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Medical Forum / Diseases and Disorders / Alzheimer's / March 2004

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Rate of progression???

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myname - 21 Mar 2004 04:16 GMT
My dad (84) was being cared for by my mother (same age) until she
could no longer cope.  He went into an assisted living facility for
Alzheimer's patients for about a month until an opening became
available in a nursing home.  At the time he went into the assisted
living facility he was able to walk around and communicate verbally,
but with difficulty.  He was moved to a nursing home on March 8th, but
by this time he was in a wheelchair and unable to walk.  He was still
talking, although not making a lot of sense.  He progressed to being
slumped over, blank look in his eyes, mouth hanging open,  and not
showing any indication that he recognized my mother, and not
communicating at all with anyone. He died in his sleep on March 17th.
The family is shocked at his rapid decline, as this is not what was
expected.  We were prepared for a long duration in a nursing home.  We
are relieved that his ordeal (and ours) is finally over, and very glad
he wasn't in a nursing home for ages.  Is this rapid rate of decline
very unusual, or does it happen sometimes?
Evelyn Ruut - 21 Mar 2004 04:29 GMT
> My dad (84) was being cared for by my mother (same age) until she
> could no longer cope.  He went into an assisted living facility for
[quoted text clipped - 12 lines]
> he wasn't in a nursing home for ages.  Is this rapid rate of decline
> very unusual, or does it happen sometimes?

Hi,

There rules are that there are no rules with this illness.

I had an aunt who lived with it for almost 20 years before she finally
passed over.   Then again there are those who pass quickly like your poor
dad did.

I am sorry that you lost your father.   I know that there is little comfort
when you are struggling with conflict, on the one hand grateful that his
struggle with this illness is over yet grieving deeply at his loss.

I truly wish that my mother in law would come to a peaceful end before she
has to suffer the miseries of this illness in the advanced stages.

He is at peace now.......may your best memories sustain you.
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Evelyn

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Darryl - 21 Mar 2004 04:31 GMT
>he wasn't in a nursing home for ages.  Is this rapid rate of decline
>very unusual, or does it happen sometimes?

It probably happens more often than we realize.  Was an autopsy
performed to determine whether AD was the problem?  My Dad had a
similar rapid decline and while he was diagnosed with early-onset
Alzheimer's disease, the autopsy revealed Lewy Body dementia.  While
his death is still difficult to comprehend (he was 59 at his final
exit on June 13, 2003), the rapidity with which it was met was
'welcomed' by us because it's what he wanted--not that he had much say
in the matter, other than not wanting to exit like my Grandmother.

Sorry for your loss,
Darryl.
Tumbleweed - 21 Mar 2004 08:59 GMT
Thats pretty quick compared to most stories here, but its also merciful
compared to what you might have had to cope with, better to be able to
recall your dad mostly as he was, rather than for many years as the shell of
the person he once was, better for him and all of you IMHO. my condolences.
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Tumbleweed

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> My dad (84) was being cared for by my mother (same age) until she
> could no longer cope.  He went into an assisted living facility for
[quoted text clipped - 12 lines]
> he wasn't in a nursing home for ages.  Is this rapid rate of decline
> very unusual, or does it happen sometimes?
Mary Gordon - 21 Mar 2004 10:00 GMT
Yes, it happens sometimes - in the later stages, a person with AD is
like an egg balanced on end. They are in a precarious situation, and
the smallest thing can cause major physical or mental deterioration.
Your father may have had some other health problem contributing to his
decline as well - as you can appreciate, it gets to be next to
impossible to detect subtle shifts when a person can't tell you how
they feel, describe symptoms or otherwise answer questions. Unless an
illness is causing really overt outward symptoms and signs, it may be
brewing and contributing to overall decline - even if no one realizes
the person has a new or exacerbated health issue on top of the AD -
and once you are in the end stages, few of us start insisting on
doctors start agressively looking for those health issues, let alone
treating them. We just want our loved one comfortable and not fussed
with.

Add to that that a frail person can also have more than one thing
causing dementia at the same time, thus being ganged up on by strokes
or Parkinsons as well as Alzheimers - and the decline can seem
breathtakingly rapid.

I'm so sorry for your loss, but having been through an agonizing two
years with my MIL in the end stage, I think most of us would prefer
that once they reach the last stage that the end come swiftly and
mercifully.

Mary G.
Mare - 23 Mar 2004 20:35 GMT
Hi,
There is usually an underlying something going on if he is
deteriorating so quickly. Like Mary said it's very hard to figure
it out when they can't communicate with you. Best wishes.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> My dad (84) was being cared for by my mother (same age) until she
> could no longer cope.  He went into an assisted living facility for
[quoted text clipped - 12 lines]
> he wasn't in a nursing home for ages.  Is this rapid rate of decline
> very unusual, or does it happen sometimes?
 
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