Folks,
I have been an occasional poster - I must say, I've gotten a lot more good
advice here than I've given!
Thought you would want to know that Mom died early Monday morning. A
Hopsice nurse was with us for part of her final hours. I highly recommend
Hospice when the time is appropriate. I wish we had been more aware of them
when my Dad died of cancer 10 years ago. I learned recently that my state
only approved Hospice for Alzheimers patients about 5 years ago. AD
patients and their families need Hospice every bit as much as cancer or
other patients that are suffering pain. There are many difficult issues to
deal with close to the end, even for AD patients.
I have enjoyed reading everyone's posts over the past 6 months, and am not
quite ready to let go of this stage of my life, so will probably continue to
"lurk" a while longer.
-Jennie
Songbird - 27 May 2004 22:47 GMT
Jennie,
I am sorry for you and your family but glad that your mom is not suffering
any more. Please stick around -- we need the advice of those who have been
down this road before us.
Songbird
> Folks,
>
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>
> -Jennie
Camille - 27 May 2004 22:53 GMT
I am sorry for your loss. I hope your good memories bring you comfort
during this time.
Camille
> Folks,
>
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>
> -Jennie
Darryl - 28 May 2004 01:04 GMT
Hi Jennie,
Sorry to hear about your loss. And by simply sharing the experience
of your Mom's final hours, you've probably helped more people than you
can imagine.
Take care,
Darryl.
>Folks,
>
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>
>-Jennie
deedimples - 28 May 2004 14:27 GMT
Jennie:
Sorry to hear about your mom. Losing a mother is a very sad and you will
miss her.
I have just lost my mother-in-law on Mothers Day. She had cancer and her
family was by her side until the end.
I still have my mother and thank god everyday, I get to spend the time with
her.
take care,
thinking of you,
hugs,
Dianne
"> On Thu, 27 May 2004 20:42:01 GMT, "Jennie" <jbuzun@nospam.nc.rr.com>
> wrote:
>
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> >
> >-Jennie
Evelyn Ruut - 28 May 2004 01:24 GMT
> Folks,
>
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>
> -Jennie
Dear Jennie,
I am so sorry to hear of your loss.
She is free of this terrible illness now.
May your best memories give you comfort.

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")
Gwen Love - 28 May 2004 03:58 GMT
Jennie, you have my sympathy. Please do stay with us. Some of us lost our
LO several years ago but we are still around. And I agree about Hospice.
They were wonderful when my husband died.
Gwen

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Nobody can make you feel inferior without your permission.
-Eleanor Roosevelt-
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| Folks,
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| -Jennie
Mike - 28 May 2004 04:13 GMT
I am sorry for your loss. My prayers will be with you and your family.
Hospice is a wonderful thing.
- Mike, Friendwood, Texas
> Folks,
>
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>
> -Jennie
turkey in the straw - 28 May 2004 05:11 GMT
So sorry to hear this Jennie.My prayers are with you.Barb
lynn - 28 May 2004 12:40 GMT
Jennie, my deepest sympathy on the loss of your mom. Glad you both had
hospice by your side, as you helped your mom make her journey. It is
the only way I want to go, if I have a choice, when the time comes.
Like you, I experienced their wonderful care with my mom- a year and a
half ago. Be sure to include their support in grieving, as well- it
really does help. Regards from Lynn
Barbara Rose - 28 May 2004 20:40 GMT
Sorry to hear of your loss, Jennie. A relief for your Mum and for you.
Barb in UK
> Folks,
>
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>
> -Jennie
Jennie - 28 May 2004 22:11 GMT
To everyone in the group who has written,
I really appreciate your comments and condolences.
I learned a few interesting things toward the end. One was that Hospice
generally wishes that people would call them sooner. Hospice can be ordered
by the doctor (I even found out that you can self-refer) within the last 6
months of a person's life. Of course, some live longer than the doctor's
predictions; if Hospice feels the patient has stabilized and that they are
less needed, they will just come less often, so folks needn't feel that they
shouldn't call Hospice because they really aren't sure how much longer
someone has to live.
We barely called Hospice in time. The nurse did the intake visit Sunday
morning, and by Sunday evening, we all knew that my mother had reached the
final stage of her journey. The Hospice nurse commented that people in her
line of work either love or hate the job (those that hate it don't last
long). She said that she wished she could have entered our lives earlier
because her favorite part of the job is helping the family celebrate the
life of the person who is reaching the end stage.
I'm sure that some may not think much of our decision, but my sister and I
decided to donate my mother's brain to the Alzheimer's Disease Research
Center here in town, through their Brain Donation program. Because my
mother had extensive medical records diagnosing her Alzheimers through the
local affiliated hospital, she was able to be accepted into the donation
program. We barely got the papers signed in time, as the Brain Donation
program was something I only learned about within the past 2 months. In the
coming months, I will be signing up to become a Brain Donor myself, since
they need "healthy" brains for controls in the study. (I asked them what
about if I got AD, and they promised not to kick me out of the study!).
As we sat with the Hospice nurse, waiting for the Brain Donation people, we
were able to celebrate my Mom's life a little. In her later years
(obviously before AD struck) my Mom actually took up a new hobby -
photography. (And who said you can't teach an old dog new tricks??!!) She
photographed her vegetable and flower gardens, and the birds that came to
her yard (including some amazing photos of hummingbirds). My sister
recalled that she would sometimes sit for hours waiting for the right moment
to photograph a particular bird. My only regret is that there aren't very
many pictures of my mother in there, since she was almost always the
photographer.
Again, thanks to everyone for their sympathies.
-Jennie
> Sorry to hear of your loss, Jennie. A relief for your Mum and for you.
>
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> >
> > -Jennie
Mare - 10 Jun 2004 23:56 GMT
Hi Jennie,
Sorry for your loss. I just wanted to say we have my Mom signed
up for a brain donation to. I think it's a very good thing!

Signature
Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages
> To everyone in the group who has written,
>
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>
> -Jennie