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Medical Forum / Diseases and Disorders / Alzheimer's / March 2004

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Beth Cole - 25 Mar 2004 15:50 GMT
I've been lurking for several weeks and thought it was probably time to
introduce myself.

I'm 32, and the granddaughter of a deceased Alzheimer's patient and the
daughter-in-law of a later stages Alzheimer's patient.  My grandfather
was diagnosed when I was 22 and died when I was 28, having been in a
care home for about 7 months.  My MIL was diagnosed when I was 28 and
was placed in a care home 11 months later.

My husband is an only child.  Thankfully, his father, while almost 80,
is in good physical and mental health.  Robert took care of Doris for
those 11 months single-handedly, which amazes me.  One Sunday morning
just before Thanksgiving in 2001, he called us to say that he could no
longer take care of her and needed our help to put her in the local
nursing home.  Now, she is wheel-chair and bed-bound and has little to
no muscle control.

Doris does not recognize my husband in any way.  She knows Robert's
voice but doesn't recognize his face.  She goes through phases when she
either babbles nonsense syllables or becomes completely withdrawn and
starts crying.  She was on Aricept for a year but was taken off of it
when she started having problems with interactions between it and the
medication she takes to ward off seizures (a series of strokes in 2000
led to her original diagnosis, as well as problems with seizures).

Last October, we closed the chapter of our lives dealing with my
grandparents, as their children (my dad & his sisters) auctioned off the
estate.  In some ways, it was therapeutic.  In other ways, it was just
flat-out weird.  Watching a lifetime's worth of stuff go for $1 or $2
was rather surreal.

Beth
Signature

These things I warmly wish to you:
Someone to love, Some work to do, A bit o' sun, A bit o' cheer, And a
guardian angel always near.  -- An Irish Blessing
our home page:  http://www.IsleOfSky.net

Evelyn Ruut - 25 Mar 2004 16:34 GMT
Hi Beth,

Welcome to the group nobody wanted to join, but all of us have found great
comfort here.  I am sure you will find the same.

I related to your comments about auctioning off the estate.   When we
cleaned out my mother in law's home a year and a half ago, it was such a sad
feeling to break down a person's whole life.   It made me resolve to clean
up our own house and get rid of as much junk as possible and simplify, so my
own kids don't one day have to go through too much.

Sorry you have to be here, but I am glad to meet you.

Signature

Evelyn

(To reply to me personally, remove sox)

> I've been lurking for several weeks and thought it was probably time to
> introduce myself.
[quoted text clipped - 28 lines]
>
> Beth
Beth Cole - 25 Mar 2004 16:47 GMT
> Hi Beth,
>
> Welcome to the group nobody wanted to join, but all of us have found great
> comfort here.  I am sure you will find the same.

Thanks.  I already have.  My FIL, who just bought his first computer
last summer & is online, has asked about on-line support groups for
families of AD patients.  When we see him weekend after next, I'm going
to get him set up to read here.

> I related to your comments about auctioning off the estate.   When we
> cleaned out my mother in law's home a year and a half ago, it was such a sad
> feeling to break down a person's whole life.   It made me resolve to clean
> up our own house and get rid of as much junk as possible and simplify, so my
> own kids don't one day have to go through too much.

That is what my parents are doing, as well.  My mother's goal is to give
my brother & me the things that we will be getting while she is still
around to know that we got them and are enjoying them.

We are dreading the sorting & disposal of my MIL & FIL's property.
They've lived in the same house for nearly 40 years, and my MIL, even
before the AD set in, had hoarding tendencies.  My husband says that he
will sort it out, take what he wants, and tell the auction company that
everything else is to be disposed of.  He won't have the scenes like
what we witnessed with my aunts, fighting over who got a particular
music box from my grandmother's collection or bidding outrageous sums
for Tupperware.

> Sorry you have to be here, but I am glad to meet you.

Thanks.

Beth

Signature

These things I warmly wish to you:
Someone to love, Some work to do, A bit o' sun, A bit o' cheer, And a
guardian angel always near.  -- An Irish Blessing
our home page:  http://www.IsleOfSky.net

Gwen Love - 25 Mar 2004 19:50 GMT
Beth, glad you decided to introduce yourself.  No only will you get support
here, you can share things also.
Gwen

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-----------------------------------------------------------
"If you're going through hell, keep going."
Winston Churchill

| I've been lurking for several weeks and thought it was probably time to
| introduce myself.
[quoted text clipped - 28 lines]
|
| Beth
Mary Gordon - 25 Mar 2004 21:18 GMT
Hi Beth - I've been in your shoes.

My mother died when I was 17 and my father died suddenly when I was
34, and pregnant with my first child. My brother (Peter Pan with a
substance abuse problem) was in Germany with the armed forces at the
time, and I was the executor, so I got to do EVERYTHING, from arrange
the funeral, to clean out his house, sell his car, etc. etc. I not
only got NO help from my brother whatsoever, but he gave me a lot of
grief and hassle about everything he possibly could. Thank goodness
for my spouse!!!

Like yours, my husband was also an only child. His dad had died before
we got married, but when I was pregnant with #2, his mother developed
AD. By the time she died in 1999, we were the parents of three kids
under 7. All four of our parents were gone by the time we were in our
early 40's.

Ham in sandwich, yes-sir-eee!

I know exactly what you mean about the cleaning out of the house
business. I've done it three times now (my parents place, my MILs
place and my husband's aunt's place) and it breaks my heart.

Its going to sound crazy, but I have nightmares where my father isn't
actually dead - its all been some sort of terrible mistake. He comes
back, and finds strangers living in his house, and that I've gotten
rid of all his possessions -I'm mortified, and he's bereft and lost
and has no place to go. In the dreams, I'm wracking my brain to think
where various items have gone, and trying to get them back for him so
he has some furniture. I've even dreamt that we were in his old house,
trying to explain to the new owners that they had to leave so he could
live there again. Just crazy - but obviously a sign of how upsetting I
found the process of dispersing everything he'd accumulated over a
lifetime.

Mary G.
Evelyn Ruut - 26 Mar 2004 00:28 GMT
> Hi Beth - I've been in your shoes.
>
[quoted text clipped - 32 lines]
>
> Mary G.

Dear Mary,

They say that the same fire that melts butter, makes steel strong.

You have had such a difficult time and experienced so many losses, but it
seems to me from having read your posts for the last couple of years, that
you have taken the lemons and made a wonderful lemonade!

We are lucky to have you posting here!

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Evelyn

(To reply to me personally, remove sox)

 
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