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Medical Forum / Diseases and Disorders / Alzheimer's / August 2008

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Warning Signs Question

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naturalbornalien@yahoo.com - 12 Aug 2008 13:07 GMT
I've volunteered with the elderly for thirty-five years but am stumped
in regard to the behavior of an independent 80-something friend. Maybe
someone here can give me some feedback.

This woman has experienced far too much loss in too short a period of
time. Within the past year, her husband of nearly sixty years entered
a nursing home with advanced Alzheimers, after a police stand-off in
which he threatened someone with shattered glass in the lobby of the
apartment complex where they were highly-respected residents (not to
mention community leaders in the broader community). She was told she
had stomach cancer and underwent radiation that made her waste away (I
infer from her conversation that the diagnosis may have been wrong and
that the real problem may have been something as benign as an ovarian
cyst).

She has two grown sons that mimic the Prodigal Son relationship: one
charming eldest who lives in another state and won't even visit the
father, now that the former community leader is stricken. The second
son is scrupulously dutiful but emotionally distant. Nevertheless, if
it weren't for this second, close-to-home son, I don't see how my
friend could possibly remain living independently.

During a home visit yesterday, and in phone conversations that
prompted sufficient concern and travel to make the home visit, she
spoke of her apartment being infested with a "long red hairy...THING."
I initially called it a mouse, although having lived in the same
complex at one time, I know for a fact the place is notoriously free
of pests (having first-hand experience of the quantity of chemicals
the place uses to control them).

What scared me yesterday was, during our visit, her correcting me when
I called the pest a "mouse." "Oh, no no," she said, "it was yay-
long" (and she indicated at least a foot). "It's red, and hairy, and
has a head like, you know, one of those dogs." While I said nothing,
she added, "My son tells me I'm imagining things."

I said not to judge herself too harshly and that given the proximity
of her apartment to the rubbish shute, it's possible she has indeed
been visited by a creature she went on to like to a "dachsund."

But then I asked her why she wasn't watching television, her mainstay.
She said "Oh, that awful music they play drives you crazy." To which I
answered that I couldn't agree more. It may be signficant that the
last time I was in her apartment, pinning slacks to hem for her, a
soap opera she watches featured the entire, and I do mean entire, song
"I Kissed a Girl and I Liked It." (I asked her politely if we could
change the station because it embarrassed me listening to this in
front of her. She is so ladylike and reserved, and she immediately
agreed...not that I would have pressed the point if she said she was
enjoying it.)

I agreed that music and amplified acoustics in general are becoming
too much a distraction in our society, etc., etc., but at that point
started to wonder if she's in need of an evaluation. And here I come
to the source of greatest concern:

I know the apartment manager well. I know the apartment staff well. I
get along with all of them so well that if I were to report the basics
of this visit, the apartment social worker would be up at the unit so
fast that there's no question a psych eval would result. The reason
I'm posting here at all is because of the fact that my friend's two
sons each have their approach/avoid behaviors in  regard to their
parents: while the younger son is dutiful, he is dutiful in a "I
fulfill my obligations very very conscientiously; don't ask me to get
involved any further" way.

I empathize and sympathize with this son 100 percent, having been in a
situation with an intractable and ultimately impossible parent-in-
decline. I know how stubborn *naturally aging* people can be and
expect to be one myself. I left my friend telling myself that it's
possible that a woman who was alert, oriented to time and space,
capable of carrying on and listening to an hour-long conversation, is
not in need of intervention.

So: When dealing with an elderly person whose lifelong habits of
personality responsibility, kindness, compassion, community
involvement come crashing into Alzheimers (via their mate), do you
utilize different criteria in assessing the possibility they too are
developing the disease? There used to be a diagnosis called Benign
Forgetfulness of the Aged, and as I said above, this poor soul has had
so much bad happen to her, in such a short time, at such an advanced
age, that it would drive a person forty years young off the cliff.

Thank you very much for reading this and offering any responses you
can.
august - 13 Aug 2008 05:26 GMT
> I've volunteered with the elderly for thirty-five years but am stumped
> in regard to the behavior of an independent 80-something friend. Maybe
[quoted text clipped - 81 lines]
> Thank you very much for reading this and offering any responses you
> can.

That is quite a story.  You are to be commended for caring about this lady
and also for your past volunteer service.

It is quite possible that she has gotten a little out of joint since the
arrest of her husband and what is going on now is part of living alone
adjustment period.

It is also quite possible that your suspicions are correct and that when her
husband was present she was better able to hide the signs of her dementia.

Spend an afternoon or evening (whenever she most often sees the  rat or
chupacabra or whatever she thinks she is seeing.) and get a better opinion
as to what is really going on in her home. I'm guessing that the warning
signs will soon make themselves known and that you might have to intervene
at some point in time. However I would probably not rush into intervening
before I had evaluated things further unless she is still driving because
her continued driving is probably very dangerous for both herself and
others. You are there and it does sound like you have good judgement with
this type situation.

Near where I live today they found the body of a 92 yr old woman who had
driven off a couple weeks ago and then got her car stuck when she tried to
turn around out in the woods. They said it looked like she had been dead
several weeks.  This happens all the time in my neck of the woods.

good luck,    AW
naturalbornalien@yahoo.com - 13 Aug 2008 12:20 GMT
> It is quite possible that she has gotten a little out of joint since the
> arrest of her husband and what is going on now is part of living alone
> adjustment period.

Thank you for your response. Yes, while I am by no means a
psychologist, I asked myself if this isn't what the term "reaction
formation" means. I laughed but actually agreed with your choice of
"chupacabra"; it's as if some part of her still-vital mind is bundling
up all the unbearable ugliness into an imaginary "pest."

> It is also quite possible that your suspicions are correct and that when her
> husband was present she was better able to hide the signs of her dementia.

My new neighbor (I no longer live in the complex), an elderly woman
herself, listened to my story and asked about her medications. It was
a "lightbulb moment," because my friend, who like many elderly takes
more pills in a morning than I could take in a week (and still remain
sentient), related how she needs her son to come over to "divide up
all her pills for her."

The question arose: why does she need her son to come and do this for
her? This was sufficiently compelling a reason to phone her son for
the first time; and we had a very productive conversation. I think
*he* is overwhelmed by the possibility of having two parents in
decline at the same time. I think this may even be the cause of
marital discord. In hindsight, some of my lady-friend's distance from
her daughter-in-law was explained as soon as I rang the son's number.
When I identified myself and the reason for my call, the wife said,
"Wait. Don't say another word; I want my husband to hear this." So you
may be right. Again, as someone who has propped up an elderly parent
at a pyrrhic expense to myself, I understand how strong the motivation
can be to pretend Crisis, What Crisis.

> unless she is still driving because
> her continued driving is probably very dangerous for both herself and
> others.

Thank God, she does not drive. (And thank you for recognizing this as
the inexcusably politicized problem it has increasingly become. Heck,
I'd be willing to take driving competency exams, and I'm 51.)

> Near where I live today they found the body of a 92 yr old woman who had
> driven off a couple weeks ago and then got her car stuck when she tried to
> turn around out in the woods. They said it looked like she had been dead
> several weeks.  This happens all the time in my neck of the woods.

I don't think that what I'll call the "stubborn elderly" realize that
they are indeed digging their own graves when they refuse intervention
even when all the signs of decline have been in their awareness, maybe
for years. It is very sad, and very grim, that eventually we all
decline, but better to make some attempt to reckon with this then to
(often) die slow deaths alone.

Thanks again.
Carolina Songbird - 14 Aug 2008 02:44 GMT
I have two parents "in decline" and I can understand where the son is
coming from! Bless you for helping take some of the burden as he adjusts
to this situation. It can definitely be a strain on a marriage as well
as on the individual.

My first thought was that your friend might be seeing a rat but you
would never say they have a dachsund face. So who knows.

The fact that she cannot manage her meds alone is a possible red flag,
but then my mom's medical regimen is so complicated I have a hard time
keeping it straight and at last check I still have my mind. Thank heaven
for the nurses at her AL facility.

I'd be looking at other things as well:
    How's her hygiene? Is she bathing? Is her clothing clean? Is she
dressed appropriately for the season and the activity? (My mom was never
a fashion plate but everything was always clean and in good repair. When
 I started seeing stains on her clothing every time I saw her, that
told me something. The fact that my dad did not notice ... that told me
something too.)
    Is she eating? Is there healthy food in the kitchen? Is she able to
prepare a meal? (For Mom, an early clue was that her cooking, never
good, got much worse and even unhealthy. She served a gosh-awful
casserole at her house one evening that I did not realize had been
sitting out for several hours until hubby and I both got food poisoning.
After that we found reasons not to eat at her house ... "let us treat
you...")
    Is the house safe and relatively clean? (I won't gross you out with the
stories here...)
    Are her finances under control? Are bills getting paid?

She is obviously under some sort of stress. Impossible to tell if it is
a dementia from here. But for all the adult children of the world --
thanks for caring enough to ask questions.

Songbird

PS -- What is really sad for the "stubborn elderly" is that in many
cases the stubbornness hastens the loss of independence they fear. If
they could just say "I am having trouble with this -- how can I get help
with it so I can continue to live my life as I wish" many spiraling
situations could be avoided. But being a "I'll do it myself!!" kind of
person, I can understand the need to retain control.

>> It is quite possible that she has gotten a little out of joint since the
>> arrest of her husband and what is going on now is part of living alone
[quoted text clipped - 5 lines]
> "chupacabra"; it's as if some part of her still-vital mind is bundling
> up all the unbearable ugliness into an imaginary "pest."

 >> It is also quite possible that your suspicions are correct and that
when her
>> husband was present she was better able to hide the signs of her dementia.
>
[quoted text clipped - 39 lines]
>
> Thanks again.
naturalbornalien@yahoo.com - 14 Aug 2008 23:50 GMT
On Aug 13, 9:44 pm, Carolina Songbird <carolinasongb...@gmail.com>
wrote:

> My first thought was that your friend might be seeing a rat but you
> would never say they have a dachsund face. So who knows.

That's what I thought too, until I was surprised by how vociferously
she insisted it wasn't a mouse or rat. That was what made me sit up a
bit straighter.

> The fact that she cannot manage her meds alone is a possible red flag,
> but then my mom's medical regimen is so complicated I have a hard time
> keeping it straight and at last check I still have my mind. Thank heaven
> for the nurses at her AL facility.

What I'm most grateful for about your reply is that you acknowledge
the strain this time of life for a parent can take on a marriage. I
realized, after contacting the son, that he has been aware of how much
in decline his mom has been...apparently for a length of time that
made his wife greet my phone call (the first ever to their home) with,
"Oh, wait, W______ has to hear this." I knew then and there that the
problem exists as much with the "good son" as with the parents, who
sadly may both have begun their decline. It's almost like The Farmer
in the Dell: the AD takes a "wife," then a "child," and now, if I'm
not careful, a "friend."

> I'd be looking at other things as well:
>         How's her hygiene? Is she bathing? Is her clothing clean? Is she
[quoted text clipped - 12 lines]
>         Is the house safe and relatively clean? (I won't gross you out with the
> stories here...)

The answer to all these questions is, clearly, No. She had black-and-
blue circles under her eyes when she answered the door. Rather than
call a neighbor at midnight when she fell--and many of her neighbors
are still up at that hour--she called the son, twelve miles away. And
he came. She told me she hasn't done her laundry in three weeks.

>         Are her finances under control? Are bills getting paid?
>
> She is obviously under some sort of stress. Impossible to tell if it is
> a dementia from here. But for all the adult children of the world --
> thanks for caring enough to ask questions.

I have no idea whatsoever what state her finances are in. She's one of
those "cash only" people about whom you can never tell if it's "real
money" or advances.

> PS -- What is really sad for the "stubborn elderly" is that in many
> cases the stubbornness hastens the loss of independence they fear. If
> they could just say "I am having trouble with this -- how can I get help
> with it so I can continue to live my life as I wish" many spiraling
> situations could be avoided. But being a "I'll do it myself!!" kind of
> person, I can understand the need to retain control.

Then there is the distinction you ultimately have to make--if you are
to not lose your mind, that is--between the benevolent stubborn
elderly and the increasingly malevolent.

Thank you so much. I discussed the situation today with the apartment
complex manager, who said "S'na my job." I realized then that the son
had been, completely unawares perhaps, fobbing off responsibility for
his mom onto me. This was only natural when I was still in the
complex. Now it's impossible.

I can't thank the two people who responded enough for helping me
clarify my role, and my scope of authority (none), in this issue. I'll
call my friend tonight and stay her friend. That's all I can do.

God bless.
Evelyn - 14 Aug 2008 23:59 GMT
On Aug 14, 6:50 pm, naturalbornal...@yahoo.com wrote:
> On Aug 13, 9:44 pm, Carolina Songbird <carolinasongb...@gmail.com>
> wrote:
[quoted text clipped - 79 lines]
>
> - Show quoted text -

I wonder if she saw an opossom?   Could one have gotten in there
somehow?

Evelyn
naturalbornalien@yahoo.com - 15 Aug 2008 00:10 GMT
> I wonder if she saw an opossom?   Could one have gotten in there
> somehow?

None whatsoever. I should have said that she lives (and I lived) on
the ninth floor of a building on the busiest urban intersection of a
mid-size northeast town. Of course, since all things are possible,
there was the matter of how it would have gotten out. My friend said
it "went into the closet" and then she hears it "running underneath
her floor." But the floors of this sixteen-story high-rise are cement.
Dennis P. Harris - 15 Aug 2008 06:02 GMT
> I can't thank the two people who responded enough for helping me
> clarify my role, and my scope of authority (none), in this issue. I'll
> call my friend tonight and stay her friend. That's all I can do.

No, that's not all.  If it appears the family won't help, you can
call Adult Protective Services and, if necessary, report that the
woman's family is neglecting her and her needs.
naturalbornalien@yahoo.com - 15 Aug 2008 10:23 GMT
On Aug 15, 1:02 am, NO_SPAM_TO_dphar...@gci.net (Dennis P. Harris)
wrote:

> No, that's not all.  If it appears the family won't help, you can
> call Adult Protective Services and, if necessary, report that the
> woman's family is neglecting her and her needs.

I am so happy and not a little proud to be able to say that last
night, oh, about twenty minutes into our phone conversation, my friend
shyly said, "Oh, W____ (her son) wants me to go into Assisted Living.
What do you think about that?"

I really wanted to kiss her and her son, for beginning to face this
unhappy time together. I envy such families who come to acceptance and
mutual understanding under such unhappy circumstances. I envy them
with all my heart, and I launched what I hope was an equally delicate
and tactful campaign supporting the benefits of Assisted Living.

I learned this poor soul had no food in her cupboards but forced
herself to take a walk with another resident of the complex yesterday,
to buy her husband (with AD) a new sweatshirt. I found out her son
balanced her checkbook and was going to take her shopping for food.

So we talked about the upside of Assisted Living, and the various
duties she wouldn't have to worry about anymore--that tax even younger
residents of high-rises. And the troublesome "yay-long" pest didn't
come up once in the conversation.

This made a day that was otherwise not the best end on a good note.
Thanks for the reminder. As the child of someone who not only refused
social service intervention but whose other children are reaping the
whirlwind of her decline, I know that calling social services is a lot
easier than getting them to do anything.
Evelyn - 15 Aug 2008 13:15 GMT
On Aug 15, 5:23 am, naturalbornal...@yahoo.com wrote:
> On Aug 15, 1:02 am, NO_SPAM_TO_dphar...@gci.net (Dennis P. Harris)
> wrote:
[quoted text clipped - 29 lines]
> whirlwind of her decline, I know that calling social services is a lot
> easier than getting them to do anything.

I am so happy that it may all work out fine..... I would assume that
like most children the woman's son didn't want to seem too pushy about
getting her to go into assisted living, and allowed it to get to the
point where the woman herself realized something had to give.

We did that too.   In part, we had no choice in the matter, but we
knew how much she loved being in her home.   In truth she should have
been out of there a lot sooner.

She is so lucky to have a good friend like you to confide in and ask
for advice from.   Ultimately it was my mother in law's next door
neighbor who convinced her she needed to do something too.

Evelyn
Dennis P. Harris - 16 Aug 2008 21:40 GMT
> As the child of someone who not only refused
> social service intervention but whose other children are reaping the
> whirlwind of her decline, I know that calling social services is a lot
> easier than getting them to do anything.

You are confusing Adult Protective Services with regular social
services folks.  ADP is required by law to investigate any report
of elder abuse or neglect, and required by law to ensure the
safety of the elderly and disabled.
news.chi.sbcglobal.net - 19 Aug 2008 04:27 GMT
Terribly sad story.    You have heard the saying, "Two can take care of ten,
but ten cannot take care of two"   (their parents.)
Perhaps it is best not to interfere except for the driving.   They will
surely think to put her in the nursing home.    Another option could perhaps
be, bringing  in someone to help a few hours a day, and bring her husband
home from the nursing home.    My opinion of the nursing homes is not
complimentary.    If they have the money, bringing in a nice person to help
might be a solution.
Gail Michael
news.chi.sbcglobal.net - 19 Aug 2008 04:51 GMT
This is Evelyn's  anti-depressant troll talking.   I stand by my accusation
that anti-depressants can do innocent people in and they are rife in the
nursing homes.    Other than that the care at a good nursing home is
welcome.   I see  people crying in the nursing homes and I tell one of the
caretakers.   She says that's nothing, they all cry sometimes.    Wonder how
they would feel if that was their mother.
No one cries for nothing, I don't think.    This poor woman was ill because
the nursing home made her ill from the environment of the anti-depressants.
And they probably put her in a room with a  person on anti-depressants.
They keep changing rooms. Evelyn, you don't know for certain that
anti-depressamts cannot  harm another person.
Only reasoning tells you this cannot be.  But everything in the world does
not go according to reason, no matter what science says.
If all these people that write would form a group, and insist that the
nursing homes ban the anti-depressants, no one would get sick unnecessarily
and they could socialize with each other in a natural state of mind and no
one would be harmed.   For the really anxious residents they could give
Valium, which is safe for everyone.
I wish I had the energy and health to start such a movement.,   Everyone
would benefit.
Gail
> Terribly sad story.    You have heard the saying, "Two can take care of
> ten, but ten cannot take care of two"   (their parents.)
[quoted text clipped - 5 lines]
> help might be a solution.
> Gail Michael
deerwoodflower@hotmail.com - 19 Aug 2008 08:38 GMT
On Aug 18, 10:51 pm, "news.chi.sbcglobal.net"
<kureforcro...@sbcglobal.net> wrote:
> This is Evelyn's  anti-depressant troll talking.   I stand by my accusation
> that anti-depressants can do innocent people in and they are rife in the
[quoted text clipped - 28 lines]
>
> - Show quoted text -

My God ,how could anyone think we can catch a disease from anti-
depressants?That is more confused than my mother was.I take them and
my family is healthy.No diseases at all.We must be the minority.LOL,
Barb
Evelyn - 19 Aug 2008 12:12 GMT
On Aug 19, 3:38 am, "deerwoodflo...@hotmail.com"
<deerwoodflo...@hotmail.com> wrote:
> On Aug 18, 10:51 pm, "news.chi.sbcglobal.net"
>
[quoted text clipped - 41 lines]
>
> - Show quoted text -

Hi Barb, our anti-depressant troll is obviously just a person who is
deluded and mentally sick.   I have tried to make some sense with her
to no avail.  I wish I was still using my regular newsgroup reader
because it had a killfile.   Can't killfile the nuts on Google!

Best Regards,
Evelyn
EddyJean - 15 Aug 2008 08:15 GMT
NaturalBorn wrote:                                              What
scared me yesterday was, during our visit, her correcting me when I
called the pest a "mouse." "Oh, no no," she said, "it was yay- long"
(and she indicated at least a foot). "It's red, and hairy, and has a
head like, you know, one of those dogs." While I said nothing, she
added, "My son tells me I'm imagining things."
I said not to judge herself too harshly and that given the proximity of
her apartment to the rubbish shute, it's possible she has indeed been
visited by a creature she went on to like to a "dachsund."
========================================
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game.

Best regards,
EddyJean
naturalbornalien@yahoo.com - 15 Aug 2008 10:31 GMT
> Anything is possible, however, in my opinion, it appears your elderly
> friend has the disease but may not manifest itself in the same way as
[quoted text clipped - 7 lines]
> there's no serious research on AD, doctors don't know how to test for or
> treat AD. Unfortunately, its mostly a "guessing" game.

She has experienced increasing skin sores and dermatological problems
I ascribed to her cardiologist, who keeps pumping her full of more and
more diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain
the creature), I'd buy a gallon of gas. In my next phone conversation
with the son, I'm going to mention these symptoms and also start
keeping a little journal, until my friend is safely in another
environment.

In my heart, I still believe this is a "nervous breakdown" of an
otherwise mentally-sound woman. That's the painful part: when age
itself makes you vulnerable to diagnoses you only *may* suffer from.

God, this life is rough!
Evelyn - 15 Aug 2008 13:21 GMT
On Aug 15, 5:31 am, naturalbornal...@yahoo.com wrote:
> > Anything is possible, however, in my opinion, it appears your elderly
> > friend has the disease but may not manifest itself in the same way as
[quoted text clipped - 25 lines]
>
> God, this life is rough!

Please allow me to tell you that Eddy Jean is a bit confused.   She is
obsessed with this Ramsey Hunt business, which is probably total
nonsense.   This is usenet and we cannot prevent trolls with strange
ideas from posting here.   We have the iron troll, the shoe troll, the
anti-depressant troll, and Eddy Jean.

If you have any influence at all on the lady and her son, please urge
them to get her tested for all known medical possibilities.   Some
causes of dementia can be as innocent as a thyroid deficiency, totally
reversible with the right dose of thyroid meds, and as complicated as
NPH.... normal pressure hydrocephalus, which is essentialy a clogged
drain of brain fluid from the brain.   Both these possibilities are
completely reversible!

If it turns out to be alzheimers disease, or picks disease, or frontal
lobe dementia, or whatever, it really makes sense to have a proper
diagnosis, so that the proper medication can be found.

Good Luck,
Evelyn
EddyJean - 16 Aug 2008 07:45 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Fri, Aug 15, 2008, 5:21am From:
evelyn.ruut@gmail.com (Evelyn)
On Aug 15, 5:31 am, naturalbornal...@yahoo.com wrote:
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game.
She has experienced increasing skin sores and dermatological problems I
ascribed to her cardiologist, who keeps pumping her full of more and
more diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain the
creature), I'd buy a gallon of gas. In my next phone conversation with
the son, I'm going to mention these symptoms and also start keeping a
little journal, until my friend is safely in another environment.
In my heart, I still believe this is a "nervous breakdown" of an
otherwise mentally-sound woman. That's the painful part: when age itself
makes you vulnerable to diagnoses you only *may* suffer from.
God, this life is rough!
Please allow me to tell you that Eddy Jean is a bit confused.   She is
obsessed with this Ramsey Hunt business, which is probably total
nonsense.   This is usenet and we cannot prevent trolls with strange
ideas from posting here.   We have the iron troll, the shoe troll, the
anti-depressant troll, and Eddy Jean.
If you have any influence at all on the lady and her son, please urge
them to get her tested for all known medical possibilities.   Some
causes of dementia can be as innocent as a thyroid deficiency, totally
reversible with the right dose of thyroid meds, and as complicated as
NPH.... normal pressure hydrocephalus, which is essentialy a clogged
drain of brain fluid from the brain.   Both these possibilities are
completely reversible!
If it turns out to be alzheimers disease, or picks disease, or frontal
lobe dementia, or whatever, it really makes sense to have a proper
diagnosis, so that the proper medication can be found.
Good Luck,
Evelyn
==========================================
It's Evelyn who's confused.  Ramsay Hunt Syndrome was discovered in 1907
by the late Dr. James R. Hunt but his work covered up, had his work been
followed up on, we wouldn't be going through the hell many endure now.
Dr. Hunt was listed in the book of WHO's WHO and his work recorded in
the medical/history books. For some reason, Evelyn can't stand it
whenever anyone comes along with a different view from hers. She refers
to some of us as "trolls" but hasn't an M.D. or Ph.d to her name.  Now
that's laughable!  According to her, only she's right and everyone else
is wrong. A troll? It takes one to know one.
EddyJean
deerwoodflower@hotmail.com - 19 Aug 2008 08:33 GMT
> Re: Warning Signs Question  
>
[quoted text clipped - 54 lines]
> is wrong. A troll? It takes one to know one.
> EddyJean

Eddy Jean,
 Evelyn has more knowledge of this disease than you will ever
have.And Evelyn or any of us who have struggled through this disease
could probably have a PHD behind our names when it comes to AD.She
didn't waste her time saying you were wrong.She just tells it how she
see's it.You are wacked!!!!!   My words not Evelyns.Barb
Evelyn - 15 Aug 2008 13:23 GMT
On Aug 15, 5:31 am, naturalbornal...@yahoo.com wrote:
> > Anything is possible, however, in my opinion, it appears your elderly
> > friend has the disease but may not manifest itself in the same way as
[quoted text clipped - 25 lines]
>
> God, this life is rough!

Another note: the skin sores can be from thyroid deficiency or it can
be from not bathing often enough.   Many dementia sufferers stop
taking regular baths for a long time before their deficiencies are
discovered.

Evelyn
naturalbornalien@yahoo.com - 16 Aug 2008 02:37 GMT
> Another note: the skin sores can be from thyroid deficiency or it can
> be from not bathing often enough.   Many dementia sufferers stop
> taking regular baths for a long time before their deficiencies are
> discovered.

I'm fairly certain she takes Levoxyl or Synthroid. I watched the film
"The Savages" today (starring Laura Linney and Philip Seymour Hoffman)
and was so much more impressed with its treatment of AD than the more
celebrated "Away from Her," which in comparison was a Hallmark Hall of
Fame warm amd fuzzy greeting card. Although I don't know EddyJean from
this group (which I read occasionally, at length), the one thing that
I do agree with him/her on, and a point that The Savages also made,
was that AD is so mysterious.

In the film, a doctor tutors the siblings on the various kinds of
dementia and ultimately tells them their father is suffering from
Parkinson's Disease. The father dies within a short time of being
admitted to the nursing home, and at one point the brother and sister
argue pointlessly about how pointless it is to try to categorize
dementia.

I'm only praying that, if assessed, my friend is spared the label or
the "number" that goes along with it. She is sufficiently vital that
for someone to tell her to her face that she has AD will kill her.

But I have prayed before for God to take various elderly loved ones or
dearly beloved friends whose spirits are broken within the confines of
a nursing home. In only one case, a non-AD mentally-challenged 62 year-
old dying of excruciating stomach cancer that could have been
prevented, was my prayer answered.

Sorry for a grim response, but it's so very important to be willing to
journey with the AD patient into Hell, if that's what's required, in
order to reassure them they're still human beings, still "one of us."

Thanks again to EVERYONE. This thread is the first in fifteen years on
Usenet where the various contributions actually played a part in
bringing about real-life action; and I'll keep all of you in my
prayers.
Dennis P. Harris - 16 Aug 2008 21:46 GMT
> But I have prayed before for God to take various elderly loved ones or
> dearly beloved friends whose spirits are broken within the confines of
> a nursing home.

Not all facilities are the same.  Many are bright, clean, and
supportive environments with staff that encourage patients to
function at their maximum capability.

It's important to start searching for the proper facility as soon
as possible, so that you don't have to place your LO in the first
place with an available bed, rather than the best one for the LO
and their situation.
EddyJean - 16 Aug 2008 07:04 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Fri, Aug 15, 2008, 2:31am From:
naturalbornalien@yahoo.com
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game.
She has experienced increasing skin sores and dermatological problems I
ascribed to her cardiologist, who keeps pumping her full of more and
more diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain the
creature), I'd buy a gallon of gas. In my next phone conversation with
the son, I'm going to mention these symptoms and also start keeping a
little journal, until my friend is safely in another environment.
In my heart, I still believe this is a "nervous breakdown" of an
otherwise mentally-sound woman. That's the painful part: when age itself
makes you vulnerable to diagnoses you only *may* suffer from.
God, this life is rough!  
==========================================
Skin problems, tingles and the feeling of crawly things are often
manifested in this disease. Some might refer to the crawly things as
"Restless Leg Syndrome" but is actually another symptom of AD. I think
you have your answer. It appears your friend has the disease.
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!!  It
doesn't get better but progressively worse. Thank God she has you
looking out for her.

Best wishes,
EddyJean
deerwoodflower@hotmail.com - 19 Aug 2008 08:26 GMT
> Re: Warning Signs Question  
>
[quoted text clipped - 38 lines]
> Best wishes,
> EddyJean

Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are
basically
left to fend for themselves in the richest country of the world!!!!

Eddy Jean you are so evil.There are many meds out there to treat AD.
No they don't cure it but from experience i know they sure as hell
help temendously.Without some of my moms meds she would have been in
much worse shape.So STOP giving false info.Barb
Evelyn - 19 Aug 2008 12:15 GMT
On Aug 19, 3:26 am, "deerwoodflo...@hotmail.com"
<deerwoodflo...@hotmail.com> wrote:

> > Re: Warning Signs Question  
>
[quoted text clipped - 50 lines]
>
> - Show quoted text -

Hi Barb,

She's another wacko.   Between Eddy Jean and Gail, both with their
wacky theories, I wonder how a person who is really caring for a sick
person can manage to find the truth.    I wish there was some way to
label the trolls so people would see it and know to just avoid their
posts.

Evelyn
Adelle - 19 Aug 2008 13:39 GMT
On Aug 19, 3:26 am, "deerwoodflo...@hotmail.com"
<deerwoodflo...@hotmail.com> wrote:
> On Aug 16, 1:04 am, eddyj...@webtv.net (EddyJean) wrote:
>
>Hi Barb,

>She's another wacko.   Between Eddy Jean and Gail, both with their
>wacky theories, I wonder how a person who is really caring for a sick
>person can manage to find the truth.    I wish there was some way to
>label the trolls so people would see it and know to just avoid their
>posts.

>Evelyn

Evelyn,

On another NG  we have self appointed 'guardians.' When one of the trolls is
posting (and one of them crossposts to here about a certain mineral) they
have a simple message that essentially says -  certain posters have an axe
to grind on a single theory which has no basis in fact. The theories are
unfounded and it could be dangerous to follow their advice. On all medical
matters, consult a physician whose advice you trust.

Otherwise, most of us don't bother responding at all, and certainly not
directly to the troll.

Adelle
Evelyn - 19 Aug 2008 17:12 GMT
> On Aug 19, 3:26 am, "deerwoodflo...@hotmail.com"
>
[quoted text clipped - 22 lines]
>
> Adelle

Good idea.   That mineral troll you mentioned also posts on several
other newsgroups I follow.   In some cases people engage the idiot in
flame fests, which does no good of course.     Most of us who have
been here a while know who the problem people are and just ignore
them, but there are a few more recent posters who don't know.

It would be good if someone did post a statement like that once in a
while.

Evelyn
EddyJean - 20 Aug 2008 08:00 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Tue, Aug 19, 2008, 9:12am From:
evelyn.ruut@gmail.com (Evelyn)
On Aug 19, 8:39 am, "Adelle" <adNOsta...@SPAMcomcast.net> wrote:
"Evelyn" <evelyn.r...@gmail.com> wrote in message
news:a81a9b70-a358-40af-b9c4-eef368c87b78@l42g2000hsc.googlegroups.com...
On Aug 19, 3:26 am, "deerwoodflo...@hotmail.com"
<deerwoodflo...@hotmail.com> wrote:
On Aug 16, 1:04 am, eddyj...@webtv.net (EddyJean) wrote:
Hi Barb,
She's another wacko.   Between Eddy Jean and Gail, both with their
wacky theories, I wonder how a person who is really caring for a sick
person can manage to find the truth.    I wish there was some way to
label the trolls so people would see it and know to just avoid their
posts.
Evelyn
Evelyn,
On another NG  we have self appointed 'guardians.' When one of the
trolls is posting (and one of them crossposts to here about a certain
mineral) they have a simple message that essentially says -  certain
posters have an axe to grind on a single theory which has no basis in
fact. The theories are unfounded and it could be dangerous to follow
their advice. On all medical matters, consult a physician whose advice
you trust.
Otherwise, most of us don't bother responding at all, and certainly not
directly to the troll.
Adelle
Good idea.   That mineral troll you mentioned also posts on several
other newsgroups I follow.   In some cases people engage the idiot in
flame fests, which does no good of course.     Most of us who have
been here a while know who the problem people are and just ignore them,
but there are a few more recent posters who don't know.
It would be good if someone did post a statement like that once in a
while.
Evelyn
==========================================
Folks:  These conspirators don't want you to know the truth.  Viruses
cause facial-cranial (neurological) diseases.  I would love to consult
with a physician if I could find one who knew anything about the
disease.  There's NONE! The only thing available is "bandaid" medicine
which cures nothing but leaves you fending for yourself.
EddyJean
EddyJean - 20 Aug 2008 07:08 GMT
Eddy Jean you are so evil.There are many meds out there to treat AD. No
they don't cure it but from experience i know they sure as hell help
temendously.Without some of my moms meds she would have been in much
worse shape.So STOP giving false info.Barb
========================================= If your talking about
sedating, or killing pain, yes, there's medication for it, If its
fighing secondary infections caused from the disease,  yes there are
antibiotics that may bring relief for a short time, but if your talking
about medication to fight AD, there's NONE! We have nothing to fight the
virus that causes AD. From your own words, your mother was unable to
care for herself and died but say the medicine helped her tremendously?
Get real, Barb
EddyJean
.
deerwoodflower@hotmail.com - 20 Aug 2008 17:12 GMT
> Eddy Jean you are so evil.There are many meds out there to treat AD. No
> they don't cure it but from experience i know they sure as hell help
[quoted text clipped - 10 lines]
> EddyJean
> .

My mother was 87 so i guess dying wasn't such a bad thing Eddy
Jean.And yes the meds helped her a great deal.She was not sedated or
in need of pain meds.
EddyJean - 20 Aug 2008 08:09 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Tue, Aug 19, 2008, 12:26am From:
deerwoodflower@hotmail.com
On Aug 16, 1:04 am, eddyj...@webtv.net (EddyJean) wrote:
Re: Warning Signs Question  
Group: alt.support.alzheimers Date: Fri, Aug 15, 2008, 2:31am From:
naturalbornal...@yahoo.com
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game. She has
experienced increasing skin sores and dermatological problems I ascribed
to her cardiologist, who keeps pumping her full of more and more
diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain the
creature), I'd buy a gallon of gas. In my next phone conversation with
the son, I'm going to mention these symptoms and also start keeping a
little journal, until my friend is safely in another environment. In my
heart, I still believe this is a "nervous breakdown" of an otherwise
mentally-sound woman. That's the painful part: when age itself makes you
vulnerable to diagnoses you only *may* suffer from. God, this life is
rough!  
==========================================
Skin problems, tingles and the feeling of crawly things are often
manifested in this disease. Some might refer to the crawly things as
"Restless Leg Syndrome" but is actually another symptom of AD. I think
you have your answer. It appears your friend has the disease.
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!!
 It doesn't get better but progressively worse. Thank God she has you
looking out for her.
Best wishes,
EddyJean
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!!
Eddy Jean you are so evil.There are many meds out there to treat AD. No
they don't cure it but from experience i know they sure as hell help
temendously.Without some of my moms meds she would have been in much
worse shape.So STOP giving false info.Barb  
----------------------------------------------------------------------------
Oh, the Holy One has spoken.  Another one who doesn't want you to know
the truth.
EddyJean
deerwoodflower@hotmail.com - 20 Aug 2008 17:18 GMT
> Re: Warning Signs Question  
>
[quoted text clipped - 52 lines]
> the truth.
> EddyJean

Get off your high horse Eddy. I know the truth as does everyone else
in here.You don't know your a.s from a whole in the ground.And thats
the truth!!!! When you find all this info. let us know.i will try to
ressurect my mom so she can be cured.
V.Jean.G. - 21 Aug 2008 08:10 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Wed, Aug 20, 2008, 9:18am From:
deerwoodflower@hotmail.com
Re: Warning Signs Question  
Group: alt.support.alzheimers Date: Tue, Aug 19, 2008, 12:26am From:
deerwoodflo...@hotmail.com
On Aug 16, 1:04 am, eddyj...@webtv.net (EddyJean) wrote: Re: Warning
Signs Question  
Group: alt.support.alzheimers Date: Fri, Aug 15, 2008, 2:31am From:
naturalbornal...@yahoo.com
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game. She has
experienced increasing skin sores and dermatological problems I ascribed
to her cardiologist, who keeps pumping her full of more and more
diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain the
creature), I'd buy a gallon of gas. In my next phone conversation with
the son, I'm going to mention these symptoms and also start keeping a
little journal, until my friend is safely in another environment. In my
heart, I still believe this is a "nervous breakdown" of an otherwise
mentally-sound woman. That's the painful part: when age itself makes you
vulnerable to diagnoses you only *may* suffer from. God, this life is
rough!  
==========================================
Skin problems, tingles and the feeling of crawly things are often
manifested in this disease. Some might refer to the crawly things as
"Restless Leg Syndrome" but is actually another symptom of AD. I think
you have your answer. It appears your friend has the disease.
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!!
 It doesn't get better but progressively worse. Thank God she has you
looking out for her.
Best wishes,
EddyJean
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!! Eddy
Jean you are so evil.There are many meds out there to treat AD. No they
don't cure it but from experience i know they sure as hell help
temendously.Without some of my moms meds she would have been in much
worse shape.So STOP giving false info.Barb  
----------------------------------------------
Oh, the Holy One has spoken.  Another one who doesn't want you to know
the truth.
EddyJean
Get off your high horse Eddy. I know the truth as does everyone else in
here.You don't know your a.s from a whole in the ground.And thats the
truth!!!! When you find all this info. let us know.i will try to
ressurect my mom so she can be cured.  
======================================
Barb---What do you mean, when you find all this info, let us know.  Who
is "us?"  The information is already found: The late James R. Hunt
discovered in 1907 the viruses that cause facial cranial (neurological)
diseases.  Apparently your part of a plan to prevent people from knowing
his work was covered up?    By the way, have you thought of taking a
class in anger control? It might help you.  
EddyJean
Evelyn - 21 Aug 2008 09:15 GMT
> Re: Warning Signs Question  
>
[quoted text clipped - 67 lines]
> class in anger control? It might help you.  
> EddyJean

Eddy Jean,

It is you who have the problem.   You keep posting the same nonsense
over and over again and everyone but you knows that it is nonsense.
I call that delusion.

Evelyn
Adelle - 21 Aug 2008 15:17 GMT
On Aug 21, 3:10 am, Tijua...@webtv.net (V.Jean.G.) wrote:
> Re: Warning Signs Question
>
[quoted text clipped - 67 lines]
> class in anger control? It might help you.
> EddyJean

>Eddy Jean,
>
[quoted text clipped - 3 lines]
>
>Evelyn

Evelyn,

I killfiled Eddy Jean a while ago. But she keeps creating new email
addresses to circumvent, presumably when people stop responding. That is a
true hallmark of a troll.

Perhaps it is time for us to simply ignore and not respond any longer.  Why
subject ourselves to being in the vortex when we can just disengage?

Adelle
Evelyn - 21 Aug 2008 16:24 GMT
> On Aug 21, 3:10 am, Tijua...@webtv.net (V.Jean.G.) wrote:
>
[quoted text clipped - 89 lines]
>
> - Show quoted text -

Hi Adelle,

I am posting through google these days and there is no killfile
option.   That said, I usually do ignore.   The only time I respond is
when some newcomer appears in the group who might fall prey to the
trollery.

Unfortunately usenet has always been a bit wild and woolly, and the
nuts and flakes have a place to spout their nonsense.

Evelyn
Carolina Songbird - 21 Aug 2008 18:35 GMT
> Hi Adelle,
>
[quoted text clipped - 7 lines]
>
> Evelyn

Evelyn, I downloaded Mozilla Thunderbird (www.mozilla.com) as a free
newsreader. It was very easy to do and the killfile function super
simple to use.

Songbird
Evelyn - 21 Aug 2008 19:54 GMT
On Aug 21, 1:35 pm, Carolina Songbird <carolinasongb...@gmail.com>
wrote:

> > Hi Adelle,
>
[quoted text clipped - 13 lines]
>
> Songbird

Songbird, I subscribed to motzarella but couldn't figure out how to
make it work.   Stepson is coming this weekend (I hope) and with luck
he will get it up and running.   Whoopee!  There will finally be no
more eddyjean, gail or the iron troll.

Evelyn
Bud - 21 Aug 2008 21:33 GMT
> Whoopee!  There will finally be no
> more eddyjean, gail or the iron troll.

Except for those that answer them and include all the trolls post. Sigh!

Bud
naturalbornalien@yahoo.com - 24 Aug 2008 12:19 GMT
On Aug 21, 1:35 pm, Carolina Songbird <carolinasongb...@gmail.com>
wrote:

> Evelyn, I downloaded Mozilla Thunderbird (www.mozilla.com) as a free
> newsreader. It was very easy to do and the killfile function super
> simple to use.

Wait, I have Firefox!  Shouldn't that allow me to killfile?  I'll have
to check out the Mozilla site, because it's been a while. Thanks for
posting this.

My friend is now resisting Assisted Living.  I spoke with her
yesterday about a non-AD related (at least allegedly non-AD related
problem)--legs as thick, tough, and blotchy as stove pipes. We
discussed thyroid problems, which she claims to have but--like my own
thyroid condition--need no medication for. We spoke of the need for
her to consider leaving a family doctor who's been her family doctor
for decades but who no longer seems to take her seriously (she won't
leave him).

Then all of a sudden she responded with a total non sequitur about her
husband, in his nursing home (with full blown AD). Although I've been
known to utilize more than a few non sequiturs in my life, this one
really came out of nowhere. It shows how great a part stress and non-
stop "pre-mourning" for her mate play in whatever her own condition
may turn out to be.

Thanks again for the information regarding Mozilla.
Evelyn - 24 Aug 2008 12:25 GMT
On Aug 24, 7:19 am, naturalbornal...@yahoo.com wrote:
> On Aug 21, 1:35 pm, Carolina Songbird <carolinasongb...@gmail.com>
> wrote:
[quoted text clipped - 24 lines]
>
> Thanks again for the information regarding Mozilla.

Hi, I thought I should mention that some thyroid conditions can
manifest as an alzheimers sort of dementia.   The good news is that it
is reversible with thyroid medications.   This is why a thyroid test
is almost always included in any testing to decide if a person has
alzheimers or not.

Evelyn
carolinasongbird@gmail.com - 24 Aug 2008 17:21 GMT
> On Aug 21, 1:35 pm, Carolina Songbird <carolinasongb...@gmail.com>
> wrote:
[quoted text clipped - 5 lines]
> to check out the Mozilla site, because it's been a while. Thanks for
> posting this.

Firefox is a web browser and allows you to access the group through
Google groups, which does not have a killfile function that I can find.
But if you like Firefox, you will find using Thunderbird a breeze as
well. You can also use Thunderbird for your email rather than the often
buggy Outlook. I still use Outlook because I am used to using it for
business ... but if it keeps locking up on me ... things may have to change!

> My friend is now resisting Assisted Living.  I spoke with her
> yesterday about a non-AD related (at least allegedly non-AD related
> problem)--legs as thick, tough, and blotchy as stove pipes.

By this, do you mean they are swollen? This is called peripheral edema.
It can be a symptom of diabetes or of beginning heart failure, as well
as several less serious things. (For one thing, it is more common in
older people just because the veins in your legs aren't as strong as
they used to be. That's why many seniors wear support hose.) It can
interfere with her circulation to her feet -- and you don't want to go
down that road.

If it is persistent (and not just from one day at Disney World walking
around in the heat!), she needs to see a doctor about it to rule out a
more serious problem. If the edema is coupled with trouble catching her
breath or breathlessness, she needs to see a doctor right away. That
could mean she also has fluid pooling around her heart and lungs, the
beginning of congestive heart failure. The doctor can prescribe a
diuretic to help flush that fluid out of her system. In the meantime,
she can get some relief by elevating her feet as much as possible and
   drinking lots of water. I know, that sounds odd -- if she has too
much water on her legs, why drink more? But drinking more water helps
your body's own natural system to eliminate too much fluid work more
effectively.

Disclaimer <G>: I am not a nurse or a doctor and have not played one on
TV either, but I have been through this with both parents.

We
> discussed thyroid problems, which she claims to have but--like my own
> thyroid condition--need no medication for. We spoke of the need for
> her to consider leaving a family doctor who's been her family doctor
> for decades but who no longer seems to take her seriously (she won't
> leave him).

Not slamming the 60-plus set, but if he has been her family doctor for
decades, he may not be as sharp as he once was. (Or he may the best doc
in town, I don't know.) But 45 or 60 or 85, if he's not taking her
seriously -- time for  a new doc. When my mom's doc said he wasn't
worried about getting her diabetes under control because of her age (70)
and dementia -- we found a new doc. That was in February and I think she
would have been dead by now if we had not switched. As it is, we are
still struggling to get the diabetes under control, but if we had left
her meds where they were, she would have had major complications
(blindness, stroke, coma) by now.

She's fortunate to have you.

Songbird
naturalbornalien@yahoo.com - 26 Aug 2008 00:14 GMT
On Aug 24, 12:21 pm, "carolinasongb...@gmail.com"

> It can be a symptom of diabetes or of beginning heart failure, as well
> as several less serious things. (For one thing, it is more common in
> older people just because the veins in your legs aren't as strong as
> they used to be. That's why many seniors wear support hose.) It can
> interfere with her circulation to her feet -- and you don't want to go
> down that road.

Exactly.  Her cardiologist, whom I and my family once also used and
considered very compassionate, is becoming reckless and seemingly
indifferent to many of his patients. He prescribes the leg-upright and
diuretic regimen, but there's no--NO--talk of CHF.

Of course, I'm assuming my friend is telling me the truth; and I do
believe she is. She's a frank, brave, plain-spoken lady, and I say
this as someone who has infinite experience with similarly afflicted
women who are none of those things. But especially if she is telling
me the truth, and her cardiologist refuses to discuss (what to me) is
a positively terrifying state of her legs, and that if she continues
to be "chair-ridden," she may well need a nursing home rather than
assisted living... Well, I think this is negligent.

I don't believe in alarming people. It serves no purpose. But this
cardiologist is one of those "jokester" doctors; and they really get
on your nerves after awhile, making light of dire conditions. Of
course the elderly are going to die, on average, sooner than the
young. That doesn't give physicians who specialize in diseases that
afflict the elderly predominantly the right to trivialize them!
> Not slamming the 60-plus set, but if he has been her family doctor for
> decades, he may not be as sharp as he once was. (Or he may the best doc
[quoted text clipped - 6 lines]
> her meds where they were, she would have had major complications
> (blindness, stroke, coma) by now.

Thanks again for your kindly words. I confronted her directly about
the fact that her friend/PCP is not doing "right" by her. I used more
delicate words, of course, but she made it clear that changing is just
not going to happen.  You are fortunate to have been able to convince
your mom, and if I may return the compliment, your mom is fortunate to
have you!
EddyJean - 23 Aug 2008 08:27 GMT
Re: Warning Signs Question  

Group: alt.support.alzheimers Date: Thu, Aug 21, 2008, 1:15am From:
evelyn.ruut@gmail.com (Evelyn)
On Aug 21, 3:10 am, Tijua...@webtv.net (V.Jean.G.) wrote:
Re: Warning Signs Question  
Group: alt.support.alzheimers Date: Wed, Aug 20, 2008, 9:18am From:
deerwoodflo...@hotmail.com
On Aug 20, 2:09 am, eddyj...@webtv.net (EddyJean) wrote: Re: Warning
Signs Question  
Group: alt.support.alzheimers Date: Tue, Aug 19, 2008, 12:26am From:
deerwoodflo...@hotmail.com
On Aug 16, 1:04 am, eddyj...@webtv.net (EddyJean) wrote: Re: Warning
Signs Question  
Group: alt.support.alzheimers Date: Fri, Aug 15, 2008, 2:31am From:
naturalbornal...@yahoo.com
Anything is possible, however, in my opinion, it appears your elderly
friend has the disease but may not manifest itself in the same way as
with her husband. AD is a complex disease. According to the late Dr.
James Hunt, Ramsay-Hunt Syndrome is the same, or very similar to AD. He
discovered the viruses that attack the brain causing facial-cranial
diseases. When the brain malfunctions, strange things can happen.Your
friend may still be able to function even though she sees a red-haired
creature zooming by her from time to time. When she spoke of the
creature, did she seem frightened unwilling to be by herself? Since
there's no serious research on AD, doctors don't know how to test for or
treat AD. Unfortunately, its mostly a "guessing" game. She has
experienced increasing skin sores and dermatological problems I ascribed
to her cardiologist, who keeps pumping her full of more and more
diuretics to treat what must be congestive heart failure *in
combination* with some other stenosis-causing ailment. Thanks for
telling me about a variation of the disease I had never heard of,
because if I had a dime for every time I heard how her face "tingles,"
or how she has sensations of "crawly things" (which may even explain the
creature), I'd buy a gallon of gas. In my next phone conversation with
the son, I'm going to mention these symptoms and also start keeping a
little journal, until my friend is safely in another environment. In my
heart, I still believe this is a "nervous breakdown" of an otherwise
mentally-sound woman. That's the painful part: when age itself makes you
vulnerable to diagnoses you only *may* suffer from. God, this life is
rough!  
==========================================
Skin problems, tingles and the feeling of crawly things are often
manifested in this disease. Some might refer to the crawly things as
"Restless Leg Syndrome" but is actually another symptom of AD. I think
you have your answer. It appears your friend has the disease.
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!!
 It doesn't get better but progressively worse. Thank God she has you
looking out for her.
Best wishes,
EddyJean
Unfortunately, doctors don't know how to treat it and there's nothing
really for it unless secondary infections develop. People are basically
left to fend for themselves in the richest country of the world!!!! Eddy
Jean you are so evil.There are many meds out there to treat AD. No they
don't cure it but from experience i know they sure as hell help
temendously.Without some of my moms meds she would have been in much
worse shape.So STOP giving false info.Barb  
----------------------------------------------
Oh, the Holy One has spoken.  Another one who doesn't want you to know
the truth.
EddyJean
Get off your high horse Eddy. I know the truth as does everyone else in
here.You don't know your a.s from a whole in the ground.And thats the
truth!!!! When you find all this info. let us know.i will try to
ressurect my mom so she can be cured.  
======================================
Barb---What do you mean, when you find all this info, let us know.
 Who is "us?"  The information is already found: The late James R.
Hunt discovered in 1907 the viruses that cause facial cranial
(neurological) diseases.  Apparently your part of a plan to prevent
people from knowing his work was covered up?    By the way, have you
thought of taking a class in anger control? It might help you.  
EddyJean
Eddy Jean,
It is you who have the problem.   You keep posting the same nonsense
over and over again and everyone but you knows that it is nonsense. I
call that delusion.
Evelyn
==========================================
Evelyn---It may be nonsense to you, but not to some in this newsgroup.
You've posted about your MIL over and over again for years, so what does
that make you, --delusional?
==========================================
deerwoodflower@hotmail.com - 22 Aug 2008 03:02 GMT
> Re: Warning Signs Question  
>
[quoted text clipped - 67 lines]
> class in anger control? It might help you.  
> EddyJean

Eddy Jean,
 You could piss off a nun so no i don't really have an anger problem.
Bud - 22 Aug 2008 16:48 GMT
> Eddy Jean,
>   You could piss off a nun so no i don't really have an anger problem.

ROTFL!!

Bud
 
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