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Medical Forum / Diseases and Disorders / Alzheimer's / July 2008

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There are two ways to reply to the posts here......

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Evelyn - 28 Jun 2008 21:16 GMT
Hi all,

There are two ways to reply to the posts here......One is by typing an
actual reply, and the other is with a very loud silence.

Sometimes the latter is the kinder reply.    Especially when someone
who is obviously all wet posts some pet theory which is of no help to
those who have a sick relative to deal with.

Just a proverbial "word to the wise...."

Evelyn
carolinasongbird@gmail.com - 29 Jun 2008 01:30 GMT
Hi, Evelyn,

Haven't seen you around the board in a bit -- I missed you!

Songbird
Evelyn - 29 Jun 2008 04:56 GMT
On Jun 28, 8:30 pm, "carolinasongb...@gmail.com"
<carolinasongb...@gmail.com> wrote:
> Hi, Evelyn,
>
> Haven't seen you around the board in a bit -- I missed you!
>
> Songbird

Hi Songbird,

I am still reading here, and occasionally posting too.   Time Warner
pulled the plug on usenet groups, so I can only post and read through
google now.   It is a little more difficult, but I am managing.

I plan to get set up on one of the free servers  (got a list of
possibles) but have to figure out some things first.

I have read about your difficulties with your Dad.   It is just
amazing that this has been going on for so long.   My own father is
similar you know.   My mother is gone since 2000, but he has been
getting worse with vascular deficiency to his brain.

Just to let you know I admire your courage, and I know it is hard.

Best,
Evelyn
SamL - 29 Jun 2008 07:19 GMT
> Hi all,
>
[quoted text clipped - 8 lines]
>
> Evelyn

This is an unmoderated group Evelyn. People may post, reply to posts, or ...
not. Nobody needs you to give them direction, thank you.
Evelyn - 29 Jun 2008 12:51 GMT
> > Hi all,
>
[quoted text clipped - 11 lines]
> This is an unmoderated group Evelyn. People may post, reply to posts, or ...
> not. Nobody needs you to give them direction, thank you.

That is right.   And I can say whatever I want just as you can.  Thank
you.

E.
SamL - 30 Jun 2008 03:44 GMT
On Jun 29, 2:19 am, "SamL" <rep...@group.pls> wrote:
> "Evelyn" <evelyn.r...@gmail.com> wrote in message
>
> news:baf3404d-d698-4bd9-af14-cd79204fc348@t54g2000hsg.googlegroups.com...

> > Hi all,
>
[quoted text clipped - 12 lines]
> ...
> not. Nobody needs you to give them direction, thank you.

That is right.   And I can say whatever I want just as you can.  Thank
you.
*********************************

Thank you Evelyn, but I already knew that. However, now that you've stated
you are aware that on usenet people can say whatever they like, I assume
you'll be comfortable with me reminding you of this next time you attempt to
moderate the likes of ironjustice or Eddyjean?
Evelyn - 30 Jun 2008 11:40 GMT
> On Jun 29, 2:19 am, "SamL" <rep...@group.pls> wrote:
>
[quoted text clipped - 28 lines]
>
> - Show quoted text -

Hey if you can't take the heat, you should get out of the kitchen.
This is usenet.  Deal with it.

E.
SamL - 30 Jun 2008 11:54 GMT
On Jun 29, 10:44 pm, "SamL" <rep...@group.pls> wrote:
> "Evelyn" <evelyn.r...@gmail.com> wrote in message
>
[quoted text clipped - 31 lines]
>
> - Show quoted text -

Hey if you can't take the heat, you should get out of the kitchen.
This is usenet.  Deal with it.
***********************************************************
Wow ... didn't mean to rattle your cage like that :) Settle down.
Evelyn - 30 Jun 2008 17:57 GMT
> On Jun 29, 10:44 pm, "SamL" <rep...@group.pls> wrote:
>
[quoted text clipped - 40 lines]
>
> - Show quoted text -

No problem.

Evelyn
Dennis P. Harris - 01 Jul 2008 05:49 GMT
> This is an unmoderated group Evelyn. People may post, reply to posts, or ...
> not. Nobody needs you to give them direction, thank you.

and people can put lamebrains like you right into their
killfiles.

PLONK.
SamL - 01 Jul 2008 06:13 GMT
>> This is an unmoderated group Evelyn. People may post, reply to posts, or
>> ...
[quoted text clipped - 4 lines]
>
> PLONK.

Namecalling is for schoolyard bullies Dennis. And what makes you imagine
that *anyone* is interested in how you configure your newsreader?? A public
killfiler ... how pathetic.

Now please get back on topic. I know Evelyn originated this OT thread, but
it seems everyone wants to put their 2c worth in.
news.chi.sbcglobal.net - 30 Jun 2008 00:34 GMT
If enough of us join together we can make a difference.   The nursing homes
can become a safe haven for residents and workers alike.   I am certain much
of the screaming and crying would end.
I know of no more pitiful situation.
Gail Michael
June - 01 Jul 2008 03:02 GMT
I agree.   I had to reformat my laptop (Watch out for XP service pack 3 if
you have AMD processors)   Anyway I'm refilling my killfile.  Seems some
things haven't changed here.  I've noticed some new borderline trolls.  I
had to top post this time---couldn't resist LOL  ......June

> Hi all,
>
[quoted text clipped - 8 lines]
>
> Evelyn
EddyJean - 01 Jul 2008 08:04 GMT
There are two ways to reply to the posts here......  

Group: alt.support.alzheimers Date: Sat, Jun 28, 2008, 1:16pm From:
evelyn.ruut@gmail.com (Evelyn)
Hi all,
There are two ways to reply to the posts here......One is by typing an
actual reply, and the other is with a very loud silence.
Sometimes the latter is the kinder reply.   Especially when someone
who is obviously all wet posts some pet theory which is of no help to
those who have a sick relative to deal with.
Just a proverbial "word to the wise...."
Evelyn  
==========================================

There you go again, Evelyn, putting everyone down that has a different
view from yours..  Your the one who's all wet!  May I suggest you go to
Columbia University in NYC and educate yourself at the same place Dr.
Hunt did his research and taught? You might learn something new there
that you don't want to know.  The truth!

EddyJean
Jules - 01 Jul 2008 11:40 GMT
> On Sun, 29 Jun 2008 14:19:23 +0800 in alt.support.alzheimers,
> "SamL" <reply2@group.pls> wrote:
[quoted text clipped - 7 lines]
>
> PLONK.

>Namecalling is for schoolyard bullies >Dennis. And what makes you imagine
>that *anyone* is interested in how you >configure your newsreader?? A
public
>killfiler ... how pathetic.

>Now please get back on topic. I know >Evelyn originated this OT thread, but
>it seems everyone wants to put their 2c >worth in.

Well im from England, so i will put my 2pence worth in.
Evelyn - 01 Jul 2008 12:21 GMT
> There are two ways to reply to the posts here......  
>
[quoted text clipped - 17 lines]
>
> EddyJean

EddyJean,

You are a pitiful case, and you have no idea how pitiful.   It is so
obvious that you are stuck on an idea that isn't valid and you keep
trying to push it down peoples throats.   Some have told you politely
and some have called you a crackpot and some have you killfiled.   You
tell us you have alzheimers, but your memory is too good for that to
be true.   You do need help though, and I hope you get it.

Evelyn
news.chi.sbcglobal.net - 02 Jul 2008 02:55 GMT
I am here to tell you all once again, that nursing homes are not all they
are cracked up to be.   Answers or silence is fine with me, but I will never
back down from what I know to be the truth.    It is important to listen to
what the person going into the home has to say or shouts or cries for no
apparent reason except it is thought to be their difficult personality
coming to the fore.   I have seen many old people cry and shout and I know
they can be upset by the environment of the home with anti-depressants.
The person on the anti-depressant fares pretty well, but the damage it
creates for the others is pure killing.   Will write again, unable to now.
Gail Michael
On Jul 1, 3:04 am, eddyj...@webtv.net (EddyJean) wrote:
> There are two ways to reply to the posts here......
>
[quoted text clipped - 17 lines]
>
> EddyJean

EddyJean,

You are a pitiful case, and you have no idea how pitiful.   It is so
obvious that you are stuck on an idea that isn't valid and you keep
trying to push it down peoples throats.   Some have told you politely
and some have called you a crackpot and some have you killfiled.   You
tell us you have alzheimers, but your memory is too good for that to
be true.   You do need help though, and I hope you get it.

Evelyn
June - 02 Jul 2008 15:13 GMT
> I am here to tell you all once again, that nursing homes are not all they
> are cracked up to be.   Answers or silence is fine with me, but I will
[quoted text clipped - 7 lines]
> unable to now.
> Gail Michael

I agree.  But what is the alternative?   When my 100 year old MIL went into
the nursing home she was of sound mind.   She put herself into the NH
because she knew her surviving children who by then were in their 70's and
80's couldn't take care of her and she knew it.   She was incontinent and
couldn't walk without assistance.   Her youngest daughter offered to have
her stay at her home but MIL refused (with good reason, which I won't go
into here).  I was caring for a special needs grandson (trach, CPAP), so I
couldn't really take on anymore but I don't think she would have stayed with
us because she was one independent woman.   I think MIL had originally had a
stroke and within a few weeks at the NH was yelling out bingo numbers.  Yes
she was put on medication but she was having terrible hallucinations as
well.  The staff said they had never seem such a swift decline in mental
abilities.  I remember posting that here in the newsgroup back then and
Dennis suggested that it was probably due to a lack of circulation to the
brain.  I'm sure he was right.
Just a few years before when MIL was in her 90's she was telling a my
daughter that one of her worse nightmares was to be one of those old ladies
in a NH yelling out.  How sad.  BTW only 2 of her 6 children are still
living.  The daughter that offered to care for her died within a few months
of her mother.  Another daughter a year later.  We are a society that is
living longer and we have a conscience.   Not all NH are equal.
I'm posting this not because I think it will change Gail's mind but because
of those out there who feel guilty about putting their loved ones in a NH.
The last place my MIL wanted to be was that nursing home but she was in her
right mind when she made the decision to go.   Perhaps if your LO had their
right mind they might make the same unselfish decision......June
news.chi.sbcglobal.net - 02 Jul 2008 17:52 GMT
Thank you for your post, June.     You are very right, there is no good
alternative, so the nursing home becomes a necessity.     What I am getting
at, is that the nursing homes can be safe and comfortable, but choose the
anti-depressants which create a dangerous environment.    I believe they are
paid to prescribe these meds.
As Evelyn said, her MIL was prescribed anti-depressants and did well on
them.    That is true, but if NO ONE at the home was on an anti-depressant,
she may never have need them.   They create the need for anti-depressans
most often by their use by others.
I know it sounds strange what I am saying, but years of observation and
personal experience have made this statement as accurate as nothing I  have
ever felt.    Too bad, a simple revocation of anti-depressants can test the
theoy, and see the behavior of the residents as they become more comfortable
and quiet, as nothing is altering their mind and body.    I am really not
interested in what people say, help is what I need for thousands of people
to live safely and comfortably.    In years past Valium was the drug of
choice for nervous problems, but progress brought anti-depressants in a big
way and no one is going to back down.     Anti-depressants are mind altering
drugs like all hard drugs, and I am convinced they should be curbed, or at
least nursing homes should be dividided by whether they use anti-depressants
and those that do not.    That would be a fair choice for the residents.
Trouble is, this is a very simple, but very difficult concept to understand
about anti-depressants, and so many are sacrificed to this very unnecessary,
to say the least, hardship that can lead to tremendous harm.
Gail Michael
>> I am here to tell you all once again, that nursing homes are not all they
>> are cracked up to be.   Answers or silence is fine with me, but I will
[quoted text clipped - 7 lines]
>> again, unable to now.
>> Gail Michael
Evelyn - 02 Jul 2008 21:30 GMT
On Jul 2, 12:52 pm, "news.chi.sbcglobal.net"
<kureforcro...@sbcglobal.net> wrote:
> Thank you for your post, June.     You are very right, there is no good
> alternative, so the nursing home becomes a necessity.     What I am getting
[quoted text clipped - 34 lines]
>
> - Show quoted text -

Gail, my mother in law was OFF the anti depressants when she was in
the nursing home.    She had been put on them at home, because she was
so depressed.   She knew something was wrong but didn't know what it
was and felt she was losing her mind.   The anti depressants helped
that.

Everyone please take note of this;  Gail believes that if you are
around someone on anti-depressants that it can affect YOU.   This is
impossible of course.

We sure do get 'em here.

Evelyn
carolinasongbird@gmail.com - 02 Jul 2008 21:50 GMT
> Everyone please take note of this;  Gail believes that if you are
> around someone on anti-depressants that it can affect YOU.   This is
> impossible of course.

Not only impossible, but how would you explain people who are not in
NHs who need them? Who live alone? Who did they "catch" that need
from?

I do agree that if all you have is a hammer, everything looks like a
nail. Anti-depressants may well be prescribed to people who would be
better served thorugh alternative therapies because they ARE so
effective for some people. Generalizations are dangerous about any
class of drugs or therapies.

Personally I am grateful for the people who can take care of my LOs
when I do not have the skills, temperament, time or patience to do it
myself!
news.chi.sbcglobal.net - 02 Jul 2008 22:32 GMT
Evelyn,

I never said anti-depressants do not help.   Actually, they are very good at
curbing depression.    Again, my objection is the mind/body connection that
harms innocent people.    This is not of my doing nor of your MIL's doing.
It is just something that is fact.    And your statement that "of course
that is impossble" is your opinion.   Anything is possible, maybe not
likely, but possible.     It is strange, I agree, but strange things do
occur in the planet.    How the stimulants are able to transfer harm is not
explainable, or I would not have to be  writing.    My posts are to explain
and be aware of this strange phenomenom.   It can't always help as 99% or
99.9 percent feel as you do.   They go by reasoning.  Well crohns and UC do
not respond to reasoning.   They are illnesses like no other.
Inexplainable and misunderstood by everyone, including the physicians.
But I have read of physicians that had crohns, and they could not figure out
their situatiion.    So everyone stands to benefit if at least they suspect
there may be some truth to this.
And "We sure do get em here"  I could feel that way about you, but I do not.
I know where you are coming from, but my position seems to be in La La land
to quote others.  That is fine with me, but the one person that may benefit
is worth the discussion.
Gail
June - 03 Jul 2008 02:08 GMT
> Everyone please take note of this;  Gail believes that if you are
> around someone on anti-depressants that it can affect YOU.   This is
[quoted text clipped - 3 lines]
>
> Evelyn

Thanks for clearing that up for me, Evelyn.  I guess I didn't think that
anybody could possibly be that mentally challenged  and still be able to
type.  Hmmm considering the trolls that we encountered here I should have
known.......June
EddyJean - 04 Jul 2008 05:05 GMT
Gail, my mother in law was OFF the anti depressants when she was in the
nursing home.   She had been put on them at home, because she was so
depressed.   She knew something was wrong but didn't know what it was
and felt she was losing her mind.   The anti depressants helped that.
Everyone please take note of this; Gail believes that if you are around
someone on anti-depressants that it can affect YOU.   This is
impossible of course.
We sure do get 'em here.
Evelyn
=========================================
Evelyn,
Nothing is impossible, only to those with a narrow closed mind as yours.
CNN has reported children waking up during the night and predicting the
future, can you explain it?  You were posting on newsgroups from morning
to night, and you want us to believe you were the sole caretaker for
your MIL or was she doped up on anti-depressants all day? It seems, you
and your followers, are all pro-pharmica but say your retired????
I have nothing good to say about anti-depressants either. They try to
smother the symptoms but ignore the root cause: viruses..  I couldn't
believe nursing homes still prescribed "Haldol" when I believe Europe
banned the drug a long time ago. A good alternative to nursing homes is
research on cranial/facial diseases and medical schools  accountable to
"Neutral" Committees instead of allowing them to police themselves.

EddyJean
news.chi.sbcglobal.net - 02 Jul 2008 23:17 GMT
Come to think of it, Google does not seem to think my writings are too far
out to publish.    I am not computer smart, so I don't know how they
determine to publish someone on a blog?      On AOL search     Kureforcrohns
there are many of my writings there.
Gail
Evelyn - 03 Jul 2008 03:14 GMT
On Jul 2, 6:17 pm, "news.chi.sbcglobal.net"
<kureforcro...@sbcglobal.net> wrote:
> Come to think of it, Google does not seem to think my writings are too far
> out to publish.    I am not computer smart, so I don't know how they
> determine to publish someone on a blog?      On AOL search     Kureforcrohns
> there are many of my writings there.
> Gail

Gail you are not being "published" here.   This is a public newsgroup
and if you want to say the moon is made of green cheese and martians
are running around in your back yard you can do so.   It isn't
publishing, it is just a newsgroup.

I am sorry and hate to offend you, but I personally consider your
cockamamy ideas to be about as far out as a person can get without
getting yourself locked up.   Maybe you consider yourself harmless,
but this is a serious illness and people are really suffering with
family members who are ill.   Your strange and improbable theories
only create confusion and more heartbreak for them.

It is hard enough to have to place a loved on in a nursing home
without your ranting on about other peoples medicine sending weird
'vibes' to everyone else around them.

Get over it Gail.   It isn't true, and you are all wet, and you are
just making a nuisance of yourself.   Most people here have killfiled
you already.   That should tell you something.

E.
news.chi.sbcglobal.net - 03 Jul 2008 04:48 GMT
Evelyn,
Maybe I am not understanding you.   I do not mean Google is publishing my
comments on usenet.   They are printing them in another place I thought
maybe is called a blog.   where one puts the name    Kureforcrohns    and
then hit search.   I think it is an AOL with google activity.
Anyway, the big point is you think what I say about crohns and
anti-depressants has no merit.    I do not mean to confuse anyone, it is
just information I thought would be helpful.   Why otherwise would I be so
persistent.   But I will be persistent no longer. (maybe)   If I can offer
what I consider proof, I will write.    But I am not free to do so.   I am
not offended, worse has been said.   And killfilling me is the proper thing
to do if I am worthless in my discussion.     So, we can say we have both
expressed our opinions amiably?    That is what the usenet is for.    We
will never agree on the subject, so if I feel compelled to repeat the theory
in  certain circumstances, I must and you must do what you think is best.
Killfile me or let your answer be silence.
Sincerely
Gail
On Jul 2, 6:17 pm, "news.chi.sbcglobal.net"
<kureforcro...@sbcglobal.net> wrote:
> Come to think of it, Google does not seem to think my writings are too far
> out to publish. I am not computer smart, so I don't know how they
> determine to publish someone on a blog? On AOL search Kureforcrohns
> there are many of my writings there.
> Gail

Gail you are not being "published" here.   This is a public newsgroup
and if you want to say the moon is made of green cheese and martians
are running around in your back yard you can do so.   It isn't
publishing, it is just a newsgroup.

I am sorry and hate to offend you, but I personally consider your
cockamamy ideas to be about as far out as a person can get without
getting yourself locked up.   Maybe you consider yourself harmless,
but this is a serious illness and people are really suffering with
family members who are ill.   Your strange and improbable theories
only create confusion and more heartbreak for them.

It is hard enough to have to place a loved on in a nursing home
without your ranting on about other peoples medicine sending weird
'vibes' to everyone else around them.

Get over it Gail.   It isn't true, and you are all wet, and you are
just making a nuisance of yourself.   Most people here have killfiled
you already.   That should tell you something.

E.
news.chi.sbcglobal.net - 03 Jul 2008 04:57 GMT
Incidentally, I have someone in a nursing home, and I hassle the
administrator to the limit with no success.   I will say when one nurse
(male) asked me why he was hurting so much, I told him it was because this
person on an anti-depressant was sitting in front of his desk and observing
him all the time for lack of something better to do.    Within the week, he
said his doctor told him he has crohns.
I thought he would say something to the administrator, but he just gave
notice and quit.   Far as I know from his f riend who also left, says he is
fine.
They have just decided to remove the chair from its position as so many
nurses have left.    Does that say something.     I am tired as you must be
from this discussion.   so I will let go for the time being.
Gail
Usually I do not write so much as I am generally despaired.
EddyJean - 03 Jul 2008 17:11 GMT
EddyJean,
You are a pitiful case, and you have no idea how pitiful.   It is so
obvious that you are stuck on an idea that isn't valid and you keep
trying to push it down peoples throats.   Some have told you politely
and some have called you a crackpot and some have you killfiled.   You
tell us you have alzheimers, but your memory is too good for that to be
true.   You do need help though, and I hope you get it.
Evelyn
==========================================

Well, Evelyn, you, and your followers, never could tolerate the truth.  
Wrong again,  I didn't write I have Alzheimers. My late mother was
diagnosed with AD in the late stages with complete memory loss. Since
doctors know nothing on Ramsay Hunt Syndrome, I believe her diagnosis
was incorrect and should have been RHS.  RHS symptoms are very similar
to AD.  Both diseases cause dementia or memory loss and other
similarities in symptoms. I have RHS including dementia but no help for
it anywhere in the entire U.S.A.  Can you imagine the outrage folks
would feel knowing the late Dr. Hunt discovered the virus that causes
RHS but nothing was done except to cover up his work causing thousands
to needlessly suffer and die?????? If anyone deserves Justice for what's
been done to him, its the late Dr.Hunt!
By the way, most, as the church, thought Galilleo was a "crackpot"
because he believed the earth was round and not flat but jailed and
killed for being right. It's people like you, Evenlyn, who keep medicine
in the "dark" ages.

All that is necessary for evil to triumph is that good men do nothing
--- Edmund Burke

EddyJean
 
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