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Medical Forum / Diseases and Disorders / Alzheimer's / December 2003

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Evelyn Ruut - 27 Dec 2003 00:09 GMT
Dear friends,

Yesterday we had a nice christmas dinner and a couple hours afterwards Ida
had her first serious potty "accident."    Had to get her changed and washed
up, and everything else all cleaned up too.    Till now it has just been
pee.   I hope this is not an indication that this is going to be happening
on a regular basis.

For those of you who have dealt with incontinence issues with your loved
one, any suggestions on how to deal with this?   Today all has been OK.

Signature

Evelyn

(To reply to me personally, remove sox)

Beth - 27 Dec 2003 00:52 GMT
Pull-Ups all the time?
Beth
Evelyn Ruut - 27 Dec 2003 03:23 GMT
> Pull-Ups all the time?
> Beth

Yes, she has been wearing pull ups all the time for quite some time now, but
there has only been urinary incontinence.  Yesterday was #2.
Signature

Evelyn

(To reply to me personally, remove sox)

Kay - 28 Dec 2003 14:00 GMT
> For those of you who have dealt with incontinence issues with your loved
> one, any suggestions on how to deal with this?   Today all has been OK.

Evelyn,
I have no real words of encouragement about this situation.  I can
only tell you what we went through.  Bertie began to forget how to use
the bathroom.  She started going everywhere else.  The toilet became
her LAST choice.  I caught her trying to go in a new easy chair I had
bought for her when she first came here, and it progressed to the
point where she forgot what that urge meant and she just went
anywhere.  The last time was all over the kitchen floor. We had her in
depends by this point, but at this stage everything was diarrhea, and
she would instinctly pull the depends off.  When it got to that point
one of us just had to be with her constantly.  This was definately not
an easy stage.  But then AD isnt an easy disease.
Kay
Howard Goldstein - 29 Dec 2003 11:50 GMT
:  Dear friends,
:
:  Yesterday we had a nice christmas dinner and a couple hours afterwards Ida
:  had her first serious potty "accident."    Had to get her changed and washed
:  up, and everything else all cleaned up too.    Till now it has just been
:  pee.   I hope this is not an indication that this is going to be happening
:  on a regular basis.
:
:  For those of you who have dealt with incontinence issues with your loved
:  one, any suggestions on how to deal with this?   Today all has been OK.
:

The adult diapers are better than nothing but they don't make them in
a design the wearer cannot take off, and of course the person takes it
off which is a big problem at night.  Other things we do with dubious
results:

1. The disposable pads to go underneath the sheets (takes 3 of the
ones I get in the drugstore to cover a single full bed).  Almost saved
the mattress with these.  

2. We've found a portable toilet (really more a chamber pot with a
seat) is easier to guide the person towards than were the cramped
bathrooms.  Alas, even if it's within two steps it sometimes isn't
gotten to in time.  In our case the person's autonomous use of any
toilet is no longer happening :(

Like you I seek other suggestions but fear we've passed the point in
the AD trajectory at which there are no solutions other than
observation and cleansing.
.
Olly Mensch - 29 Dec 2003 16:00 GMT
I was reading some of the posts, and, although I am not a member of this
group, may I add my own experience - which will not be encouraging for
any caretaker.  I took care of my aging husband, when he developed
Alzheimer for three years.  He finally became totally incontinent, with
both No, 1 and No. 2.  He wore Depends; at times I would put two Depends
on him ( or the home-health aide would), but, alas, due to the
particular peculiarity of this disease, he would always pull them off
-especially at night - so that in the morning - or during the night,when
he would wake me so many times - I would find him and his bed  in a
total, pathetic mess.  Which meant one to two hours of cleaning up, and
trying to handle a non-cooperative patient.
I know of no solution in this respect; it is dreadful, really. At one
point, realizing the Depends would always come off during the night, I
would hang a urinal at the side of his hospital bed - but, he did not
know how to use it!!  I know of no other possibilities.===Olly
Boydette - 29 Dec 2003 17:36 GMT
OK this may or not be related to your situation but I did go throught a
preview of coming attractions when I had my mom here when she fell in
July and I had to bring her home after being stitched up....she was so
out of her head drunk and I dont know if the fall knocked her even more
cuckoo but I caught her using my cats litter box for a toilet....and she
missed and went all over the floor....later after she went home I found
diarahea all over the bathroom the toilet the floor everywhere....thank
god I had put an extra sheet on the new mattress cause she messed up the
bed too.....when my sister and I went over to clean their house we found
a small tub of water inside the bathtub full of my dads underwear which
was all soiled...and they were so bad we just threw them out....I know
they are losing control of themselves because of the way they treat
their bodies but it is just as gross and something I just know is gonna
get worse......God bless all of you for having the fortitude to deal
with all that....I was on my meds then so I just kinda sucked it
up...but now NO way.......B
Evelyn Ruut - 30 Dec 2003 00:16 GMT
I know
> they are losing control of themselves because of the way they treat
> their bodies but it is just as gross and something I just know is gonna
> get worse......God bless all of you for having the fortitude to deal
> with all that....I was on my meds then so I just kinda sucked it
> up...but now NO way.......B

Boydette, you have your hands full for sure.   I hope you take everybody's
advice here and take care of YOU first and foremost.   You are a person too,
and you deserve to be taken care of as well.

Be kind to yourself so you are able to deal with things when your parents
get to the point where it is obvious to everybody that they need help.

Hang in there!

Signature

Evelyn

(To reply to me personally, remove sox)

Boydette - 30 Dec 2003 02:50 GMT
Awww that was sweet Evelyn...TY
Evelyn Ruut - 30 Dec 2003 00:12 GMT
Thanks to all who have replied......

It doesn't sound much like something to look forward to. :-(

We have a plastic sheet over the mattress and then a substantial but
washable mattress pad, then the sheets.   Fortunately this is working out
well.   If we get a wet bed, it is just one big washload with the mattress
pad and the sheets and I have backup linen ready.

We are using Depends 24/7 now and she definitely has one or two wet ones per
night, but every now and then we get a dry night.   Only rarely does she
have an accident during the day, but it has happened on occasion, especially
if she dozes off for a while.

So far there have only been a couple of #2 accidents.

Someone posted here a while ago about a sort of a "jumpsuit" type garment
that zips up the back that they cannot get off by themselves.   We aren't
that far along in the "game" yet but I can foresee this might be necessary
oneday.    So far we are just keeping up with the accidents when they happen
and changing clothes or nighties when needed.

I guess it is just a case of doing your best and hoping for the best.....

Thanks again.
Lee - 30 Dec 2003 03:32 GMT
I can hardly wait ..... not

We've just started with accidents ... although hygeine has been an issue for
a while

*sigh*

> Thanks to all who have replied......
>
[quoted text clipped - 21 lines]
>
> Thanks again.
Mare - 31 Dec 2003 00:28 GMT
Hi Evelyn,
I know you are diabetic so might have some of those sugar free
Jell-O/pudding cups or some such around the house. The sweetener
used to...ummm.... clean my Mom out if she had one to many. Might
keep an eye on that. Also lactose intolerance comes to mind as a
maybe cause. If it isn't one of those try the routine thing. I
would take Mom to the bathroom every couple of hours to make sure
she was empty (except at night since that was close to
impossible). She was pretty regular so I would also sit with her
in the bathroom and chat so she would have time to do whatever
she needed to. Sometimes I would give her a warm drink of water
to help the process;~) There is also a regiment to try to get
someone to go at the same time daily or at least right after the
laxative is given. Check the Washington U list archives. Geri
describes it very well. Of course it would have to be approved by
a Dr. I never needed those jumpsuits but they might be something
to look into. Would Ida wear them to bed?

I think that it just might be time that Ida is not left alone at
all. The clean up process just isn't worth it. We did lots of
showers when it first started happening. Not even to just watch
TV by herself. For the last few years Mom was at home she was
never alone except while sleeping and even then I had a baby
monitor to hear her moving around. That way we could keep her
from falling, leaving, getting into things etc and pretty much
pick up on any forewarning of things happening. She also needed
the comfort of having someone within her sight at all times. I
don't think 1 person can do it but you and Peter would probably
be able to manage it.
--

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

I used to have a handle on life...but it broke off

> Dear friends,
>
[quoted text clipped - 11 lines]
>
> (To reply to me personally, remove sox)
Sandra - 31 Dec 2003 15:27 GMT
Evelyn, for your sake and hers put the diapers on her,,,they don't stop
everything but help.I used the tabe type,easy on easy off. spoke softly
and just said were going to try these......some times he tore them up
but they were helpful [put underwear over them.] Ialso tried to have a
potty schedule,not always 100% BUT BETTER THEN THE CLEANING messes.[they
don't always go,but it does work some of the time.[this was when rob was
at his most violent]...however having to shower him was even worse,guess
you just pick the easiest.[you just get so darn tired.]
sandra
Evelyn Ruut - 31 Dec 2003 15:42 GMT
Hi Sandra,

Yes, we use the diapers 24/7 now.  She does try and take them off sometimes, but we follow very closely and make her put it back on.

Signature

Evelyn

(To reply to me personally, remove sox)

 Evelyn, for your sake and hers put the diapers on her,,,they don't stop
 everything but help.I used the tabe type,easy on easy off. spoke softly
 and just said were going to try these......some times he tore them up
 but they were helpful [put underwear over them.] Ialso tried to have a
 potty schedule,not always 100% BUT BETTER THEN THE CLEANING messes.[they
 don't always go,but it does work some of the time.[this was when rob was
 at his most violent]...however having to shower him was even worse,guess
 you just pick the easiest.[you just get so darn tired.]
 sandra

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