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Medical Forum / Diseases and Disorders / Alzheimer's / April 2004

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Could it be AD?

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RoseB - 16 Mar 2004 17:55 GMT
My sisters and I are concerned that my mother has AD. Although she has
not yet been assessed, we have concerns not so much about memory
impairment, but about paranoia and confusion. For example, she
believes that my oldest sister is stealing money and other posessions
from her as well as from us.

Recently she has called one or the other of us every day to make
these accusations as well as other untruths which she believes. In
spite of our best intentions, we become emotionally involved in these
conversations and say things that we wish we had not. My oldest sister
has temporarily blocked my mother's calls because she finds it to
stressful to deal with. She lives several provinces away, so it is not
as crucial that she be available.

My Mother a huge mistrust of the three of usm and believes that we
will have her "locked up".

I believe that it would be difficult to accurately assess her
cognitive function. She has been unable to do a variety of tasks, such
as write cheques and usually pays her bills via moeny order or in
cash. She may have difficulty recalling the names of government
officials or counting backwards. She was not well educated, and left
school while still in the elementary grades. She has had some
limitations in mental functioning for many years, in fact, as long as
I can remember. We believed that these were caused over the years by
mini-strokes. Recently though, she seems to have delusions that were
not there in the past.

My mother has recently fallen and in January had a partial hip
replacement. She has made a good recovery (physically) and at her last
visit the surgeon remarked that she was well ahead in her recovery. I
do not believe that a general anaesthetic was used, since she was
confused for several days following a thr about 1 years ago.

We are in the process of having an assessment made. It is clear that
something is wrong, whether it is AD or other forms of dimentia.

But how do you handle it when she calls to accuse someone of stealing?
Distraction does not work, and it is difficult to agree with what she
is saying when it is so far from the truth. What do others do in these
circumstances?

Rose
@}>-->>>
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Tumbleweed - 16 Mar 2004 20:42 GMT
> My sisters and I are concerned that my mother has AD. Although she has
> not yet been assessed, we have concerns not so much about memory
[quoted text clipped - 40 lines]
> Rose
> @}>-->>>

Rose, to a certain extent, it really doesnt matter what you do, since she'll
forget anyway, even if you manage to convince her she's mistaken on some
occasions, it'll just come round again.and again. and again.....
How about saying that you borrowed it because it was lying around and you
were worried it would get stolen, so you are going to put it in a bank
account /safe placefor her? If that works, you can just repeat that every
time she calls, as dont forget, the fact you explained something doesnt mean
thats it over with. I used to experiment with different responses to my
father,and generally choose the one that kept him quiet and not wanting to
take further action, rather than whatever was the 'correct' answer.

There are medicines that might help with these delusions others here have
experience of and I'm sure will post what they are and that is probably a
better medium term cure (if it works). Longer term time will fix this as
she'll be unable to work out how to call you, or what she had and at that
stage, you will have to have her 'locked up' by the sound of it, for her own
good. One of my relatives was convinced that the next door neighbour came
into her house and moved her medicine bottles around,and put new medicines
there that she hadnt been prescribed. No amount of logical argument would
cure her of this, indeed if I persisted she would just go quiet, with a
knowing look. I knew what she was thinking ;"he's crazy so I'll humour him".
LOL.

Signature

Tumbleweed

Remove my socks for email address

RoseB - 16 Mar 2004 22:11 GMT
Thanks Tumbleweed:
You have given me some good advice for things that are going missing
now. Unfortunately she is dwelling on things that (never) happened in
the past. LOL
Her latest has been that my eldest sister was asking for money at
Christmas time. I keep telling her that it is March, why worry now
about what happened months ago.
Thanks again.
Rose
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Tumbleweed - 17 Mar 2004 07:48 GMT
> Thanks Tumbleweed:
> You have given me some good advice for things that are going missing
[quoted text clipped - 7 lines]
> @}>-->>>
> Please remove "Ima" to reply privately!

The toughest thing about this disease is that there may not be an answer to
this situation other than the passing of time.

Signature

Tumbleweed

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Greg - 20 Mar 2004 16:56 GMT
> > My sisters and I are concerned that my mother has AD. Although she has
> > not yet been assessed, we have concerns not so much about memory
[quoted text clipped - 68 lines]
>
> Remove my socks for email address

All true. I went through it all with my mother, delusions, false beliefs.
She's in month #2 taking Aricept (not cheap)
and for now at least that no longer occurs. The medicine is working very
well. She remembers to take it herself,
called me at work when she ran out asking me to pick up a refill.

I'm still kind of new here but most OLDe VETS here seem to agree
that it's best for your mother's sake not to try to convince her that her
reality is not what it is
(unless her belief is destructive or dangerous) but rather as Tumbleweed
says,  go along with them .. the ultimate
goal being to make your mother if not happy at least content.  Hopefully
your mother
has some other condition that can cause the dementia.  That's entirely
possible.
RoseB - 20 Mar 2004 18:44 GMT
I'm still kind of new here but most OLDe VETS here seem to agree
>that it's best for your mother's sake not to try to convince her that her
>reality is not what it is
[quoted text clipped - 4 lines]
>has some other condition that can cause the dementia.  That's entirely
>possible.

It's just difficult to agree that someone is a thief when they are
not, and she is fixated on the idea that my oldest sister is a
mulitmillionaire, wile at the same time stealing from us all.
That seems to be the major part of the delusion.

I hope that you are correct.
My middle sister (who is a nurse) does not see it as AD because there
is no memory impairment, and except for this one issue, my mother
seems to manage fine.
Thanks for your words.
Rose
@}>-->>>
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Dennis P. Harris - 20 Mar 2004 19:06 GMT
> My middle sister (who is a nurse) does not see it as AD because there
> is no memory impairment, and except for this one issue, my mother
> seems to manage fine.

has she had tests that show no memory impairment, or is it that
no impairment is *evident*?  i would suspect the latter.  for the
delusions, ask her doc to try risperdol.  if it's too much you
can always taper her back off it.  and it does take a couple of
weeks to really take effect and stop the delusions.
Evelyn Ruut - 20 Mar 2004 19:11 GMT
> It's just difficult to agree that someone is a thief when they are
> not, and she is fixated on the idea that my oldest sister is a
[quoted text clipped - 9 lines]
> @}>-->>>
> Please remove "Ima" to reply privately!

I think that alzheimers among other diseases sometimes brings out a lot of
psychological junk from the "basement" of the consciousness.

One person who used to post here was astonished when his mother in law
suddenly developed a delusion that he had sexually assaulted her.   Needless
to say, he hadn't, but it was sufficiently disturbing to him that she was
placed in a facility ASAP after that.   No one could blame the man, this
sort of ranting could have caused him unbelievable legal problems, before
anyone could figure out that she was suffering from delusions.  His wishing
to avoid such a scenario was certainly understandable.

My father, who doesn't have AD in the least (at the age of 91) has always
reshuffled his memories rather conveniently.   Anything "naughty" that
either my sister or I ever did, was automatically assigned to me.   Anything
"good" or constructive or cute, was automatically assigned to my sister.
Correcting him on any of it never did a bit of good.

I became the epitome of "evil" and she became the epitome of "good" in his
mind and this has been nearly a lifelong mental habit.... one commented on
often to me privately by my mother.

When he was ill last fall with impaired circulation to his brain, these
strange deluded stereotypes became extremely evident in his consciousness,
and he suddenly became wildly abusive to me without cause, accusing me of
all sorts of nefarious crap, when I had done absolutely nothing to bring
this about.

At one point, I sat in shocked and astonished silence listening to this
tirade of unbelievable abuse and imaginings.... as he screamed about me to
my brother while my brother was on the phone with me at that time.   It was
like he was dumping out the contents of a totally deluded and hate filled
mental "basement".

Fortunately he is OK now and we are again on friendly terms, but now that I
know what is deep down in that psyche, I am never, ever going to quite feel
the same about him, ever again.

So anything you see and hear from a person with Alzheimers or even other
illnesses that affect the brain like my father's clogged artery did, don't
be too surprised.

We all have our dark and deluded corners of the mind.   When the mind begins
to deconstruct with an illness like that, you never know what might come up.

Signature

Evelyn

(To reply to me personally, remove sox)

Tumbleweed - 20 Mar 2004 19:32 GMT
> I'm still kind of new here but most OLDe VETS here seem to agree
> >that it's best for your mother's sake not to try to convince her that her
[quoted text clipped - 15 lines]
> is no memory impairment, and except for this one issue, my mother
> seems to manage fine.

Has she been checked on the MME? Get her to take the clock test, you could
do that at home easily*.

IME failing memory can lead to delusions like this. After all, if you had
some money missing from your house, and you _knew_ that you hadnt put it
anywhere, and you _knew_ that it went missing after a relative visited, then
there are only two rational conclusions you can come to ;
One is that you are losing your marbles, the other is that the relative is a
thief.

If your mindset is such that you can't accept the former, probably it doesnt
even occur to you, the latter is the only possibility. There is an
interesting psychology book I've just been reading about how people will
fool themselves, sometimes to ridiculous lengths, such as the people with
paralysed arms (due to strokes) who deny there is anything wrong with their
arm, will even say they have lifted something up with it when asked to, even
when they havent and even when they couldnt.

The mind is strange thing and as bits of it fail, the conclusions it draws
can be bizzarre even if consistent within what it knows.

BTW, maybe agreeing your sister is a thief isnt such a good idea, how about
telling her the item or money was put away for safe keeping? "oh yes we
found taht on the floor and took it home to keep it safe". If she asks for
it back, say you'll bring it round next time. If she really does have Az
chances are she'll never ask where it is when you do visit. Some people call
this 'loving deception' I call it lying but its often necessary you'll
probably have to get more adept at it until she gets worse.

She really also ought to be checked out properly (sorry, I cant remember
(!!!) if she has been), there are some  dementia conditions (rare) where
cures are possible, and if it is Az the sooner you start something like
Aricept the better.

Good luck

Signature

Tumbleweed

* Clock test. Draw a circle, ask her to put in the numbers and then make the
clock show 10 past 11.
(AFAICR you arent supposed to use the word 'hands' just say something like
'now make it so it shows 10 past 11.)  Also you can try other aspects of the
test such as 'fold this piece of paper  in half, put it on the floor, then
pick it up and put it on the table'.  How she performs on simple tests like
this may be an eye opener even if she can remember soemething that happened
in 1962 in excruciating detail! The MME is available on the web.

Remove my socks for email address

Mary Gordon - 21 Mar 2004 03:58 GMT
Rose, if your sister isn't looking for signs of memory impairment and
if your mother is good at covering up her deficits, it is entirely
possible your mother IS  impaired, and some detective work would
reveal it.

It makes you entirely ashamed of yourself when you first get
suspicious enough to start checking. Its like always having enjoyed
perfect trust in your marriage, and suddenly getting to the point
where you start going through your husband's pockets or credit card
statements looking for evidence of infidelity. Just to think the
thought makes you feel sick and guilty - its that taboo about snooping
into the hidden spots of people's lives, particularly when we've
always trusted them, and had respect for them.

When we have a chat with our loved one (particularly a parent), most
of the time we exchange pleasantries but we don't then turn around and
check everything we might have been told for factual accuracy. We take
what we are told as true. If your mother says she had a visit from her
sister last week, you don't immediately call the sister to confirm the
visit actually happened. When your mother says she goes to church you
don't call the pastor to make sure she's actually going every Sunday
and showing up on time. If she says she had a bath, you don't go into
the bathroom and feel the towel to see if its wet. You assume she is
telling you the truth, and you assume she is fine - because she SEEMS
fine due to her personality being intact and because you want her to
be fine, and not because you have concrete evidence she IS fine.

You could have yacked on the phone with my mother in law on a daily
basis in the first years of her illness and never realized there was
anything wrong with her - and the fact she was so good at empty chit
chat fooled most of her friends for a very long time.

A typical conversation with my MIL would cover about zero in terms of
factual information. She was a lovely lady, but not well educated, had
not worked outside the home since her marriage, and was a real
homebody  - so our discussions were almost always domestic and family
related. Its not like we were debating politics  or ethics with her,
and thus in a position to detect a slip in her ability to put coherant
logic together. She would say something about the weather , ask how we
were or how work was going, comment on some dish her mother used to
make, invite us to come over, talk about getting her hair done, or
what she thought of the local Walmart, tell a story about something
that happened 40 years ago etc. etc. None of what we ever talked about
required her to have a firm grasp on her memory for recent events -
and when there WAS a slight lapse, she'd immediately do a plausable
"save" by saying something like "oh silly me, of course you told me
that".

Until we got really suspicious, and actually caught her in some major
slips (saying she'd done something when we KNEW she couldn't have) we
never bothered to check - and then we started to see the signs and
couldn't believe we'd been so blind. She'd say everything was fine
with her finances and be insulted you'd even ask, but if you rummaged
around while she was in the bathroom, you'd find evidence of unpaid
bills, jumbled papers, bounced checks, muddled bookkeeping.  She say
she'd called the doctor, but the receptionist would say the office
hadn't heard from her in a month. If you asked her about the housework
or the laundry, she'd act as though her routines were the same as
always - even if you could SEE that her clothing was dirty and the
apartment needed a good clean.

I suspect that part of it is that since people with early AD sometimes
can't recall things, they tell you what they believe to be true - they
are quite sincere, which makes their stories even more believable to
an unsuspicious person. So if they've always done laundry or banking
on Monday, if you ask them on Wednesday and they can't recall
specifically, they'll assume they must have done, be quite adament
about it, and think you are dopey for asking.

Our family doctor is a very astute guy - he was also her doctor. He is
extremely perceptive, and also very chatty, and asks lots of questions
- which is probably why he's so good at picking up on subtle
undercurrents. My mother in law saw him quite regularly - at least
monthly and usually more often - and he had NO idea until we raised it
with him that there was the slightest thing wrong with her. The
ability to carry on a social conversation can cover deficits quite
effectively, quite far into the illness.

Mary G.
Mary Gordon - 21 Mar 2004 03:58 GMT
Rose, if your sister isn't looking for signs of memory impairment and
if your mother is good at covering up her deficits, it is entirely
possible your mother IS  impaired, and some detective work would
reveal it.

It makes you entirely ashamed of yourself when you first get
suspicious enough to start checking. Its like always having enjoyed
perfect trust in your marriage, and suddenly getting to the point
where you start going through your husband's pockets or credit card
statements looking for evidence of infidelity. Just to think the
thought makes you feel sick and guilty - its that taboo about snooping
into the hidden spots of people's lives, particularly when we've
always trusted them, and had respect for them.

When we have a chat with our loved one (particularly a parent), most
of the time we exchange pleasantries but we don't then turn around and
check everything we might have been told for factual accuracy. We take
what we are told as true. If your mother says she had a visit from her
sister last week, you don't immediately call the sister to confirm the
visit actually happened. When your mother says she goes to church you
don't call the pastor to make sure she's actually going every Sunday
and showing up on time. If she says she had a bath, you don't go into
the bathroom and feel the towel to see if its wet. You assume she is
telling you the truth, and you assume she is fine - because she SEEMS
fine due to her personality being intact and because you want her to
be fine, and not because you have concrete evidence she IS fine.

You could have yacked on the phone with my mother in law on a daily
basis in the first years of her illness and never realized there was
anything wrong with her - and the fact she was so good at empty chit
chat fooled most of her friends for a very long time.

A typical conversation with my MIL would cover about zero in terms of
factual information. She was a lovely lady, but not well educated, had
not worked outside the home since her marriage, and was a real
homebody  - so our discussions were almost always domestic and family
related. Its not like we were debating politics  or ethics with her,
and thus in a position to detect a slip in her ability to put coherant
logic together. She would say something about the weather , ask how we
were or how work was going, comment on some dish her mother used to
make, invite us to come over, talk about getting her hair done, or
what she thought of the local Walmart, tell a story about something
that happened 40 years ago etc. etc. None of what we ever talked about
required her to have a firm grasp on her memory for recent events -
and when there WAS a slight lapse, she'd immediately do a plausable
"save" by saying something like "oh silly me, of course you told me
that".

Until we got really suspicious, and actually caught her in some major
slips (saying she'd done something when we KNEW she couldn't have) we
never bothered to check - and then we started to see the signs and
couldn't believe we'd been so blind. She'd say everything was fine
with her finances and be insulted you'd even ask, but if you rummaged
around while she was in the bathroom, you'd find evidence of unpaid
bills, jumbled papers, bounced checks, muddled bookkeeping.  She say
she'd called the doctor, but the receptionist would say the office
hadn't heard from her in a month. If you asked her about the housework
or the laundry, she'd act as though her routines were the same as
always - even if you could SEE that her clothing was dirty and the
apartment needed a good clean.

I suspect that part of it is that since people with early AD sometimes
can't recall things, they tell you what they believe to be true - they
are quite sincere, which makes their stories even more believable to
an unsuspicious person. So if they've always done laundry or banking
on Monday, if you ask them on Wednesday and they can't recall
specifically, they'll assume they must have done, be quite adament
about it, and think you are dopey for asking.

Our family doctor is a very astute guy - he was also her doctor. He is
extremely perceptive, and also very chatty, and asks lots of questions
- which is probably why he's so good at picking up on subtle
undercurrents. My mother in law saw him quite regularly - at least
monthly and usually more often - and he had NO idea until we raised it
with him that there was the slightest thing wrong with her. The
ability to carry on a social conversation can cover deficits quite
effectively, quite far into the illness.

Mary G.
RoseB - 21 Mar 2004 05:55 GMT
Thanks Mary.
I agree with what you are saying. Right at this moment she is still
pretty much homebound following her hip replacement.
Conversations are pretty mundane, except when they focus on the
stealing issue. That was the trigger that started us thinking
something else was going on.
We will be vigilant.
Rose
@}>-->>>
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Dennis P. Harris - 20 Mar 2004 19:03 GMT
> She's in month #2 taking Aricept (not cheap)
> and for now at least that no longer occurs. The medicine is working very
> well. She remembers to take it herself,
> called me at work when she ran out asking me to pick up a refill.

but you need to be counting the pills to be sure that when she
remembers, she doesn't remember more than once and take
overdoses.

things like divided pill boxes will work for a short while, but
eventually time gets very confused.
Evelyn Ruut - 20 Mar 2004 19:13 GMT
> > She's in month #2 taking Aricept (not cheap)
> > and for now at least that no longer occurs. The medicine is working very
[quoted text clipped - 7 lines]
> things like divided pill boxes will work for a short while, but
> eventually time gets very confused.

Yes, exactly.   It wasn't long before my mother in law was forgetting she
had taken her pill already and was doubling up on them.

We only found out when the druggist refused to fill her prescription because
she was supposed to have more than two weeks worth left, but she'd taken
them all.

Signature

Evelyn

(To reply to me personally, remove sox)

KD - 03 Apr 2004 01:49 GMT
Or look into the possilbility of Lewy Body Dementia. My Dad was recently
diagnosed with this, and one of the symptoms is that it comes and goes. I
had never heard of it before, but it's the second most common dementia to
Alzheimer's. Sometimes he's almost all right, other times he doesn't know
where he is or what he's supposed to be doing. I'm not sure if your mother
is experiencing this, but another symptom is hallucinations, seeing people,
talking about them, or even talking to them, people who aren't actually
there. My Dad has a person named Dave who comes up in conversation, but who
doesn't actually exist. But his memory is quite OK most of the time.

His paranoia is sometimes thinking that his wife and I are keeping him
somewhere against his will, but more about beliving people don't love him or
don't care. One day while my husband and I were in church, Dad and his wife
came by my house. When I didn't answer the door, his only explanation was
that i didn't love him and didn't care. The possibility that i wasn't home
wasn't an option, even when his wife tried to convince him that he was loved
and wanted.

Good thoughts and prayers are with you!

KD

> > > She's in month #2 taking Aricept (not cheap)
> > > and for now at least that no longer occurs. The medicine is working very
[quoted text clipped - 19 lines]
>
> (To reply to me personally, remove sox)
Joyce - 16 Mar 2004 21:53 GMT
I really feel for you Rose, it is not an easy situation.  What you describe is
exactly how we started with my mom ... receiving daily calls that her medications
were stolen, her hammer was stolen, her toilet paper was stolen, her purse was
stolen, her eyeglasses were stolen ... but not once was a family member accused.
There isn't an easy way to handle it.  We tried telling my mom it wasn't
happening, that she was misplacing things - this only caused a lot of resentment
towards us.  Yet I didn't want to encourage her and let her believe that there
actually was someone coming into her house.  Once her wedding ring was stolen, I
told her it wasn't possible, that she never took it off except when going to bed
so if someone truly did steal it, then they had to come into her apartment while
she was asleep.  This must have encouraged her, she then called the police and
told them that she had seen a man come into her apartment while she was in bed,
and take her ring. <sigh>  Then she started barricading the door.  She was
frightened enough that she moved, only to now swear that the thief had followed
her and had keys to each lock we replaced (we replaced them 4 times in an attempt
to comfort her).  I got into the habit of going to her rescue to find the stolen
items, purse hidden in the paper shredder, glasses hidden under the television -
that was when she stopped calling about things being stolen.  She also was much
like your mom in the fact that during the beginning of these episodes, she was
very capable of handling her finances, paying bills, cooking, whatever.  That
didn't last long though, within 6 months she asked if I could balance her
checkbook and I noticed that she didn't have a clue how to even add the deposits
or subtract the debits ... and she was a bookkeeper for many years.  I took over
her bill paying, found that she had stopped paying the bills three months prior.
6 months after that, she was placed in a nursing home - no choice.  When cleaning
her apartment, you wouldn't believe all the full bottles of meds that were found
tucked into socks, buried deep in various drawers and cabinets.  The problem was
(and I have a feeling it is the same with your mom) that mom did believe someone
was stealing things, so she hid them ... forgot where she put them which led to
more beliefs of a thief.  Kind of a vicious circle.  We did get some chuckles
though, as everything of any importance to her was buried somewhere ... like when
my dear daughter found the canister of equal shoved in a sock ... or the candy bar
inside the toaster. <G>

I'm sorry this has gotten so wordy, and not addressed anything as far as what
should you do.  If you live reasonably close, you could try to go find the item
she is currently missing - maybe it would appease her a bit.  You could tell her
it is impossible for your sister to steal these things as she doesn't live close
enough to accomplish the feat..  But she will forget you told her this anyway, and
the calls and accusations will more than likely continue.  You could try calling
her physician and talking to him - maybe he could check things out when she's in
for a routine visit.  Other than that, not too much you can do other than keep
your eyes wide open and prepare yourself.  I know each situation is different, but
yours sounds so remarkably similar to what I went through.  And the decline at
that point was quick.

Joyce

>My sisters and I are concerned that my mother has AD. Although she has
>not yet been assessed, we have concerns not so much about memory
[quoted text clipped - 41 lines]
>@}>-->>>
>Please remove "Ima" to reply privately!
RoseB - 16 Mar 2004 22:18 GMT
Thanks Joyce,
Actually your response was very good, and made me stop and think.
While Mom was hospitalized for her hip surgery, we went through and
looked for signs of anything being amiss. Her drawers, closets, etc
were very tidy. What she did have was boxes and drawers full of her
incontinence pads. We laughed and joked about it at the time as there
were so many, but this could be another example of the paranoia
associated with her incontinence.

The accusations she makes all allegedly took place in the past, either
at Christmas time or earlier in the year. She is fixated on my eldest
sister, believing that she is a "multimillionaire". LOL She alleges
that that sister begs everyone for money,in spite of being a
multimillionaire, and accuses us of giving her money. It is very
convoluted and does not make any sense. You can not dissuade her from
this position.

She did lose an item recently, and both of us had to go out in the
middle of a blizzard to find it because she believed her home care
worker had stolen it. After about an hour's search we did find the
item, and she was very surprized about its location.

I don't know. I think it will be a tough road ahead and we will need
to gird our proverbial loins.
Thanks for your thoughtful response.
Rose

@}>-->>>
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Mary Gordon - 18 Mar 2004 02:28 GMT
You might want to encourage her to put any valuables she has into
safekeeping.

I only mention this because a friend of mines mother flushed her
engagement ring down the toilet. She'd gotten a bit obsessed with
toilet flushing, and my friend was heartsick - Sandy hadn't taken it
away from her mom because she never thought in a million years she'd
flush it down, but who knows what the heck the mom was thinking.
Doubtless it made perfect sense to her at the time. i

My MIL got into wrapping items she wanted to hide in tissues - and we
did find a few valuable items wrapped that way and stuffed into the
toes of shoes etc where they could be easily lost - we took her rings
away in mid AD, promising to put them in the safety deposit box. She
was quite paranoid about losing them. Some valuable family ornaments
went "west" during my MILs illness - and all of us wish we knew what
happened to them, since it would have been nice to see them passed
down and appreciated, instead of just vanishing, poof, out of the
blue.

Mary G.
RoseB - 18 Mar 2004 04:11 GMT
>You might want to encourage her to put any valuables she has into
>safekeeping.

Good idea.
Thank you.
Rose
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Gwen Love - 17 Mar 2004 00:36 GMT
Rose, my friend, the most important thing is to get the assessment done.
Then depending on what the diagnosis is you can begin to treat the symptoms
at least.  For people who do have AD, Aricept and Memantime together have
helped some a lot.  In cases where it will do no harm, it is best to agree
with anyone who has dementia, because what their dysfunctional brain tells
them is their reality.  They can't join yours so you have to join theirs
when possible.  Since Grayson has been gone three years today I no longer
have the caregiver concerns, but I do remember them!
Gwen

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| My sisters and I are concerned that my mother has AD. Although she has
| not yet been assessed, we have concerns not so much about memory
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Dennis P. Harris - 17 Mar 2004 07:11 GMT
> We are in the process of having an assessment made. It is clear that
> something is wrong, whether it is AD or other forms of dimentia.
[quoted text clipped - 3 lines]
> is saying when it is so far from the truth. What do others do in these
> circumstances?

if you have an answering machine, be sure to keep tapes of calls
when she leaves rambling or paranoid messages, with dates and
times.  most answering machines will record during a call.  this
is assuming, of course, that such recording is legal where you
live.  it is where i live.

i know it sounds like a wierd or "sneaky" thing to do, but it
certainly helps when you're trying to convince a family member
who's in denial about her condition.

i would suggest that it's time for a follow up visit to recheck
that hip replacement, and set it up with the cooperation of
whoever did her hip, so that her/his staff simply forwards your
mother for "more assessments" to at least a geriatric
psychiatrist for a cognitive skills assessment, and probably a
neuro assessment.

if she's supposed to be taking meds, chances are that she's
either taking too little or none (forgets) or too much (forgets
that she's taken it already).

if she is diagnosed and refuses to accept a diagnosis, i
sincerely hope that she has already signed any advance directives
like durable powers of attorney and made a will some time ago.

if she hasn't, you or the doctors or a social worker will
probably have to go to court to ask the for appointment of a
guardian or conservator for her, whatever it's called by you
there to the east of me (guess where).

you need to do whatever will keep her safe.

see the FAQ at http://www.muggsmulcher.com/kstuff/a.s.a/faq.htm
RoseB - 17 Mar 2004 07:26 GMT
Thanks for your suggestions, Dennis.
The website is excellent.
Rose
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