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Medical Forum / Diseases and Disorders / Alzheimer's / March 2009

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Alzheimer's testing question

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larrybear - 27 Mar 2009 13:15 GMT
My wife's parents both got Alzheimer's in the late stages of their lives so
she knows she's a possible candidate too, and she's naturally terrified by
the prospect.  She's 68 and has a few memory lapses now and then but we all
do, so I'm not convinced we should expect the worst.  Yet.

To her it's a different matter.  Every little thing that slips her mind
bothers her.  She's building up a case in her own head to justify her
suspicions of the onset of the disease.  The fact is...she may be right.  Or
she may be wrong.

I guess the way to find out is have her tested.  If Alzheimer's could be
ruled out she'd be able to relax and not worry about it.  On the other hand
if she is found to have it it would be devastating.  Right now she's
perfectly sane and fully functioning, and most likely will remain so for
some time even if she's got it.  I couldn't imagine how bad it would be for
her if, in her fully rational mind she knew all she could look forward to is
getting worse and worse and worse.

So testing is a 2-edged sword.  Has anybody in here had a family experience
like this?  Did you go for the testing?  Or not?  Why?

She and I have lots to think about.

Thx
June - 28 Mar 2009 03:31 GMT
> My wife's parents both got Alzheimer's in the late stages of their lives
> so she knows she's a possible candidate too, and she's naturally terrified
[quoted text clipped - 20 lines]
>
> Thx

We had this question here a few years ago.   Most said that they wouldn't
want to know.   I was one of them.  I guess there's what my daughter calls
the beer truck scenario.  You never know when you might just get hit by a
beer truck and it's all over.   Maybe when I get a little bit older I may
change my mind but hopefully by then there will be a break through.  For now
I'll just enjoy the present.........June
larrybear - 28 Mar 2009 12:59 GMT
> We had this question here a few years ago.   Most said that they wouldn't
> want to know.   I was one of them.  I guess there's what my daughter calls
> the beer truck scenario.  You never know when you might just get hit by a
> beer truck and it's all over.   Maybe when I get a little bit older I may
> change my mind but hopefully by then there will be a break through.  For
> now I'll just enjoy the present.........June

Thanks June.  I think I agree with you.  I haven't even discussed it with
her yet, and maybe I won't.
Evelyn - 28 Mar 2009 14:03 GMT
>> We had this question here a few years ago.   Most said that they wouldn't
>> want to know.   I was one of them.  I guess there's what my daughter
[quoted text clipped - 5 lines]
> Thanks June.  I think I agree with you.  I haven't even discussed it with
> her yet, and maybe I won't.

Hi Larry,

I think that is a question you really might want to ask your doctor.  But
here's my opinion for what it is worth.   I have thought about this deeply.

There are tests now, that are supposedly the most accurate which involve
taking a sample of spinal fluid, and they are able to detect early
alzheimers from that..... even long before it is detectible by other means.

In the case of my mother in law, they did several things;  a thyroid test, a
blood test, and a cat scan.   Those three tests revealed that she did not
have a thyroid insufficiency, that she did not need vitamin B-12 ( a common
cause of forgetfulness ) and that she DID have some notable changes in the
brain that suggested it might be alzheimers.

They also did a test (administered by a psychiatrist)  in which she was
asked to do certain simple sequences of actions.   The doc told her to take
a sheet of paper, fold it in half, then into four, then to place it back on
the doctors desk.    She did the first two steps and forgot the third one.

Others here have described similar tests which involved drawing a clock face
and drawing in the various times that were called out to them.   If the
numbers aren't placed in properly or the hands of the clock are not placed
right for the time, it can be very revealing.   A normal person would have
no problem at all with drawing a clock face, putting the numbers in the
right place, and indicating a particular time with drawing in the hands.

Is your wife on cholesterol medication?   Lipitor, crestor, etc?   They have
been strongly associated with memory issues.  The effect goes away when the
Statin drug is discontinued for a while.   Lots of doctors don't tell you
this when they put you on these drugs.

I think it is very important, in fact EXTREMELY so, that you are aware that
there are conditions that are not alzheimers at all, but present themselves
just like it.   Normal Pressure Hydrocephalus for one, and others I have
already mentioned, thyroid and B-12 issues.   Those three are completely
reversible!

There is also another issue that can come up with memory, and that is
vascular insufficiency.   My father has this, and he had a stent put in his
carotid artery which has given him a few good years since then.   The way he
first knew was through losing the sight of one eye.   It hasn't really come
back either.

So that is why you need to get a doctor involved, even now.   So it isn't a
case of not wanting to know if you are getting alzheimers, but a case of
finding out exactly what is the particular cause of the memory loss you are
dealing with.

If it is something reversible, what a shame to not find out!

So lets say for the sake of argument that the tests DO point to alzheimers.
There are medications out there right now that really do prolong the
person's function and slow the process.   Wouldn't it be a shame to let the
person go downhill in memory loss, without even giving them a half a chance
to preserve their mind as long as possible?

I come down on the side of thorough early detection and early treatment with
modern medications.   It is what I would want for myself or my husband.

Signature

--
Best Regards,
Evelyn

Rest in a sky-like mind.
Sit like a mountain floating on the earth.
Breathe like the wind circling the world

news. motzarella.org - 28 Mar 2009 15:09 GMT
>>> We had this question here a few years ago.   Most said
>>> that they wouldn't want to know.   I was one of them.  I
[quoted text clipped - 79 lines]
> early treatment with modern medications.   It is what I
> would want for myself or my husband.

I agree with everything Evelyn said. Especially the early
detection and starting meds as early as possible to let them
work and delay more severe symptoms. Another thing would
be the possiblity of participating in clinical trials for up
and coming drugs/procedures. Even if you are on the non-med
side of it, if it turns out that the drugs work well most
clinical trials then give participants the meds when the trial
ends and long before FDA(USA) approval. Just be sure to get
the right Dr's involved. Ask around for good geriatricians,
maybe check the news for awards to Dr's for their knowledge of
AD. I would be devastated to learn I had AD but I would really
want to delay more severe symptoms.
Mare
June - 28 Mar 2009 16:25 GMT
> Hi Larry,
> "snip"
[quoted text clipped - 9 lines]
> Sit like a mountain floating on the earth.
> Breathe like the wind circling the world

Evelyn has a very valid point.   However you say your wife is almost
obsessing with every memory lapse.  If you feel this is just fearing the
worse rather then a real problem then my advice stands; if it's actually a
symptom of something more serious then of course you should seek a doctor's
advice.
I understand how your wife feels.   My mother has had dementia for 16 years
and my father's mother had Alzheimer's.  My father died at age 67 from
cancer so I don't know what would have been had he lived longer.
I too wonder when I forget a name of a person or a restaurant that I should
know.   I can't remember other things too but my friends say I have the
memory of an elephant on recent events.  I love Google when I forget lyrics
to an old song or that popular actor I see in a TV show and their name is
just on the tip of my tongue but I can't remember it.  Sometimes we just get
distracted and can't remember.  I'm a good one to multitask especially on
the computer and I'll forget what someone tells me while I'm busy.  I feel
that's normal.  Some forgetfulness is part of aging.  I take a B-12
sublingual tablet a few times a week and I swear it helps me remember these
things.
As I said in my earlier post I'll worry about it when my family says I
should worry.  Mom noticed her dementia starting when she forgot
appointments that she had made with the doctor or to get her car repaired
and had no idea that she had forgotten.  She had always remembered before.
She took herself to a doctor for a diagnosis.  At that time she lived in
another state.   By the time 6 months had passed, she no longer knew she had
dementia---but we did.....June
Evelyn - 28 Mar 2009 17:53 GMT
>> Hi Larry,
>> "snip"
[quoted text clipped - 35 lines]
> another state.   By the time 6 months had passed, she no longer knew she
> had dementia---but we did.....June

Good points, June.   My mother in law had no clue she had alzheimers, even
though she was told many times.... occasionally she would ask "what is wrong
with me?"   We would reassure her that we were taking good care of her and
not to worry.   The problem is that they forget that they forget.......
Signature

--
Best Regards,
Evelyn

Rest in a sky-like mind.
Sit like a mountain floating on the earth.
Breathe like the wind circling the world

deerwood - 28 Mar 2009 15:27 GMT
> My wife's parents both got Alzheimer's in the late stages of their lives so
> she knows she's a possible candidate too, and she's naturally terrified by
[quoted text clipped - 20 lines]
>
> Thx

One thing to remember is that we all experience memory  loss.Its a
normal part of aging.Its not when you misplace your keys and can't
remember where you put them but when you find them in the fridge.I
think i might want to know ahead of time and take meds to slow the
progress a little.Wishing you luck ,Barb
EddyJean - 29 Mar 2009 20:20 GMT
Alzheimer's testing question  

Group: alt.support.alzheimers Date: Fri, Mar 27, 2009, 5:15am From:
nobody@pacbell.net (larrybear)
My wife's parents both got Alzheimer's in the late stages of their lives
so she knows she's a possible candidate too, and she's naturally
terrified by the prospect. She's 68 and has a few memory lapses now and
then but we all do, so I'm not convinced we should expect the worst.
Yet.
To her it's a different matter. Every little thing that slips her mind
bothers her. She's building up a case in her own head to justify her
suspicions of the onset of the disease. The fact is...she may be right.
Or she may be wrong.
I guess the way to find out is have her tested. If Alzheimer's could be
ruled out she'd be able to relax and not worry about it. On the other
hand if she is found to have it it would be devastating. Right now she's
perfectly sane and fully functioning, and most likely will remain so for
some time even if she's got it. I couldn't imagine how bad it would be
for her if, in her fully rational mind she knew all she could look
forward to is getting worse and worse and worse.
So testing is a 2-edged sword. Has anybody in here had a family
experience like this? Did you go for the testing? Or not? Why?
She and I have lots to think about.
Thx
==========================================
Your wife knows her body better than anyone, including doctors. If she
feels her brain malfunctions now and then, it probably is. Since
doctors' basically know little on the cause of AD, it's difficult to get
a correct diagnosis.  Memory lapses can occur years before there's
medical evidence of AD. According to the late Dr. James Hunt, the cause
of Ramsay-Hunt Syndrome ( a disease similar to AD) is caused by a viral
infection.  Usually, viruses are not circulating in the blood but move
into the cells; therefore, difficult to detect. Lab tests show normal
even though a patient feels he or she is living near the edge.
Unfortunately, this is a complex disease and many walk in your wife's
shoes. Contact your representatives and demand serious research on
viruses and AD.  Nothing will change until "We the People" speak up.
Best wishes,
EddyJean
news. motzarella.org - 29 Mar 2009 22:12 GMT
> Alzheimer's testing question
>
[quoted text clipped - 63 lines]
> Best wishes,
> EddyJean

There is no credible explanation from anyone about how/why
Ramsay-Hunt is connected to Alzheimer's

Below are links for anyone to check it out themselves. Please
look for your own information as well

Below is a thread from last June with lots of links about Dr
Hunt etc
http://groups.google.com/group/alt.support.alzheimers/browse_thread/thread/50b40
1f588b7026e/99927e6a949effe5?hl=en&q=mona%40nononanette.org

or
http://tinyurl.com/cdoc9w
 
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