> It sure sounds like things are going good. I know this has to be hard on you
> and Peter. I'm praying for you.
>
> Love,
> Trish

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")
> > Dear Evelyn,
>
[quoted text clipped - 12 lines]
>
> >Evelyn, glad to hear that things are moving along for Ida's
residential care. You and Peter deserve a much needed break. Like
others have reminded you, I'm sure that Ida's loss of interest in food
is just part of the shutting down process common to the late stages.
Her saying it "won't go down" could also indicate problems developing
with chewing and swallowing- again not uncommon in late stage.
Continue to offer food- and try to keep her hydrated as much as
possible, but try not to nag into eating more than she's comfortable
with- as compromised as our LO's are, I am convinced their bodies know
what they still "need" -or "don't need" when the time comes.
BTW, I followed your post with interest on Ida's diabetes. Maybe I
missed it on the NG, since I don't read every day- but did anyone see
the report that the FDA is placing a warning on the atypical
anti-psychotics like Respiradol and Zyprexa having a connection to
becoming diabetic? As I recall, Respiradol had a sligtly better chance
of that as a side-effect than Zyprexa, but both drugs showed some
evidence of that. I know that Ida has been on Respiradol for about 2
yrs now, right?
Anyways, my thoughts and prayers with you all as you move towards
professional care for Ida. It's a diffcult move for you all, given the
years you've spent as one unit. Lynn
Evelyn Ruut - 23 Apr 2004 12:52 GMT
> > > Dear Evelyn,
> >
[quoted text clipped - 32 lines]
> professional care for Ida. It's a diffcult move for you all, given the
> years you've spent as one unit. Lynn
Dear Lynn,
There are a number of very dangerous side effects that come with Risperdol.
We knew that early on. But to tell you the truth, her delusions and
agitation at a certain point were so severe that if she didn't have the
Risperdol she would have been in a nursing home a long time ago. It
provided her a little peace and a better quality of life, and us too. Her
delusions were pretty difficult and this stuff helped.
We knew it was a tradeoff and taking a chance, but we thought it was worth
it. It definitely made her life more bearable for these last few years at
home. When the disease began to take a greater toll so that the delusions
subsided just a bit, we backed of the dosage to half, even though some of
the delusions returned, but in lesser strength.
As for her diabetes, her blood sugar was "borderline" for several years
anyway, and so it may have been inevitable, Risperdol or not.
At any rate, she is doing well with her diabetes medication now ..... but
still all she does is sleep on the sofa most of the day.

Signature
Regards,
Evelyn
(to reply to me personally, remove 'sox")