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Medical Forum / Diseases and Disorders / Alzheimer's / April 2004"Each day is always worse than the day before"
That quote, plus "Dad's gone, just his body is there," and many others ring home to all of us. They're snarfed a well-written article on Pick's disease in this morning's St Pete Times <http://www.sptimes.com/2004/04/11/Floridian/What_s_the_matter_wit.shtml> > That quote, plus "Dad's gone, just his body is there," and many others > ring home to all of us. They're snarfed a well-written article > on Pick's disease in this morning's St Pete Times > <http://www.sptimes.com/2004/04/11/Floridian/What_s_the_matter_wit.shtml> What an amazing story! Thanks for posting the link, Howard.  SignatureRegards, Evelyn (to reply to me personally, remove 'sox") > That quote, plus "Dad's gone, just his body is there," and many others > ring home to all of us. They're snarfed a well-written article > on Pick's disease in this morning's St Pete Times > <http://www.sptimes.com/2004/04/11/Floridian/What_s_the_matter_wit.shtml> This is a great article. The story sounds very much like what my friend Sam went through. Finally though, in 1997 he was diagnosed with Metachromatic Leukodystrophy (MLD), a very rare brain degenerative disorder, which I'm involved in fundraising for MLD research. I'm in touch with lots of people who have loved ones with unnamed leukodystrophies, and other unknown disorders of this kind -- I'm going to forward this link to them. It might be worth them checking in to. Thanks so much! Trish |
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