Medical Forum / Diseases and Disorders / Arthritis / February 2006
Please help!
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Kiki McGaha - 08 Feb 2006 11:37 GMT Hello everyone,
I want to thank you for taking the time to answered my previous postings.
Since my last visit, I was put on two new meds, Ultracet, I stopped after 2 weeks, and yesterday Gabanpentin, or Neurotin, made for people with seizures, I have an appointment with a specialist next month, he can't see me before that. The pain is unbearable, going from my left hip, buttocks, down to below my knee, both hips need to be replaced, and the last X Rays showed also arthritis in my spine. I do not complain often to my Friends about the pain, my husband is currently in Iraq until next September, and I have no other Family here. All I want is some advice, about what could help with the pain, I have tried, and continue to take 800mgs of Motrin, three times a Day, Naproxen was killing my stomach, Celebrex didn't help, I would give anything to be free of pain for just one Day, I have suicidal thoughts, I know, I'm sure some of you are going through the same think and are stronger than I am.
Any response will be welcome.
Thank you so much.
Kiki.
Smokie Darling (Annie) - 08 Feb 2006 14:46 GMT > Hello everyone, > [quoted text clipped - 20 lines] > > Kiki. Hi Kiki,
Welcome. I wouldn't say we are "stronger" per se, just used to it. Believe it or not, you can get used to pain (and it sucks).
Is your specialist a rheumatologist? Do you know what type of arthritis you have (or is that why you are seeing the spec)? I have found (for myself) that heat helps the pain (I use a heating pad a LOT). I've got RA so the cold sets it off for me. Others alternate heat and ice.
Do you work? Is it possible to have an heating pad there? My old job allowed me to do that, but I understand that is a bit unusual.
As for ideation, we've been there. I think it may be safe to say that nearly everyone has thought about ending it when things get to a breaking point. It is such a permanent solution though (and I figure with my luck, I'd just end up with severe brain damage and enough left to remember how I used to be).
Hang in there. Once diagnosed and properly treated, you'll see that things aren't quite so bad (well, they'll still seem bad, but you get the idea).
Smokie Darling (Annie)
Kiki McGaha - 09 Feb 2006 13:23 GMT Annie,
I will see a specialist for the first time on March the 27th, I have osteoarthritis, hips, spine, and the only medication that provided me with relief was Vioxx, I know.
I used to work, I was a nurse's aide, visiting patients in their homes and help them with daily activities, I had to stop, because of the pain.
Thank you for your kind words.
Kiki.
Nicole H - 08 Feb 2006 16:54 GMT Kiki HUGS!!!!!!!!!!! Find a doctor who will manage your pain. This doctor does not have to treat your arthritic disease. I use 1 doctor for my lupus and another doctor for pain managment. Many people don't know that you can use different doctors. I also quit using a rheumatologist. All but the one that diagnosed me, was HORRIBLE! Now my family physician, prescribes my meds. There's a lot of autoimmune disease here and he knows his stuff. Deployments are hard. My hubby got out of the Army (13 yrs total) cuz of the hardship of me being sick and our 2 kids. It was easier when the kids were small cuz we could just stay home but once they got involved in sports, school... I couldn't always be there.
Have you checked to see if there's an arthritis program in your area? Maybe you could meet people there. Of course, you can always vent here. We understand! I hope you feel better soon and get proper treatment.... it's hard w/Tricare. Where are you stationed? Could your hubby come home due to family hardship? Stop loss and other things factor in but maybe..... HUGS again... if you ever want to chat online... I use yahoo and the name is crimsonshedemom (red hair and bitchy at times so my hubby says LOL) Nicole
> Hello everyone, > [quoted text clipped - 20 lines] > > Kiki. Kiki McGaha - 09 Feb 2006 14:14 GMT Nicole,
Thank you for the support, my husband is currently in Iraq working for the Military, he was in years ago. As for coming home, he's the type who keeps telling me that all doctors are quacks, so no support there.
I can't wait to see the rheumatologist next month, I hope I get some help. My depression was there a long time ago, but has become worst with the constant pain, and I think about it often.
thank you again.
Kiki
Smokie Darling (Annie) - 09 Feb 2006 14:27 GMT > Nicole, > > Thank you for the support, my husband is currently in Iraq working for the > Military, he was in years ago. > As for coming home, he's the type who keeps telling me that all doctors are > quacks, so no support there. As former military, and married to retired military, I can understand that thought (about quacks). It's the rare military doc that seems to know his/her stuff. I used to joke that there was a reason some people became doctors in the military (they couldn't cut it on the "outside").
I think this thinking is rather pervasive within military circles, and there isn't much to be done about it. The "free" care is nice monetarily (aren't we soooo lucky to have free health care? <being snarky and sarcastic>), but... well you get the idea.
> I can't wait to see the rheumatologist next month, I hope I get some help. > My depression was there a long time ago, but has become worst with the > constant pain, and I think about it often. Ahhhh, depression. You poor thing, been there. The pain is making it worse.
Hang in there little one, it's a tough road that you are on, but it's generally worth the 'travel' time. When you need to vent, feel free. If you want to vent in private, this email works and I can "forget" whatever needs forgotten.
SD (Annie)
> thank you again. > > Kiki Nicole H - 09 Feb 2006 20:47 GMT ROFL Don't you love how the podiatrist delivers your baby and the cardiologist checks your feet? LOL Nicole
>> Nicole, >> [quoted text clipped - 33 lines] >> >> Kiki Smokie Darling (Annie) - 09 Feb 2006 22:48 GMT > ROFL > Don't you love how the podiatrist delivers your baby and the cardiologist > checks your feet? LOL > Nicole EXACTLY!!! Well, except that I didn't have kids, but the "cardiologist" checking my dislocated knee, yeppers, remember that well.
> >> Nicole, > >> [quoted text clipped - 14 lines] > > monetarily (aren't we soooo lucky to have free health care? <being > > snarky and sarcastic>), but... well you get the idea. <<snipped>>
Nicole H - 09 Feb 2006 20:47 GMT Kiki If you need your husband to come home, he doesn't go thru the military chain of command. You approach the Red Cross, they verify the problem, then they eventually send him home. HTH Nicole
> Nicole, > [quoted text clipped - 10 lines] > > Kiki Diane - 08 Feb 2006 16:55 GMT kiki, it's very hard and frustrating to get treatment straightened out. please hang in there! we've all had that helpless feeling, and i understand yours is complicated by your situation. it must be incredibly hard to have your husband overseas and your family far away. your pain sounds miserable and reminds me of the old days when i felt as though i would never ever feel good again. you will, sweetie. but it's probably going to take some time.
please consider speaking to someone. i have no experience with the military, but i am sure there are counselors available to you to talk about your feelings. do you know how to reach one? i also think your doctor should know how this pain is affecting you. maybe he or she can then get you in to see the specialist more quickly. you will really have to advocate for yourself. meanshile, you need to tell us how seriously you're thinking of suicide. i'm worried about you.
diane
Bob - 08 Feb 2006 17:10 GMT > Hello everyone, > > I want to thank you for taking the time to answered my previous > postings. I have had almost unbearable pain in my left hip area, traveling down the back of my thigh. It is due to spinal stenosis. I have also had terrible pain on my Ischial tuberosity, my "sitting down" bone. I went to physical therapy and learned some exercises that help. I also started a walking program that seems to help. After one mile the pain subsides. I was also on neurontin for a while but that didn't help much. My physical therapist told me that for sciatic pain and the Ischial tuberosity pain heat is the wrong thing to apply. It just increases the swelling of the nerves and the tissue around the nerves. So I started using ice packs instead. I got mine at CVS pharmacy. It is a kind of gel in a plastic that is inside of a fabric. That really does help. But, what helped most of all? My GP and my rheumatoligist decided to try me on Lyrica. It is usally given for people with shingles or other never pain. Wow. It has really helped me a lot. No, the pain is not completely eliminated but it has helped a great deal. It has taken that edge off. You know, the sharp pain that makes you want to do anything to make it stop. My point in all of this is that there are options to pursue. You have to be the one who insists on help. You have to make it known that you are in a great deal of pain and you want it to stop. Physicians are being trained to be more sensitive to people who complain of pain but it is our responsibility to make sure that they know emphatically that it is hurting and they need to do something about it. Please remember that you have many options yet to pursue.
Bob - 08 Feb 2006 17:20 GMT >> Hello everyone, >> >> I want to thank you for taking the time to answered my previous >> postings. Just looked at my last post and see that I typed "never pain" instead of "nerve pain." Must have been wishful thinking.
debbie m - 08 Feb 2006 20:39 GMT ((((((((((((((((((KiKi)))))))))
I've read the post and they have given good advice. What Diane said about being your advocate is so true. You need to tell you doc that you are in unbearable pain and let him know you are to the point of suicide. (been there)
If he won't help you try a pain management doc or another doctor. Keep trying until they will help you. I think with most of us it takes time to find the right combination of meds to make our life bearable.
Is there a reason you stopped Ultram/Ultracett? I've used this before and it helped me. Bob gave good advice about trying another med for the nerve pain. Sometimes we have to try several before we can get the right one for us.
I also went to counseling for my pain and for the loss of my former life. It is a process of grieving for what is lost. However, I've found new things that I can do that I wouldn't have before. I write and am a photograper now.
An antidepressant might help with the depression/sucidial feelings/ and the pain. I have taken one for years and will continue to do so as long as I live.
A support group would be good too. One for arthritis or one for depression. I hope you find something soon that will make you feel even a little better and like there is light at the end of the tunnel. Come here and vent any time.
debbie m.
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