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Medical Forum / Diseases and Disorders / Alzheimer's / December 2004

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need chearing up

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JULIAN HALES - 21 Feb 2004 00:07 GMT
Hi all

Just got back from a nasty visit to my granddads, it wasnt him but his
son(my real father) and his wife.

It got really ugly, but then it always has so i avoid them, but around my
granddad i wont stand for it, my granddad stuck up for me and would do to
the death, i really so much wanted to hit my real dad and his wife, she was
pure evil and told me to keep out of his life, they accused me of stealing
?18,000 over the past couple of years etc, i found out months ago he was
losing money, and that they took over his finaces, my real father admitted
he was no good as a father to me and he hated me, that wasnt new, but to
throw it up infront of my granddad was horrible, his wife is much worse,
granddad said i was his grandson and could do anything he wanted for me and
i was looking after him and they should be nice to me.  They said all i
wanted was his car, which isnt true as i have my own and my granddads car
isnt worth much, but in great condition for age and type and reliable. They
said i should stand on my 2 own feet, ok yes i have always let my granddad
do things, he likes gardening, diy etc and i hate it, hes still fit and
strong and happy too, they said i was a burden to him and my late nan, it
was always them who bailed me out, like when i lived abroad and had
everything stolen it was them who sent cash over, and arranged a flight for
me, even picked me up with my nan having made sandwiches and a flask of tea,
other times too as i was growing up but that taught me the value of family.
My real father hasnt seen his grandkids, i dont want him too, i dont if he
knows but he hasnt mentioned that in years.

I have litterally fought my father before, many years ago and it was my
granddad who dragged me off, i think i was about 21 and finnaly found out
the truth about the legal stuff when i was a kid and my grandparetns got
legal custody of me and he was glad to get rid of me.

My granddad is the most wonderful man in the world, thats just not me saying
that but everyone who knows him, i just feel like im letting him down.

I have come to one decision tonight, im selling all my animals, and all the
hobby stuff i have collected over the years so he can move in in a instant
should that be soon.

Sorry about rambling on, tonight i have been through the hatered, crying
part and needed to get it off my chest.

I know a lot of you were worried that it seemed a while ago i was drinking a
lot, well on teh way home i called in at the supermarket for some dog food
and walked right by the booze, was tempted must admit, but thats not the way
to help my granddad.

Oh, when i picked the dog up this afternoon granddad was telling me how they
had a nice walk in the park in the morning, Arthur loves a paddle in the
stream and barking at other dogs.

Hope everyone is ok.
Songbird - 21 Feb 2004 03:10 GMT
Sounds like a nasty evening all around, Julian, but good for you for
realizing you need to keep yourself sober and together for your granddad.
Hope tomorrow is a better day.

Songbird

> Hi all
>
> Just got back from a nasty visit to my granddads, it wasnt him but his
> son(my real father) and his wife.
Gwen Love - 21 Feb 2004 05:11 GMT
Julian, that must have been hard on you and your granddad.  Sorry you had
to go through it.  So proud of you for passing up the booze; you are right,
that isn't the way to help your granddad.
Gwen

Signature

=============================================================
A man's character is like a fence. It cannot be strengthened by whitewash.
=============================================================

| Hi all
|
[quoted text clipped - 48 lines]
|
| Hope everyone is ok.
Greg - 21 Feb 2004 09:20 GMT
I'm new to all this .. I take it your grand has alz.
good vent though you had. Hope it made you feel better.
Life's rough as we see but .. however .. .. ok .. I'm not
in alz stage YET .. or am i??? rambling .. thinking about spongebob but NO
.. I'm ok .. you are too. thx for the post.  Just Remember that glass ..
half .. uh .. half ..

oh .. half full
OR .. half ..   : (

empty
Evelyn Ruut - 21 Feb 2004 12:58 GMT
> Hi all
>
[quoted text clipped - 48 lines]
>
> Hope everyone is ok.

Dear Julian,

I felt so bad for you when I read this post, and I really sympathize, since
my father was a mean person, much like yours when he was younger.   Julian I
hate to say this, but if your Dad is such a miserable human being, stay away
from him.   He isn't going to change.

Stay strong for your granddad, he is your REAL family.   He is going to be
needing you more as time goes on.

Those whose parent(s) have been rejecting, hateful, negative or angry often
have a hard time trying to make others understand just what life has been
like with such people.   It is a constant struggle, and you find yourself
apologizing for your very existence.   You can't win no matter what you do.
You end up in tears and angry with them, angry with yourself, and worse with
every contact!    The awful emotional upheaval and aftermath can last for
days afterwards.   Believe me I know.

They are NEVER going to suddenly change and become loving, caring parents
who support and love you.   Separate yourself from them in any way you can.
Don't even let yourself think of them as someone you can go to for comfort,
for a single minute, because they can't even grant you the space to live,
much less to comfort you or help you or even to treat you with simple
fairness.  It is a rotten deal, but it is the truth.

You have to be strong and you need to find ways to comfort yourself, support
yourself, and make your own life happy and good.   If that means staying
away from cruel and unkind people, so be it.   Be around only people who are
good to you and who respect you.   Make your own family life and your own
support system.   Make your own holidays and make your own way.   Your
father is not worth even one single tear you shed over him.

Take care of your grandfather the best you can, but avoid your father at all
costs.   It is very hard to try and be strong even for a day when there has
been a lifetime of rejection for all the time before.   Nobody understands
why it is that some parents can be so cruel or rejecting to their children,
and you aren't going to be the one to solve that mystery either.

No matter what happens, don't hit anyone.   You would end up in jail and you
could be no help to your grandfather and you don't deserve to have that
happen over such a father.  Walk away and go someplace else if you even feel
you might get that angry.   All you have gained in your own self respect and
strength can be lost in one moment.   Just walk away.

You are a good person and you love your Granddad.  That is what you need to
tell yourself, and to do the best you can for him in any way he needs you to
do.   He is your REAL family.  Stay away from people who have no good will
towards you.   Find people who DO care about you, and make your life with
them.

Believe me, I know what I am talking about.

Signature

Evelyn

(To reply to me personally, remove sox)

Robert E. Lewis - 21 Feb 2004 21:26 GMT
> > Hi all
> >
[quoted text clipped - 4 lines]
> > granddad i wont stand for it, my granddad stuck up for me and would do to
> > the death...

<snip>

> Dear Julian,
>
[quoted text clipped - 5 lines]
> Stay strong for your granddad, he is your REAL family.   He is going to be
> needing you more as time goes on.

George Burns used to say that Happiness is a large, warm, loving family....
living in another state.

I have one sister who complains that our father is so distant to her - but I
see him literally cringe when she phones, because every call from her is an
attempt to make him feel guilty and to try to wheedle money out of him.  And
actual family get-togethers are worse - several hours of watching Sis sulk
or try to pick a fight with her husband.  Dad just tries to avoid dealing
with her, meaning I'm the one who has to put off her suggestions of visits
(which she only makes when she's really desperate for money and figures
face-to-face might work where phone calls failed).

My sister occasionally offers to help with Dad, since she lives only about
90 minutes away, to give me some time off.  But the reality is I first of
all cannot count on her - the last time I took her up on an offer of help
because I needed an extra set of hands for something, she arrived four hours
late, spent another hour on a leisurely lunch, and then had plans for later
in the day that meant she could only stay another 90 minutes!  And secondly,
I can't imagine leaving her to 'babysit' our father, because I know it would
turn into her subjecting him to her guilt-trip pleas for money.

The really frustrating thing about that kind of family, at least for me as a
caregiver for my father, is of having the burden of those relatives without
getting back the support you're supposed to get from family.  When I think
about the future, and the approaching day when my father really won't be
able to be left alone for any length of time, I am really bothered by the
realization that when/if Dad has to go into a nursing home or assisted
living facility, it will probably be less because his physical needs and/or
mental decline are beyond my ability to care for him day-to-day, but because
I can't count on the one family member living within easy driving distance
to step in and give me the occasional weekend off to recuperate.

--
Robert
Evelyn Ruut - 21 Feb 2004 23:06 GMT
> > > Hi all
> > >
[quoted text clipped - 56 lines]
> --
> Robert

Robert,

You can't count on them, it is clear.

Better to make some nice quiet connection with a person you can pay for the
privilege of staying with your dad.   We have our next door neighbor, thank
goodness.... and she has been our lifesaver.

Ida is none the wiser.   She thinks the "neighbor lady" is just here because
she likes her and is hanging around to visit with her.    I have NO idea
what we would have done without her.

The former director of the local daycare center here, has formed a business
with another woman and they are in the caregiving business.   They can
arrange to have the same person come to ones home each time, to take care of
your loved one so there isn't a bunch of strangers walking in and out.   I
just spoke to this lady the other day after our Alzheimer support group
meeting.

Maybe there is something similar in your area?

They also told me of a big old victorian home where the woman takes just 5
Alzheimer patients at a time and no more.   The lady has all the help she
needs, takes only Alzheimer patients, and she gets $5000 a month to take
care of someone.    It is a home like atmosphere and supposedly the best
sort of situation.   Of course they don't take medicaid, just private pay.
With an income of $25 G's a month, it sounds like a helluva deal.

We are investigating all these different avenues right now as you know.....
but there ARE resources to look into when your Dad gets worse, down the road
a bit.

You need to keep on digging.   There is stuff out there for us, and there
are people who will work privately doing home care.
Signature

Evelyn

(To reply to me personally, remove sox)

Dennis P. Harris - 22 Feb 2004 06:37 GMT
> They also told me of a big old victorian home where the woman takes just 5
> Alzheimer patients at a time and no more.   The lady has all the help she
> needs, takes only Alzheimer patients, and she gets $5000 a month to take
> care of someone.    It is a home like atmosphere and supposedly the best
> sort of situation.   Of course they don't take medicaid, just private pay.
> With an income of $25 G's a month, it sounds like a helluva deal.

well, i'm sure they have relatively high personnel costs, and
i'll bet you would be shocked at their insurance bill!  i know
the group home operator just down the street here, with room for
6 patients, and she said that insurance was her single biggest
*fixed cost* --- bigger than the mortgage.
Evelyn Ruut - 22 Feb 2004 12:36 GMT
> > They also told me of a big old victorian home where the woman takes just 5
> > Alzheimer patients at a time and no more.   The lady has all the help she
[quoted text clipped - 8 lines]
> 6 patients, and she said that insurance was her single biggest
> *fixed cost* --- bigger than the mortgage.

I hadn't thought of that, Dennis.... yes, insurance probably is their
biggest expense.   I am sure that it is a big expense for nursing homes too.
Signature

Evelyn

(To reply to me personally, remove sox)

Robert E. Lewis - 22 Feb 2004 18:12 GMT
...

> > The really frustrating thing about that kind of family, at least for
> > me as a caregiver for my father, is of having the burden of
[quoted text clipped - 8 lines]
> > living within easy driving distance  to step in and give me the
> > occasional weekend off to recuperate.
...

> Robert,
>
[quoted text clipped - 16 lines]
>
> Maybe there is something similar in your area?

Thanks Evelyn.

From the local AD caregivers' support group meetings, I got the name of one
company that will send people out for daily care services, and one woman in
the group hires a couple of women to come help out during the week (frankly,
I think her husband belongs in a facility - she described him sometimes
being violent and having to be restrained in his wheelchair).  But they
couldn't provide any local resources for regular caregivers to come in the
way we've described.

Dad's sister has several times said she thinks he would benefit from going
to some sort of senior's 'daycare,' both to give me a break from being
'on-call' all the time, but also for the mental stimulation of being out and
doing things.  But the only local adult daycare is in a nursing home (and I
had VERY bad reports of that nursing home from people at the local AD
group) - and my aunt and sister and I all agree that my father would react
very badly to suggestions he spend time a couple of days a week in a nursing
home - that he would see it as us trying to get him used to the idea of
being in a nursing home, in preparation for moving him into it.

--
Robert
cfdmcdci@search26.com - 07 Dec 2004 08:55 GMT
http://www.zared.com/Regional/North_America/United_States/Washington,_DC/Health/
Adult_Daycare/

JULIAN HALES - 23 Feb 2004 21:04 GMT
> Dear Julian,
>
[quoted text clipped - 52 lines]
>
> (To reply to me personally, remove sox)

I havent really seen in often in 33 years, he did sort of try and make up in
96 when i invited him for my BD, didnt last long, i was lucky that i had a
great nan and granddad, some people dont even have that much family.

its been going on long enough  for me to be used to it, and not really give
it a second thought or lose sleep over it, but when my granddad is involved
or upsets him then that really gets me going.

I even tried getting close to my stepbrother years ago, same father diff
mother but that didnt work out, im so gratefull i have had the greatest
grandparents anyone could wish for, i have made, and sure i will make
mistakes again, but i know the value of trust and compassion for people from
my nan, to lower myself to my real fathers level wouldnt be respectful of my
nan, so i wont.

Thanks Evelyn, if i go a bit mad again i give you permission to give me a
virtual smack on the backside  :-)
Evelyn Ruut - 23 Feb 2004 22:48 GMT
> Thanks Evelyn, if i go a bit mad again i give you permission to give me a
> virtual smack on the backside  :-)

We have a deal, Julian...

(grinning)
Signature

Evelyn

(To reply to me personally, remove sox)

 
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