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Medical Forum / Diseases and Disorders / Alzheimer's / June 2004

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swallowing test

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turkey in the straw - 22 Jun 2004 04:58 GMT
My mom had her test.I need to thicken liquids.We got Thick It.But she is
not fond of thick water.She will drink it but makes a face.They told me
to eliminate coffee as it has many toxins.Telling them they can not have
something is hard.She tells me she is a grown-up and will drink what she
wants.I have also noticed her balance is getting bad.She has fallen
twice.She always sits on the arm of her chair instead of the seat
thinking she's in the seat,so i have to watch for that also.I would say
my mom is in the middle stage and i am wondering if sleeping 12 hours or
more is typical? She will go to bed at 9pm and i wake her up at 10
am.Also is it important that they get there pills at a certain time?My
dad used to make her get up at 8 so she could have her pills  but i let
her sleep till 10.It's been a year now and i see no adverse affects from
it.Ty,Barb

If I call you a fool,
Doesn't mean your a fool
It Only means
I'm a person with a need to Judge!
Julie - 22 Jun 2004 06:51 GMT
Hi Barb,
<snip>

> My mom had her test.I need to thicken liquids. <snip>

I'm kind of new here.  Why does she need her liquids thikened?  I noticed my
mom jokes on her food and drink at times.

<snip>
She always sits on the arm of her chair instead of the seat thinking she's
in the seat, <snip>

The doctor ordered home health care physical therapy for my mom after she
had a short stay in the hospital and was walking poorly - shuffling her
feet.  I mentioned to the P.T. that she always plops down in her chair and
most of the time sits on the arm of the chair.  He showed her, and had her
practice the proper way for her to sit down.  He had her back up to the
chair so she could feel the chair on the back of her legs.  Then slowly bend
forward, reach back to hold onto the arms of the chair, and slowly bend her
knees and sit down.  Now when she sits down like that she gets a big smile
on her face.

Take care,
Julie
turkey in the straw - 22 Jun 2004 15:17 GMT
Julie,
  I thought my mom was choking on the food too but most likely she's
coughing on the liquids.When they swallow they can get distracted or
many other things and a little of the liquid goes into there
airway.Theres a little flap in the throat that covers the airway but if
there not swallowing correctly some liquid gets past it into the
airway.They cough because there lungs are rejecting this liquid trying
to get it out.If they have a very wet flemmy cough thats a sign of this
happening.My mom had pneumonia in march and they said that this is
likely what caused it.Soooo we have to thicken her liquids.Barb

If I call you a fool,
Doesn't mean your a fool
It Only means
I'm a person with a need to Judge!
turkey in the straw - 22 Jun 2004 15:21 GMT
Julie,
  My mom would not remember i told her how to sit down.So i just need
to tell her everytime she's in the process of sitting down.
    A question i have is has anyone ever put bed rails on there beds?I
have one but i don't put it up cause i am afraid she will try climbing
over it which could be worse.Barb  

If I call you a fool,
Doesn't mean your a fool
It Only means
I'm a person with a need to Judge!
Howard Goldstein - 22 Jun 2004 16:59 GMT
:       A question i have is has anyone ever put bed rails on there beds?I
:  have one but i don't put it up cause i am afraid she will try climbing
:  over it which could be worse.Barb  

Yes, there are sort of half rails on the hospital bed we're renting.
They didn't work as it seemed my LO was sort of rolling her legs off
it in her sleep. To stop it from happening we placed mattresses on
either side of the bed, one full mattress propped up on its side
setting vertically on the side she favors and had been inclined to
roll off of, the other a full size mattress+box+frame that sits about
4" higher than the hospital bed.  The setup leaves a sort of soft
comfy nest in-between.  
Mary Gordon - 22 Jun 2004 15:50 GMT
You wrote:  
> I'm kind of new here.  Why does she need her liquids thickened?  I noticed my
> mom jokes on her food and drink at times.

Mary responds:
Developing problems with chewing and swallowing are common for people
with progressive neurological diseases like AD. It is quite a serious
problem on several fronts - not only is it dangerous from a choking
hazard perspective (a friend of mine's mother actually died from
inhaling banana pudding she was "chipmunking" rather than swallowing)
but it also add to the challenges involved in getting enough food and
fluids into the person.

Thickened liquids are easier to swallow - and they make several
products to achieve this (i.e. stuff you add to regular liquids).

Here is some good information from a Pick's disease page with some
helpful hints on swallowing issues.
http://www.picksdisease.org/swallowing.html

Mary G.
Julie - 22 Jun 2004 18:14 GMT
Thanks for the link Mary, I am printing it out and will share the info. with my
family.
Take care,
Julie

> You wrote:
> > I'm kind of new here.  Why does she need her liquids thickened?  I noticed my
[quoted text clipped - 17 lines]
>
> Mary G.
Evelyn Ruut - 22 Jun 2004 12:37 GMT
> My mom had her test.I need to thicken liquids.We got Thick It.But she is
> not fond of thick water.She will drink it but makes a face.They told me
[quoted text clipped - 9 lines]
> her sleep till 10.It's been a year now and i see no adverse affects from
> it.Ty,Barb

Dear Barb,

That is how my mother in law got just about a year ago.... not being able to
sit in the place she intended, and sleeping long hours, and developing
balance problems.

It was then we realized that she could seriously hurt herself and began
considering placing her in a nursing home.    But for a long time we did
deal with it ourselves.   She fell several times, usually in the night
trying to find the bathroom or her bedroom, but also she just keeled over a
couple of times during the day especially if she was tired.    We walked
with her everywhere she wanted to go so that wouldn't happen.

We never stopped her from having her coffee, nor did our doctor ever suggest
it, but we did limit her sugar and carbohydrate intake since she was
developing diabetes.   We always used decaffeinated coffee in the house and
they told us that was what they used in the daycare center too.   That was
pretty much the only dietary issues we had at home, though I found it harder
and harder to get her to eat certain foods, like meat for instance.   She
always would eat home made soup, so that was what we made a lot of!

I think that when a person is her age, and suffering from alzheimers, it
doesn't much pay to stop them from eating or drinking almost anything they
like, with the exception of foods that will affect their life in a VERY
direct way.   For instance, when Ida ate a lot of carbohydrates, she would
have to go to the bathroom constantly, sometimes every hour all night long.

Regular coffee would probably interfere with sleep, but decaf would most
likely not hurt......

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

 
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