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Medical Forum / Diseases and Disorders / Alzheimer's / June 2004

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Namenda and the Dowager

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Baird Stafford - 23 Jun 2004 20:24 GMT
Yesterday, the Dowager began the third week in the introductory course
of Namenda.  Yesterday, the Dowager gave herself a bath for the first
time in nine months.  Today, the Dowager decided she needed clean
underwear for the first time in I-dunno-how-long.  Today, the Dowager
was dressed and waiting for me when I arrived to take her to the day
care center, and had even remembered to wash her hands.

The first week was rough.  I could tell the Namenda was doing
*something*, because the Dowager seemed even more scattered and confused
than usual.  Instead of giving up in a panic, however, I continued to
give her the Namenda - and, by the second week, begain to notice what I
*hoped* might be signs of improvement.

I didn't allow myself to hope too much, though.  For many patients, as I
understand it, all the Namenda does is slow down the progression.  The
pshrink had said that the percentage was very small, who seemed to
regain even a little bit of what had been lost.  Besides, I've fooled
myself before into thinking things were getting better when they really
weren't.

But this week, when my sister called from Boston, *she* even noticed a
difference in how well the Dowager's conversation tracked.  I had told
her I was putting the Dowager onto the new med, of course (and she'd
done her own research on the web) but, because she is so far away, she
doesn't have quite as large an emotional investment in the Dowager's
well-being as I do (well, with a husband and two teen-aged sons to
manage, when would she find the time?).  But she noticed a difference.

I think what I'm getting at, here, is that it's possible to panic too
soon and stop the medicine prematurely.  I would have done, I think,
when the first week seemed to show a downhill spiral - except that I
figured I could always stop the med on the following week or the week
after if the downward spiral continued.

But it didn't.

For which the Gods be praised.

Blessed be,
Baird
Songbird - 23 Jun 2004 20:49 GMT
> For which the Gods be praised.

Amen and amen, Baird! I hope her improvement sustains. That first week
almost sounds like having to knock the cobwebs off pathways that hadn't been
used in a while. It would have been tempting to quit. I'm glad for both your
sakes you didn't. And even if the improvement lasts only a short time, you
can know you have those moments together and the reassurance that you have
done everything possible for her.

Please keep us posted!

Songbird.
Evelyn Ruut - 23 Jun 2004 21:21 GMT
> Yesterday, the Dowager began the third week in the introductory course
> of Namenda.  Yesterday, the Dowager gave herself a bath for the first
[quoted text clipped - 36 lines]
> Blessed be,
> Baird

That is wonderful, Baird!  I had heard a couple of negative stories, but
hearing of someone it has definitely helped, is terrific.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

turkey in the straw - 26 Jun 2004 05:20 GMT
Baird,
  Great news.May i ask why you call her the dowager?LOL

If I call you a fool,
Doesn't mean your a fool
It Only means
I'm a person with a need to Judge!
Baird Stafford - 26 Jun 2004 21:08 GMT
> Baird,
>    Great news.May i ask why you call her the dowager?LOL

Started to call her that back when I first got 'net access in '90 or '91
(yes, before the WWW!) in order to preserve her privacy (as you can tell
from my .sig line, I read and post to some newsgroups that were fairly
controversial even then).  She was in Hungary, at the time, serving in
the Peace Corps because she's gotten bored with retirement and somehow
didn't quite want to go to all the places she and the Old Man had
planned to see, together, after we lost him.

Anyway, I guess I just got into the habit - and it's of such long
standing, by now, that it's never occurred to me to think about breaking
it.

Blessed be,
Baird
turkey in the straw - 27 Jun 2004 04:50 GMT
Baird,
  Thanx for your reply,Barb

If I call you a fool,
Doesn't mean your a fool
It Only means
I'm a person with a need to Judge!
pjwlk - 28 Jun 2004 14:10 GMT
My mother, a late mid-stage Alzheimer's patient who lives with us, is
now on her third week of using Memantine (Ebixa) which is the same
drug as what you call Namenda.  Like you, I try not to read too much
into the changes that I think I notice, and I am always happy when I
hear someone who doesn't live with her make the same observations.
Although her recovery, if you will, isn't quite as pronounced as what
you describe with your mother I also noticed a week or so of
confusion and what seem to be a worsening state.  After that however I
noticed that she seems to be recalling more short and long term
memories then before taking the drug.   She also seems to now remember
that she needs to do some tasks that she would previously forget to
do.  Here's just one thing I noticed: She really enjoys music and
loves listening to her CDs.  She wound up breaking her old player
because she kept on smashing the top lid to get the CD out.  Of course
it did matter how many time we showed her how to open the player
correctly, she kept on smashing it.   Around the time she started the
drug, we bought her a new stereo that has a tray with a button to open
it instead of a lid .  We labeled the important buttons for her
because sometimes she will read them and try herself.  We usually need
to guide her along at some point as she gets stuck and can't complete
the task, especially when using a new piece of equipment.  A few days
ago she was watching a movie that ended about 15 minutes before I got
back to the room.  When I returned I was stunned to find that she had
put a CD on the new stereo by herself!

One possible side effect I am concerned about though has recently come
up is that on two occasions we have been in a restaurant with her and
she has told us that she has a burning feeling in her throat and the
she feels like she is going to be sick.  So far it only happens when
we are eating out and both times she has had a glass of wine which
leads me to believe that alcohol with the drug may be a problem.
There was another similar instance that may have occurred before she
started taking the drug but I can't remember the exact date. The same
problem does not seem to occur at home when she has wine. Have any of
you had similar occurrences?  Needless to say we are keeping a very
close watch on that situation to try and identify the cause.  I don't
want to take her off the drug prematurely but fear for her inability
to describe things in detail especially when she is stressed.

Regards,
pjwlk

P.S. e-mail address is for junk mail.
 
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