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Medical Forum / Diseases and Disorders / Arthritis / February 2006

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MIA?

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Newsgroup Spambuster - 09 Feb 2006 23:26 GMT
Anyone ever hear from some of our regular MIA people?

I haven't seen Anne post in a very long time and think of her often.
Also wonder if anyone ever hears from Dan anymore or Rev. Sue or Melinda
or Kendall or Ashley or KJ or Sarah L or even Duckie!   What ever
happened to the fella that used to post that had had recent gastric
bypass? I'm sure there are others that are missing that I can't think of
right now and you can add their names to the list, but I do still think
of them and wonder what is going on with them and how they are doing.
So, if any of you have any regular contact with any of them, perhaps you
could update us a bit or even better, perhaps you could prompt them to
post an update themselves!

Donna G
Ashley - 10 Feb 2006 04:11 GMT
I'm here.... checking in every few days and just lurking. Busy with
work (teaching preschool), classes at the university, and planning my
wedding. Luckily it's been a fair winter in Indiana and hasn't been
making me flare.

Hugs for everyone,
Ashley
maybulltwo@aol.com - 12 Feb 2006 09:20 GMT
> Anyone ever hear from some of our regular MIA people?
>
[quoted text clipped - 10 lines]
>
> Donna G
Di - 12 Feb 2006 16:47 GMT
> .....................
> > So, if any of you have any regular contact with any of them, perhaps you
> > could update us a bit or even better, perhaps you could prompt them to
> > post an update themselves!
> >
> > Donna G

Mama Char, that be you?

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Di
zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com (WARNING: Very Political)

maybulltwo@aol.com - 13 Feb 2006 02:36 GMT
Yep. It be me.  Typed a pretty long note and google ate it.  Cant type
it again.
Di - 13 Feb 2006 03:59 GMT
> Yep. It be me.  Typed a pretty long note and google ate it.  Cant type
> it again.

Well, it's GREAT to see you on the board.  It's been a long time.  You
doin' OK?  I've missed you.

Signature

Di
zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com (WARNING: Very Political)

Kelly - 13 Feb 2006 04:13 GMT
Missed you Char. Wish things were going better for you but want you to know
I think about you regularly.  Will keep hoping for the miracle that works.
Personally myself I figure that a lightening strike is going to come down
and get me and make me better all of a sudden.  that is my only hope now!
You take care of yourself - thanks for letting us know you are still
occasionally reading.

Kelly in Victoria, B.C., Canada
Newsgroup Spambuster - 14 Feb 2006 00:57 GMT
Char and Kelly,

Might the new med orencia be of some help to the both of you?   Sure
hope so!

Kelly, I haven't been around much to know what your situation is, but
I'm guessing from your post that enbrel hasn't been all that successful
for you?   I think that is what you are on right?

Really praying that orencia will be the magic bullet that both you and
Char need to get you back to doing well and rejoining us here in ASA!!!

Hugs!

Donna G
Kelly - 14 Feb 2006 05:48 GMT
The enbrel was great for 3 years (or as great as it gets for me) but in
October I suddenly had a neurological reaction to the enbrel.  Basically it
has left me with ms like symptoms.  Off all ra meds but the prednisone and
on all sorts of wonderful drugs for spasticity and nerve pain.  None of them
really do the trick so my pain level is really high all the time. Demerol
does not seem to touch the nerve pain either.  I feel stoned most of the
time.  Apparently it will eventually go away.  Hope so.  I am using a walker
now and part of the time a cane.  The urological problems and bowel problems
are still there as well.  The worst is not being able to drive - we live in
the country.  Anyhow enough whining.  It will go away eventually.  And in
another year when it goes away and I can go back on a ra drug there will be
a trial waiting for me (I can't go back on any of the meds approved in
Canada so need to find another drug trial.  Luckily my RD is involved in
many drug trials so he can offer his patients some choices when they get to
my stage.  Thanks goodness.  )

Anyhow off to bed.  Thanks Donna - it will get better.  My prayers right now
are on their way to Char. Been too long for her.

kelly

> Char and Kelly,
>
[quoted text clipped - 11 lines]
>
> Donna G
Squirrely - 17 Feb 2006 20:32 GMT
Kelly,

How is it going these days for you?

If anyone has a post from Mama Char, could you email it to me because I
missed that one. I want to know how she is doing.

Signature

Hugs, prayers, good thoughts,
Warm fuzzies, TLC, and Love
Squirrely Jo

> The enbrel was great for 3 years (or as great as it gets for me) but in
> October I suddenly had a neurological reaction to the enbrel.  Basically
[quoted text clipped - 16 lines]
>
> kelly
Diane - 17 Feb 2006 21:40 GMT
kelly, i'm sorry to hear that things are still so crummy for you. i can
tell you're resigned and doing your best.

hugs to both you and char,

diane
Kelly - 19 Feb 2006 01:07 GMT
I'll answer both of you.  I am walking much better but the pain is still
incredible and I get tired quite quickly which of course affects the
walking.  The zanaflex has been causing major problems - at least we think
that is what is causing them.  Of course the major problems could be the ms
like symptoms too.  I get these "spells" where my speach slurs, my walking
skills disappear for lack of better words, I can't swallow, I turn white as
a ghost and almost pass out - not dizzy but fading out.  they last anywhere
up to 3/4 hour to an hour and then I sleep for about 3 hours straight after.
So we are putting my zanaflex down to next to nothing, trying "brownies" so
to speak at night.  We will see if that ends the spells.  If so we know it
is the med not the symptoms. In the meantime still no driving so after 4 1/2
months I am slowly going crazy.  The good news is the house should be
finished the renos by the second week of April and we will put it on the
market and buy a house closer to bus service or close to town.  That should
help.  In the meantime we wait and hope this just goes away.  I desperately
need RA meds and anti spasm meds but have used all the spasm meds we think.
I just can't get high enough in dose to make a difference.

But my spirits are okay - it is the olympics right?  And I am walking better
and most of the time until i get tired just with the cane.  Any distances or
long periods of time (1/2 hour for example) of being out involves the
walker.  that is okay.

thanks for the concern - we are going to focus on Char now though - she need
all our thoughts now.  And Squirelly - your husband is going to get the
perfect job.  It has to come to that!

Kelly
> kelly, i'm sorry to hear that things are still so crummy for you. i can
> tell you're resigned and doing your best.
>
> hugs to both you and char,
>
> diane
Squirrely - 22 Feb 2006 14:28 GMT
Kelly,

I am still sending healing thoughts, prayers and thoughts your way. I hope
you continue to heal and do so quickly. I know that is what you hope too. I
feel for you sweetie and wanted you to know I am still thinking of you.

Signature

Hugs, prayers, good thoughts,
Warm fuzzies, TLC, and Love
Squirrely Jo

> I'll answer both of you.  I am walking much better but the pain is still
> incredible and I get tired quite quickly which of course affects the
[quoted text clipped - 25 lines]
>
> Kelly
Kelly - 22 Feb 2006 20:27 GMT
Thanks Jo,
I had such a bad day yesterday - the whole tear garbage etc.  Today I have
the hangover stuff - you know puffy dry eyes, aching body.  I know better.
Tears and frustration get me nowhere fast. I did find the name of someone
else who has ms from the enbrel.  Have an email into her to see what
happened and if a history before hand.  Not pleased to know she has
permanent ms and isn't improving but determined that is not going to be me.

in the meantime I am going to Mousetrap with my friend tonight.  My husband
is going out for a beer and we are going to the play - makes sense to me.  I
even volunteered to spring for dinner before hand.  So something to look
forward to.

Anyhow going back to bed for an hour or so.  Makes sense to me.

Thanks Squirrely.

Kelly
> Kelly,
>
[quoted text clipped - 31 lines]
>>
>> Kelly
Squirrely - 26 Feb 2006 04:07 GMT
Kelly,

I wish you had better news and better days coming your way. You are always
in my thoughts and prayers. I am going to be sending your post onto Joe
(firechief) when I send his next package of posts and articles to him.

I feel for you. My heart goes out to you big time. I know it has not been
easy on you at all.

I also read your post to Denise and she sends her prayers and thoughts also.
She can get emails but not the ngs for some reason.

I sure hope things turn around for you big time and soon.

Signature

Hugs, prayers, good thoughts,
Warm fuzzies, TLC, and Love
Squirrely Jo

> Thanks Jo,
> I had such a bad day yesterday - the whole tear garbage etc.  Today I have
[quoted text clipped - 15 lines]
>
> Kelly
Newsgroup Spambuster - 14 Feb 2006 00:58 GMT
Hi Mama Char,

Sorry you are still having such a rough time of it.  

I didn't include your name in the MIA's, because we know what is going
on with you and you do pop in from time to time to update us on
yourself.

Praying that both you and Myron get back to some semblance of normal
sometime soon!!!

Hugs,

Donna G
Walt Hanks - 12 Feb 2006 22:03 GMT
I received an email from Melinda when my niece died, so I know she's
lurking.

Walt

> Anyone ever hear from some of our regular MIA people?
>
[quoted text clipped - 10 lines]
>
> Donna G

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