Medical Forum / Diseases and Disorders / Alzheimer's / December 2003
she's mine
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chop - 27 Dec 2003 12:52 GMT I did a funny thing on xmas eve . . . im driving my daughter to town around 7pm in the rain and a call comes through on my business line. I have the rule of _never_ answering the phone after hrs unless I recognize the number, but I just answered it on a whim . . .
it was Friends House, a "most excellent and really hard to get into" Quaker assisted living facility, with a 3 to 5yr waiting list that we visited about 6mo ago, telling me that unbelievably, they have an opening, and I should say yes rite now because if I don't, the next one on the phone list that does say yes, gets the spot . . .
now I'll digress to 6mo ago when I was in the throes of denial and change associated with my mom's condition, I would have jumped at the chance to get her into that place, but . . . heh . . . funny thing . . . I passed it up . . .
then my daughter asks why? (she's just turned 9) I told her that even with my mom's problems and the extra work for her care . . . she's mine . . . "it would feel like leaving a baby at the doorstep of an orphanage", I told her, "I just cant do that rite now . . . heh . . . "she's mine"
it felt really good to turn it down . . . its hard to describe but im glad I have a chance to live this way for a while, before I myself get old and confused (if indeed I actually get that far)
jim
 Signature -------------------------------- if u really want to email me, click on the address below netnews.comcast.net@Pexoteric.org take a P before you click send --------------------------------
Kay - 27 Dec 2003 23:44 GMT Jim, I understand completely and I think it makes life richer to be able to feel that way. Kay
Gwen Love - 28 Dec 2003 01:03 GMT Jim, I hope my children will feel that way about me! Gwen
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx xxxxxx Christmas gift suggestions: to your enemy, forgiveness; to an opponent, tolerance; to a friend, your heart;; to a customer, service; to all, charity; to every child, a good example; and to yourself, respect.
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx xxxxx | I did a funny thing on xmas eve . . . im driving my daughter to town around | 7pm in the rain and a call comes through on my business line. I have the | rule of _never_ answering the phone after hrs unless I recognize the number, | but I just answered it on a whim . . . | | it was Friends House, a "most excellent and really hard to get into" Quaker | assisted living facility, with a 3 to 5yr waiting list that we visited about | 6mo ago, telling me that unbelievably, they have an opening, and I should | say yes rite now because if I don't, the next one on the phone list that | does say yes, gets the spot . . . | | now I'll digress to 6mo ago when I was in the throes of denial and change | associated with my mom's condition, I would have jumped at the chance to get | her into that place, but . . . heh . . . funny thing . . . I passed it up . | . . | | then my daughter asks why? (she's just turned 9) I told her that even with | my mom's problems and the extra work for her care . . . she's mine . . . "it | would feel like leaving a baby at the doorstep of an orphanage", I told her, | "I just cant do that rite now . . . heh . . . "she's mine" | | it felt really good to turn it down . . . its hard to describe but im glad I | have a chance to live this way for a while, before I myself get old and | confused (if indeed I actually get that far) | | jim | | -- | -------------------------------- | if u really want to email me, click on the address below | netnews.comcast.net@Pexoteric.org | take a P before you click send | -------------------------------- | |
Tumbleweed - 29 Dec 2003 20:22 GMT I hope mine dont, I have specifically instructed them to put me in a home if such events happen, I have no intention of ****ing up their lives for many years at a time when they should be able to relax, especially when "I" wont even be around to notice they are helping me.(if you see what I mean).
 Signature Tumbleweed
* read "****ing up" their lives in anyway you want - expletiving, constricting, complicating, screwing, dominating, overshadowing etc.
Remove theobvious before replying (but no email reply necessary to newsgroups)
> Jim, I hope my children will feel that way about me! > Gwen xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> xxxxxx > Christmas gift suggestions: to your enemy, forgiveness; to an opponent, > tolerance; to a friend, your heart;; to a customer, service; > to all, charity; to every child, a good example; and to yourself, > respect. xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> xxxxx > | I did a funny thing on xmas eve . . . im driving my daughter to town [quoted text clipped - 46 lines] > | > | Gwen Love - 29 Dec 2003 23:28 GMT Tumbleweed, my post should have explained what I was talking about. I just hope my children will feel as he did that "she's mine". I too have told my kids not to disrupt their lives by looking after me; they deserve to enjoy their own families. Gwen
====================================================== Always keep your head up but keep your nose at a friendly level. Author unknown =======================================================
| I hope mine dont, I have specifically instructed them to put me in a home if | such events happen, I have no intention of ****ing up their lives for many | years at a time when they should be able to relax, especially when "I" wont | even be around to notice they are helping me.(if you see what I mean). | | -- | Tumbleweed | | * read "****ing up" their lives in anyway you want - expletiving, | constricting, complicating, screwing, dominating, overshadowing etc. | | Remove theobvious before replying (but no email reply necessary to | newsgroups) | | | "Gwen Love" <cglghl@knology.net> wrote in message | news:vusb7smnksva97@corp.supernews.com... | > | > Jim, I hope my children will feel that way about me! | > Gwen | > | > | > | xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx | > xxxxxx | > Christmas gift suggestions: to your enemy, forgiveness; to an opponent, | > tolerance; to a friend, your heart;; to a customer, service; | > to all, charity; to every child, a good example; and to yourself, | > respect. | > | > | xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx | > xxxxx | > "chop" <nospam@sonic.net> wrote in message | > news:4gfHb.675902$Fm2.584535@attbi_s04... | > | I did a funny thing on xmas eve . . . im driving my daughter to town | > around | > | 7pm in the rain and a call comes through on my business line. I have | > the | > | rule of _never_ answering the phone after hrs unless I recognize the | > number, | > | but I just answered it on a whim . . . | > | | > | it was Friends House, a "most excellent and really hard to get into" | > Quaker | > | assisted living facility, with a 3 to 5yr waiting list that we visited | > about | > | 6mo ago, telling me that unbelievably, they have an opening, and I | > should | > | say yes rite now because if I don't, the next one on the phone list | > that | > | does say yes, gets the spot . . . | > | | > | now I'll digress to 6mo ago when I was in the throes of denial and | > change | > | associated with my mom's condition, I would have jumped at the chance | > to get | > | her into that place, but . . . heh . . . funny thing . . . I passed it | > up . | > | . . | > | | > | then my daughter asks why? (she's just turned 9) I told her that even | > with | > | my mom's problems and the extra work for her care . . . she's mine . . | > . "it | > | would feel like leaving a baby at the doorstep of an orphanage", I | told | > her, | > | "I just cant do that rite now . . . heh . . . "she's mine" | > | | > | it felt really good to turn it down . . . its hard to describe but im | > glad I | > | have a chance to live this way for a while, before I myself get old | and | > | confused (if indeed I actually get that far) | > | | > | jim | > | | > | -- | > | -------------------------------- | > | if u really want to email me, click on the address below | > | netnews.comcast.net@Pexoteric.org | > | take a P before you click send | > | -------------------------------- | > | | > | | > | > | |
Kay - 30 Dec 2003 03:54 GMT > Tumbleweed, my post should have explained what I was talking about. I > just hope my children will feel as he did that "she's mine". I too have > told my kids not to disrupt their lives by looking after me; they deserve > to enjoy their own families. > Gwen Gwen, I agree. I have told my children the same. But I think he benefits greatly by feeling that way about his mother. In retrospect, I think caring for Bertie benefited me more than it did her. There is no getting around it. It was incredibly hard. Its just that something happens to your heart in the process. I wouldn't trade that for the world. Kay
Evelyn Ruut - 30 Dec 2003 00:27 GMT > I hope mine dont, I have specifically instructed them to put me in a home if > such events happen, I have no intention of ****ing up their lives for many > years at a time when they should be able to relax, especially when "I" wont > even be around to notice they are helping me.(if you see what I mean). Me either, Tumbleweed.
If I ever even suspected I was getting this disease, first thing I would do is make sure all my affairs were in order (if I was still able) and I surely wouldn't want my children to be burdened with my care.
I think I would leave it up to them to do what they could, but I would certainly understand that everyone has a limit to what they can handle.
I know that I didn't HAVE to keep Ida here, but it worked out OK so far, mainly because she still had enough of her "marbles" to know first of all what she wanted and she (rightfully) trusted her son and me to do the right thing by her.
Caregiving has been OK for us, but if it wasn't OK for my kids, I would want them to put me somewhere safe.
But even in a nursing home, family caring for family takes the form of looking in on their loved one and making sure they have all they need and are being properly looked after. So the "mine" thing is still relevent.
 Signature Evelyn
(To reply to me personally, remove sox)
Wade - 30 Dec 2003 06:27 GMT > "I just cant do that rite now . . . heh . . . "she's mine" > [quoted text clipped - 3 lines] > > jim I've been lurking here for awhile, but this post really hit home. My mother who is 81 was always a very active woman, church socials, senior trips, etc. She developed pneumonia in early September. She was in the hospital for six days, and right before her release, the doctor recommended a 5 week stay in a rehab/nursing home, for some "occupational therapy". During her stay, I started to notice a lot of confusion, urinary and bowel incontinence, she was rapidly becoming weaker, and losing her ambulatory abilities. Although she is riddled with arthritis, and had a knee replacement in'99, I thought that this was being caused by anxiety, and stress, and that this would all pass when she returned home. I brought her home on 10/15, and she wasn't half the woman she was before the pneumonia. Being we live in a two family home, her downstairs, and myself upstairs, and me working out of my home, I did all I could to help her, being the only child, I did the laundry, my girlfriend was bringing over meals, I cleaned her house, the incontinence was a major problem, and was wearing me out. Now I was always a free spirit, nightclubs, running around, Cadillac's, fast woman, just enjoying life, this was starting to cramp my lifestyle. On 10/25 I went downstairs to check on her, and she appeared to be very sick, so I called the family doctor, and he told me to take her right to the hospital emergency room, which I did. She was once again diagnosed with pneumonia, dehydration, a gastrointestinal infection, a urinary tract infection, blood clots in her legs, and some other conditions, that I couldn't even pronounce. When I mentioned the confusion that she was experiencing, they did an echogram, and told me that at some point in her life, she had a mini-stroke. She spent another eight days in the hospital, and back to the rehab/nursing facility, I visit her daily, and have noticed an even further decline. She is due to be released on Sunday. I had a neurologist look at her, in the facility, and he prescribed Aricept. Now when I spoke to her case worker, she strongly suggested that I just spend down her money, which is not really much, we are not wealthy people, get her on Medicaid and leave her there. I served two tours of combat duty, one of which was voluntary with the Green Berets during the Vietnam war, at which time, I was injured to the point, where the state I live in considers me disabled. I took the social workers advice, sought out an elder lawyer, and had the house signed over to myself, which would not be considered during the three year look back period, because I am considered disabled, meaning the house would be mine, unconditionally. I purchased her a pre-paid funeral, which Medicaid wouldn't be able to touch either, and was prepared to let the home handle her. I felt that this woman, that I go to see daily, is not the woman that I remember as my mother, she would only cramp my life style, and be a burden. When I went to see her yesterday, as I was speaking to her, I looked deeply into her eyes, and yes this is my mother, this is the woman that cried for me, worried about me, cared for me when I was sick, nurtured me, and would have sacrificed her life for me. There is no way in hell, I could leave her there. There have been times in my life, that I have been absolutely terrified, but nothing terrifies me more than bringing her home on Sunday. But I will, and I will do my absolute best, to get her through this. She was always there for me, when I needed help, and I will do my best, to be there for her, while she needs help, because, "she is mine", she is weak, vulnerable, and irreplaceable. I apologize for the long post, but there may be times when I may need to pick someone's brain, for suggestions, help, etc. This is all new to me, my life is about to change, but I've never cowered from adversity, and I am not about to start now. This is not about me, or Uncle Sam, this is about the most important thing in my life, My Mother..... If you got this far, thank you for listening............... -Wade
> I did a funny thing on xmas eve . . . im driving my daughter to town around > 7pm in the rain and a call comes through on my business line. I have the [quoted text clipped - 22 lines] > > jim Gwen Love - 30 Dec 2003 16:58 GMT Wade, I can only wish you well. Gwen
====================================================== Always keep your head up but keep your nose at a friendly level. Author unknown =======================================================
| > "I just cant do that rite now . . . heh . . . "she's mine" | > | > it felt really good to turn it down . . . its hard to describe but im glad | I | > have a chance to live this way for a while, before I myself get old and | > confused (if indeed I actually get that far) | > | > jim | > | > -- | > -------------------------------- | > if u really want to email me, click on the address below | > netnews.comcast.net@Pexoteric.org | > take a P before you click send | > -------------------------------- | I've been lurking here for awhile, but this post really hit home. | My mother who is 81 was always a very active woman, church socials, senior | trips, etc. She developed pneumonia in early September. She was in the | hospital for six days, and right before her release, the doctor recommended | a 5 week stay in a rehab/nursing home, for some "occupational therapy". | During her stay, I started to notice a lot of confusion, urinary and bowel | incontinence, she was rapidly becoming weaker, and losing her ambulatory | abilities. Although she is riddled with arthritis, and had a knee | replacement in'99, I thought that this was being caused by anxiety, and | stress, and that this would all pass when she returned home. | I brought her home on 10/15, and she wasn't half the woman she was | before the pneumonia. Being we live in a two family home, her downstairs, | and myself upstairs, and me working out of my home, I did all I could to | help her, being the only child, I did the laundry, my girlfriend was | bringing over meals, I cleaned her house, the incontinence was a major | problem, and was wearing me out. | Now I was always a free spirit, nightclubs, running around, Cadillac's, | fast woman, just enjoying life, this was starting to cramp my lifestyle. | On 10/25 I went downstairs to check on her, and she appeared to be very | sick, so I called the family doctor, and he told me to take her right to the | hospital emergency room, which I did. She was once again diagnosed with | pneumonia, dehydration, a gastrointestinal infection, a urinary tract | infection, blood clots in her legs, and some other conditions, that I | couldn't even pronounce. When I mentioned the confusion that she was | experiencing, they did an echogram, and told me that at some point in her | life, she had a mini-stroke. | She spent another eight days in the hospital, and back to the | rehab/nursing facility, I visit her daily, and have noticed an even further | decline. She is due to be released on Sunday. I had a neurologist look at | her, in the facility, and he prescribed Aricept. | Now when I spoke to her case worker, she strongly suggested that I just | spend down her money, which is not really much, we are not wealthy people, | get her on Medicaid and leave her there. | I served two tours of combat duty, one of which was voluntary with the | Green Berets during the Vietnam war, at which time, I was injured to the | point, where the state I live in considers me disabled. | I took the social workers advice, sought out an elder lawyer, and had | the house signed over to myself, which would not be considered during the | three year look back period, because I am considered disabled, meaning the | house would be mine, unconditionally. I purchased her a pre-paid funeral, | which Medicaid wouldn't be able to touch either, and was prepared to let the | home handle her. I felt that this woman, that I go to see daily, is not the | woman that I remember as my mother, she would only cramp my life style, and | be a burden. | When I went to see her yesterday, as I was speaking to her, I looked | deeply into her eyes, and yes this is my mother, this is the woman that | cried for me, worried about me, cared for me when I was sick, nurtured me, | and would have sacrificed her life for me. There is no way in hell, I could | leave her there. | There have been times in my life, that I have been absolutely terrified, | but nothing terrifies me more than bringing her home on Sunday. But I will, | and I will do my absolute best, to get her through this. She was always | there for me, when I needed help, and I will do my best, to be there for | her, while she needs help, because, "she is mine", she is weak, vulnerable, | and irreplaceable. | I apologize for the long post, but there may be times when I may need to | pick someone's brain, for suggestions, help, etc. This is all new to me, my | life is about to change, but I've never cowered from adversity, and I am not | about to start now. This is not about me, or Uncle Sam, this is about the | most important thing in my life, My Mother..... | If you got this far, thank you for listening............... | -Wade | | | | | --- | Outgoing mail is certified Virus Free. | Checked by AVG anti-virus system (http://www.grisoft.com). | Version: 6.0.556 / Virus Database: 348 - Release Date: 12/27/2003 | | | "chop" <nospam@sonic.net> wrote in message | news:4gfHb.675902$Fm2.584535@attbi_s04... | > I did a funny thing on xmas eve . . . im driving my daughter to town | around | > 7pm in the rain and a call comes through on my business line. I have the | > rule of _never_ answering the phone after hrs unless I recognize the | number, | > but I just answered it on a whim . . . | > | > it was Friends House, a "most excellent and really hard to get into" | Quaker | > assisted living facility, with a 3 to 5yr waiting list that we visited | about | > 6mo ago, telling me that unbelievably, they have an opening, and I should | > say yes rite now because if I don't, the next one on the phone list that | > does say yes, gets the spot . . . | > | > now I'll digress to 6mo ago when I was in the throes of denial and change | > associated with my mom's condition, I would have jumped at the chance to | get | > her into that place, but . . . heh . . . funny thing . . . I passed it up | . | > . . | > | > then my daughter asks why? (she's just turned 9) I told her that even | with | > my mom's problems and the extra work for her care . . . she's mine . . . | "it | > would feel like leaving a baby at the doorstep of an orphanage", I told | her, | > "I just cant do that rite now . . . heh . . . "she's mine" | > | > it felt really good to turn it down . . . its hard to describe but im glad | I | > have a chance to live this way for a while, before I myself get old and | > confused (if indeed I actually get that far) | > | > jim | > | > -- | > -------------------------------- | > if u really want to email me, click on the address below | > netnews.comcast.net@Pexoteric.org | > take a P before you click send | > -------------------------------- | > | > | | | --- | Outgoing mail is certified Virus Free. | Checked by AVG anti-virus system (http://www.grisoft.com). | Version: 6.0.556 / Virus Database: 348 - Release Date: 12/26/2003 | |
Tumbleweed - 30 Dec 2003 18:23 GMT Good luck Wade.
 Signature Tumbleweed
Remove theobvious before replying (but no email reply necessary to newsgroups)
> > "I just cant do that rite now . . . heh . . . "she's mine" > > [quoted text clipped - 114 lines] > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.556 / Virus Database: 348 - Release Date: 12/26/2003 Mare - 31 Dec 2003 00:28 GMT Hey Wade, Glad you found us and good luck. Ask any questions you have and somebody will probably have some suggestions. --
Mare mfcoleman@THEOLEmindspring.com http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm alt.support.alzheimers' FAQs and Stuff Pages
I used to have a handle on life...but it broke off
> > "I just cant do that rite now . . . heh . . . "she's mine" > > [quoted text clipped - 127 lines] > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.556 / Virus Database: 348 - Release Date: 12/26/2003
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