Medical Forum / Diseases and Disorders / Alzheimer's / August 2008
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Evelyn - 24 Aug 2008 12:22 GMT Hi Everyone,
You have probably heard me write about my 95 year old father, who doesn't have alzheimers, but has sime degree of vascular impairment of his brain. He has moments of perfectly fine lucidity, but can occasionally get disoriented etc., depending on the blood flow at the time. He has had an elderly lady friend, aged 89, living with him and taking care of him. That lady is the other half of a couple that were longtime friends of my parents. Now that her husband is gone and my mom is gone, they look after one another and she has been living in the guest room of the house for quite a few years now.
That lady was stepping up on the small staircase (4 steps up to the next level) in the house, and suddenly her hip broke and she fell. More correctly, the bone just going up to the hip broke. She was rushed to the hospital yesterday and it is quite possible they will operate on her today to do some kind of a repair. Everyone knows that these hip situations can turn ugly very quickly for an old person. We are hoping it turns out not to be a problem and that she gets well again. She has been, after all, taking care of my father for several years, and in spite of occasional differences, it takes a great load off the family.
Meanwhile, as I type this, my father is alone in the house. Like I said, he talks a good line, and if you chat with him he comes across perfectly fine. But I don't think he quite realizes how dangerous and difficult things can get if he should slip or fall down, or who knows what? I am sick right now with some very nasty flu/cold. My brother is recuperating from surgery. My sister just got out of the hospital from having cardio ablation. None of us are in good shape right now, nor are any of us inclined to go running to stay with him, but a decision will have to be made at some point.
The house is filthy and he will not allow anyone to clean anything as it disturbs his "open filing system".... which consists of junk all over every available surface in the house. He is controlling to the point of being abusive. Nobody wants to deal with it. My sister has POA (thank goodness) and she may be forced to take control and do something more definitive, but right now we are sitting on a possible dangerous situation, since he is alone, and his caregiver is in the hospital with a broken hip.
I will probably have to take some action, but not sure exactly what to do. He says he has enough food in the house for a few days and that he is doing alright. My brother has taken him up to the hospital already to see his lady friend/caregiver, which seems to have calmed him down. I am going to contact meals on wheels in his community to see what the availability of getting a meal delivered to him every day would be.
I am also going to see if they have a visiting nurse who could check on him once in a while. But this situation could turn unpleasant really quick, and it is a very good example of something we talk about on this newsgroup quite often, the fact that it is usually some disaster that brings an end to independent living at home.
I'll keep you posted.
Best Regards, Evelyn
John M - 24 Aug 2008 12:39 GMT Has he got one of those life alert thingies (help! I've fallen and I can't get up)? Even a control freak might go for one of those. John
> Hi Everyone, > [quoted text clipped - 56 lines] > Best Regards, > Evelyn Evelyn - 24 Aug 2008 14:55 GMT > Has he got one of those life alert thingies (help! I've fallen and I > can't get up)? Even a control freak might go for one of those. > John Hi John,
I will suggest it and see if he will go for it. The man really believes he is superman, and always has taken that view. Maybe my sister can get him to do it.
Evelyn
> > Hi Everyone, > [quoted text clipped - 58 lines] > > - Show quoted text - carolinasongbird@gmail.com - 24 Aug 2008 17:29 GMT >> Has he got one of those life alert thingies (help! I've fallen and I >> can't get up)? Even a control freak might go for one of those. [quoted text clipped - 5 lines] > believes he is superman, and always has taken that view. Maybe my > sister can get him to do it. Evelyn, another possibility if he won't go for that is a cell phone he can wear on a belt holster. My dad just went and got himself a Jitterbug. (www.jitterbug.com) It has big buttons and is easy to use with no annual contract. I was shocked since I could not get him to use the cell phone I got him several years ago. But he loves this newest toy and takes it with him everywhere. It may seem a little less like an admission of dependence than a LifeAlert system.
The three of you can also set up a phone rotation system where one of you calls at staggered times throughout the day. That way if he has fallen or something else has happened you can at least shorten the time before he is discovered.
My heart goes out to you -- I think we have very similar fathers in their strong-willedness!
Songbird
Evelyn - 24 Aug 2008 18:15 GMT On Aug 24, 12:29 pm, "carolinasongb...@gmail.com" <carolinasongb...@gmail.com> wrote:
> >> Has he got one of those life alert thingies (help! I've fallen and I > >> can't get up)? Even a control freak might go for one of those. [quoted text clipped - 23 lines] > > Songbird Hi Songbird,
Thanks for your reply. It is all just too new, but we will definitely have to work out some sort of safeguards for him...... and yes, it is true that our fathers both seem so strong willed!
Evelyn
stellalouise03@gmail.com - 26 Aug 2008 12:19 GMT I have been reading this group for several years and feel as if I know some of you. Good thoughts go your way at this difficult time. I am a registered nurse doing home care and have a few patients similar to your father. As you know, until declared incompetent, he can make his own decisions. What I have done in such situations is to notify the local department of Adult and Elderly services. They investigate, and if they find self neglect or safety issues, they will force the issue with the patient and get them the help they need. Any one can make a report to this department and it can even be done anonymously. Best of luck and feel well soon. Bev
Evelyn - 26 Aug 2008 14:35 GMT On Aug 26, 7:19 am, stellalouis...@gmail.com wrote:
> I have been reading this group for several years and feel as if I know > some of you. Good thoughts go your way at this difficult time. I am [quoted text clipped - 11 lines] > > - Show quoted text - Hi and thank you so much for the kind suggestions. I contemplated calling adult protective services or the office of the aging or whatever they have in his county. He flatly refuses everything, even including meals on wheels. My sister who has POA has already made these suggestions as well and he becomes enraged at the mere suggestion. I am afraid he is going to need to come to a place where even he will recognize he can't go it alone. He hasn't really got alzheimers, and he probably isn't going to be adjudged incompetent either, though I think he certainly isn't equipped to function fully in this world without the help of his caregiver. As of last evening he slammed the phone in my face and then lied to those present saying I hung up on him. I need to play this by ear as they say, and hope for the best.
Best Regards, Evelyn
weeks - 24 Aug 2008 13:15 GMT ((((((Evelyn)))))) I share your pain. I received a call yesterday at 6 a.m. that my mom had fallen in her room. Yes, she has a fracture at the neck of the femur (same as a broken hip). Surgery will be tomorrow or Tuesday. You have been somewhat fortunate that they have been there for each other for such a long time. I hope your father is dealing with her hospitalization well. My mother is very healthy and was very ambulatory prior to this fall. Nothing seems to keep her down so this is all on her side for a good recovery. Of course, she always says, "It's in the hands of The Bug Guy". I hope your father's friend has her surgery soon and a quick and easy recovery... smiles, Elise
> Hi Everyone, > [quoted text clipped - 56 lines] > Best Regards, > Evelyn Evelyn - 24 Aug 2008 14:58 GMT > ((((((Evelyn)))))) > I share your pain. I received a call yesterday at 6 a.m. that my mom had [quoted text clipped - 10 lines] > smiles, > Elise Hi Elise,
Thanks for the kind thoughts. The lady in question is much like your mom. Very active, and always on the go. I hope they do a replacement. With a replacement, the return to mobility is often quite fast. Letting it heal on its own could turn into a lengthy bed stay, and perhaps create more problems like strokes, etc.
I hope your mom has a speedy recovery as well.
:-) Evelyn
> > Hi Everyone, > [quoted text clipped - 58 lines] > > - Show quoted text - Evelyn - 25 Aug 2008 20:34 GMT > > ((((((Evelyn)))))) > > I share your pain. I received a call yesterday at 6 a.m. that my mom had [quoted text clipped - 93 lines] > > - Show quoted text - Hi again,
Well, chaos reigns in our family today. The lady with the broken hip is going to be operated on within minutes of my posting this. Her doctor said that there are three different types of repair that they do for this kind of injury, and they won't know which would be the best until they actually go in to see the damage, then they will decide.
My father is still ranting and raving, and this time it is my turn to get the brunt of his abuse. My siblings are both caught up in health dramas of their own just now, and so I am hearing it because I don't come down there to look after him, with a raging bad cold, a bad shoulder, and several health issues of my own.
He will not HEAR of anyone coming into the house to take care of him. No visiting nurse, no one to clean, no one to help out. He has decided he needs no more glaucoma medicine either.
This morning he put air in his bicycle tires, thinking he would ride his bike to the post office. This is complete insanity, but there will be no way to stop him. My brother went over there, still sick from his own recent surgery, and took him out to eat, and took him to the post office where he wanted to go. So for the moment he is settled in and behaving himself, but this business with the bicycle has the potential to be a disaster. (At least he isn't trying to drive the car. He still has his license and the car is legal, but he should not be driving either one).
My sister has POA, but will not intervene. If we take the bike away, he will surely try to drive the car. I certainly do not blame her, he can be a madman if thwarted. We are back to the place where we wait for some sort of crisis or disaster to arise, and then we can act decisively, but for the moment, there is absolutely no dealing with him. He will have to do what he will have to do and all I can do is hope for the best. As of the moment, my brother has been looking after him and his needs. Tomorrow will be another day, and who knows what that may bring?
Prayers, good wishes and sympathetic thoughts are all welcome. But any suggestion that involves me trying to strong arm him into some semblance of sanity are out. ;-{
Evelyn
Queenie - 27 Aug 2008 16:03 GMT This morning he put air in his bicycle tires, thinking he would ride his bike to the post office. This is complete insanity, but there will be no way to stop him. My brother went over there, still sick from his own recent surgery, and took him out to eat, and took him to the post office where he wanted to go. So for the moment he is settled in and behaving himself, but this business with the bicycle has the potential to be a disaster. (At least he isn't trying to drive the car. He still has his license and the car is legal, but he should not be driving either one).
My sister has POA, but will not intervene. If we take the bike away, he will surely try to drive the car.
> On Aug 24, 9:12 am, "weeks" <r_we...@sbcglobal.net> wrote: > > > ((((((Evelyn)))))) > > I share your pain. I received a call yesterday at 6 a.m. that my mom had > > fallen in her room. Yes, she has a fracture at the neck of the femur (same > > as a broken hip). Surgery will be tomorrow or Tuesday. > > You have been somewhat fortunate that they have been there for each other > > for such a long time. I hope your father is dealing with her > > hospitalization well. > > My mother is very healthy and was very ambulatory prior to this fall. > > Nothing seems to keep her down so this is all on her side for a good > > recovery. Of course, she always says, "It's in the hands of The Bug Guy". > > I hope your father's friend has her surgery soon and a quick and easy > > recovery... > > smiles, > > Elise > > Hi Elise, > > Thanks for the kind thoughts. The lady in question is much like your > mom. Very active, and always on the go. I hope they do a > replacement. With a replacement, the return to mobility is often > quite fast. Letting it heal on its own could turn into a lengthy bed > stay, and perhaps create more problems like strokes, etc. > > I hope your mom has a speedy recovery as well. > > :-) > > Evelyn > > > > > > > "Evelyn" <evelyn.r...@gmail.com> wrote in message > > >news:8afdc1d8-aff2-459e-a728-2fc7ff99561d@e53g2000hsa.googlegroups.com... > > > > Hi Everyone, > > > > You have probably heard me write about my 95 year old father, who > > > doesn't have alzheimers, but has sime degree of vascular impairment of > > > his brain. He has moments of perfectly fine lucidity, but can > > > occasionally get disoriented etc., depending on the blood flow at the > > > time. He has had an elderly lady friend, aged 89, living with him and > > > taking care of him. That lady is the other half of a couple that > > > were longtime friends of my parents. Now that her husband is gone > > > and my mom is gone, they look after one another and she has been > > > living in the guest room of the house for quite a few years now. > > > > That lady was stepping up on the small staircase (4 steps up to the > > > next level) in the house, and suddenly her hip broke and she fell. > > > More correctly, the bone just going up to the hip broke. She was > > > rushed to the hospital yesterday and it is quite possible they will > > > operate on her today to do some kind of a repair. Everyone knows > > > that these hip situations can turn ugly very quickly for an old > > > person. We are hoping it turns out not to be a problem and that she > > > gets well again. She has been, after all, taking care of my father > > > for several years, and in spite of occasional differences, it takes a > > > great load off the family. > > > > Meanwhile, as I type this, my father is alone in the house. Like I > > > said, he talks a good line, and if you chat with him he comes across > > > perfectly fine. But I don't think he quite realizes how dangerous > > > and difficult things can get if he should slip or fall down, or who > > > knows what? I am sick right now with some very nasty flu/cold. My > > > brother is recuperating from surgery. My sister just got out of the > > > hospital from having cardio ablation. None of us are in good shape > > > right now, nor are any of us inclined to go running to stay with him, > > > but a decision will have to be made at some point. > > > > The house is filthy and he will not allow anyone to clean anything as > > > it disturbs his "open filing system".... which consists of junk all > > > over every available surface in the house. He is controlling to the > > > point of being abusive. Nobody wants to deal with it. My sister > > > has POA (thank goodness) and she may be forced to take control and do > > > something more definitive, but right now we are sitting on a possible > > > dangerous situation, since he is alone, and his caregiver is in the > > > hospital with a broken hip. > > > > I will probably have to take some action, but not sure exactly what to > > > do. He says he has enough food in the house for a few days and that > > > he is doing alright. My brother has taken him up to the hospital > > > already to see his lady friend/caregiver, which seems to have calmed > > > him down. I am going to contact meals on wheels in his community to > > > see what the availability of getting a meal delivered to him every day > > > would be. > > > > I am also going to see if they have a visiting nurse who could check > > > on him once in a while. But this situation could turn unpleasant > > > really quick, and it is a very good example of something we talk about > > > on this newsgroup quite often, the fact that it is usually some > > > disaster that brings an end to independent living at home. > > > > I'll keep you posted. > > > > Best Regards, > > > Evelyn- Hide quoted text - > > > - Show quoted text -- Hide quoted text - > > - Show quoted text -
Hi again,
Well, chaos reigns in our family today. The lady with the broken hip is going to be operated on within minutes of my posting this. Her doctor said that there are three different types of repair that they do for this kind of injury, and they won't know which would be the best until they actually go in to see the damage, then they will decide.
My father is still ranting and raving, and this time it is my turn to get the brunt of his abuse. My siblings are both caught up in health dramas of their own just now, and so I am hearing it because I don't come down there to look after him, with a raging bad cold, a bad shoulder, and several health issues of my own.
He will not HEAR of anyone coming into the house to take care of him. No visiting nurse, no one to clean, no one to help out. He has decided he needs no more glaucoma medicine either.
This morning he put air in his bicycle tires, thinking he would ride his bike to the post office. This is complete insanity, but there will be no way to stop him. My brother went over there, still sick from his own recent surgery, and took him out to eat, and took him to the post office where he wanted to go. So for the moment he is settled in and behaving himself, but this business with the bicycle has the potential to be a disaster. (At least he isn't trying to drive the car. He still has his license and the car is legal, but he should not be driving either one).
My sister has POA, but will not intervene. If we take the bike away, he will surely try to drive the car. I certainly do not blame her, he can be a madman if thwarted. We are back to the place where we wait for some sort of crisis or disaster to arise, and then we can act decisively, but for the moment, there is absolutely no dealing with him. He will have to do what he will have to do and all I can do is hope for the best. As of the moment, my brother has been looking after him and his needs. Tomorrow will be another day, and who knows what that may bring?
Prayers, good wishes and sympathetic thoughts are all welcome. But any suggestion that involves me trying to strong arm him into some semblance of sanity are out. ;-{
Evelyn
Evelyn - 27 Aug 2008 18:27 GMT > This morning he put air in his bicycle tires, thinking he would ride > his bike to the post office. This is complete insanity, but there [quoted text clipped - 11 lines] > Dear {{{{Evelyn}}}} > My heart goes out to you. I am an "old-timer" who has hovered around but it is still too painful to read about the problems that 7 years later (my late husband had AD) still exist. My husband pulled the bicycle stunt until the day that he saw a bus coming and left it at a gas station. Of course, he never could remember which gas station he left it at and it was just fine with me. He was using the bike because my son disabled the car, and we left it at the shop and told him we were having it repaired. Please, please, do the same. Have someone disable the car so he cannot drive it, and if possible, leave it someplace where he cannot see it. We at this ng had a thing we called "loving deceptions". I resorted to many loving deceptions in order to keep my husband safe. Also, I suggest you ignore his drama and put in place whatever you can to help him out. A housekeeper, a visiting nurse, meals delivered, etc. The yelling and drama could be a sign that this man is frightened. Good luck, dear Evelyn. Hi Queenie,
My sister is going to visit him today. If anyone can reason with him or get anything done, it will be her. Fortunately it is she who also holds the POA. I am determined to let her manage the situation. Thanks so much for your kind thoughts and suggestions.
I will keep you posted on how it is all going.
Evelyn :-)
June - 26 Aug 2008 00:32 GMT > Hi Everyone, > [quoted text clipped - 56 lines] > Best Regards, > Evelyn Hi Evelyn....Just wanted you to know that I'm thinking of you in these difficult times. Sometimes as you know these dramas just have to play out. If I had an easy answer I would surely post it. My mother and I didn't always get along but I know she did the best that she knew how. I always tell myself that when I feel overwhelmed and it seems to help. Take care of yourself ......June
Evelyn - 26 Aug 2008 05:28 GMT > > Hi Everyone, > [quoted text clipped - 65 lines] > > - Show quoted text - Thanks so much June. I really appreciate your kind thoughts.
Tonight was the worst. He began yelling at me and berating me for being a "know it all who finds out stuff on the internet" for his lady friend who had her surgery today, then he slammed the phone in my face. This was in reply to my saying I was so sorry I couldn't come down there because I have such a bad cold, coughing and fever and all of it.
My brother and sister say that he is just a mean old man and I should just let him stew for a while no matter what happens, even if it becomes a disaster. Remember the old Beatles song "Mean Mr. Mustard?" That's his nickname ("he's a mean old man, such a mean old man").
Today my brother saw him emptying the tank of his lawnmower of gas right in the street. That could have gotten him in trouble with the law. What on earth was he thinking? Now that his caregiver is in the hospital it is as though he is suddenly going off the deep end and striking out in rage at me. Whenever things go wrong he strikes out at someone. It is always either my brother or myself. My sister usually escapes his rage, so she is the one we usually call upon to help when this happens. We comfort one another the best we can but all of us have been through hell with him.
Best Regards, Evelyn
Adelle - 26 Aug 2008 06:00 GMT On Aug 25, 7:32 pm, "June" <nos...@yahoo.com> wrote:
> "Evelyn" <evelyn.r...@gmail.com> wrote in message > [quoted text clipped - 70 lines] > > - Show quoted text - Evelyn wrote -
Thanks so much June. I really appreciate your kind thoughts.
Tonight was the worst. He began yelling at me and berating me for being a "know it all who finds out stuff on the internet" for his lady friend who had her surgery today, then he slammed the phone in my face. This was in reply to my saying I was so sorry I couldn't come down there because I have such a bad cold, coughing and fever and all of it.
My brother and sister say that he is just a mean old man and I should just let him stew for a while no matter what happens, even if it becomes a disaster. Remember the old Beatles song "Mean Mr. Mustard?" That's his nickname ("he's a mean old man, such a mean old man").
Today my brother saw him emptying the tank of his lawnmower of gas right in the street. That could have gotten him in trouble with the law. What on earth was he thinking? Now that his caregiver is in the hospital it is as though he is suddenly going off the deep end and striking out in rage at me. Whenever things go wrong he strikes out at someone. It is always either my brother or myself. My sister usually escapes his rage, so she is the one we usually call upon to help when this happens. We comfort one another the best we can but all of us have been through hell with him.
Best Regards, Evelyn
Adelle replies -
Evelyn;
I'm so sorry you and your sibs are going through all this. What's that we say about dementia's not changing personalities but only making people moreso of what they were...
It's not surprising your dad is decompensating. His caregiver was the buffer - the one who would handle all the 'tough stuff' so he could stay in his routine - in his safe zone. Now there is no buffer and he's confronted by all these small decisions and processes he's unequiped to deal with and handle. Before he was struggling to just gain control over small issues. Now his world has become chaos. So he's lashing out everywhere. Sadly, like Brianna's BIL, it looks like things are headed for the implosion. With your dad, that's what it will take for things to get on a more productive path.
One the one hand, its hard to be resilient when you aren't feeling well. On the other hand, you could use the fact you're not well to shut out his craziness after you're off the phone. Curl up with some tea and your favorite escapist diversion.
And one thing you haven't mentioned - your husband. Can he deal with your dad at all? Does he get any automatic credit/respect from your dad just because they are both men? (Much like the automatic respect he got from his mom because he was male) Given all you did for your MIL - I'd say your husband owes you - big time!!
Sending virtual chicken soup. Feel better!
Adelle
Evelyn - 26 Aug 2008 06:32 GMT > On Aug 25, 7:32 pm, "June" <nos...@yahoo.com> wrote: > [quoted text clipped - 136 lines] > > - Show quoted text - Hi Adelle,
Ahhhhh chicken soup, that is just what I could use right now! It will have to be the tea instead at the moment, because it is late. But I do have some chicken soup in the freezer. Maybe I will take some out and thaw it for tomorrow. Can't sleep right now because of the snuffles and the tea might help.
Now let me see. You asked how Peter is handling all this. It drives him CRAZY. I don't ever put him on the phone. If he spoke with my father he would probably tell him off bigtime and create a truly big rift in the family. He has seen my father abuse us, and me in particular for as long as he knows me. He thinks my mother probably got lucky in dying to escape him. Yes, it is that bad. Peter cannot stand my father and with good reason. My father is a narcissistic guy who sees only his own agendas, and like you say, yes, he was always like that only just a little more civilized about it. Peter behaves himself with great restraint on occasions when he sees my father, but later on tells me how the man needs some serious telling off.
I think you are right in that it is coming to some sort of an implosion. My father is definitely losing it, and yes..... it may come to some sort of a crisis before it can get any better. I have decided to let it go wherever it is going to go. Maybe he will take his bicycle and ride to the post office and fall off the damned thing and get hurt. Maybe he will get lost in the neighborhood. Whatever happens will have to be. But I just can't let him abuse me for absolutely nothing anymore and I need to remove myself from his scope. My brother and sister will have to fill in for me.
You know he has always been a violent man and he abused us all viciously as children. Never sexual abuse, but physical and emotional abuse non stop. He would be jailed by todays standards, in fact. But you only get one father, and even if he isn't a particularly nice guy, he is what he is. I live far enough away that I don't need to see him that often, but I usually call a couple of times a week and speak to him casually about this and that. I keep it simple and don't dare to tell him what to do. But anything can set him off, a simple word or anything.
I once read an western novel in which the author quaintly described "injun's" as being "notional".... meaning they could just take a notion to feed you and treat you nicely as they might also take a notion to try and kill you. That word made me chuckle, because if anyone was ever "notional" it is my father. At the time my mom was still alive, and we both laughed about it privately. I used to just say the word to her and we'd both smile about it.
Going to make that tea now.....
Best Regards, Evelyn (daughter of "notional")
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