Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Alzheimer's / March 2004

Tip: Looking for answers? Try searching our database.

Worried Dad's Starting  Another Period Of Decline

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Robert E. Lewis - 21 Mar 2004 05:31 GMT
My father still won't consider seeing a neurologist about his cognitive
impairment; others in the family have agreed to work on him when they can
come here, but that's not til summer.

He has actually been very steady since about September, with no real further
decline I've noticed. Long periods of relative stability have been usual,
with some periods of gradual decline, and three or four periods of several
weeks to a couple of months when he has very rapid decline, much more
confusion, and then he improves, but not back to the level before the period
of decline.

But this past week, I'm beginning to see a noticeable decline again.  He's
asking questions over and over - asking me a couple of times a day if I'm
going out to do some work I've already finished, asking me three times today
if I was going to see my mother (he remembers that I will be going there,
just got it stuck in his head I was going today, and not remembering when I
said I wasn't).

He seems a bit more befuddled - I'm pretty certain he got up from his chair
to get a soda this afternoon, then once he got started walking kept going
past the kitchen and into the bathroom, where he stood looking around for a
minute, closed the door, then opened it and came back out, having remembered
what he meant to do.

--
Robert
Tumbleweed - 21 Mar 2004 08:56 GMT
AFAICR you father was quite logical, have you considered documenting all
this and then proposingt o him there is an issue and if he gets seen sooner
he can have some treatment sooner? have you tried confronting him and asking
him what he's afraid of and what hes got to lose by going to see a
neurologist?
Signature

Tumbleweed

Remove my socks for email address

> My father still won't consider seeing a neurologist about his cognitive
> impairment; others in the family have agreed to work on him when they can
[quoted text clipped - 22 lines]
> --
> Robert
Robert E. Lewis - 21 Mar 2004 18:16 GMT
> AFAICR you father was quite logical, have you considered documenting all
> this and then proposingt o him there is an issue and if he gets seen sooner
> he can have some treatment sooner? have you tried confronting him and asking
> him what he's afraid of and what hes got to lose by going to see a
> neurologist?

I have.  He was a systems analyst and was very skilled in performing
statistical analyses, and I considered even making up a big chart and
confronting him with a 'Cost-Benefit' comparison of seeing a neurologist vs.
not seeing one. Obviously. there *aren't* any benefits to not seeing the
neurologist (not even cost, because it would be covered entirely by his
insurance); I think the negatives to addressing this that he imagines is
that it means he will lose his autonomy, that he will be 'declared senile'
and be humiliated.  That's not true, really, but I don't think he's
listening to answers to his fears.

I have been documenting my observations since a few months after I started
noticing lapses in his memory. I brought these up last time I confronted
him, but his reaction is that his memory problem is the result of his not
getting his B-12 shots in a timely manner, and that he is 'going to give the
B-12 a chance to work.'  The problem is that he has given himself an
open-ended waiting period - any time I press him, he can say he wants to
give the B-12 a little more time.  I am particularly recording my
observations with relation to his B-12 shots now - e.g.., a week after his
shot, one evening he had to ask me how to set the cook time on the microwave
oven (he knew how to do it at breakfast, not at dinner). But even there, he
has insisted I am mis-interpreting things with some of his other health
problems, and I think he will just refuse to listen if it's just me saying
he has a problem. There aren't enough other people seeing him enough to have
lots of concrete examples of his problems, and the others in the family
agree they need to come and have some more direct contact, so they can
better give their separate evidence, confronting him about it. But that's
going to be a couple of months away at soonest.

--
Robert
Tumbleweed - 21 Mar 2004 20:08 GMT
> > AFAICR you father was quite logical, have you considered documenting all
> > this and then proposingt o him there is an issue and if he gets seen
[quoted text clipped - 34 lines]
> --
> Robert

Bummer. And its always possible that many people confronting him might raise
paranoia. Plus you have the issue that he might forget he agreed to go even
after giving in. How about an outright lie? Fix a date for a checkup, then
tell him he agreed, so the fact that he is now saying he didnt shows the
problem? many times the way we got my dad to do things that were (of course)
to his benefit, but against his wishes, were by lies.

Signature

Tumbleweed

Remove my socks for email address

Robert E. Lewis - 22 Mar 2004 21:07 GMT
<snip>

> > ... The problem is that he has given himself an
> > open-ended waiting period - any time I press him, he can say he wants to
> > give the B-12 a little more time.  I am particularly recording my
> > observations with relation to his B-12 shots now - e.g.., a week after his
> > shot, one evening he had to ask me how to set the cook time on the
> > microwave oven (he knew how to do it at breakfast, not at dinner).

> >  ... But even there, he
> > has insisted I am mis-interpreting things with some of his other health
> > problems, and I think he will just refuse to listen if it's just me saying
> > he has a problem. There aren't enough other people seeing him enough
> > to have lots of concrete examples of his problems, and the others in the
family
> > agree they need to come and have some more direct contact, so they can
> > better give their separate evidence, confronting him about it. But that's
> > going to be a couple of months away at soonest.

> Bummer. And its always possible that many people confronting him might raise
> paranoia.

Ture, but at least he can't say that everyone else is exagerrating or making
up his deficits; I really do think he will give in if his daughter and
sister are saying the same things.

>Plus you have the issue that he might forget he agreed to go even
> after giving in.

What he is more likely to do is to agree and then try to back out later. If
I've got 'witnesses' in the rest of the family and insist he gives his word,
I hope his sense of self-respect won't let him break his word in front of
other people (and the family will remind him if he forgets)

>How about an outright lie? Fix a date for a checkup, then
> tell him he agreed, so the fact that he is now saying he didnt shows the
> problem? many times the way we got my dad to do things that were (of course)
> to his benefit, but against his wishes, were by lies.

I don't think he's far enough into the dementia that we could slip a lie
past him yet.  And if he does figure out I/we are lying to him about doctor
appointments, it would really set of his paranoia, and he might believe we
were making things up to have him declared incompetent.

Still.. very frustrating.  he asked me three times so far today if I was
going out to do some work I'd already told him the weather wouldn't permit.

Thanks.

--
Robert
Evelyn Ruut - 23 Mar 2004 01:44 GMT
> <snip>
>
[quoted text clipped - 52 lines]
> --
> Robert

Robert, I hate to say it, but be prepared to see some degree of paranoid
stuff down the road anyway.   It happens quite often with this illness, and
it is no wonder.   Things happen but they don't remember them.   Things
move, disappear, and they don't remember moving them or giving them up.   It
is just a logical conclusion that they feel as though people are "against"
them, or stealing from them, or ganging up on them, or tricking them.

My mother in law insisted repeatedly that we were.... "trying to make (her)
out to be crazy" was how she put it.    I remember her coming home from
daycare and saying how "those people are all crazy" and that she didn't need
to go to a place like that.   Now she has progressed in a mere three years
to where she is now just like many of "those people" she referred to.

The young fellow who works there is .....about fortyish or so.   Ida had a
sort of a "crush" on him.   She would flirt with him like crazy and follow
him around the daycare center asking him to take her home and whatever.
Every day she would dress carefully and put on lipstick and jewelry to look
nice for him.   Now she is way past that.   Somehow it never occurred to her
that the guy she was flirting with was young enough to be her grandson!

I remember how difficult those days were, when we tippy toed around her
illness, because she didn't understand what was happening to her.   It was a
constant guessing game of how to get through each day, tippy toeing around
her deficits, with loving deceptions and putting her off the various hot
topics to keep her on an even keel each day.

She was a great deal more cognizant then.
Signature

Evelyn

(To reply to me personally, remove sox)

 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2009 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.