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Medical Forum / Diseases and Disorders / Alzheimer's / April 2008

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Dad can't handle MOM in AL

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carolinasongbird@gmail.com - 16 Apr 2008 21:41 GMT
I've had Mom on a waiting list for AL memory care for a few months,
just in case something were to happen to Dad. We had slot #1, so every
time one came open I would just tell him as a matter of courtesy,
knowing the time that he would say her care was too much would come.
Telling him of the openings was a non-threatening way to check in.

Last Thursday on the most recent of these checks, he said "It's time."
On the advice of the staff, we didn't tell her until we got her there
yesterday. We then told her it was temporary until she got stronger
and until Dad had a rest. This is true -- if she were to get stronger,
she could go home --I just don't see it happening, as she is a fragile
diabetic with a pacemaker, low thyroid, etc., etc., etc.

She accepted it pretty well. I went back to check on her later in the
day and she was not happy but not miserable. I visited for half hour
today and she seems to be adjusting fairly well, to the point where
the staff is thinking she may not need to even be in memory care but
might be OK in straight AL (which is in same building -- she eats with
those folks and participates in their activities).

This morning my dad calls and blasts me for not telling her before we
went. Then this afternoon he goes and signs her out, refusing to tell
staffer where he was taking her. (After she asked in a friendly way,
not a challenging one.) Staff all freaks out and calls me -- do I know
where they went? She's due for an insulin shot in an hour -- does he
have any insulin???

They just called and said he brought her back, and I am waiting to
hear more about what his explanation was at that point.

But any suggestions on how to help HIM adjust to this? He obviously
has a major case of the guilts, and he's acting on what will make him
feel better, not what will help her.
Evelyn Ruut - 16 Apr 2008 23:22 GMT
> I've had Mom on a waiting list for AL memory care for a few months,
> just in case something were to happen to Dad. We had slot #1, so every
[quoted text clipped - 29 lines]
> has a major case of the guilts, and he's acting on what will make him
> feel better, not what will help her.

Hi Songbird,

I wish I did have some magic phrase or sentence to offer that could help you
and your dad through this difficult time.    Your dad has always been a
strong minded somewhat controlling kind of a guy from what I recall of our
conversations in the past.

So the best thing to do would be to appeal to that ego-centered side of him.
If I were you I would stress that YOU are concerned about the terrible
strain on HIM.   That you don't want to lose either of them, and that caring
for her was exhausting him to the very limits of his endurance.    That he
needs the rest.   Tell him that he should keep her there in the assisted
living for at least a month, to get some much needed rest.   Tell him that
she will be getting good care, and that someone else will be doing the
bathing and the medicating and all the care that was knocking him out.

Of course he probably misses her after a lifetime of marriage, but just as
you have always been concerned about, he can't take care of himself and her
too, and do it at all well.   Turn it into concern for him if you want to
get him to listen.    Otherwise he will see it as a control issue again, and
that won't be a good thing for anyone concerned.

That's just my opinion, and of course you do what you think is best.

Signature

Best Regards,

Evelyn

carolinasongbird@gmail.com - 17 Apr 2008 19:42 GMT
I still have not had a chance to get the inside scoop on what he told
staff when he returned her, but apparently he took her home to get
some of her toiletries. They both were convinced she didn't have a
toothbursh, hairbrush, etc., although I told him I had purchased new
ones for her and showed them to her several times.

He told my mom's sister that Mom was very happy there at AL and was
eager to go back after he brought her home. So that's a good sign if
it is true -- with Dad you never know -- he tends to tell people what
he thinks they want to hear. He also said he was bored home alone and
would have to find some things to do.

After the way he tore into me yesterday morning, I plan to give him
some space to adjust and then will act as if nothing happened. He is
showing more signs of confusion himself, so I need to make some
allowances while still taking care of myself. There's no need to
defend or justify myself to him.

Songbird
sweetpickleNO@SPAMknology.net - 17 Apr 2008 21:11 GMT
Songbird, you're wise to let things go that you really can't change.  Much
easier on both of you.  Hope your mom will be satisfied; that will also make
it easier for all concerned.
Gwen

>I still have not had a chance to get the inside scoop on what he told
> staff when he returned her, but apparently he took her home to get
[quoted text clipped - 15 lines]
>
> Songbird
Evelyn Ruut - 17 Apr 2008 23:20 GMT
>I still have not had a chance to get the inside scoop on what he told
> staff when he returned her, but apparently he took her home to get
[quoted text clipped - 15 lines]
>
> Songbird

Hi Songbird,

Good thinking.   And I am so glad she is back at the assisted living.   I am
sure it is for the best.

Another story.... somewhat similar to the situation with the hairbrush
etc.....

When Ida was ill but still living on her own, I noticed she began carrying a
ratty handmade tote bag, made of all odd patches of fabric.   It was really
like something one might see a homeless person carrying.   It was wrinkly,
dirty, and had no closure.

Well, it just so happened that I had just gotten a free handbag, a nice
black microfiber bag that looked quite elegant, a freebie when I had
purchased some cosmetic item.    So I brought it to Ida and told her that
she could have it.   Well, she NEVER got the idea through her head it was
hers.   She would thank me, put it aside, and promptly forget the entire
conversation.   Then she'd ask whose bag it was.   I would tell her it was
hers.   She'd say "OK".... and let it be..... but again, only a few minutes
later it would catch her eye, and she'd give it to me again, saying here's
your bag.   So I left it there and the following week we returned and she
said..."Oh here, I found this bag here when you left".... and around and
around we'd go again.  :-)
Signature

Best Regards,

Evelyn

carolinasongbird@gmail.com - 18 Apr 2008 14:50 GMT
Now the story is that I wasted money by buying stuff she already had
at home ... yeah, I was going to sneak out her toothbursh the day
before...

Yesterday, Dad said she doesn't need memory care. (yeah, right.) She
doesn't even need assisted living, he says. (so what -- we're going to
go rent her an apartment somewhere and let her fend for herself
because he is tired of helping her change her Depends?)

The truth of the matter I suspect is that he is headed down the same
road, and he also can't handle it when she asks him to take her home.
(She asked me to do so yesterday and it just tears your heart out.)
She is so fixated on him -- she thinks he does everything for her.
Yesterday I asked her about her trip to the podiatrist to get her
toenails cut. "Oh, no, (dad) did it. He did a pretty good job too."
Considering my current situation with Dad, my first instinct was "what
kind of stunt is he pulling?" Then I realized Dad never did anything
someone else could be paid by Medicare to do for him. Same way with a
new outfit I had bought her when she moved. When several complimented
her on it, she said "someone" gave her the blouse and Dad was so
clever he found a pair of pants to match.

So we'll see what roller coaster today brings...

Songbird
sweetpickleNO@SPAMknology.net - 18 Apr 2008 17:36 GMT
Songbird, it is probably going to get even worse, unfortunately.  Just be
strong, my dear, and hang on.
Gwen

> Now the story is that I wasted money by buying stuff she already had
> at home ... yeah, I was going to sneak out her toothbursh the day
[quoted text clipped - 21 lines]
>
> Songbird
Chuck Whealton - 26 Apr 2008 16:32 GMT
On Apr 18, 9:50 am, "carolinasongb...@gmail.com"
<carolinasongb...@gmail.com> wrote:
> Now the story is that I wasted money by buying stuff she already had
> at home ... yeah, I was going to sneak out her toothbursh the day
[quoted text clipped - 21 lines]
>
> Songbird

Songbird:

The unfortunate thing is that your Father really COULD be going down
the same path.

We went through it with my Aunt and Uncle.

To make a long, sad story short, it turned out they were both
suffering from different types of dementia.  I think she took care of
him so we didn't realize he had serious problems, but then she just
got so far along there was no more hiding it.  Once she went into a
nursing home, his problems really began to stand out.  My cousins went
through some serious hell with that.

Hopefully, you're not going to get slammed with two parents suffing
from dementia at the same time, but the unfortunate reality is that it
can and does happen.

I certainly wish you the best.

Charles R. Whealton
Charles Whealton @ pleasedontspam.com
 
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