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Medical Forum / Diseases and Disorders / Alzheimer's / December 2003

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she's mine

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chop - 27 Dec 2003 12:52 GMT
I did a funny thing on xmas eve . . . im driving my daughter to town around
7pm in the rain and a call comes through on my business line.  I have the
rule of _never_ answering the phone after hrs unless I recognize the number,
but I just answered it on a whim . . .

it was Friends House, a "most excellent and really hard to get into" Quaker
assisted living facility, with a 3 to 5yr waiting list that we visited about
6mo ago, telling me that unbelievably, they have an opening, and I should
say yes rite now because if I don't, the next one on the phone list that
does say yes, gets the spot . . .

now I'll digress to 6mo ago when I was in the throes of denial and change
associated with my mom's condition, I would have jumped at the chance to get
her into that place, but . . . heh . . . funny thing . . . I passed it up .
. .

then my daughter asks why? (she's just turned 9)  I told her that even with
my mom's problems and the extra work for her care . . . she's mine . . . "it
would feel like leaving a baby at the doorstep of an orphanage", I told her,
"I just cant do that rite now . . . heh . . . "she's mine"

it felt really good to turn it down . . . its hard to describe but im glad I
have a chance to live this way for a while, before I myself get old and
confused (if indeed I actually get that far)

jim

Signature

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         netnews.comcast.net@Pexoteric.org
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Kay - 27 Dec 2003 23:44 GMT
Jim,
I understand completely and I think it makes life richer to be able to
feel that way.
Kay
Gwen Love - 28 Dec 2003 01:03 GMT
 Jim, I hope my children will feel that way about me!
 Gwen

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
xxxxxx
 Christmas gift suggestions: to your enemy, forgiveness; to an opponent,
tolerance;  to a friend, your heart;; to a customer, service;
 to all, charity; to every child, a good example; and to yourself,
respect.

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
xxxxx
 | I did a funny thing on xmas eve . . . im driving my daughter to town
around
 | 7pm in the rain and a call comes through on my business line.  I have
the
 | rule of _never_ answering the phone after hrs unless I recognize the
number,
 | but I just answered it on a whim . . .
 |
 | it was Friends House, a "most excellent and really hard to get into"
Quaker
 | assisted living facility, with a 3 to 5yr waiting list that we visited
about
 | 6mo ago, telling me that unbelievably, they have an opening, and I
should
 | say yes rite now because if I don't, the next one on the phone list
that
 | does say yes, gets the spot . . .
 |
 | now I'll digress to 6mo ago when I was in the throes of denial and
change
 | associated with my mom's condition, I would have jumped at the chance
to get
 | her into that place, but . . . heh . . . funny thing . . . I passed it
up .
 | . .
 |
 | then my daughter asks why? (she's just turned 9)  I told her that even
with
 | my mom's problems and the extra work for her care . . . she's mine . .
. "it
 | would feel like leaving a baby at the doorstep of an orphanage", I told
her,
 | "I just cant do that rite now . . . heh . . . "she's mine"
 |
 | it felt really good to turn it down . . . its hard to describe but im
glad I
 | have a chance to live this way for a while, before I myself get old and
 | confused (if indeed I actually get that far)
 |
 | jim
 |
 | --
 |            --------------------------------
 | if u really want to email me, click on the address below
 |           netnews.comcast.net@Pexoteric.org
 |            take a P before you click send
 |            --------------------------------
 |
 |
Tumbleweed - 29 Dec 2003 20:22 GMT
I hope mine dont, I have specifically instructed them to put me in a home if
such events happen, I have no intention of ****ing up their lives for many
years at a time when they should be able to relax, especially when "I" wont
even be around to notice they are helping me.(if you see what I mean).

Signature

Tumbleweed

*  read "****ing up" their lives in anyway you want - expletiving,
constricting, complicating, screwing, dominating, overshadowing etc.

Remove theobvious before replying (but no email reply necessary to
newsgroups)

>   Jim, I hope my children will feel that way about me!
>   Gwen

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> xxxxxx
>   Christmas gift suggestions: to your enemy, forgiveness; to an opponent,
> tolerance;  to a friend, your heart;; to a customer, service;
>   to all, charity; to every child, a good example; and to yourself,
> respect.

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> xxxxx
>   | I did a funny thing on xmas eve . . . im driving my daughter to town
[quoted text clipped - 46 lines]
>   |
>   |
Gwen Love - 29 Dec 2003 23:28 GMT
 Tumbleweed, my post should have explained what I was talking about.  I
just hope my children will feel as he did that "she's mine".  I too have
told my kids not to disrupt their lives by looking after me; they deserve
to enjoy their own families.
 Gwen

 ======================================================
 Always keep your head up but keep your nose at a friendly level.
 Author unknown
 =======================================================

 | I hope mine dont, I have specifically instructed them to put me in a
home if
 | such events happen, I have no intention of ****ing up their lives for
many
 | years at a time when they should be able to relax, especially when "I"
wont
 | even be around to notice they are helping me.(if you see what I mean).
 |
 | --
 | Tumbleweed
 |
 | *  read "****ing up" their lives in anyway you want - expletiving,
 | constricting, complicating, screwing, dominating, overshadowing etc.
 |
 | Remove theobvious before replying (but no email reply necessary to
 | newsgroups)
 |
 |
 | "Gwen Love" <cglghl@knology.net> wrote in message
 | news:vusb7smnksva97@corp.supernews.com...
 | >
 | >   Jim, I hope my children will feel that way about me!
 | >   Gwen
 | >
 | >
 | >
 |
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
 | > xxxxxx
 | >   Christmas gift suggestions: to your enemy, forgiveness; to an
opponent,
 | > tolerance;  to a friend, your heart;; to a customer, service;
 | >   to all, charity; to every child, a good example; and to yourself,
 | > respect.
 | >
 | >
 |
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
 | > xxxxx
 | >   "chop" <nospam@sonic.net> wrote in message
 | > news:4gfHb.675902$Fm2.584535@attbi_s04...
 | >   | I did a funny thing on xmas eve . . . im driving my daughter to
town
 | > around
 | >   | 7pm in the rain and a call comes through on my business line.  I
have
 | > the
 | >   | rule of _never_ answering the phone after hrs unless I recognize
the
 | > number,
 | >   | but I just answered it on a whim . . .
 | >   |
 | >   | it was Friends House, a "most excellent and really hard to get
into"
 | > Quaker
 | >   | assisted living facility, with a 3 to 5yr waiting list that we
visited
 | > about
 | >   | 6mo ago, telling me that unbelievably, they have an opening, and
I
 | > should
 | >   | say yes rite now because if I don't, the next one on the phone
list
 | > that
 | >   | does say yes, gets the spot . . .
 | >   |
 | >   | now I'll digress to 6mo ago when I was in the throes of denial
and
 | > change
 | >   | associated with my mom's condition, I would have jumped at the
chance
 | > to get
 | >   | her into that place, but . . . heh . . . funny thing . . . I
passed it
 | > up .
 | >   | . .
 | >   |
 | >   | then my daughter asks why? (she's just turned 9)  I told her that
even
 | > with
 | >   | my mom's problems and the extra work for her care . . . she's
mine . .
 | > . "it
 | >   | would feel like leaving a baby at the doorstep of an orphanage",
I
 | told
 | > her,
 | >   | "I just cant do that rite now . . . heh . . . "she's mine"
 | >   |
 | >   | it felt really good to turn it down . . . its hard to describe
but im
 | > glad I
 | >   | have a chance to live this way for a while, before I myself get
old
 | and
 | >   | confused (if indeed I actually get that far)
 | >   |
 | >   | jim
 | >   |
 | >   | --
 | >   |            --------------------------------
 | >   | if u really want to email me, click on the address below
 | >   |           netnews.comcast.net@Pexoteric.org
 | >   |            take a P before you click send
 | >   |            --------------------------------
 | >   |
 | >   |
 | >
 | >
 |
 |
Kay - 30 Dec 2003 03:54 GMT
> Tumbleweed, my post should have explained what I was talking about.  I
> just hope my children will feel as he did that "she's mine".  I too have
> told my kids not to disrupt their lives by looking after me; they deserve
> to enjoy their own families.
>   Gwen

Gwen,
I agree.  I have told my children the same.  But I think he benefits
greatly by feeling that way about his mother.  In retrospect, I think
caring for Bertie benefited me more than it did her.  There is no
getting around it.  It was incredibly hard.  Its just that something
happens to your heart in the process.  I wouldn't trade that for the
world.
Kay
Evelyn Ruut - 30 Dec 2003 00:27 GMT
> I hope mine dont, I have specifically instructed them to put me in a home if
> such events happen, I have no intention of ****ing up their lives for many
> years at a time when they should be able to relax, especially when "I" wont
> even be around to notice they are helping me.(if you see what I mean).

Me either, Tumbleweed.

If I ever even suspected I was getting this disease, first thing I would do
is make sure all my affairs were in order (if I was still able) and I surely
wouldn't want my children to be burdened with my care.

I think I would leave it up to them to do what they could, but I would
certainly understand that everyone has a limit to what they can handle.

I know that I didn't HAVE to keep Ida here, but it worked out OK so far,
mainly because she still had enough of her "marbles" to know first of all
what she wanted and she (rightfully) trusted her son and me to do the right
thing by her.

Caregiving has been OK for us, but if it wasn't OK for my kids, I would want
them to put me somewhere safe.

But even in a nursing home, family caring for family takes the form of
looking in on their loved one and making sure they have all they need and
are being properly looked after.   So the "mine" thing is still relevent.
Signature

Evelyn

(To reply to me personally, remove sox)

Wade - 30 Dec 2003 06:27 GMT
> "I just cant do that rite now . . . heh . . . "she's mine"
>
[quoted text clipped - 3 lines]
>
> jim

       I've been lurking here for awhile, but this post really hit home.
My mother who is 81 was always a very active woman, church socials, senior
trips, etc. She developed pneumonia in early September. She was in the
hospital for six days, and right before her release, the doctor recommended
a 5 week stay in a rehab/nursing home, for some "occupational therapy".
During her stay, I started to notice a lot of confusion, urinary and bowel
incontinence, she was rapidly becoming weaker, and losing her ambulatory
abilities. Although she is riddled with arthritis, and had a knee
replacement in'99, I thought that this was being caused by anxiety, and
stress, and that this would all pass when she returned home.
   I brought her home on 10/15, and she wasn't half the woman she was
before the pneumonia. Being we live in a two family home, her downstairs,
and myself upstairs, and me working out of my home, I did all I could to
help her, being the only child, I did the laundry, my girlfriend was
bringing over meals, I cleaned her house, the incontinence was a major
problem, and was wearing me out.
   Now I was always a free spirit, nightclubs, running around, Cadillac's,
fast woman, just enjoying life, this was starting to cramp my lifestyle.
   On 10/25 I went downstairs to check on her, and she appeared to be very
sick, so I called the family doctor, and he told me to take her right to the
hospital emergency room, which I did. She was once again diagnosed with
pneumonia, dehydration, a gastrointestinal infection, a urinary tract
infection, blood clots in her legs, and some other conditions, that I
couldn't even pronounce. When I mentioned the confusion that she was
experiencing, they did an echogram, and told me that at some point in her
life, she had a mini-stroke.
   She spent another eight days in the hospital, and back to the
rehab/nursing facility, I visit her daily, and have noticed an even further
decline. She is due to be released on Sunday. I had a neurologist look at
her, in the facility, and he prescribed  Aricept.
   Now when I spoke to her case worker, she strongly suggested that I just
spend down her money, which is not really much, we are not wealthy people,
get her on Medicaid and leave her there.
   I served two tours of combat duty, one of which was voluntary with the
Green Berets during the Vietnam war, at which time, I was injured to the
point, where the state I live in considers me disabled.
   I took the social workers advice, sought out an elder lawyer, and had
the house signed over to myself, which would not be considered during the
three year look back period, because I am considered disabled, meaning the
house would be mine, unconditionally. I purchased her a pre-paid funeral,
which Medicaid wouldn't be able to touch either, and was prepared to let the
home handle her. I felt that this woman, that I go to see daily, is not the
woman that I remember as my mother, she would only cramp my life style, and
be a burden.
   When I went to see her yesterday, as I was speaking to her, I looked
deeply into her eyes, and yes this is my mother, this is the woman that
cried for me, worried about me, cared for me when I was sick, nurtured me,
and would have sacrificed her life for me. There is no way in hell, I could
leave her there.
   There have been times in my life, that I have been absolutely terrified,
but nothing terrifies me more than bringing her home on Sunday. But I will,
and I will do my absolute best, to get her through this. She was always
there for me, when I needed help, and I will do my best, to be there for
her, while she needs help, because, "she is mine", she is weak, vulnerable,
and  irreplaceable.
   I apologize for the long post, but there may be times when I may need to
pick someone's brain, for suggestions, help, etc. This is all new to me, my
life is about to change, but I've never cowered from adversity, and I am not
about to start now. This is not about me, or Uncle Sam, this is about the
most important thing in my life, My Mother.....
   If you got this far, thank you for listening...............
   -Wade

> I did a funny thing on xmas eve . . . im driving my daughter to town around
> 7pm in the rain and a call comes through on my business line.  I have the
[quoted text clipped - 22 lines]
>
> jim
Gwen Love - 30 Dec 2003 16:58 GMT
 Wade, I can only wish you well.
 Gwen

 ======================================================
 Always keep your head up but keep your nose at a friendly level.
 Author unknown
 =======================================================

 | > "I just cant do that rite now . . . heh . . . "she's mine"
 | >
 | > it felt really good to turn it down . . . its hard to describe but im
glad
 | I
 | > have a chance to live this way for a while, before I myself get old
and
 | > confused (if indeed I actually get that far)
 | >
 | > jim
 | >
 | > --
 | >            --------------------------------
 | > if u really want to email me, click on the address below
 | >           netnews.comcast.net@Pexoteric.org
 | >            take a P before you click send
 | >            --------------------------------
 |         I've been lurking here for awhile, but this post really hit
home.
 | My mother who is 81 was always a very active woman, church socials,
senior
 | trips, etc. She developed pneumonia in early September. She was in the
 | hospital for six days, and right before her release, the doctor
recommended
 | a 5 week stay in a rehab/nursing home, for some "occupational therapy".
 | During her stay, I started to notice a lot of confusion, urinary and
bowel
 | incontinence, she was rapidly becoming weaker, and losing her
ambulatory
 | abilities. Although she is riddled with arthritis, and had a knee
 | replacement in'99, I thought that this was being caused by anxiety, and
 | stress, and that this would all pass when she returned home.
 |     I brought her home on 10/15, and she wasn't half the woman she was
 | before the pneumonia. Being we live in a two family home, her
downstairs,
 | and myself upstairs, and me working out of my home, I did all I could
to
 | help her, being the only child, I did the laundry, my girlfriend was
 | bringing over meals, I cleaned her house, the incontinence was a major
 | problem, and was wearing me out.
 |     Now I was always a free spirit, nightclubs, running around,
Cadillac's,
 | fast woman, just enjoying life, this was starting to cramp my
lifestyle.
 |     On 10/25 I went downstairs to check on her, and she appeared to be
very
 | sick, so I called the family doctor, and he told me to take her right
to the
 | hospital emergency room, which I did. She was once again diagnosed with
 | pneumonia, dehydration, a gastrointestinal infection, a urinary tract
 | infection, blood clots in her legs, and some other conditions, that I
 | couldn't even pronounce. When I mentioned the confusion that she was
 | experiencing, they did an echogram, and told me that at some point in
her
 | life, she had a mini-stroke.
 |     She spent another eight days in the hospital, and back to the
 | rehab/nursing facility, I visit her daily, and have noticed an even
further
 | decline. She is due to be released on Sunday. I had a neurologist look
at
 | her, in the facility, and he prescribed  Aricept.
 |     Now when I spoke to her case worker, she strongly suggested that I
just
 | spend down her money, which is not really much, we are not wealthy
people,
 | get her on Medicaid and leave her there.
 |     I served two tours of combat duty, one of which was voluntary with
the
 | Green Berets during the Vietnam war, at which time, I was injured to
the
 | point, where the state I live in considers me disabled.
 |     I took the social workers advice, sought out an elder lawyer, and
had
 | the house signed over to myself, which would not be considered during
the
 | three year look back period, because I am considered disabled, meaning
the
 | house would be mine, unconditionally. I purchased her a pre-paid
funeral,
 | which Medicaid wouldn't be able to touch either, and was prepared to
let the
 | home handle her. I felt that this woman, that I go to see daily, is not
the
 | woman that I remember as my mother, she would only cramp my life style,
and
 | be a burden.
 |     When I went to see her yesterday, as I was speaking to her, I
looked
 | deeply into her eyes, and yes this is my mother, this is the woman that
 | cried for me, worried about me, cared for me when I was sick, nurtured
me,
 | and would have sacrificed her life for me. There is no way in hell, I
could
 | leave her there.
 |     There have been times in my life, that I have been absolutely
terrified,
 | but nothing terrifies me more than bringing her home on Sunday. But I
will,
 | and I will do my absolute best, to get her through this. She was always
 | there for me, when I needed help, and I will do my best, to be there
for
 | her, while she needs help, because, "she is mine", she is weak,
vulnerable,
 | and  irreplaceable.
 |     I apologize for the long post, but there may be times when I may
need to
 | pick someone's brain, for suggestions, help, etc. This is all new to
me, my
 | life is about to change, but I've never cowered from adversity, and I
am not
 | about to start now. This is not about me, or Uncle Sam, this is about
the
 | most important thing in my life, My Mother.....
 |     If you got this far, thank you for listening...............
 |     -Wade
 |
 |
 |
 |
 | ---
 | Outgoing mail is certified Virus Free.
 | Checked by AVG anti-virus system (http://www.grisoft.com).
 | Version: 6.0.556 / Virus Database: 348 - Release Date: 12/27/2003
 |
 |
 | "chop" <nospam@sonic.net> wrote in message
 | news:4gfHb.675902$Fm2.584535@attbi_s04...
 | > I did a funny thing on xmas eve . . . im driving my daughter to town
 | around
 | > 7pm in the rain and a call comes through on my business line.  I have
the
 | > rule of _never_ answering the phone after hrs unless I recognize the
 | number,
 | > but I just answered it on a whim . . .
 | >
 | > it was Friends House, a "most excellent and really hard to get into"
 | Quaker
 | > assisted living facility, with a 3 to 5yr waiting list that we
visited
 | about
 | > 6mo ago, telling me that unbelievably, they have an opening, and I
should
 | > say yes rite now because if I don't, the next one on the phone list
that
 | > does say yes, gets the spot . . .
 | >
 | > now I'll digress to 6mo ago when I was in the throes of denial and
change
 | > associated with my mom's condition, I would have jumped at the chance
to
 | get
 | > her into that place, but . . . heh . . . funny thing . . . I passed
it up
 | .
 | > . .
 | >
 | > then my daughter asks why? (she's just turned 9)  I told her that
even
 | with
 | > my mom's problems and the extra work for her care . . . she's mine .
. .
 | "it
 | > would feel like leaving a baby at the doorstep of an orphanage", I
told
 | her,
 | > "I just cant do that rite now . . . heh . . . "she's mine"
 | >
 | > it felt really good to turn it down . . . its hard to describe but im
glad
 | I
 | > have a chance to live this way for a while, before I myself get old
and
 | > confused (if indeed I actually get that far)
 | >
 | > jim
 | >
 | > --
 | >            --------------------------------
 | > if u really want to email me, click on the address below
 | >           netnews.comcast.net@Pexoteric.org
 | >            take a P before you click send
 | >            --------------------------------
 | >
 | >
 |
 |
 | ---
 | Outgoing mail is certified Virus Free.
 | Checked by AVG anti-virus system (http://www.grisoft.com).
 | Version: 6.0.556 / Virus Database: 348 - Release Date: 12/26/2003
 |
 |
Tumbleweed - 30 Dec 2003 18:23 GMT
Good luck Wade.

Signature

Tumbleweed

Remove theobvious before replying (but no email reply necessary to
newsgroups)

> > "I just cant do that rite now . . . heh . . . "she's mine"
> >
[quoted text clipped - 114 lines]
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.556 / Virus Database: 348 - Release Date: 12/26/2003
Mare - 31 Dec 2003 00:28 GMT
Hey Wade,
Glad you found us and good luck. Ask any questions you have and
somebody will probably have some suggestions.
--

Mare
mfcoleman@THEOLEmindspring.com
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
alt.support.alzheimers' FAQs and Stuff Pages

I used to have a handle on life...but it broke off

> > "I just cant do that rite now . . . heh . . . "she's mine"
> >
[quoted text clipped - 127 lines]
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.556 / Virus Database: 348 - Release Date:
12/26/2003
 
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