see a rheuatolosgist today. he wasn't much help. he felt the > my oa was moderate and suggested tylenol!. I wound up going to a pain clinic, to an anesthesiologist, to finally get enough pain relief. No other docs, especially out here, (as I've just moved back to Kansas 2 yrs ago, and why I just started postin again in Jan. ...no puter), were willing to give me what I needed. You can e-mail me if you'd like to find out more. :) I hope your trip to Italy works out.... I've been wanting to go there forever! If you get enough relief, you shouldn't have the problems, AS bad. I know what you're going thru and wouldn't wish it on my enemies. :( I hope you find peace, soon. MaryBeth Just a word on Italy. As I remember, it's great, nowhere like it, but crowded on the roads and in Rome Peter Hi Peter. Is this the same Peter of bygone days? ;-) Nanny > Just a word on Italy. > > As I remember, it's great, nowhere like it, but crowded on the roads > and in Rome > > Peter Yes Nanny. It used to be PeterB but I decided that Peter would do. I have been around here for a few years at least. Peter Ah, my friend Peter. Welcome back! I've missed you. Nanny > Yes Nanny. It used to be PeterB but I decided that Peter would do. > I have been around here for a few years at least. > > Peter Hey Nanny. Thanks. It is nice to know you noticed my occasional scribblings. Best wishes Peter Hey, Peter, one more question to validate that you are the same Peter I'm referring to. Do you have the aunt who benefitted from taking cranberry supplements for UTI's? The advice I took and had success with? If not, then you're a new friend :-) Nanny > Hey Nanny. > [quoted text clipped - 3 lines] > > Peter Looks like a new friend Nanny, tho I must have been around this group for about 5 yrs or so. I drink the odd drop of cranberry juice, but don't remember any of my aunts doing it even tho some of them lived into their 90 s Best wishes Peter > Hey, Peter, one more question to validate that you are the same Peter I'm > referring to. Do you have the aunt who benefitted from taking cranberry [quoted text clipped - 7 lines] > > > > Peter Hi "new friend" Peter :-) I'm pretty late in finding this message, but will respond to it anyhow. The other Peter had an aunt living with him who got frequent bladder infections, but when she started taking Cranberry supplements, they ceased. Like her, I can't stand to drink cranberry juice. Anyhow, that's what I was referring to. So.....glad to meet you! Nanny > Looks like a new friend Nanny, tho I must have been around this group > for about 5 yrs or so. I drink the odd drop of cranberry juice, but [quoted text clipped - 16 lines] >> > >> > Peter new klinker in the mix. i just recently hooked up witha new primary MD. the rhematologist sent him his recomendations and findings. he did suggetst that a small amount of vicoden might help with sleep. got a call from the new primary doc's office and was told that he dosn't prescribe narcotics for long term use ! i kinda of got the feeling that he ( or his office ) is giving me the cold shoulder because i take an extremly small dose of a barbituate based medication to control hand tremors. this doc did informe me that he dosen't prescribe barbituates when i made the first appointment. luckly i have a neurologist for that problem. i was a little put out by the attitude of the offce. the only other medication i'm taking is motrin. I'd look for another doctor. Consider what would happen if you ended up in the hospital. What then? I was in the hospital once when I had a gp who used a hospitalist. The pg didn't prescribe my pain meds and so the hospitalist wouldn't either. He didn't believe I was in as much pain as I said I was in and wanted me to go thru a pain control place when I got out of the hospital. Nevermind that my rheumy had me on a pain program for the past several years but she didn't treat me in the hospital because I was there for something else. What a nightmare it was in! I had to sneak my home meds to be comfortable. It's better to have all your doctors on the same page. My new doc is just wonderful when I'm in the hospital. He tells the nurses to let me continue all my same meds as at home regardless of who prescribes them Unfortuanately, I still have to use some of my own pain meds because they are not on the hospital "formulary" and they don't stock them DianeW > new klinker in the mix. > [quoted text clipped - 12 lines] > by the attitude of the offce. the only other medication i'm taking is > motrin. sounds to me like you need yet another new primary MD, especially if he won't even try your RD's rec. AND didn't come up with a reasonable alternative to try. Will your insurance let you go to someone else? Ask around for someone good and understanding, esp. ask anyone you know with chronic health issues of their own. (I found one PCP that way - a friend had just been admitted to the hospital when this PCP was on call for the practice. My friend was so impressed with her she finagled a switch even though she'd been seeing another PCP in the same practice. I loved that doc, it was sad to move away from her, though we found another good one up here.) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I cahnged my cardiologist to another in the same group. They don't have their offices in the same place, but still the same group. I like the one I have now so much better. He's the one who discovered my lung problem and sent me to the specialist, and the first cardiologist told me to come back in a year when my bp was going so high. I didn't like that! Gwen >> new klinker in the mix. >> [quoted text clipped - 28 lines] > away > from her, though we found another good one up here.) |
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