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Medical Forum / Diseases and Disorders / Alzheimer's / May 2004

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Ken - 28 Apr 2004 19:19 GMT
http://www.msnbc.msn.com/id/4853235/
turkey in the straw - 29 Apr 2004 04:44 GMT
My aunt Beatrice died yesterday.I found out she had AD,also.
  I took my mom off namanda and her doc agreed to increase her zyprexa
to 5 mgs.Last night she had me up all night.Wanting to go home.So far
tonight she is sleeping well.I pray this increase will help.Because many
more nights like this will kill me.Because i am home alone with her
during the day too,so of course no naps for me.She's almost evil at
night.Cussing at me,telling me i am a Bas--rd,a liar,etc.I understand
it's not her but it soooo irritates me sometimes.Last night when i told
her to go to sleep she said"F--k You.By then i was so irritated and
tired i said it quietly back to her.I hate myself when i respond like
that.Well better sleep while i can,Barb
Tumbleweed - 29 Apr 2004 07:13 GMT
> My aunt Beatrice died yesterday.I found out she had AD,also.
>    I took my mom off namanda and her doc agreed to increase her zyprexa
[quoted text clipped - 7 lines]
> tired i said it quietly back to her.I hate myself when i respond like
> that.Well better sleep while i can,Barb

Barb,

is it just you looking after her? have you started to look at putting her in
care? Everyone has the point at which they can no longer cope.

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Tumbleweed

Remove my socks for email address

turkey in the straw - 29 Apr 2004 19:01 GMT
I am her major caregiver.My husband works days.He doesn't even hear her
at night.Good news is she slept all night last night.I am not thinking
this was a miracle cure but i am taking one day at a time.She REALLY did
get much worse after the addition of namenda.I do have a sister that
lives 3 miles from us but she never does a thing in the way of help.She
has every excuse in the book.You don't even want to hear them.Believe me
the night of Terror(LOL)i did consider a nursing home.But i know in my
heart she doesn't need that yet.Whats really needed here is a break for
me.Because she picks up on my irritation just as a child does there
mom.In July it's been a yr.here without a break,except maybe a trip to
get groceries.It's just a shitty job.Barb
Evelyn Ruut - 29 Apr 2004 23:13 GMT
> I am her major caregiver.My husband works days.He doesn't even hear her
> at night.Good news is she slept all night last night.I am not thinking
[quoted text clipped - 7 lines]
> mom.In July it's been a yr.here without a break,except maybe a trip to
> get groceries.It's just a shitty job.Barb

Barb we would never have made it without DAYCARE.   The adult daycare center
here was a lifesaver for us.   Then there are places that do respite care.
Call the Alzheimer's association nearest you and ask them for a list.
There are home care agencies and there are people who work privately doing
this.   If you ask around or even place an ad you might be able to find
someone who can give you a break.

I said that Ida wasn't ready for a nursing home either, but to tell you the
truth I think she was and I just didn't realize it.   Maybe your mom isn't
ready for a nursing home but YOU may be, if you know what I mean.
Caregiver burnout is absolutely real.  I know.

This particular nursing home is primarily a rehab institute with an
Alzheimer's ward.   That is why the emphasis is a little different.   One
nursing home we visited, in fact with a sterling reputation, the people were
all in apparently very late stage.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Evelyn Ruut - 29 Apr 2004 12:10 GMT
> My aunt Beatrice died yesterday.I found out she had AD,also.
>    I took my mom off namanda and her doc agreed to increase her zyprexa
[quoted text clipped - 7 lines]
> tired i said it quietly back to her.I hate myself when i respond like
> that.Well better sleep while i can,Barb

Barb, if you give the medication a chance to work a little better and she
doesn't improve, don't wait as long as we did to consider placing her.   I
was determined to care for her at home as long as possible.   It is like the
weight of the world is lifted off our shoulders!  I definitely should have
done it sooner.   It takes a little nursing home shopping, but there are
good facilities out there.  Luckily Ida is in one.

There are some other options;

Getting in-home care just for a night shift.   We have an agency near us
that provides home care nurses and aides.   The person sits up in the room
with them all night, placating them, toileting them, keeping them quiet etc.
so you can sleep and get some rest.

Putting her in a facility for respite care for a week or so....just to see
how she handles it and also to give you a break for a few days.

The medication is important.   If the Zyprexa isn't doing the job well
enough, she may require some other drug.   Ida was on Zoloft and Risperdol
as well as Aricept.   That combination helped enormously to settle her down.
At a certain point she was very agitated like your mom.   It was an awful
stage and nearly impossible to deal with.

A Tylenol PM every night at bedtime was VERY helpful for a while when she
was at her most restless at night.  We ultimately didn't need it after a
while.

Meanwhile......after placing Ida on Monday;

It is as thought the weight of the world is off our shoulders.   I am only a
few minutes away, I can visit her anytime from 8 in the morning till 8 at
night, unannounced.   But best of all is that we can sleep at night and we
are no longer continually watchful 24/7 wondering what she is up to or in
to.   She is safe and cared for by someone else now, and it is a good place.

They have so many amenities like a hotel.....It is also a rehab facility,
not just a nursing home, (but the Alzheimer patients obviously don't take
full advantage of all of those amenities).

They have a monthly birthday party for all the residents whose birthday
falls in that month.   There was a guy playing piano and conducting a sing
along in the main room yesterday.

Ida was welcomed with a big bunch of balloons by the activity director.
Lots of bright young friendly employees, all smiling and making a point of
speaking to them and greeting everyone.

I am more confident than ever that we chose the right place and that Ida is
getting good care.
Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

Frank Zink - 11 May 2004 22:41 GMT
My mom is also like this, very nasty at dad and whoever else is there at
the time.
How long does this stage last? I feel so sorry for dad as he is with her
24/7. My sister and I only help one day a week each and after work.
Dad has a lady come in 2 times a week just for 2 hours each, to bathe
her etc.
I can't believe the things she says, I didn't know she knew such words.
Sometimes I have flashbacks of watching the movie The Exorcist!
Dad never curses and sometimes he really takes offense to these words
even though he knows its a disease.
Nancy Zink
Evelyn Ruut - 12 May 2004 01:12 GMT
> My mom is also like this, very nasty at dad and whoever else is there at
> the time.
[quoted text clipped - 7 lines]
> even though he knows its a disease.
> Nancy Zink

Nancy, I think your best strategy would be to contact your doctor about some
sort of anti-psychotic medication.   If your mother was not nasty when she
was normal, then she is behaving in a way that is not usual for her, and it
cannot be good for her or the people around her.

Just my humble opinion.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

 
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