Medical Forum / Diseases and Disorders / Alzheimer's / April 2004
Ida is safely in the nursing home
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Evelyn Ruut - 26 Apr 2004 21:21 GMT We dropped Ida off at noon today at the local nursing home. The place is very nice, clean and spacious and apparently very well run. We talked to social worker, ward nurse/director, admissions person, activities directors, dietician, and so many people I can't remember them all.
She isn't in that room we looked at the other day, they instead put her in a different room (two beds) in the bed nearer the bathroom (with my permission). She has a roommate that seems VERY feisty. That worries me. The woman is a loudmouth and very argumentative. In Ida's younger days she would have handled her just fine. Now,.... I don't know. If I see any trouble I will ask that they move her.
The doctor was not available to talk to us just then, but we can see and talk to him day after tomorrow. As I understand it, they consider Zoloft and Risperdol "chemical restraints" ...... and they are going to titrate her down from current levels before re-deciding what dosages if any she should be on.
I am OK with it for now, because if they can tolerate the delusional stuff she is their "baby" now, and they are the professionals. But I don't want to see Ida in any emotional discomfort either. I will indeed be watching. Their goal is to get her off any drugs that might impair her motor skills and allow her to fall even if it means some behavioral stuff.
This place looks for all the world like what has to be the best nursing home out there. The activities director came to greet her with a bunch of balloons and everyone spoke to her so kindly and introduced themselves in such a nice way. Could have been a show for the family's sake, but it looked real. Even on our first visit there, everyone was super friendly and upbeat. NOTHING like that horrible place in the city her sister went to and died in.
They gave Ida lunch and it was amazingly diverse and good. Chicken noodle soup, a small glass of juice, coffee with Splenda and creamer, a small container of lowfat milk, meatball sandwich on very soft roll, pudding cup. She ate quite a bit and surprised us all.
I am numb, feeling emotionally drained, tired, but somewhat relieved. I am not going there tomorrow, but will come the next day. They promised to call if there is any problem.
 Signature Regards, Evelyn
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Tumbleweed - 26 Apr 2004 22:23 GMT > We dropped Ida off at noon today at the local nursing home. The place is > very nice, clean and spacious and apparently very well run. We talked to [quoted text clipped - 36 lines] > not going there tomorrow, but will come the next day. They promised to > call if there is any problem. Welcome back to the rest of your life, I bet you find it strange tonight, when was the last time you had the chance for an unbroken nights sleep? I am sure you will *all* be better off.
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John Inzer - 27 Apr 2004 01:51 GMT > We dropped Ida off at noon today at the local nursing > home. The place is very nice, clean and spacious and [quoted text clipped - 47 lines] > will come the next day. They promised to call if there > is any problem. ======================================== Thanks for the good news. Now you may have an uninterrupted nights sleep...unless the NH calls at 3 AM. (yes, it does happen occasionally)
Interesting lunch choices...the only part of it I would eat as a T2 diabetic trying to maintain weight would be the Coffee with splenda.
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Evelyn Ruut - 27 Apr 2004 02:13 GMT Hi John,
> Thanks for the good news. Now you may have an > uninterrupted nights sleep...unless the NH calls at 3 AM. > (yes, it does happen occasionally) If they did, I would be amazed.....unless it was a major emergency.... cause anyway, we didn't place her in a nursing home to be called at 3 am, we would have kept her here and continued getting up with her all night long ourselves.
> Interesting lunch choices...the only part of it I would eat > as a T2 diabetic trying to maintain weight would be the > Coffee with splenda. I was sitting with the dietitian at the very moment Ida was eating this lunch. A very good reason why most diabetics know that dietitians know diddley squat about our illness. The pudding was made with artificial sweetener, but even still, the roll, the noodles in the soup, the juice and even the low fat milk was pretty carby stuff. It could have been artificially sweetened juice, but I didn't ask. Juice is carby without any help anyway.
The dietitian insisted that for a diabetic, every single carb was calculated and measured out so that over the course of a day, she was getting the "right" diet. I thought it was a rather carby meal myself and I could tell you for sure that my meter would be cranking if I ate that lunch.
Regards, Evelyn
John Inzer - 27 Apr 2004 03:33 GMT > Hi John, > [quoted text clipped - 31 lines] > Regards, > Evelyn =================================== Hi,
I certainly have no idea what your NH will do but we do receive occasional after hours calls about Rosie. There has not been a major emergency but the calls are generally to report a minor fall, combativeness, trying to escape, etc. I'm guessing it's just a CYA thing in case we find an unexplained bruise on her. Don't be surprised if the phone rings.
Adjusting the meals will probably be next to impossible. The level of ignorance about Diabetes is staggering. After hearing Dick Clark on the Larry King show tell the world that you can eat what you like and only test once every few weeks...I may as well give up.
No wonder diabetes is a number one cause of blindness and kidney failure...not to mention amputations and heart problems.
Have a quiet night's rest :o)
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Trish Knight - 27 Apr 2004 04:03 GMT Dear Evelyn, I'm so happy and relieved for you and Peter. I'm sure this was just the hardest thing for you, but I'm praying and believing it will be the best thing.....for all of you!
Hugs, Trish
> We dropped Ida off at noon today at the local nursing home. The place is > very nice, clean and spacious and apparently very well run. We talked to [quoted text clipped - 36 lines] > not going there tomorrow, but will come the next day. They promised to > call if there is any problem. turkey in the straw - 27 Apr 2004 04:43 GMT Evelyn, So happy to hear it went well.I will say a prayer for you and get a good sleep tonight.Barb
turkey in the straw - 27 Apr 2004 06:00 GMT My mom is on 2.5mgs.zyprexa,50 mgs.zoloft and 20mgs. namenda and her doctor will not up the dose even though my moms dilusions are getting worse since starting namenda.I am considering taking her off the namenda.Between 4pm and 8pm or so she is awful.To the point of getting her shoes on cause she is walkng home.We live with her in her home of 50 yrs.Yelling cause her husband won't come get her.Calling me names that are not repeatable.It has gotten sooooo much worse since the addition of namenda.Any suggestions,PLEASE,Barb
Tumbleweed - 27 Apr 2004 06:54 GMT > My mom is on 2.5mgs.zyprexa,50 mgs.zoloft and 20mgs. namenda and her > doctor will not up the dose even though my moms dilusions are getting [quoted text clipped - 4 lines] > are not repeatable.It has gotten sooooo much worse since the addition of > namenda.Any suggestions,PLEASE,Barb Ask your mothers doctor directly how he intends to prevent this behaviour, and if he wont take action (maybe there are other medicines rather than an increased dose of zyprexa or zoloft?), get another doctor. have you asked him straight out why he wont increase it?
btw, its 'delusions' :-)
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Dennis P. Harris - 27 Apr 2004 10:14 GMT > It has gotten sooooo much worse since the addition of > namenda.Any suggestions,PLEASE,Barb CHANGE DOCTORS.
Evelyn Ruut - 27 Apr 2004 11:30 GMT > My mom is on 2.5mgs.zyprexa,50 mgs.zoloft and 20mgs. namenda and her > doctor will not up the dose even though my moms dilusions are getting [quoted text clipped - 4 lines] > are not repeatable.It has gotten sooooo much worse since the addition of > namenda.Any suggestions,PLEASE,Barb Barb, I would get another doctor. This one does not realize what you are dealing with. I surely do.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Darryl - 28 Apr 2004 02:54 GMT >My mom is on 2.5mgs.zyprexa,50 mgs.zoloft and 20mgs. namenda and her >doctor will not up the dose even though my moms dilusions are getting [quoted text clipped - 4 lines] >are not repeatable.It has gotten sooooo much worse since the addition of >namenda.Any suggestions,PLEASE,Barb Hi Barb,
Forgive me if you've addressed this in the past, but you didn't indicate an AD drug like Aricept (a so-called acetylcholinesterase inhibitor). Was this simply an omission or...? Also, how long ago did she start on Namenda? If I recall correctly, several recent anecdotes here have suggested that late addition of Namenda can lead to the 'side-effects' that you've noted.
Like everyone else has suggested, either approach your doctor again or get a second opinion--preferably from someone whom specializes in geriatric medicine (in Canada, we have a Gertiatric Assessment Unit).
When my Dad became agitated, he was prescribed Ativan (or lorazepam, a benzodiazepine) although it is very sedating.
Darryl.
turkey in the straw - 28 Apr 2004 04:50 GMT Darryl, Yes she does take aricept also.She is on her second month of namenda.
deedimples - 27 Apr 2004 14:20 GMT Evelyn,
I'm very happy for you. You will a sense of loss, not having Ida there, but you also see in time, it's the best thing you could have done.
It seems like Ida has accepted her new home and that's a good thing. It puts your mind at ease. As time passes you will come to know everyone and the staff does know their jobs, but you still must be there to make sure they do it. I have come across a few that need reminders, how to treat my mom. They all don't understand the complicated history of my mom's health, but they are learning.
It's almost a year, since we put my mom in her new home and the time goes by so fast. My mom will be 75 in a few weeks and after her stroke 5 years ago, the doctors said, "Live each day like the Last One". The doctors didn't have much hope that she would be around this long. The last fall and injuring her eye, I thought she couldn't pull through another trauma to her fragile body. With the lost of the sight in the right eye, she still continues to amaze us all. She is unbreakable.
have a good day, Dianne
> We dropped Ida off at noon today at the local nursing home. The place is > very nice, clean and spacious and apparently very well run. We talked to [quoted text clipped - 36 lines] > not going there tomorrow, but will come the next day. They promised to > call if there is any problem.
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