Medical Forum / Diseases and Disorders / Alzheimer's / April 2004
Super good news
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Evelyn Ruut - 23 Apr 2004 21:58 GMT Hi everyone,
Ida has been accepted in a local nursing home for Monday. I just got the call a few minutes ago.
This is an absolutely gorgeous place, quite new, big spacious rooms, and only about 7 miles from my house. Ida will have the bed by the window in a room with two beds. It is in the country, and the people were all super friendly there.
I looked at the two best local places and was not so sure which would be the better choice, and if things don't go as well as I think they will, we are still on the list for the other one and can move her there if need be.
We are both happy and sad at the same time. I will spend a lot of time this weekend organizing her clothing and belongings to make the transition a good one.
It is close enough to home to visit every day if need be, and I will finally see my poor husband get a real nights sleep uninterrupted, and I will be able to go out with him together to a movie or the store or to lunch without having to hire a granny sitter for the first time in three years.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Gwen Love - 23 Apr 2004 22:46 GMT Evelyn, be sure her name is on everything. That won't insure that she will keep it all, but it will help. sometimes other residents help themselves. And other things just happen. Wonderful that it happened so quickly. Good luck. Gwen
 Signature ============================================================ I want people who are sick to know that a good life doesn't need to be a long life; that they can live the life God gave them, not the life they wish God gave them. - Cubby De Prince (8 year old AIDS patient) =============================================================
| Hi everyone, | [quoted text clipped - 18 lines] | able to go out with him together to a movie or the store or to lunch without | having to hire a granny sitter for the first time in three years. Hank Watala - 24 Apr 2004 00:53 GMT > Evelyn, be sure her name is on everything. That won't insure that she will > keep it all, but it will help. sometimes other residents help themselves. > And other things just happen. Wonderful that it happened so quickly. Good > luck. > Gwen
> Hey Evelyn, I live on Long Island in New York, and our paper just did a series of articles on nursing homes and assisted living homes. Go to www.newsday.com. Besides all the bad stuff, they give tips and hints on how to make the transition easier for both your Grandmother and you, and they tell you what to bring, what to leave at home, and how to best safeguard your Grandma's property. Even if you live outside of New York (I'm sure the laws are different) the article has some great info. ---Hank--- That's my e-mail address up on top, anyone's welcome to write!
Evelyn Ruut - 24 Apr 2004 12:04 GMT "Hank Watala" <hwatala@optonline.net> wrote in message
> > Hey Evelyn, I live on Long Island in New York, and our paper just did a > series of articles on nursing homes and [quoted text clipped - 6 lines] > ---Hank--- > That's my e-mail address up on top, anyone's welcome to write! Hi Hank,
The article did tend to stress the negative rather a lot, and there are a lot of negatives to stress!
I can tell you that this is why we made it our business to get Ida OUT of the city and brought her upstate here with us.
It is a whole different ballgame up here in the Catskills. We saw what her sister went through in a nursing home in the city. It was not an experience we would want anyone to have to go through. I am sure there are good places and bad places everywhere, but this is the "country" and country people have more care for people, and we do take care of our own.
My next door neighbor plans to visit her often and so will a couple of my girlfriends, as well as the director of the daycare center she attended too! That says a lot and makes us feel better about it. I hope they come through.
EVERYONE we have dealt with so far has been just wonderful.... compassionate, genuinely caring, and totally helpful and honest. Everyone knows how hard this is to do and to go through.
We have cared for this lady for three whole years like she was our baby. We know we have done a good job and she has had a good life here. But we need a break and we know it is not going to be easy to turn the reins of care over to someone else, and that things may be done differently than we have done them. It will be a transition as much for us as it is for her.
A good note: The girl who is the admissions director has her own grandmother in that same facility, and so do a couple of other employees. So that is a pretty good endorsement.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Robert E. Lewis - 24 Apr 2004 05:33 GMT > Evelyn, be sure her name is on everything. That won't insure that she will > keep it all, but it will help. sometimes other residents help themselves. > And other things just happen. Wonderful that it happened so quickly. Good > luck. > Gwen My grandmother's name was 'Abbie.' When she went into a nursing home in the early 1970s, she had just broken her hip, and my father and aunt had to rent her a wheelchair. The place they rented it from was called 'Abbie Rents,' and had the name engraved on the wheelchair. Grandma was in the nursing home for about fourteen years, and she was the only resident who ever rented a chair from Abbie Rents. The chair was 'borrowed' from time to time, but we always were able to find it easily.
-- Robert
Lesanne - 24 Apr 2004 02:19 GMT Wonderful news. So glad you are happy with the place. Prayers answered.
> Hi everyone, > [quoted text clipped - 18 lines] > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Trish Knight - 24 Apr 2004 04:10 GMT Evelyn, I'm so happy for you. I hope that it's all you want and need it to be, and that Ida adjusts quickly.
Hugs to you, Trish
> Hi everyone, > [quoted text clipped - 18 lines] > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Dennis P. Harris - 24 Apr 2004 04:56 GMT > Ida has been accepted in a local nursing home for Monday. I just got the > call a few minutes ago. glad to hear that after all the hassle and hard work, you have been able to place her. i wish the best to all of you...
d
Robert E. Lewis - 24 Apr 2004 05:29 GMT > Hi everyone, > [quoted text clipped - 5 lines] > room with two beds. It is in the country, and the people were all super > friendly there. Oh, Evelyn, I am very glad to see this post!
> I looked at the two best local places and was not so sure which would be the > better choice, and if things don't go as well as I think they will, we are > still on the list for the other one and can move her there if need be. Does anybody need a better definition of a family member 'going the extra mile' to care for a loved one?
> We are both happy and sad at the same time. I will spend a lot of time > this weekend organizing her clothing and belongings to make the transition a > good one. > > It is close enough to home to visit every day if need be... Evelyn, my first 'resource' when I became worried about my father was a good friend. Harry, I'd met through 'Compassion in Dying.' We were both trying to provide comfort to a mutual friend dying of meurological disorder. Harry's wife had died a couple of years earlier after being diagnosed with early-onset AD, she was diagnosed at 57 (she died in her early 70s). About a year ago I asked Harry about the nursing home he'd selected for hiw wife, and was utterly stunned to learn he'd cared for at home up to the last weeks or months after she was stricken with (or delivered by, one might say) cancer. Harry had placed his wife in a nursing home for a week, when he was in need of a rest, but even then, he said he went to the nursing home every day, to have breakfast with her and to make certain she was well-cared-for. Harry is one of the most honorable men I've ever known, and strong and compassionate. But I could see the toll it took on him, after the fact, and I hope you and your husband won't trade the enormous burden you've shouldered for the burden of still feeling you have to check on her every single day.
I know it's presumptuous of me to say this, but you've described a wonderful place, and I'll bet everyone here will agree that your have sound and caring judgment in your selection of a place for your mother-in-law now.
>... and I will finally > see my poor husband get a real nights sleep uninterrupted, and I will be > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Man, am I the only one reading this and wondering about gift certificates to some restaurant in the area, a pair of movie passes, whatever? I had a birthday this week and am always admonished not to spend the smattering of birthday cash gifts on anything 'sensible.' I know that's even more presumptuous; sorry.
-- Robert
Evelyn Ruut - 24 Apr 2004 11:46 GMT > > Hi everyone, > > [quoted text clipped - 59 lines] > -- > Robert Hi Robert and Happy Birthday! I share your view in that birthday money ought to be spent without regard for how sensible it is! We all need some nonsense in our lives especially if we are concerned with doing things sensibly the rest of the time!
I don't intend to go every day, especially once I know she is adapting OK. I really and truly do need a rest and my poor husband needs it more!
Last evening we were watching TV and just hanging out thinking about the events of the day, and suddenly we heard a big hard thumpety thump. We leaped out of bed and ran to her room and she was on the floor. I don't know if she tried to sit and missed the edge of the bed, or what, but she was on the floor.
Now we were right next door and heard it, but I wonder how it will go when she is in a nursing home and she falls? I have asked them to put a bed alarm on her bed and they say they can do that, so that someone will know when she gets out of bed. Poor Ida. And how would we know if anyone comes if she falls? We are going to have to toughen up, but it seems to be a hard thing to do.
I have promised myself that I am not going to be a pain in the butt to the people in the nursing home, as I (of all people) know how hard it is to care for someone like this, but it also seems that I am going to have to keep an eye on things to some degree.
We are going to have to visit her often enough to be sure that she is getting good care, but not so often that we are an annoyance. Ida is a good natured enough person that I think she will manage to be OK there, but I hope she will be persistent enough to ask for some help or care if she needs it.
Their doctor intends to be backing her off her meds somewhat to find a "baseline" to work from, so they say, and I am OK with that.
They have their own doctor, a dentist who comes to the place a couple of times a week, their own beauty shop, and quite a few amenities.
Their are 286 patients there, most of them are in for rehabilitation, and I hear it is the best rehab place in our area.
Their dementia ward is separate and it is not a "certified" dementia ward (whatever that means) but it is self contained and separate. We saw lots of aides feeding patients by hand, and some feeding themselves. We noticed no bad odors or problem people misbehaving at all.
They told me that clothing often tends to disappear but the problem is lots better now that they do it there themselves, rather than send it out.
The good thing is that this place is just a couple of miles away and easy to get to. There is plenty of parking, it is spotlessly clean and there seems to be plenty of help there.
The intake person from Medicaid already called the nursing home and gave them the go-ahead, so that is why things went so smoothly. Also because we had ALL our paperwork in order and ready to go.
This weekend will be very busy as I have to sort through all her things and bring only what is necessary for the time being, and I will switch her summer and winter clothing myself. No need to bring heavy winter coats now.
I need to find a marker pen to identify her clothing with. Also we want to set up her room nicely while she isn't in it, and personalize it a bit. Peter and I feel it is important not to arrive there with her and a suitcase in our hand as it is possible it could get Ida too upset to see that. Better if her things just "materialize" there.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Jennifer - 25 Apr 2004 08:14 GMT Hi Evelyn
"Evelyn Ruut" <mama-lionsox@hvc.rr.com> wrote in message [...]
> Last evening we were watching TV and just hanging out thinking about the > events of the day, and suddenly we heard a big hard thumpety thump. We [quoted text clipped - 8 lines] > comes if she falls? We are going to have to toughen up, but it seems to be > a hard thing to do. Are there rails on the beds there? I'm not sure how US differs from here but every bed has rails here.
> I have promised myself that I am not going to be a pain in the butt to the > people in the nursing home, as I (of all people) know how hard it is to care > for someone like this, but it also seems that I am going to have to keep an > eye on things to some degree. You will not be a pain in the butt. I have seen too many residents who rarely receive visits, those that take the time to look out for their loved one are most welcome.
[...]
> Their dementia ward is separate and it is not a "certified" dementia ward > (whatever that means) but it is self contained and separate. We saw lots > of aides feeding patients by hand, and some feeding themselves. We noticed > no bad odors or problem people misbehaving at all. Evelyn, please don't take offence, but bad odours and misbehaviour is almost unavoidable in a NH with Dementia residents. Incontinence is a common occurence and some dementia (not all that many) residents can become aggressive. If it was a continuing theme, then I would be worried. I just didn't want you to think that bad odours and misbeaviour were a sign of bad care :-)
> They told me that clothing often tends to disappear but the problem is lots > better now that they do it there themselves, rather than send it out. Yes, that helps a lot. Where I have been working they do their own laundry but use a linen service for sheets and towels.
[...]
> This weekend will be very busy as I have to sort through all her things and > bring only what is necessary for the time being, and I will switch her > summer and winter clothing myself. No need to bring heavy winter coats > now. Try to think ahead for change of seasons. We are in autumn (fall) here now and we've had the odd cold day. Quite a few residents have not had warmer clothing brought in for them yet and it makes it difficult to dress them and keep them warm if they are up and about. Of course the reverse would apply in spring.
> I need to find a marker pen to identify her clothing with. Also we want to > set up her room nicely while she isn't in it, and personalize it a bit. > Peter and I feel it is important not to arrive there with her and a suitcase > in our hand as it is possible it could get Ida too upset to see that. > Better if her things just "materialize" there. Excellent idea. A tip though, try and get embroidered "sew on" tags. Marker pen ink tends to spread and make it hard to decipher, and tags fall off.
I hope it all goes well tomorrow.
Jennifer
John Inzer - 24 Apr 2004 05:41 GMT > Ida has been accepted in a local nursing home for > Monday. I just got the call a few minutes ago. ======================================= Good news, seems like it went rather quickly once things were put in motion. =======================================
> I will spend a lot of time this weekend organizing her > clothing and belongings to make the transition a good > one. ======================================= I'm not sure what you mean when you say "belongings" but I can tell you that aside from clothing and the barest of essentials it may be a good idea to keep Ida's things safe at your home.
Remember, it is *very* important that *everything* is clearly marked with Ida's name. Also you may want to continue doing her laundry as we do for Rosie...the commercial washers and detergents are very hard on the clothing.
 Signature John Inzer return e-mail disabled
Evelyn Ruut - 24 Apr 2004 11:51 GMT > I'm not sure what you mean when you say "belongings" > but I can tell you that aside from clothing and the barest > of essentials it may be a good idea to keep Ida's things > safe at your home. Yes, that is what I plan to do. I am going to bring only a few things.
> Remember, it is *very* important that *everything* is > clearly marked with Ida's name. Also you may want to > continue doing her laundry as we do for Rosie...the > commercial washers and detergents are very hard > on the clothing. I am thinking that is what we might do too. It isn't going to be too hard to take her laundry home and do it here with ours, but I am going to look into all the options.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Robert E. Lewis - 24 Apr 2004 21:05 GMT ...
> > Remember, it is *very* important that *everything* is > > clearly marked with Ida's name. Also you may want to [quoted text clipped - 5 lines] > to take her laundry home and do it here with ours, but I am going to look > into all the options. And consider the positive side, Evelyn: My grandmother went into a nursing home in about 1973, and he sister-in-law did the laundry for her. After Grandma died in early 1985, we went to my great-aunt's (the sister-in-law's) house to sort through things Grandma had in storage... and we discovered she had two dresser drawers filled to overflowing with neatly laundered and folded towels, pilfered from the nursing home!
Play your cards right and you may never need to wade into the crowds at a white sale ever again! <G>
-- Robert
Evelyn Ruut - 24 Apr 2004 21:27 GMT > ... > [quoted text clipped - 21 lines] > -- > Robert LOL! That is a funny one, Robert. I can just picture it!
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Gwen Love - 24 Apr 2004 23:14 GMT I didn't go back to the nursing home after Daddy died. I just called them and told them to give everything away or throw it away! Gwen
 Signature ************************************************************ "Your present circumstances don't determine where you can go; they merely determine where you start." - Nido Qubein ************************************************************
| > ... | > [quoted text clipped - 27 lines] | | LOL! That is a funny one, Robert. I can just picture it! Beth - 24 Apr 2004 16:38 GMT Evelyn, I'm so happy to hear the placement plans are finalized. I'm sure you will check into the laundry situation.
from John's post: ...>the commercial washers and detergents are very hard n the clothing.<
It's true, of course. And some places throw bleach into every load, so the clothing does deteriorate faster. However, I was happy to find a household-heavy duty of course- washer-dryer at my MILs ALF. They do darks separately than whites. and pinks-reds in their own load. It is going all the time I think as they do tablecloths, napkins, and bedding. I sometimes will bring home soiled sweaters; but otherwise, I don't worry about it anymore. It's wonderful! But labeling is a must.
Beth
Joyce - 25 Apr 2004 15:32 GMT I forgot to add that there is a little enjoyment in my doing my mom's laundry ... ya never know what you will find. <G> I can count on always having extra items in the laundry bag. I just wash them along with mom's stuff, bag them seperately, and drop off at the nursing station ... we call it laundry surprise. <G>
I have found that 2 laundry bags work best (for me anyway). One goes in mom's hamper, then all I have to do is remove the bag and tie it up - easy to carry. Replace this laundry bag in the hamper with the second one, put clean clothes back in the first bag to transport back. Oh ... and make sure you keep extra hangers on hand - this is another item I have found to be a problem area. They are constantly disappearing from mom's closet. I now take inventory when I collect her clothing, replace hangers whenever I think it is needed. Having a supply on hand at home has made it less frustrating for me.
Joyce
>Evelyn, I'm so happy to hear the placement plans are finalized. I'm sure >you will check into the laundry situation. [quoted text clipped - 11 lines] > >Beth Joyce - 25 Apr 2004 15:20 GMT >> Ida has been accepted in a local nursing home for >> Monday. I just got the call a few minutes ago. [quoted text clipped - 16 lines] >commercial washers and detergents are very hard >on the clothing. I do have to agree with John. My mom has been in a nursing home for almost a year now, and most everything will disappear, reappear, then disappear again. Try not to take anything of value, things that are easily replaceable and you will not be upset to see *gone*. I will add that nothing of my mothers has been lost forever, just somehow have taken short vacations. <g> The residents love to go *shopping* ... in each others rooms - my mom also. I can't tell you how many times I have visited and found her wearing someone else's clothing, and her proudly telling me that she *just got it*. <g> They don't know, I can and have accepted this. Her room and closet are very small, so clothing is limited to the current season - I rotate accordingly. Personal belongings are also very slim ... hairbrush, toothbrush (which she now has a collection of), shampoo, perfume, a small radio, and her favorite chair and throw blanket (she loves to sleep in her chair).
I had to make the decision as to whether I wanted to do her own laundry or have the home take care of it. I chose to do it for mom. I wasn't worried about the harshness of the commercial soaps, as mom's clothing is nothing grand (again, due to the constant disappearance) ... but it does save her money each month. Not a fortune, but every little bit I can save allows her a few more *luxuries*. The home mom is in also has a hairdresser come in once a week - cuts and styles the residents hair ... if you want. There is an additional charge, but I felt it was worth it as it makes mom feel great. This might also be something you want to check into.
Has the nursing home staff spoken to you about ways to make the transition for Ida easier? I remember the director requesting us to try not to visit for at least a week - giving mom time to get acclimated to and accept her new surroundings. It was the second hardest thing I have ever done (the first was putting mom there), but really did seem to help immensely. We also had her belongings all in place before mom was taken there. This way when we took her to her room, she recognized everything and it made her feel more like she was at home.
I am sure you are having mixed emotions right now, placement is a very hard step and tough decision to make. Not too many days go by when I don't question our decision. But reality always quickly sets in and I know my mom is where she can be cared for best. I am glad you are looking ahead and thinking of some fun ways to spend your time, and putting your life back in order. You've had a long, tough haul - not without it's own rewards - but you and your husband definitely deserve to find some relaxtion, peace, rest and enjoyment in the days ahead.
Good luck Evelyn, I wish you the best.
Joyce
Darryl - 24 Apr 2004 05:58 GMT Evelyn,
I'm glad to hear that your perseverance and hard work have paid off! Keep similing,
Darryl.
>Ida has been accepted in a local nursing home for Monday. I just got the >call a few minutes ago. [quoted text clipped - 16 lines] >able to go out with him together to a movie or the store or to lunch without >having to hire a granny sitter for the first time in three years. Evelyn Ruut - 24 Apr 2004 11:49 GMT > Evelyn, > > I'm glad to hear that your perseverance and hard work have paid off! > Keep similing, > > Darryl. Thanks so much, Darryl. They told me they are going to back of on her medication to find a "baseline" to work from. This concerns me, but I am going to talk to the doctor myself about it.
 Signature Regards, Evelyn
(to reply to me personally, remove 'sox")
Darryl - 24 Apr 2004 19:16 GMT >> I'm glad to hear that your perseverance and hard work have paid off! >> Keep similing, >> >Thanks so much, Darryl. They told me they are going to back of on her >medication to find a "baseline" to work from. This concerns me, but I am >going to talk to the doctor myself about it. I like the idea of finding Ida's baseline but just make sure (yes, yes, I know it's their business :) that they titrate down and that they don't stop any therapies cold turkey. I know you understand this as well but...
I just had to add my CDN$0.02!!!
Darryl.
Dennis P. Harris - 24 Apr 2004 23:33 GMT > Thanks so much, Darryl. They told me they are going to back of on her > medication to find a "baseline" to work from. This concerns me, but I am > going to talk to the doctor myself about it. if it ain't broke, WHY do they want to fix it?
i would put the kibosh on any idea they might have that they can change her meds in any way without peter's *explicit* permission. i suggest making sure that all med orders are always in writing, and that if they are changed, he must sign off on them except when it's during an emergency.
deedimples - 24 Apr 2004 13:39 GMT Hi Evelyn,
That's great news, I wish you all the best of luck. This will make your life easier.
great news, Dianne
> Hi everyone, > [quoted text clipped - 18 lines] > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Adelle D. Stavis, Esq. - 26 Apr 2004 03:13 GMT Evelyn,
I'm so glad the process is starting to go smoother. I know it took a lot for you to get to this point.
When my FIL went in, we were told no picture frames with glass, so we used our printer/copier to copy some pictures and used Photoshop (or some other photo program) to label who each person was in the picture. That way the staff could say, "what a fine son/grandchild/whatever" and kind of remind him who everyone was. It helped for visits. Alan's glasses and kept disappearing, as well as a couple of other things. While you may want it to seem homey, don't leave anything you really want back, as it might 'wander.'
 Signature Adelle D. Stavis, Esq.
> Hi everyone, > [quoted text clipped - 18 lines] > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Char - 26 Apr 2004 05:59 GMT Dear Evelyn,
Just caught up today. I am so pleased that things have worked out so quickly for you. Hope the transition goes well for all of you. You have done so much for Ida & now you & Peter can start relaxing & not be under so much stress.
Always,
Char
> Hi everyone, > [quoted text clipped - 18 lines] > able to go out with him together to a movie or the store or to lunch without > having to hire a granny sitter for the first time in three years. Barbara Rose - 26 Apr 2004 16:44 GMT I'm so pleased for you Evelyn. Mum has been in for three months now and my life has completely changed for the better. I'm sure yours will, too.
You are doing the right thing for all of you and deserve a break.
Take care
Barb in UK
> Hi everyone, > > [quoted text clipped - 18 lines] > > able to go out with him together to a movie or the store or to lunch without > > having to hire a granny sitter for the first time in three years.
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