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Medical Forum / Diseases and Disorders / Alzheimer's / May 2004

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Update on Mom

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Songbird - 14 May 2004 20:20 GMT
You've all been a great support for me as we walk my Mom through what may be
early-stage AD and try to get my Dad to understand what is happening.

The latest is that she is having a pacemaker put in Monday morning. She
passed out April 9, and they did not call a doctor. When they told me of
this the next day, I insisted they call the doctor Monday morning and he saw
her immediately.  He did a holter monitor -- like a 24-hour EKG -- and
referred her to a cardiologist due to the results. Apparently he did not
know what he saw or realize how bad it was, because when she finally saw the
cardiologist a *month* later (yesterday), he sent her straight to the
surgeon and she was scheduled for the next available slot in the operating
room.

Partly, I am freaked out that they had not planned to consult doctor about
the fainting incident and my insistence is what brought us to this point.
(Cardiologist told her that she could have these "attacks" at any time (and
may have had some she did not recognize -- just dizzy for a minute, which
she could have passed off as not eating or standing up too fast) and each
one would weaken her heart more and more -- and finally there would be one
she would not "come to" from.)

Dad was almost giddy about the operation last night -- I don't know if
because 1) it means he was right -- he told Mom all day Wednesday this is
what was going to happen, and I kept saying, "That's one possibility,"
because he was scaring her (she seemed pretty calm last night though), or 2)
he's under illusion this will "fix" most of her problems. It may help a
great deal -- hypoxia (SP?) could explain much of her forgetfulness.

But the surgery could also make it worse. I've read plenty here on the
dangers of anesthesia for Alz patients. Of course, we can't get her GP to
diagnose her (yes -- it must be normal to think it is Christmas two days in
a row!!!) or refer her to anyone, and my parents refuse to go around him.
Also, once she has a pacemaker she cannot have an MRI, which will complicate
that screening.

Before she saw the doctor Thursday,  I *thought* my Dad and I had agreed
that we would seek a second opinion before any surgery and have it done in a
larger town. Then last night he calls and tells me no second opinion, it's
Monday in the small town. I have her health care POA, but she is not
considered incapable of making decisions at this point and my dad can talk
her into anything. They have refused my offer to come up for the surgery or
the discharge. "Thanks, honey, but we're OK." At this moment, I am honoring
their wishes -- but that may change by Sunday afternoon!

I had just moved heaven and earth to get them moved closer to me in the next
30 days -- and of course that is on hold. Now I can't help but question if
anything would be different if I had rearranged the universe sooner.

Oh, and Brother quit his job on the coast of NC yesterday and is moving to
California the end of the month. No job there. Bought a '94 Jeep Grand
Cherokee with 120K+ miles to pull a trailer with all his belongings there.
Guess he won't be helping me move folks as promised.

I am sick of being The Responsible One -- and I know it will only get
worse!!! Thanks for letting me vent!

Songbird
OcnGypZ - 15 May 2004 00:36 GMT
>Subject: Update on Mom

Songbird:

I here you loud and clear.  I've been trying to get Mother to see the dr.
regarding her dizzy spells.  She says it's nothing.. yet she has a history of
cardiac disease.
I call her doctor.. he doesn't call back.  These "spells" have been going on
for months now. They typically last for a couple of days.. and she only gets
out of bed to get something to snack on and use the bathroom.

I've been the primary caregiver for 13 years.. first Dad.. with his AD... while
mother has suffered for years with severe depression and anxiety along with
partial blindness (yet.. they still let her drive!!)

Now Dad's gone.. my mother can't even remember (or is denial) to fill her new
eyeglass prescription (she denied she was given one)... my younger sister
doesn't think I ought to be here taking care of my mother.....my mother
resented having to private pay for Dad's NH... yet she never saw an estate
planner..

Now.. there's some $179000 in jewelry and valuables missing from the house..
yet my mother says she doesn't remember because the "stuff" didn't mean
anything to her.  My sister admits to having the stuff ....one of the items
being my birthstone pin.. a gift from my grandmother when I was born (we were
both August babies).. and she refuses to return it.....and my mother tells me I
am being oversentimental about "stuff".  When I brought the pin up for a second
time.. my mother called me an "a--hole".  First time in my 49 years on this
planet anyone has ever called me that.. and it's my mother.

and still mother's dr won't return my phone calls.

So I turned to social services.Reported her as a case of self-neglect.. it's
State law here.  Took them 3 weeks to even call me back.  Several of mother's
friends have been calling about her increasing hostility and personality
changes..then there's..the confusion over simple things (toilet is broken..
needs replacing) .and the memory problems...she's having language problems
(can't find the word.. so describes)... took her 3 hrs to write a note to a
friend using 5th grade words..and she had to keep looking them up in the
dictionary)  ..and of course.. there is the one-way asset pipeline away from
the home.  I'm going to try to get SS in here next week.

ARGH>>>>>>>>>>>>>.  did I mention my mother blames me for her having to put Dad
in a NH and private pay!!!!!!!!  Gee.. may be it had something to do with Dad
climbing out the bathroom window in the middle of the night... the police
finding him on the streets in the middle of the night.. Dad punching me in the
face.... Dad threatening my mother with a steak knife.......and if Mom was so
worried about private pay.. why didn't she seek the competent advice of an
estate planner to protect her assets???  

Every time my sister claims she's coming down to help me with the house or my
mother.. she helps herself to cash and jewelry.......my sister toted off
$18,500 in cash.. and about $80,000 in diamonds last Friday when she took my
mother to her home (including Mother's Day).  Of course... my sister did not
invite me..

I offered my mother and sister  family mediation as an attempt to get the
family (just the three of us is all there is) seated and discussing
everything.....and there's alot of everything.
My sister and my mother rejected family mediation.  My elderlawyer said I have
done all the right things.. going through all the medical channels.. and now
it's time for guardianship.

ARGHHHH... I really don't want it.. but I can't figure out any other way to get
her the mental/medical care she deserves.. and also to stop the financial
exploitation by my sister.

According to my sister.. there's nothing wrong with my mother!!!!!!!!!!!

I don't think my mother has AD.. I think it is more frontal lobe.....and it
ties in well with her 40+ years of depression, etc.  Her doctor said
anti-depressants don't agree with her.....well get her into geriatric
assessment BOZO... he's just a gp....and he suffers from Diogenes syndrome!!!
Mother refuses to see anyone else!!

Thanks for letting me vent!!!!!!!!!
Gwen Love - 15 May 2004 02:35 GMT
Bless your heart, and Songbird's.  Both of you really have it rough having
to fight all the battles alone. And it definitely is a battle for both of
you.  Wish I could help or offer advice, but I can pray.
Gwen

Signature

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When you come to the end of your rope, tie a knot and swing.
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| >Subject: Update on Mom
|
[quoted text clipped - 72 lines]
|
| Thanks for letting me vent!!!!!!!!!
Dennis P. Harris - 15 May 2004 05:08 GMT
> Every time my sister claims she's coming down to help me with the house or my
> mother.. she helps herself to cash and jewelry.......my sister toted off
> $18,500 in cash.. and about $80,000 in diamonds last Friday when she took my
> mother to her home (including Mother's Day).  Of course... my sister did not
> invite me..

you need a lawyer NOW!  contact your local AD association and ask
them to refer you to a knowledgeable elder care attorney, or ask
your local bar assocation for a referral as a pro bono case if
you don't have the money to hire one.  you need to do something
immediately to protect the estate, especially if your parents
intended the estate to be divided equally.

who has the durable power of attorney for your mother's financial
affairs?  you may need to have your mother declared incompetent,
and have a conservator appointed (perhaps not you, but definitely
not your sister!) to manage your mother's finances.  
OcnGypZ - 15 May 2004 17:54 GMT
>Subject: Re: Update on Mom

I have an eldercare lawyer.  My mother does not have.. well.. let's say.. that
she'll admit.... a durable power of attorney.

She rewrote her will 4 months after Dad enter the NH.....and what do you think
she changed?????  Yeah... the greedy sister getting the bulk.  Mother started
taking Dad's name of their jointly held accounts in 2000... two years before
Dad got sick... and added my sister's name in his place.

I've discovered all their deceit, etc.... but there are two cases here... one
is my mother's mental and medical health care... then the other will be
proceedings against my sister.. but I need to get my mother evaluated.  She has
more skeletons in her closet than a Halloween shop.. and of course, that has
all led to her depression, etc.  And now the memory......

I called my lawyer on Thursday.  He said it is time for guardianship.  I guess
it's the only way to protect my mother.
Dennis P. Harris - 16 May 2004 04:46 GMT
> She rewrote her will 4 months after Dad enter the NH.....and what do you think
> she changed?????  Yeah... the greedy sister getting the bulk.  Mother started
> taking Dad's name of their jointly held accounts in 2000... two years before
> Dad got sick... and added my sister's name in his place.

prompted by your sister, of course.  and i suspect it started as
soon as your sister realized your father (and perhaps your
mother, even at that time) was impaired, probably long before
your mother would admit it.
Dennis P. Harris - 15 May 2004 05:09 GMT
> and now
> it's time for guardianship.
>
> ARGHHHH... I really don't want it.. but I can't figure out any other way to get
> her the mental/medical care she deserves.. and also to stop the financial
> exploitation by my sister.

it IS the only way.  and you really do need to do it ASAP.
The Cranky Genee - 15 May 2004 14:35 GMT
Can you tell your mother her doctor has retired or moved to another
state?
I don't think he has a clue either.

The Cranky Genee

>>Subject: Update on Mom
>
[quoted text clipped - 10 lines]
>mother has suffered for years with severe depression and anxiety along with
>partial blindness (yet.. they still let her drive!!)
OcnGypZ - 15 May 2004 19:36 GMT
>Subject: Re: Update on Mom
>From:

>Can you tell your mother her doctor has retired or moved to another
>state?
>I don't think he has a clue either.

Not a chance in hades.

No. he doesn't have a clue..and from what I hear from the nurses over at our
local hospital, he suffers from Diogenes Syndrome (hoarding).
Songbird - 15 May 2004 20:57 GMT
> No. he doesn't have a clue..and from what I hear from the nurses over at our
> local hospital, he suffers from Diogenes Syndrome (hoarding).

Never heard this term -- can you elaborate what you mean by Diogenes
Syndrome or hoarding? As in not referring patients, or as a separate
non-patient related problem?

Songbird
Mary Gordon - 16 May 2004 04:03 GMT
Here is an article.
http://eldercare.uniontrib.com/news/denise/hoarding.cfm

I dunno, if my doctor had this, I'd be shopping for a new one stat.

Mary
Jo Ann Malina - 18 May 2004 10:41 GMT
Songbird <song2871@yahoo.com> is alleged to have said:
> Oh, and Brother quit his job on the coast of NC yesterday and is moving to
> California the end of the month. No job there. Bought a '94 Jeep Grand
[quoted text clipped - 3 lines]
> I am sick of being The Responsible One -- and I know it will only get
> worse!!! Thanks for letting me vent!

And of course when they do die, brother will be there with his hand out,
wanting his share.  That happened in my family, but my grandfather
didn't have anything left after a couple of years in the nursing home.
That's not even counting the money my parents spent taking care of him.
But it all caused my aunt, the one who moved to California, to stop
speaking to my mother, the responsible one, cause auntie was sure there
was a pot of money somewhere.

You might want to keep accounts of major expenditures on behalf of your
parents, maybe you will recover it from the estate someday.  I know
that's not why you're doing it, but it may take some of the sting out
of your brother's behavior.

Good luck with your parents.  Wouldn't it be great if your Mom's
problems were caused by the hypoxia, and the surgery fixed it!

Signature

Jo Ann Malina, make spamthis best to find my address
He neither drank, smoked, nor rode a bicycle.  Living frugally, saving
 his money, he died early, surrounded by greedy relatives.  It was a
 great lesson to me.                              -- John Barrymore

 
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