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Medical Forum / Diseases and Disorders / Alzheimer's / March 2004

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denial

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Holly S - 14 Mar 2004 04:09 GMT
Hey Everyone,
  Thanks for your welcomes. I think it was Bob who said there's nothing
going on. Well, I can use some help.
  My father is a month from 90. Although he is in a memory unit, I ee
him and my mother daily and/or bring them to my house. I keep finding
things that show he has "the other kind of AD" The kind that isn't
horrible. It only exists in my mind.
   He has no idea of directions  - he's always been so darn quiet it's
hard to tell what's lost. He still knows my mom and me and husband. he
has learned his own way to the bathroom i my house (learning a new
skill). He knows his room is 222 at the residence is 222. If my mom is
going to the doctor, he wants to go with us. He can do puzzles although
he thinks it's stupid. Tonight he said he wished everyone would stop
doing things for him. I told him it's because he's so cute. He laughed
at that.
  Rambling, right?   He has had sundown episodes and wandered, and
there's no mistaking that.
   He's on Reminyl and that has helped. Now he can watch tv. After
hearing the dreadful things about AD (and I know intellectually the time
will come that is dreadful unless pneumonia doesn't come first) But was
anyone else surprised at how much of the LO was left? He's still the
core person and can hug me and say, God Bless -What would have I have
done without you on this earth? Geriatrician said Moderate stage - but
it's late according to the symptom list about what he's aware of in the
world. Only officially diagnosed a year ago. Up to that time we were
told it was mii strokes.
    I do feel like I know many of you. It seems like someone right now
just keeps posting to themselves. When I see that column, I don't bother
to open.
Thanks!
Holly
OcnGypZ - 14 Mar 2004 04:55 GMT
>Subject: denial

Holly.... You just never know how the brain is going to function one day from
the next.
My father could identify my voice over the phone, but if I walked into the unit
and stood right in front of him.. he didn't know who I was.

He always remembered his name, address and telephone number.  But he couldn't
tell you how old he was.. if he was married.. if he had any children.. if you
asked.

Babette
Mare - 16 Mar 2004 16:52 GMT
Hi Holly,
I recognize myself in everything you say. I keep hoping in little
ways these days. My sister and I notice when Mom has a "good"
day(s) and it really seems she's not as sick as we know she is. I
love these moments and hang around her longer when they happen.
Relish those moments.
Signature

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

> Hey Everyone,
>    Thanks for your welcomes. I think it was Bob who said there's nothing
[quoted text clipped - 27 lines]
> Thanks!
> Holly
Greg - 24 Mar 2004 01:03 GMT
All so strange. Wonderful group here and when Holly says her Father can do
puzzles .. i
t  kind of brings it all home ..  that dealing with AD  is an art, not a
science .. kind of like we're all in the old
west wondering what's around the next mountain as our wagon train keeps
heading
into uncharted territory.    Holly, I'm the one that keeps going  "thank
you" every 10 seconds.
I'm not a newbie anymore but I've learned a lot here. Some things I did not
want to know but
then again, .. just hang around, you'll see.

> Hi Holly,
> I recognize myself in everything you say. I keep hoping in little
[quoted text clipped - 61 lines]
> > Thanks!
> > Holly
Darryl - 24 Mar 2004 02:42 GMT
>All so strange. Wonderful group here and when Holly says her Father can do
>puzzles .. it  kind of brings it all home ..  that dealing with AD  is an art, not a
>science .. kind of like we're all in the old west wondering what's around the
>next mountain as our wagon train keeps heading into uncharted territory.    

Great analogy, Greg!  

Darryl.
Holly S - 24 Mar 2004 10:10 GMT
Greg
All so strange. Wonderful group here and when Holly says her Father can
do puzzles .. it kind of brings it all home .. that dealing with AD is
an art, not a science

Yes! Exactly, witnessing and trying to speak AD is an art. I finally
realized what truly confounds me. It's not what my dad can or can't do.
I'm thrilled daily, anytime I see true joy. But what they don't mention
in the stages is how the LO relates to us. My dad still hugs me and
calls me my nickname, just as he has all my life (maybe more intensely.)
He hugs my mom and tells her she's beautiful. And he shakes my husband's
hand and tells him he has a good shake and once, miraculously, he told
him personally tat this (my house) was the closest he felt to being
home.
By all accounts, he is frighteningly in the next to last stage. But his
spirit is surviving! We're all just taking it one day at a time. Right?
Holly
 
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