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Medical Forum / Diseases and Disorders / Alzheimer's / April 2004

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Evelyn Ruut - 21 Apr 2004 21:04 GMT
We have an appointment tomorrow at 11 AM with the nursing home admitting
dept.

Prepaid funeral arrangements in process
Medicaid application pending

Please keep us in your prayers.
Hoping this goes well.

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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Gwen Love - 21 Apr 2004 23:54 GMT
Evelyn, prayers continuing that everything works out perfectly and quickly.
Gwen

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"Wear a smile and have friends; wear a scowl and have wrinkles."
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| We have an appointment tomorrow at 11 AM with the nursing home admitting
| dept.
[quoted text clipped - 4 lines]
| Please keep us in your prayers.
| Hoping this goes well.
Evelyn Ruut - 22 Apr 2004 01:47 GMT
> Evelyn, prayers continuing that everything works out perfectly and quickly.
> Gwen

Much appreciated, Gwen.
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Regards,
Evelyn

(to reply to me personally, remove 'sox")

Trish Knight - 22 Apr 2004 02:49 GMT
> We have an appointment tomorrow at 11 AM with the nursing home admitting
> dept.
[quoted text clipped - 4 lines]
> Please keep us in your prayers.
> Hoping this goes well.

Dear Evelyn,
It sure sounds like things are going good.  I know this has to be hard on you
and Peter.  I'm praying for you.

Love,
Trish
Evelyn Ruut - 22 Apr 2004 12:03 GMT
> Dear Evelyn,

> It sure sounds like things are going good.  I know this has to be hard on you
> and Peter.  I'm praying for you.
>
> Love,
> Trish

Thanks so much, it means a lot.   We are just SOOOO tired and so emotionally
"fried" from all of this.   Ida was given a nice dinner last night... mashed
potato, corn, and a bit of nice soft meat loaf.   She ate so little it is
hard to describe.   No amount of coaxing could get her to eat more.   She
said "It just won't go down"....  Looks like it is only soup anymore.

Signature

Regards,
Evelyn

(to reply to me personally, remove 'sox")

lynn - 23 Apr 2004 12:05 GMT
> > Dear Evelyn,
>  
[quoted text clipped - 12 lines]
>
> >Evelyn, glad to hear that things are moving along for Ida's
residential care. You and Peter deserve a much needed break. Like
others have reminded you, I'm sure that Ida's loss of interest in food
is just part of the shutting down process common to the late stages.
Her saying it "won't go down" could also indicate problems developing
with chewing and swallowing- again not uncommon in late stage.
Continue to offer food- and try to keep her hydrated as much as
possible, but try not to nag into eating more than she's comfortable
with- as compromised as our LO's are, I am convinced their bodies know
what they  still "need" -or "don't need" when the time comes.
  BTW, I followed your post with interest on Ida's diabetes. Maybe I
missed it on the NG, since I don't read every day- but did anyone see
the report that the FDA is placing a warning on the atypical
anti-psychotics like Respiradol and Zyprexa having a connection to
becoming diabetic? As I recall, Respiradol had a sligtly better chance
of that as a side-effect than Zyprexa, but both drugs showed some
evidence of that. I know that Ida has been on Respiradol for about 2
yrs now, right?
  Anyways, my thoughts and prayers with you all as you move towards
professional care for Ida. It's a diffcult move for you all, given the
years you've spent as one unit. Lynn
Evelyn Ruut - 23 Apr 2004 12:52 GMT
> > > Dear Evelyn,
> >
[quoted text clipped - 32 lines]
> professional care for Ida. It's a diffcult move for you all, given the
> years you've spent as one unit. Lynn

Dear Lynn,

There are a number of very dangerous side effects that come with Risperdol.
We knew that early on.   But to tell you the truth, her delusions and
agitation at a certain point were so severe that if she didn't have the
Risperdol she would have been in a nursing home a long time ago.   It
provided her a little peace and a better quality of life, and us too.  Her
delusions were pretty difficult and this stuff helped.

We knew it was a tradeoff and taking a chance, but we thought it was worth
it.   It definitely made her life more bearable for these last few years at
home.   When the disease began to take a greater toll so that the delusions
subsided just a bit, we backed of the dosage to half, even though some of
the delusions returned, but in lesser strength.

As for her diabetes, her blood sugar was "borderline" for several years
anyway, and so it may have been inevitable, Risperdol or not.

At any rate, she is doing well with her diabetes medication now ..... but
still all she does is sleep on the sofa most of the day.

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Regards,
Evelyn

(to reply to me personally, remove 'sox")

 
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