Medical Forum / Diseases and Disorders / Alzheimer's / July 2008
Brother-in-law
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brianna_1938 - 15 Jul 2008 22:00 GMT I pray every day for guidance and I firmly believe God helps.
My brother-in-law seems to be getting weak. He can hardly stand from his walker.
He tells another"person" although no one present in the room to call my sister to help him. When it is really my sister he is talking to. Could he be forgetting what she looks like? He talks to other people in the room, and no one is there but her. My brother-in-law complains about his ankle hurting him. We took him to the ER. They x-rayed, did a ultra sound but could not find anything wrong. I don't think he is making it up because he seems to be writhing in pain. The doctor gave him pain medication but he sleeps a lot from it. He has this far away look on his face and he stares without moving his eyes at all. He seems to be in the middle stages of this dreadful disease. We can't take him out to dinner anymore or just shopping.
Thanks for listening and if anyone has any feedback, please write. BRI
Bud - 15 Jul 2008 22:21 GMT > He tells another"person" although no one present in the room to call my > sister to help him. When it is really my sister he is talking to. Could he > be forgetting what she looks like? He talks to other people in the room, and > no one is there but her. ...
> Thanks for listening and if anyone has any feedback, please write. > BRI My sister-in-law seemed to regress to earlier days and would talk to her deceased parents and brother as if they were there with her. It brought us a small sense of relief to think that she might be, in her mind at least, with her loved family of years ago. Maybe your brother-in-law is experiencing a similar going back to good old days.
Bud
brianna_1938 - 16 Jul 2008 02:55 GMT >> He tells another"person" although no one present in the room to call my >> sister to help him. When it is really my sister he is talking to. Could he [quoted text clipped - 11 lines] > >Bud My brother-in-law talks to his deceased parents and brother too. Sometimes he talks about things and we cannot make heads or tails out of it because we don't know who he is talking about.
Thank you for answering. It helps us very much to understand.
Bri
Evelyn - 15 Jul 2008 23:13 GMT > I pray every day for guidance and I firmly believe God helps. > [quoted text clipped - 19 lines] > -- > Message posted viahttp://www.medkb.com Hi Brianna,
I can't help but really feel sorry for your poor sister, and anyone else who is going through this caring for a loved one. I remember when we realized we couldn't take my mother in law out socially anymore. She would get so confused and actually forgot who I was on one occasion. After that I realized she was even less cognizant than we imagined she was. This is quite sadly, a downhill journey. It doesn't get any better, it just gets worse. That is just the way it is, unfortunately. There are meds that can help, but only a little. Sometimes we were very grateful for that much.
I am glad she is in touch with doctors and getting him medical help. They often can't explain that they have pain, or where it hurts or what is exactly hurting. My mother in law was developing pancreatic cancer and could not articulate that she had any pain or where it was. The only evidence we saw, was that she ate sparingly and only liked homemade soup. I suppose it was easier to digest, though I don't really know.
If the medication is making him sleepy, that may actually be a good thing. It is better than being paranoid or violent or accusatory or aggressive. All of those things are possible. At least if he is sleepy he is probably a little easier to deal with.
But always remember they don't have control over any of that like a normal person would. Alzheimers is a real organic brain disease that is actually visible in diagnostic tests, like PET scans etc.
Your sister is lucky to have you to help her out. We had no other family to help, but we did have a wonderful neighbor who occasionally granny-sat for us, which helped us save our sanity when it was rough.
Evelyn
brianna_1938 - 16 Jul 2008 02:58 GMT >> I pray every day for guidance and I firmly believe God helps. >> [quoted text clipped - 36 lines] > >Evelyn Evelyn, Thank you for your feed back. You don't know how much we appreciate your answers.
It is like you said, it is a good thing he can sleep with the medication because he isn't as agressive or mean to my sister.
Today, we went to the bank to take care of business and he was just looking at other people to see what they were doing. Never interested in what the bank teller was saying. Before he had this sickness he would be in there reading every line and made sure they knew what they were doing. Today, he didn't seem to care.
Thank you again, Bri
Mr_Markham - 16 Jul 2008 12:58 GMT > I pray every day for guidance and I firmly believe God helps. > [quoted text clipped - 19 lines] > -- > Message posted viahttp://www.medkb.com I doubt he was making it up either; the pain he felt he may have felt someplace else and simply gave the wrong word for; thus, 'ankle' when he meant pain in his shin, knee, hip, abdomen, etc... Or, who knows, he may have been reliving a previous pain in his life and recalling how bad it made him feel then. From what I know, people with AD often regress to about the age of 14 to 25 at least emotionally, maybe he was reliving some injury from back then as well? Hard to say, but no matter what it was, I'm glad he got treated for it anyway. Pain is what the patient says it is, IMO. Sorry this is happening to him and your family.
news.chi.sbcglobal.net - 19 Jul 2008 00:49 GMT You asked for feedback, and this is my rejpititious feedback. Not pleasant to hear, but I see it in the nursing home I visit. You can be pretty certain your brother in law's ankle is hurting and he cannot sort out his condition. To everybody's consternation, I will repeat what is probably taking place. Some people are receiving anti-depressants and some are not in the nursing home. Anti-depressants and all stimulants have the capacity to harm innocent people by a mind/body connection. When the people that take anti-depressants talk to or observe another patient constantly, there is the uncanny ability for their anti-depressant to send harm to an innocent person. Strange and weird, that is apparently a symptom of crohns disease, which your brother in law would not experience except for the anti-depressant use in the nursing home. One male nurse and one patient had ankle pain for no apparent reason in the home I visit, The nurse quit his job when I told him it was a patient observing him constantly at his desk duties by sitting close by. The following week, he said the doctor diagnosed his condition as Crohns disease. The other, a woman who was not there for ill health, just an older woman who made herself so visible, and suffered constantly with a swollen stomach finally could not walk and said her feet or ankles hurt. They took her to the hospital and brought her back and she stays in bed all the time with tubes for feeding. The administrator said at the time she went to the hospital, she was resigned to dying. I knew however, if she got out of the nursing home, it could be the break she needed. I am angry at the nursing home for giving anti-depressants to some residents when they should be banned entirely. Another in law of ours was in a nursing home with alzheimers in addition to not being able to care for herself, and she had an obstruction that required an operation. She lived a short time afterward. I was not aware at the time that anti-depressants were used everywhere, but now know this and I see the consequences, where the administrators think everything is a natural progression of illness. IT IS NOT. I am writing so that you may understand your brother in law better when he complains of his ankles. It is VERY LIKELY that his ankles are hurting. What to do? That is my eternal question. No one would suffer these "extra" condition if they would ban the anti-depressants. Now everyone can dispute me as is usually the case, but I maintain it is so, and your brother in law desterves understanding. Gail Michael
brianna_1938 - 19 Jul 2008 19:43 GMT >You asked for feedback, and this is my rejpititious feedback. Not pleasant >to hear, but I see it in the nursing home I visit. You can be pretty [quoted text clipped - 33 lines] >and your brother in law desterves understanding. >Gail Michael Thank you for your feed back. My brother-in-law does not take anti- depressants. He takes Seroquel and it is our understanding the medication helps him to combat agressiveness. My sister takes very good care of him and he is not in a nursing home. We need to talk to the doctor about this medication and find out more about it. I will do research on Crohn's disease and see if he has any of those symptoms.
Thanks again, Bri
sweetpickleNO@SPAMknology.net - 19 Jul 2008 23:37 GMT Bri, you can believe all this stuff if you want to, but it is foolishness to believe that my taking antidepressants can harm another person who talks to me, or sees me. And saying that all antidepressant should be banned is pure silliness. I take an antidepressant because I need it. If I don't, I cry at the drop of a hat and can't seem to find a place to stop. When I take it, I very seldom cry. Chrons disease is not caused by antidepressants. It is a stomach, bowel problem! Gwen
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news.chi.sbcglobal.net wrote:
>You asked for feedback, and this is my rejpititious feedback. Not >pleasant [quoted text clipped - 42 lines] >and your brother in law desterves understanding. >Gail Michael Thank you for your feed back. My brother-in-law does not take anti- depressants. He takes Seroquel and it is our understanding the medication helps him to combat agressiveness. My sister takes very good care of him and he is not in a nursing home. We need to talk to the doctor about this medication and find out more about it. I will do research on Crohn's disease and see if he has any of those symptoms.
Thanks again, Bri
Evelyn - 20 Jul 2008 01:44 GMT > >You asked for feedback, and this is my rejpititious feedback. Not pleasant > >to hear, but I see it in the nursing home I visit. You can be pretty [quoted text clipped - 48 lines] > > - Show quoted text - Bri, please pay no mind to the troll. She isn't even suggesting that people who take antidepressants get crohns disease, but the people who are in the vicinity of someone taking anti depressants. Needless to say, it is a strange and unscientific idea, and something that is just her delusion. Pay no mind to it. You'll be a lot happier. Listen to your doctor instead.
Evelyn
EddyJean - 21 Jul 2008 07:19 GMT Re: Brother-in-law Group: alt.support.alzheimers Date: Sat, Jul 19, 2008, 5:44pm From: evelyn.ruut@gmail.com (Evelyn) On Jul 19, 2:43 pm, "brianna_1938 via MedKB.com" <u35594@uwe> wrote: news.chi.sbcglobal.net wrote: You asked for feedback, and this is my rejpititious feedback. Not pleasant to hear, but I see it in the nursing home I visit. You can be pretty certain your brother in law's ankle is hurting and he cannot sort out his condition. To everybody's consternation, I will repeat what is probably taking place. Some people are receiving anti-depressants and some are not in the nursing home. Anti-depressants and all stimulants have the capacity to harm innocent people by a mind/body connection. When the people that take anti-depressants talk to or observe another patient constantly, there is the uncanny ability for their anti-depressant to send harm to an innocent person. Strange and weird, that is apparently a symptom of crohns disease, which your brother in law would not experience except for the anti-depressant use in the nursing home. One male nurse and one patient had ankle pain for no apparent reason in the home I visit, The nurse quit his job when I told him it was a patient observing him constantly at his desk duties by sitting close by. The following week, he said the doctor diagnosed his condition as Crohns disease. The other, a woman who was not there for ill health, just an older woman who made herself so visible, and suffered constantly with a swollen stomach finally could not walk and said her feet or ankles hurt. They took her to the hospital and brought her back and she stays in bed all the time with tubes for feeding. The administrator said at the time she went to the hospital, she was resigned to dying. I knew however, if she got out of the nursing home, it could be the break she needed. I am angry at the nursing home for giving anti-depressants to some residents when they should be banned entirely. Another in law of ours was in a nursing home with alzheimers in addition to not being able to care for herself, and she had an obstruction that required an operation. She lived a short time afterward. I was not aware at the time that anti-depressants were used everywhere, but now know this and I see the consequences, where the administrators think everything is a natural progression of illness. IT IS NOT. I am writing so that you may understand your brother in law better when he complains of his ankles. It is VERY LIKELY that his ankles are hurting. What to do? That is my eternal question. No one would suffer these "extra" condition if they would ban the anti-depressants. Now everyone can dispute me as is usually the case, but I maintain it is so, and your brother in law desterves understanding. Gail Michael Thank you for your feed back. My brother-in-law does not take anti- depressants. He takes Seroquel and it is our understanding the medication helps him to combat agressiveness. My sister takes very good care of him and he is not in a nursing home. We need to talk to the doctor about this medication and find out more about it. I will do research on Crohn's disease and see if he has any of those symptoms. Thanks again, Bri
 Signature Message posted via MedKB.comhttp://www.medkb.com/Uwe/Forums.aspx/alzheimer/200807/1- Hide quoted text - - Show quoted text - Bri, please pay no mind to the troll. She isn't even suggesting that people who take antidepressants get crohns disease, but the people who are in the vicinity of someone taking anti depressants. Needless to say, it is a strange and unscientific idea, and something that is just her delusion. Pay no mind to it. You'll be a lot happier. Listen to your doctor instead. Evelyn &&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&& Evelyn, Isn't this what Brianna's sister and BIL have been doing, listening to their doctor? Doctors' know nothing on facial/cranial diseases but pretend they do when they don't! If their doctor knew what to do, do you think they'd be going through this nightmare now? If the medical profession were truly interested in helping neurological diseased patients, they could start by studying the virus discovered in 1907 by the late Dr. James R. Hunt. Vials of discovered viruses are held by the AMA. All they need to do is extract a drop of the virus and study it. Thousands suffering and dying needlessly bcause of this coverup. EddyJean
EddyJean - 21 Jul 2008 08:08 GMT Re: Brother-in-law Group: alt.support.alzheimers Date: Fri, Jul 18, 2008, 6:49pm (PDT+2) From: kureforcrohns@sbcglobal.net (news.chi.sbcglobal.net) You asked for feedback, and this is my rejpititious feedback. Not pleasant to hear, but I see it in the nursing home I visit. You can be pretty certain your brother in law's ankle is hurting and he cannot sort out his condition. To everybody's consternation, I will repeat what is probably taking place. Some people are receiving anti-depressants and some are not in the nursing home. Anti-depressants and all stimulants have the capacity to harm innocent people by a mind/body connection. When the people that take anti-depressants talk to or observe another patient constantly, there is the uncanny ability for their anti-depressant to send harm to an innocent person. Strange and weird, that is apparently a symptom of crohns disease, which your brother in law would not experience except for the anti-depressant use in the nursing home. One male nurse and one patient had ankle pain for no apparent reason in the home I visit, The nurse quit his job when I told him it was a patient observing him constantly at his desk duties by sitting close by. The following week, he said the doctor diagnosed his condition as Crohns disease. The other, a woman who was not there for ill health, just an older woman who made herself so visible, and suffered constantly with a swollen stomach finally could not walk and said her feet or ankles hurt. They took her to the hospital and brought her back and she stays in bed all the time with tubes for feeding. The administrator said at the time she went to the hospital, she was resigned to dying. I knew however, if she got out of the nursing home, it could be the break she needed. I am angry at the nursing home for giving anti-depressants to some residents when they should be banned entirely. Another in law of ours was in a nursing home with alzheimers in addition to not being able to care for herself, and she had an obstruction that required an operation. She lived a short time afterward. I was not aware at the time that anti-depressants were used everywhere, but now know this and I see the consequences, where the administrators think everything is a natural progression of illness. IT IS NOT. I am writing so that you may understand your brother in law better when he complains of his ankles. It is VERY LIKELY that his ankles are hurting. What to do? That is my eternal question. No one would suffer these "extra" condition if they would ban the anti-depressants. Now everyone can dispute me as is usually the case, but I maintain it is so, and your brother in law desterves understanding. Gail Michael
&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&& Gail: I don't understand it but you've been consistent from the start and care about your fellowman. While I've not had good experiences with anti-depressants, I do think some people are helped.There are unsolved mysteries in the world and feel nowadays, anything can happen. As the saying goes, sometimes truth is stranger than fiction. Thank you for reporting it. EddyJean
news.chi.sbcglobal.net - 21 Jul 2008 17:19 GMT There is no question that anti-depressants do help. I acknowledge that, but I also know the harm they do to others known to the stmulant taker. I am consistent because I am certain. I do not discuss other illnesses, because I usually know nothing about them. But crohns disease does not fall in the category of a medical causes, so it must be observed astutely. The key sometimes is that when a person feels pain or oddity when thinking of a certain person they know, they can be certain that is crohns, if it is consistent. Only problem is stress is also a factor when crohns appears, and any situation or person can set the person off with pain and damage. It really must be experienced to believe, but most persons will not even try to identify the person unknowingly causing them the illness, a free and absolute solution. I am not selling anything, in the case of crohns and ulcerative colitis, the cure is free and available with persistance. I do care very much about this, because so many people and more to come will be confined to nursing homes and they have a right to be in a safe place. The administrators, whom I thought really cared about the people are so hardened to death, their attitude is nonchalant. Gail Michael W write later.
Re: Brother-in-law
Group: alt.support.alzheimers Date: Fri, Jul 18, 2008, 6:49pm (PDT+2) From: kureforcrohns@sbcglobal.net (news.chi.sbcglobal.net) You asked for feedback, and this is my rejpititious feedback. Not pleasant to hear, but I see it in the nursing home I visit. You can be pretty certain your brother in law's ankle is hurting and he cannot sort out his condition. To everybody's consternation, I will repeat what is probably taking place. Some people are receiving anti-depressants and some are not in the nursing home. Anti-depressants and all stimulants have the capacity to harm innocent people by a mind/body connection. When the people that take anti-depressants talk to or observe another patient constantly, there is the uncanny ability for their anti-depressant to send harm to an innocent person. Strange and weird, that is apparently a symptom of crohns disease, which your brother in law would not experience except for the anti-depressant use in the nursing home. One male nurse and one patient had ankle pain for no apparent reason in the home I visit, The nurse quit his job when I told him it was a patient observing him constantly at his desk duties by sitting close by. The following week, he said the doctor diagnosed his condition as Crohns disease. The other, a woman who was not there for ill health, just an older woman who made herself so visible, and suffered constantly with a swollen stomach finally could not walk and said her feet or ankles hurt. They took her to the hospital and brought her back and she stays in bed all the time with tubes for feeding. The administrator said at the time she went to the hospital, she was resigned to dying. I knew however, if she got out of the nursing home, it could be the break she needed. I am angry at the nursing home for giving anti-depressants to some residents when they should be banned entirely. Another in law of ours was in a nursing home with alzheimers in addition to not being able to care for herself, and she had an obstruction that required an operation. She lived a short time afterward. I was not aware at the time that anti-depressants were used everywhere, but now know this and I see the consequences, where the administrators think everything is a natural progression of illness. IT IS NOT. I am writing so that you may understand your brother in law better when he complains of his ankles. It is VERY LIKELY that his ankles are hurting. What to do? That is my eternal question. No one would suffer these "extra" condition if they would ban the anti-depressants. Now everyone can dispute me as is usually the case, but I maintain it is so, and your brother in law desterves understanding. Gail Michael
&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&& Gail: I don't understand it but you've been consistent from the start and care about your fellowman. While I've not had good experiences with anti-depressants, I do think some people are helped.There are unsolved mysteries in the world and feel nowadays, anything can happen. As the saying goes, sometimes truth is stranger than fiction. Thank you for reporting it. EddyJean
news.chi.sbcglobal.net - 21 Jul 2008 18:39 GMT Truth is surely stranger than fiction at times, or this statement would never have been made. Crohns cause is one of them. Sometimes I receive an anonymous approval on the cause, as it seems that people do not seem to want acknowledge its truth openly and sometimes a verbal approval and I never quote any of them. This one, however was written recently, not anonymously, but will not give the newsgroup or name of person who wrote it and do not like to quote anyone, but will make an exception in this case. "I see I am not the only person who pulls away from people on antidepressants. I'm sure there are people that will moan about this but they do not see the rollercoaster of emotions they project on people around them." It is only a light observation of the fact, but it does illustrate that others notice the strange phenomenom crohns and anti-depressants produce. Actually I do not know how to use the computer well, but under the name Kureforcrohns (my screen name) on AOL's blog? if you write in the name and hit search, on the second page, it says if you have questions about my posts or something to that effect, there is a place to write (I don't know where the answers are posted), but someone would do me a favor if they used it and asked a question and told me where to look for the answer. Thank You Gail Gail
EddyJean - 19 Jul 2008 08:44 GMT Brother-in-law Group: alt.support.alzheimers Date: Tue, Jul 15, 2008, 9:00pm (PDT+7) From: u35594@uwe (brianna_1938 via MedKB.com) I pray every day for guidance and I firmly believe God helps. My brother-in-law seems to be getting weak. He can hardly stand from his walker. He tells another"person" although no one present in the room to call my sister to help him. When it is really my sister he is talking to. Could he be forgetting what she looks like? He talks to other people in the room, and no one is there but her. My brother-in-law complains about his ankle hurting him. We took him to the ER. They x-rayed, did a ultra sound but could not find anything wrong. I don't think he is making it up because he seems to be writhing in pain. The doctor gave him pain medication but he sleeps a lot from it. He has this far away look on his face and he stares without moving his eyes at all. He seems to be in the middle stages of this dreadful disease. We can't take him out to dinner anymore or just shopping. Thanks for listening and if anyone has any feedback, please write. BRI
 Signature Message posted via http://www.medkb.com
&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&&& Brianna, I'm so sorry to hear of the very tough times your BIL, sister and you have been and still going through. This disease maimes, disables and kills equal to AIDS, yet there is no medicine for it in the richest country of the world except to fend for yourself. Shame on America. The only thing we can get for chronic illnesses is 'bandaid' medicine. It's pain pills, anti-depressants or nothin' at all.
EddyJean
news.chi.sbcglobal.net - 20 Jul 2008 03:30 GMT Bri,
Than you for answering. I am certain he is getting good care. If he is not in the nursing home, which is good fortune for him, where is he. I assume at home. It is too bad that nursing homes use anti-depressants when they can use other medication, like Valium which will harm no one and help the person that needs it. I have no objection to a nursing home except for the anti-depressants. They are a newer medication, I believe only the last 50 years or so. For some strange reason they are harmful to others that are vulnerable. I also recognize the good they do, if not for this exceedingly sad side effect. I will not bother answering the other posts, because their minds are set that I do not know what I am talking about. I wish they were right and I were wrong. In the meantime, I hope your brother in law is comfortable and even improving a little. I will pray that he is not in pain or unaware of the good care he is receiving. Since he is not in a nursing home, there is no danger of crohns disease. But if you want to read about it, there is group on this usenet titled Alt. support crohns-colitis. Sometimes I think it is better to know nothing of the illness. Sincerely Gail
brianna_1938 - 22 Jul 2008 04:46 GMT >Bri, > [quoted text clipped - 19 lines] >Sincerely >Gail Hello Gail,
My brother-in-law is at home. He gets the best of care here. My sister makes sure he is bathed, fed and takes his medication. She makes sure he gets a haircut and does not miss his doctor's appointment. He is very fortunate but since he does have this dreadful disease, he seems unappreciative. He is mean, foul mouth and paranoid all the time. We pray everyday for his well being. He is comfortable at home and as long as she can care for him, he will stay at home. I try to help as much as I can. But pretty soon, I am going to have surgery on my knee but I won't be down for a long time. I will stay in bed and be out of the way. Thank you, Gail, Bri
news.chi.sbcglobal.net - 26 Jul 2008 09:10 GMT Thinking of you and hoping things are a trifle better. And that all goes well with your knee. How important is every part of our body. Funny how someone we loved and love can suddenly turn to nastiness. I try to empathize with some, if only we can read their mnds. I dearly wish the world can read my mind, no vanity, just I think I see clearly on some subject that is dear to my heart and very hard to understand. Sincerely Gail
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